LaraLz @KlaraLue

Joined October 2024

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former dedicated teacher, pianist, trombonist, runner, hiker and yogi -now nothing left due to the debilitating illness #MECFS (#longcovid, #pwME)
Please see us

ANKE WEIN @Anke20707586

1K Followers 1K Following former dedicated teacher, pianist, trombonist, runner, hiker and yogi -now nothing left due to the debilitating illness #MECFS (#longcovid, #pwME) Please see us

Victoria @victoriakref

645 Followers 5K Following ME. LC. MCAS. Dysautonomia. Pots. Chronic Pain. Celiac. Hashimoto. mostly bedbound #F95

juniorsutter @juniorsutter

285 Followers 1K Following

Metalgearmike @Metalgearmike56

310 Followers 2K Following

marymccarthy @mccarthymary110

506 Followers 8K Following Inbox me let's make sense

Austria | war bettlägerig durch Aktivierung und Psychotherapie | gegen falsche Psychologisierung von organischen Erkrankungen 😀🙂 #MECFS #NoCovid

Martin Privec @Biwe94

2K Followers 2K Following Austria | war bettlägerig durch Aktivierung und Psychotherapie | gegen falsche Psychologisierung von organischen Erkrankungen 😀🙂 #MECFS #NoCovid

Dr. phil.; former professor; #Sozialpädagogik #Demokratiebildung #KinderundJugendarbeit #socialwork #fcsp 🤎🤍❤ Now #longcovid #mecfs 12/23 https://t.co/mzdstmuhps

Fabian Fritz @FFHambu

3K Followers 4K Following Dr. phil.; former professor; #Sozialpädagogik #Demokratiebildung #KinderundJugendarbeit #socialwork #fcsp 🤎🤍❤ Now #longcovid #mecfs 12/23 https://t.co/mzdstmuhps

Natural scientist, #FirstGen
Formerly lecturer +🚴🏿+🏃‍| Now #LongCovid since Jan'20 #PEM

🇬🇧 & 🇩🇪

Experienced inequity due to LongCovid so anonymous now

Speak Truthfully @Dare2beSmart

31 Followers 86 Following Natural scientist, #FirstGen Formerly lecturer +🚴🏿+🏃‍| Now #LongCovid since Jan'20 #PEM 🇬🇧 & 🇩🇪 Experienced inequity due to LongCovid so anonymous now

X @reevemusl_x

106 Followers 3K Following CEO spaceX🚀Tesla🚗CEO&Creator📊I investor Hyperloop 🏢 IBoring Company Founder.

Andreas Maria @ChristiConnell

263 Followers 3K Following I won't forgive me if I give up trying Citizen of the world

#MECFS, #POTS, #MCAS, #SFN, chron. pain +PostC. Bell0.PG4. INFP. IQ151. HSP. Former highperformer now 24/7 bedridden. Lang: DE-EN-NL #verysevereME #pwME

Klaus @bedridden_hero

827 Followers 3K Following #MECFS, #POTS, #MCAS, #SFN, chron. pain +PostC. Bell0.PG4. INFP. IQ151. HSP. Former highperformer now 24/7 bedridden. Lang: DE-EN-NL #verysevereME #pwME

plague rat 🐀 @x3r0gx4

7K Followers 7K Following

MEcfs seit 2002, Diagnose 2022, Ü50, HH
🍋LemonChallengeMECFS 💙pwME MEcfs 💙UniteToFight 💙PEM 💙POTS 💙CleanAir 💙LearnAboutME 💙GreatestMEdicalScandal

Anna Hill 🍋 LemonC... @annahhbella

2K Followers 4K Following MEcfs seit 2002, Diagnose 2022, Ü50, HH 🍋LemonChallengeMECFS 💙pwME MEcfs 💙UniteToFight 💙PEM 💙POTS 💙CleanAir 💙LearnAboutME 💙GreatestMEdicalScandal

MariaStein 🍋 @Steineundbasalt

980 Followers 1K Following #notrecovered #LongCovid / #MEcfs / #POTS / für Prävention #DieMaskebleibtauf // ich mag Steine.

