Madeline Pensiero @maddiepensiero
working to bring science closer to communities @cziscience and get a good rise on my Genoise sponge | views my own New York, NY Joined August 2017-
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🚨Now accepting applications for our third cycle of #RareAsOne Network RFA to accelerate research across 3 #RareDisease areas: 🔹Ciliopathies 🔹Channelopathies 🔹Inborn errors of metabolism Apply now: czi.co/RareAsOneRFA
Are you a patient advocate for a #RareDisease? #RareAsOne is uniting patient communities working to accelerate rare disease research. Your organization could be a part of this change—learn more about our new funding opportunity ➡️ czi.co/RareAsOneRFA
Unlock new opportunities in rare disease research. New #RareAsOne RFA will support patient-led organizations driving research in channelopathies, ciliopathies or inborn errors of metabolism. Apply now! czi.co/RareAsOneRFA
@noc_film Thanks to everyone who joined us for our 2023 #ScienceInSocietyMtg! It was a great opportunity to gather + hear from patient leaders, researchers & clinicians & other stakeholders about their incredible work toward finding treatments + cures for #RareDisease
Learn more about our #RareAsOne grantees who are breaking down research silos to meaningfully engage patients in #RareDisease research czi.co/3kGSuxj
I wish my little girl self struggling with an undiagnosed disease and complete sense of starvation knew that lipodystrophy would lead her to this incredible work. How Patients are Driving Rare Disease Research for their Loved Ones by @cziscience link.medium.com/Z6oYXOV6Mxb #RareAsOne
We are proud to join landmarks around the world in illuminating our offices for #RareDiseaseDay—showing rare disease patients they aren’t alone ❤️💚💙💜 #LightUpForRare
#BayArea friends: On Feb 7, @ChanZuckerberg will host a special SF screening of the film "No Ordinary Campaign" (@noc_film) + a short film highlighting the stories of some of CZI’s Rare As One grantees. Complimentary tix + event details at the link below: presidiotheatre.org/event/chan-zuc…
Join the best team in the business - the Science in Society team @cziscience. Looking for a new project coordinator! boards.greenhouse.io/chanzuckerberg…
Thanks to everyone who joined us for the 2022 #RareAsOne annual meeting! It was a great opportunity to gather and hear from our grantees, researchers and clinicians about their incredible work in finding treatments + cures for #RareDisease
🗣 Patients and patient advocates are experts in their disease area. 🗣 Learn about @ChanZuckerberg funding opportunities to support patient-centered, foundational science-focused projects aimed at advancing our understanding of #RareDisease bit.ly/3ASTYIv
We’re joining the movement to #LightUpForRare on #RareDiseaseDay to spread awareness of the 400 million people globally affected by over 7,000 rare diseases ❤️💚💙💜
Join our information session on Wednesday, February 16, for more details about these two RFAs to advance #RareDisease research. Learn more and register app.smartsheet.com/b/form/c3778f1…
At @ChanZuckerberg, we believe that science is better when patients are equal partners in research, so we’re launching two new RFAs centering patient-partnered collaboration 🧵 #RareDiseaseMonth bit.ly/3ASTYIv
"At the #RareAsOne Network virtual community meeting, we are bringing together a ‘network of networks’ to strengthen relationships within the rare disease community and support the sharing of learnings.” -@heidibp, #RareAsOne Program Manager
🚨 Now Open: @ChanZuckerberg is seeking information about the data interoperability challenges facing registries that are led or co-designed by patient groups. Learn more about the #RareAsOne RFI czi.co/39Ikacg
Say hello to our new #RareAsOne grantees! 👋🏽 20 patient-led #RareDisease groups join the effort to build diverse, inclusive communities, improve diagnosis + develop shared research priorities Learn more: czi.co/RareAsOneNetwo…
Welcome new #RareAsOne grantees! We’re excited to have you join the @ChanZuckerberg community + support your efforts to find treatments and cures for rare diseases czi.co/3CMTMeg
📣 Patient communities + researchers + clinicians + health tech developers + more: We want to learn to how to make it easier for patients to be strategic partners with researchers. Fill out our #RareAsOne request for information! czi.co/39Ikacg
🗣 Rare disease is anything but rare. As many as 7,000 rare diseases affect 400 million people globally. Learn about our #RareAsOne request for info that aims to understand the data interoperability challenges facing patient registries ➡️ czi.co/39Ikacg
Global Health Strateg.. @GHS
98K Followers 3K Following We believe in the power of advocacy & communications to ↑ health & wellbeing around the 🌍, leaving no one behind. Views = ours. Tweets from all offices.
