3/ How would I know? #NME advocates (including the wife of one of Appel's #ALS patients who stabilized) met in D.C. with both @FDACBER and @alsassociation, in June of 2019. We BEGGED them to fund or work to expedite this new "REG-T" therapy. You can judge: youtu.be/9693SebHNt4?si…
2/ instead, @alsassociation and most #ALS organizations chose to rally behind a mega-windfall combi drug which has now blown away in the wind. Fellow pALS I want each of you to know #NME tried SO hard to convince #ALS' "leaders" which path to follow. It appears #ALS chose poorly.
1/ It works. Sadly, good news can also be tragic. How? Starting in 2017 #ALS "leaders" failed (i.e. declined) to rally around (and aggressively FUND) this proven #ALS winner- Dr. Appel's new T-cell therapy that drastically slowed and halted progression:
pharmexec.com/view/coya-ther…
Our cohort of 23 from all over the world bonded so well together and we look forward to staying in touch as we implement protocols and share our learning with our own institutions, whether it be to study neurodevelopmental or neurodegenerative disorders. 🙏🏽
#ALS#MND
Interview with Dale Clark and Ursula Quoyeser of Lafayette. Upcoming F5 Festival 4/27 raises funds for the Steve Gleason Foundation, benefitting victims of #ALS.
podcasts.apple.com/us/podcast/dis…
Die FDP ist nicht mehr zu retten.
2017 sagte Lindner
"#Lieber#nicht#regieren#als#falsch regieren" und es war falsch.
2021 sagte Lindner: "Wir sind uns mit SPD und Grünen einig" und es war falsch.
Hätte die FDP 2017 mit regiert, wäre sie heute bei 15%.
hpaulick.de
Die FDP ist nicht mehr zu retten.
2017 sagte Lindner
"#Lieber#nicht#regieren#als#falsch regieren" und es war falsch.
2021 sagte Lindner: "Wir sind uns mit SPD und Grünen einig" und es war falsch.
Hätte die FDP 2017 mit regiert, wäre sie heute bei 15%.
hpaulick.de
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