Lord Hagen @LordHagen13

392 Followers 579 Following CFS since 2020

Dr. Sabine Hermisson ... @SabineHermisson

6K Followers 4K Following PD Dr. (empirical education research, religion) mother of Mila who suffers from very severe ME/CFS (Bell 0) #LearnAboutME

Alen Hasic @alenjackhasic

136 Followers 1K Following Extraordinary things are always hiding in places people never think to look.✨

Researcher @unil on health issues (now #MECFS #LongCOVID), related media reporting; in 2020 German Interior Min. COVID-19 task force.

Otto Kolbl @OttoKolbl

4K Followers 3K Following Researcher @unil on health issues (now #MECFS #LongCOVID), related media reporting; in 2020 German Interior Min. COVID-19 task force.

Lebe mit SAPHO/CRMO, lerne täglich über Immunologie, teile Erkenntnisse & Gedanken: für Betroffene, Interessierte und mich selbst. #RareDisease #Immunology

Stella @marv_stella

1K Followers 865 Following Lebe mit SAPHO/CRMO, lerne täglich über Immunologie, teile Erkenntnisse & Gedanken: für Betroffene, Interessierte und mich selbst. #RareDisease #Immunology

Your Only Source For Professional Dog Ratings Instagram and Facebook ➜ WeRateDogs partnerships@weratedogs.com | nonprofit: @15outof10 ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀

WeRateDogs @dog_rates

9.1M Followers 13 Following Your Only Source For Professional Dog Ratings Instagram and Facebook ➜ WeRateDogs [email protected] | nonprofit: @15outof10 ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀

Karin @pantoeffelchen

970 Followers 662 Following #dogs. #podcasts. #audiobooks. living a kafkaesque life due to #MECFS.

Working on Truffle/GraalVM at Oracle Labs.
ME/CFS Caretaker and Activist (https://t.co/gWxW16A5Op).
Austrian expat in Zurich.
https://t.co/piKOfYIYCL

Christian Humer @grashalm_

2K Followers 414 Following Working on Truffle/GraalVM at Oracle Labs. ME/CFS Caretaker and Activist (https://t.co/gWxW16A5Op). Austrian expat in Zurich. https://t.co/piKOfYIYCL

Daniel Missailidis, P... @DanMissailidis

4K Followers 626 Following Researching the cell biology of PD, ME/CFS & Long COVID at La Trobe Uni in Melbourne, Aus. Papers: https://t.co/JMi5U6cBLI

Donata @donata1608

856 Followers 936 Following Nach EBV Reaktivierung und #longcovid an #MECFS erkrankt, #hEDS , #OI #POTS https://t.co/L0Dxeh4c27

RonaldwDavis @Ronaldw_Davis

665 Followers 22 Following

Julie @_Junimond

1K Followers 1K Following Remember, your words can plant gardens or burn whole forests down

Hanna @hannapea121

1K Followers 366 Following 🛌 🌳 🌑 📚 🌊 🐕 seeking for support from bed for lifesaving spine surgery at Centro Médico Teknon Barcelona - #mecfs #eds #mcas

percidae_pub @percidae_public

195 Followers 213 Following

Severe #MECFS Patient
Bedridden. No energy to speak.
#MECFSBiomarkers
#RadicallyRestForMECFS
The battle I choose is for ME/CFS Diagnostic Biomarkers

Andrea Fighting for #... @MECFSNanoneedle

1K Followers 3K Following Severe #MECFS Patient Bedridden. No energy to speak. #MECFSBiomarkers #RadicallyRestForMECFS The battle I choose is for ME/CFS Diagnostic Biomarkers

Felix Kania @kania_felix

116 Followers 198 Following Now: Long Covid & ME, then: TUM, Startup, MMA

Thorsten Runge @Thorsten_Runge_

503 Followers 493 Following

ME/CFS Science @mecfsskeptic

4K Followers 463 Following In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

Bis 8/23: Schule, Wandern, Fußball, Schach, Wein, Kultur, Politik. Jetzt schwer erkrankt (MEcfs, POTS, CCI, MCAS), 23h/Tag bettlägerig. Antifaschistin. #eisern