Caroline Kee @CarolineDKee
5K Followers 2K Following Health reporter @NBC @TODAYShow. Formerly @BuzzFeedNews, @Healthline, @GHS. Equal parts optimist + hypochondriac. All views/RTs are my own.
Stiff Person Syndrome.. @TheSPSRF
385 Followers 159 Following Finding a cure for Stiff Person Syndrome through RArE: Research, Awareness, and Education. #sps #TheSPSRF
Smith-Kingsmore Syndr.. @SmithKingsmore
243 Followers 401 Following Smith-Kingsmore Syndrome is a rare genetic disease. We are committed to improve quality of life through medical advancements and community support.
Julie Raskin @julievraskin
640 Followers 1K Following Executive Director of Congenital Hyperinsulinism International @congenitalhi #StopTheLows #BeMySugar
Andra Stratton @livinlavidalopo
1K Followers 554 Following Co-Founder of Lipodystrophy United Program Associate for #RareAsOne @CZIScience. Always hungry. Sometimes funny. Opinions are my own.
heidi bjornson @heidibp
769 Followers 1K Following Rare Disease Advocate, #PCD, #RareAsOne Program Manager, @CZIScience, Attorney, Mom
Raquel Peck 🇧🇷 .. @RaqPeck
3K Followers 3K Following Consultant supporting change actors 🌎 | Ex CEO of @Hep_Alliance | Co-Founder @WGHLusofonia | #NOhep pioneer | #patientengagement #policy #rarediseases #health
Jeff MacGregor @jeff_macgregor
1K Followers 641 Following Chief Communications Officer @BaszuckiGroup
TESS Research Foundat.. @TESSResearch
562 Followers 583 Following We are a 501(c)(3) tax exempt public charity. Our goal is to fund cutting-edge research to find a cure for the genetic disease SLC13A5 Epilepsy.
IngridAdelaide @u0egqLORZf1YKi
1 Followers 248 Following
DanaDeQuincey @F9PA92BBunLpNE
2 Followers 395 Following
Narestutr @NarestutrcNiC4
0 Followers 399 Following
Soythe @SoythelS1xi
0 Followers 144 Following
NoraChrist @uVD5GblOLF1UMe6
3 Followers 306 Following
Mary @mary100siu
142 Followers 3K Following
Delead @Delead37549
26 Followers 2K Following
_LoomSilk @loomsilk98474
35 Followers 2K Following
NblHrmy_79 @nblhrmy56214
13 Followers 1K Following
LushSun @SunLush10148
72 Followers 2K Following
Jamie Moody @JamieMoody1657
85 Followers 3K Following
Ruth-Anne Pai, PhD @ruthanne_pai
92 Followers 202 Following Immunologist & Patient Advocate / Science Consultant for CZI. Views are my own.
Nagehan Ramazanoğlu .. @NagehanRB
220 Followers 724 Following Molecular biologist, PhD @ConnectingSci
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Mike Groseclose @GrosecloseMike
56 Followers 125 Following Cofounder @SmithKingsmore, husband, dad, brother, son #SpreadTheWordToEndTheWord
Deanna Portero @DeannaPortero
908 Followers 2K Following Can we scale access to gene-targeted therapeutics in a rapid, efficient, sustainable & equitable way? ’25 MPH/MBA candidate at @JohnsHopskinsSPH & @JHUCarey
Samantha Baxter @SamBaxterCGC
721 Followers 275 Following Licensed Genetic Counselor @ the Broad Institute. Interested in scaling clinical genomics, data sharing, & variant curation. Opinions expressed are my own.
RRPFORG @RRPFORG1
57 Followers 108 Following The RRPF exists to support patients, caregivers with education and access to RRP resources, as well as fund vital research. We are a Rare As One org.
International SCN8A A.. @SCN8AAlliance
767 Followers 467 Following The International SCN8A Alliance is working collaboratively with families, clinicians and researchers to advance the understanding of and treatments for SCN8A.
Larbi Mhirsi @goldofdesert
31 Followers 122 Following
Bubacarr @Bubacar38070743
50 Followers 528 Following Help people ever you know they can’t help you back
Rebecca Distler @rldistler
602 Followers 1K Following AI & digital health @PJMFnd | term member @CFR_org | former curator @globalshapers @globalshapersny | BA/MPH @Yale @YaleSPH | views mine | she/her
Sam @frozenpealover
39 Followers 102 Following A healthy cow lying on her side is not immobilized; she can rise whenever she chooses.
Azfar Hossain @AzfarDHossain
139 Followers 144 Following Learning medicine @mghmedres, very South Carolinian, he/him
Axial Stories @AxialStories
687 Followers 5K Following Analysis from @axialxyz - agency for great inventors - [email protected]
Gully Burns - Researc.. @SciKnowEngine
181 Followers 763 Following Gully Burns research into scientific knowledge engineering. Research Scientist at the Chan Zuckerberg Initiative. Seeking brilliance.
Tania Simoncelli @TaniaSimoncelli
534 Followers 575 Following
💙#MarkedByCovid #F.. @MarkedByCovid
28K Followers 6K Following Covid justice and remembrance, by & for those most harmed. - IG, FB, Threads, LinkedIn, Bluesky: @MarkedByCovid - Email updates: https://t.co/q5P5uZrNzY
Dario Taraborelli @ReaderMeter
7K Followers 4K Following Tending the commons 🌱 open source + open science @cziscience. Formerly: @wikimedia • @wikiresearch • @i4oc_org • naturalist 🐦 • he/him •🗿by @IanMulvany
Alexandra Kendall @alexelizkendall
72 Followers 419 Following Comms + advocacy @GHS. Health Equity & Reproductive Justice Enthusiast
TBRS Community @TBRSCommunity
164 Followers 183 Following The Tatton Brown Rahman Syndrome Community supports research and educates individuals with TBRS and their families, friends, and service providers.
FamilieSCN2A @FamilieSCN2A
2K Followers 1K Following Our vision is to find effective treatments and a cure for SCN2A disorders.
Mission: Cure @Mission_Cure
569 Followers 1K Following A new model for curing disease, starting with pancreatitis.
Michael thony @andrewbelson5
68 Followers 514 Following
Science and Technolog.. @Sci_Tech_Policy
1K Followers 2K Following The Science and Technology Policy Academy, founded by @deborah_d_stine, is for scientists, engineers, and health professionals interested in S&T policy.
Danielle Drachmann @dani_drachmann
744 Followers 3K Following Executive Director at @ketotic_hypo / EHP @healthparl / Patient Representative at @EMA_News
Burcin Ikiz, PhD @burcin_ikiz
327 Followers 563 Following Neuroscientist | Founder & Director @EcoNeuroOrg | Science Program Officer @BaszuckiGroup | Writer @PsychToday
INADcure Foundation @INADcure
100 Followers 89 Following Our mission is to support the development of treatments/cure for Infantile Neuroaxonal Dystrophy (INAD) & other forms of PLA2G6-related neurodegeneration (PLAN)
Vaccinated emoji 💪.. @VaccineEmoji
394 Followers 471 Following We need an #emoji for being vaccinated 💪🩹 | That's why we submitted a design proposal @unicode | Team @GideonDuschek @SoniaBoender | #VaccineEmoji #SoMe4epi
Michelle Bosché @michellembosche
56 Followers 549 Following Medicine, equity, writing, and anything outside 🏔️ @harvardmed @columbia
virt @virt
591 Followers 390 Following Connecting the world through meaningful virtual events. Demanding an end to the #DigitalDivide.🎙🌍 Join the campaign to #UnmuteTheWorld: https://t.co/XacUFerC3L
Global Health Strateg.. @GHS
98K Followers 3K Following We believe in the power of advocacy & communications to ↑ health & wellbeing around the 🌍, leaving no one behind. Views = ours. Tweets from all offices.
CZI Science @cziscience
27K Followers 573 Following Supporting the science and technology that will make it possible to cure, prevent, or manage all disease by the end of the century.
CACNA1A Foundation @cacna1a
2K Followers 2K Following Nonprofit dedicated to a brighter future for those with CACNA1A variants. On a mission to fund life changing research while supporting families along the way.
KIF1A.ORG @KIF1A
1K Followers 637 Following We connect families affected by KIF1A and relentlessly work to accelerate research. We need to find treatment for this rare neurodegenerative disease. Fast.
Tedros Adhanom Ghebre.. @DrTedros
2.0M Followers 2K Following Director-General of the World Health Organization. Retweets are not endorsements
Caroline Kee @CarolineDKee
5K Followers 2K Following Health reporter @NBC @TODAYShow. Formerly @BuzzFeedNews, @Healthline, @GHS. Equal parts optimist + hypochondriac. All views/RTs are my own.
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
Chan Zuckerberg Initi.. @ChanZuckerberg
26K Followers 462 Following Building technology, community-driven solutions and collaborative partnerships for a more inclusive, just and healthy future.