Christina Koch @CK65375

1K Followers 95 Following Bis 8/23: Schule, Wandern, Fußball, Schach, Wein, Kultur, Politik. Jetzt schwer erkrankt (MEcfs, POTS, CCI, MCAS), 23h/Tag bettlägerig. Antifaschistin. #eisern

PhD in physics, Post-Covid condition, ME and POTS from SarsCov2 since 2022, was an athlete, scientist, and science communicator, now mostly housebound, she/her

MBwLCME @marinaflares

565 Followers 365 Following PhD in physics, Post-Covid condition, ME and POTS from SarsCov2 since 2022, was an athlete, scientist, and science communicator, now mostly housebound, she/her

Philipp @inselgeist97

615 Followers 795 Following I got M.E. from Covid Life on pause since 12/21.

ME/CFS-Awareness | gegen die Psychologisierung somatischer Erkrankungen | Buchhändlerin, Pädagogin, Schriftstellerin | Endlich Evidenz schaffen!

Minismental @minismental77

649 Followers 370 Following ME/CFS-Awareness | gegen die Psychologisierung somatischer Erkrankungen | Buchhändlerin, Pädagogin, Schriftstellerin | Endlich Evidenz schaffen!

Sean O'Neill @TimesONeill

28K Followers 1K Following Senior Writer, The Times.

Mom/Wife/MD/Pediatrician+❣️/🎶KindSolingens🧭/Severe Autoimmunity&MECFS/🧐🛟🪄THERAPY?🤷🏼‍♀️/SARSCOV2/➡️🚫able to work 💔weekly worse#EvidencenotOpinion⚠️🆘☮️

KinderdocNina⚖️�... @KinderdocNina

20K Followers 3K Following Mom/Wife/MD/Pediatrician+❣️/🎶KindSolingens🧭/Severe Autoimmunity&MECFS/🧐🛟🪄THERAPY?🤷🏼‍♀️/SARSCOV2/➡️🚫able to work 💔weekly worse#EvidencenotOpinion⚠️🆘☮️

A non-profit social enterprise dedicated to
people with #LongCovid + #ME.
💙📚 Home to the #pedanticzebra book club.
🛍️ https://t.co/8JlRWqxASF

Long Covid Advocacy �... @LongCovidAdvoc

14K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #pedanticzebra book club. 🛍️ https://t.co/8JlRWqxASF

Working to improve the quality of life of M.E. patients using every available means and opportunity #SocialEnterprise #pwME
Linktree - https://t.co/TNEwofcNnm

ME Foggy Dog @MEFoggyDog

7K Followers 4K Following Working to improve the quality of life of M.E. patients using every available means and opportunity #SocialEnterprise #pwME Linktree - https://t.co/TNEwofcNnm

Klaus @bedridden_hero

827 Followers 3K Following #MECFS, #POTS, #MCAS, #SFN, chron. pain +PostC. Bell0.PG4. INFP. IQ151. HSP. Former highperformer now 24/7 bedridden. Lang: DE-EN-NL #verysevereME #pwME

a n n a @mecfsanna

509 Followers 593 Following 25 y/o | she/they | ME/CFS since 2017 | Bell 0 | cannot respond to messages - i’m sorry

Unironisch 🍋 @kmpl_unironisch

765 Followers 624 Following Survival artist, Temu version. she/her * @ 343 ppm.

Ansa @Konstabel11

558 Followers 429 Following Mutter einer Tochter ,die seit 2006 schwerst an ME /CFS erkrankt ist .🤯🛌💞

Tobias @992tobias

5K Followers 89 Following MECFS 2010 - I don’t belong to the scars that they left on my soul

Lord Hagen @LordHagen13

392 Followers 579 Following CFS since 2020

Teenietwins, Fastenbegleitung, Sozialpädagogin, #adhs sofalägerig wg #mecfs. Profilbild: @einekleinebildersammlung

sandee_muc @dee_munich

680 Followers 601 Following Teenietwins, Fastenbegleitung, Sozialpädagogin, #adhs sofalägerig wg #mecfs. Profilbild: @einekleinebildersammlung

Karen Breece @BreeceKaren

385 Followers 989 Following Director, Writer

Giada Da Ros @Giada_Da_Ros

527 Followers 569 Following TV critic; President of the CFS/ME Italian Association (and CFS/ME patient since 1990); Socratic.