Natasha Loder 🐋 @natashaloder
22K Followers 4K Following Stories that matter. Health Editor, The Economist 💉 Writer ✍️ Broadcaster🎤 Cartoonist 💬 Views own.
Cure VCP Disease @CureVCPDisease
253 Followers 81 Following Rare-disease patient advocacy organization dedicated to driving the development of a cure for diseases caused by valosin-containing protein (VCP).
Stiff Person Syndrome.. @TheSPSRF
385 Followers 159 Following Finding a cure for Stiff Person Syndrome through RArE: Research, Awareness, and Education. #sps #TheSPSRF
Governor Kathy Hochul @GovKathyHochul
260K Followers 674 Following Official Twitter account for the 57th Governor of New York State. Social Media Use Policy: https://t.co/iwTBLsiPDh
Smith-Kingsmore Syndr.. @SmithKingsmore
243 Followers 401 Following Smith-Kingsmore Syndrome is a rare genetic disease. We are committed to improve quality of life through medical advancements and community support.
Andra Stratton @livinlavidalopo
1K Followers 554 Following Co-Founder of Lipodystrophy United Program Associate for #RareAsOne @CZIScience. Always hungry. Sometimes funny. Opinions are my own.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
heidi bjornson @heidibp
769 Followers 1K Following Rare Disease Advocate, #PCD, #RareAsOne Program Manager, @CZIScience, Attorney, Mom
Professor Senait Fiss.. @DrSenait
166K Followers 218 Following “We must accept finite disappointment, but never lose infinite hope”. MLK.
Raquel Peck 🇧🇷 .. @RaqPeck
3K Followers 3K Following Consultant supporting change actors 🌎 | Ex CEO of @Hep_Alliance | Co-Founder @WGHLusofonia | #NOhep pioneer | #patientengagement #policy #rarediseases #health
Chris Elias @ChrisJElias
14K Followers 1K Following President of Global Development at @gatesfoundation. Believer in the power of partnership to transform #health and #development. Views are my own.
Make Data Count @makedatacount
1K Followers 342 Following change movement committed to ensuring that the way data is used & cited is open, transparent, and responsible. join us on the journey to #opendatametrics
Ruth-Anne Pai, PhD @ruthanne_pai
92 Followers 202 Following Immunologist & Patient Advocate / Science Consultant for CZI. Views are my own.
Linsey Marr https://w.. @linseymarr
67K Followers 127 Following Engineering professor @virginia_tech with expertise in airborne transmission of viruses, air quality, nanotechnology. Avid recreational athlete.
NE Ohio Regional Sewe.. @neorsd
62K Followers 3K Following sewers are the original social media network. yes we are the Northeast Ohio Regional Sewer District. Customer Service: 216 881-8247
NWS Topeka @NWSTopeka
31K Followers 147 Following Official Twitter account for the National Weather Service Topeka. Details: https://t.co/ODOZBNcFKf #kswx
NOAA Atlantic Oceanog.. @NOAA_AOML
17K Followers 249 Following Atlantic Oceanographic & Meteorological Laboratory: A @NOAA research lab improving ocean services, ecosystem management, and hurricane research for the nation.
Netflix @netflix
22.6M Followers 2K Following Even Gronk was like, "me know that's not real money." 💀
Bernie Collins @bernie_collins1
37K Followers 504 Following Ex F1 strategist, two time marathon runner, lover of tea and now an author. Enquiries to [email protected]
Shana Kelley @ShanaOKelley
2K Followers 195 Following President, Chan Zuckerberg Biohub Chicago | Professor, Chemistry and BME @NorthwesternU | @KelleyLabs | Life Sciences Founder
Equality in Science @EqualityScience
2K Followers 3K Following All about equity, diversity, inclusion, justice in science. Tweets in personal capacity: Saher Ahmed
Oklahoma Department o.. @OKWildlifeDept
248K Followers 1K Following We manage & protect fish & wildlife, along with their habitats, while also growing a community of hunters & anglers, partnering with those who love the outdoors
Boston Review of Dunk.. @BostonDunks
854 Followers 2 Following Rating every Dunkin Donuts in the Boston area one by one based only on aesthetics
NYTimes Vows @NYTvows
17K Followers 1K Following PARODY. The Grey Lady covers White Weddings. IRL: @selenacoppock
ArtButMakeItSports @ArtButSports
456K Followers 230 Following I turn Art into Sports (and vice versa) | NO AI USED | “Everything I didn't know I needed" - follower testimonial | See inspiration? DM/tag us
P1 with Matt & Tommy @MattP1Tommy
125K Followers 11 Following Two F1 fans bringing you all the latest news, reaction, opinion and predictions from the best sport in the world! Business: [email protected]
Bangor International .. @FlyBGR
9K Followers 2K Following Bangor International Airport has convenient services, great connections to major cities, and easy access from all parts of Maine and the Maritime Provinces.