Kerstin (inaktiv) @KWollec

866 Followers 958 Following Trying to live with #MECFS. Trying to get better. Trying to learn. Tbh "trying" = euphemism for failing ~ pseudonym ~

Ärztin. Autorin. Ganzheitliche Medizin. | #MCAS #MECFS | https://t.co/UNY38Nxhre | #BHRT | https://t.co/EI0JHFqiBE | #LongCovid | #Autoimmun

Katja Aschenbrenner M... @DrAschenbrenner

ME/CFS, PoTS u.a. nach Covid 2021. Zuvor Wissenschaft/ Praktikerin Gesundheitswesen. Support für biomedizinische Forschung https://t.co/NcAdjpUYbz

MEFreake 🦥 🛌�... @MEFreake

1K Followers 611 Following ME/CFS, PoTS u.a. nach Covid 2021. Zuvor Wissenschaft/ Praktikerin Gesundheitswesen. Support für biomedizinische Forschung https://t.co/NcAdjpUYbz

To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.

Massachusetts ME/CFS ... @MassMECFS

2K Followers 727 Following To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.

https://t.co/jrET531Men illustrator, writer, photographer. Career interrupted indefinitely by myalgic encephalomyelitis #MECFS @franceyme.bsky.social

Illustrator Interrupt... @FranceyME

3K Followers 2K Following https://t.co/jrET531Men illustrator, writer, photographer. Career interrupted indefinitely by myalgic encephalomyelitis #MECFS @franceyme.bsky.social

CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” On justjo@bskysocial if X goes tu

Jo @cfs_jo

4K Followers 2K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” On justjo@bskysocial if X goes tu

Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer

PwME 4 bioMEdical res... @ValeBodi

4K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer

💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim

Carole Bruce @CaroleBruce17

7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim

Adam @ABrokenBattery

8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.

UCL | Kyoto Univ. | cell engineering, synthetic biology, iPSCs, data science, long COVID, cancer, genetics and neuroscience @amaticahealth

Nicholas Boyd-Gibbins... @NBoydGibbins

3K Followers 647 Following UCL | Kyoto Univ. | cell engineering, synthetic biology, iPSCs, data science, long COVID, cancer, genetics and neuroscience @amaticahealth

Project run by @renegaderes, a non-profit 501c3 focused on #MECFS & #LongCovid • https://t.co/kbmqa2yImN • https://t.co/IkTfALVBWC💙 Donate now ▶️ https://t.co/yNyiFapV80

RemissionBiome MECFS/... @remissionbiome

10K Followers 989 Following Project run by @renegaderes, a non-profit 501c3 focused on #MECFS & #LongCovid • https://t.co/kbmqa2yImN • https://t.co/IkTfALVBWC💙 Donate now ▶️ https://t.co/yNyiFapV80

Assistant-Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands. Interested in skeletal muscle function in health and disease

Rob Wüst @RobWust

7K Followers 735 Following Assistant-Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands. Interested in skeletal muscle function in health and disease

Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland

Niko Suvisto @nikosuvisto

771 Followers 405 Following Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland

Billy Hanlon @bhanlon15

14K Followers 13K Following ME/CFS | Long COVID | IACC | bhanlon15.bsky

Dan Wyke 🦠➡️�... @Dan_Wyke

13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)

Myalgic Encephalomyelitis ME + POTS 39 yrs
Donor to @mecfsbiobank for 10 years & @DecodeMEstudy
Please watch https://t.co/pUUJO34e5k
#pwME

Katy B @KatyBruce108

6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME

Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog https://t.co/HWItDyrb9H

Valerie Eliot Smith @ValeriEliotSmit

3K Followers 783 Following Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog https://t.co/HWItDyrb9H

Ill w/ severe Myalgic Encephalomyelitis. Neuroimmune disease. Bedridden/housebound. Interested in raising awareness of what M.E. is (& isn't). London, UK

Alice Woolf @me_awareness

3K Followers 735 Following Ill w/ severe Myalgic Encephalomyelitis. Neuroimmune disease. Bedridden/housebound. Interested in raising awareness of what M.E. is (& isn't). London, UK

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