Megan Coyne @megancoyne23
77K Followers 981 Following @WhiteHouse Deputy Director of Platforms | Forbes 30 Under 30 | @GovMurphy @FirstLadyNJ @NJGov Alum 🤍
Heidi Larson @ProfHeidiLarson
7K Followers 154 Following Director, The Vaccine Confidence Project @vaccine_trust. Professor at @LSHTM and @IHME_UW. Anthropologist who studies rumors and emotions.
Alaska AVO @alaska_avo
22K Followers 36 Following official Alaska Volcano Observatory. Tweets do not = endorsement
Hawaii Volcanoes NPS @Volcanoes_NPS
54K Followers 801 Following The official Twitter account for Hawaiʻi Volcanoes National Park
USGS Volcanoes🌋 @USGSVolcanoes
154K Followers 101 Following Delivering official updates and info for U.S. volcanoes. https://t.co/eugs1G0ISb email: [email protected]
NWSHonolulu @NWSHonolulu
42K Followers 103 Following Providing weather, hydrologic, and climate forecasts and warnings for the protection of life and property and the enhancement of the U.S. economy.
Andrew Benson @andrewbensonf1
194K Followers 272 Following BBC’s F1 correspondent. https://t.co/fAooXjkK3j An official @BBCSport account. https://t.co/LeBoIoFVN7
Phil Buchanan @philxbuchanan
18K Followers 2K Following President of the Center for Effective Philanthropy (CEP). Author of Giving Done Right: Effective Philanthropy and Making Every Dollar Count
Natalie Pinkham @NataliePinkham
255K Followers 966 Following Sky F1….Hope and Homes for Children Patron… Insta @natalie_pinkham
Chris Medland @ChrisMedlandF1
263K Followers 982 Following Freelance @F1 journalist/broadcaster for @RACERmag, @Motor_Sport and others. Can be found pretending to know what I'm on about on @SiriusXM and documentaries.
Jennie Gow @JennieGow
141K Followers 1K Following BBC F1 presenter. Drive to Survive. Extreme E commentator. Stroke Survivor. Info@ [email protected]
NWS AWC @NWSAWC
11K Followers 282 Following Official Twitter account for the National Weather Service Aviation Weather Center. Details: https://t.co/oxUrgIAy4D
Jessica Moore 🌪⚡.. @DopplerJess
19K Followers 6K Following Capturing atmospheric drama with my camera 📷 🌪️ | Travel writer | Photographer | #NFTartist @SuperRare 💎 | Professional wx account: @JessicaMooreWx
Jess Medland @jessmedlandf1
65K Followers 539 Following Senior Producer of cars going round in circles on your TV 📺 | Opinions are my own | If it’s got an engine and wheels I’ll probably like it 🏎
Ben Hunt @benjhunt
19K Followers 1K Following Motorsport journalist - Author - AFC Wimbledon supporter - Bobber rider - Latest book: Growing Wings: https://t.co/9dPbAZfJHd
Girls Who Chase @GirlsWhoChase
7K Followers 642 Following Diversifying the “face” of weather & science. 💥 We inspire, empower & equip girls & women to pursue storms, the sciences & their passions.
Katy Fairman @katyfairman
49K Followers 880 Following Writing and talking about fast cars 🏎👩🏻💻 Host of the @smalltorquepod ✨ @fiaformulae ✍️🎤 Business enquiries: [email protected]
Katy B @PeachyF1
5K Followers 954 Following I like racing cars, baking, video games, craft, tea, dresses and lists, I don't like trousers.
David Croft @CroftyF1
494K Followers 619 Following Lead Commentator Sky Sports F1 HD. Business enquires: [email protected]
NASA Earth @NASAEarth
3.7M Followers 100 Following NASA’s favorite (habitable) planet. 🌎💚 Studying Earth from ground to orbit. Verification: https://t.co/86cw0iJQEy
Social Innovation Sum.. @socinnovation
15K Followers 2K Following Social Innovation Summit gathers the most potent leaders, thinkers and practitioners operating at the nexus of technology, philanthropy and business.
Sarah Owermohle @owermohle
10K Followers 1K Following It's Over-mall. @STATNews health reporter focused on Biden’s agenda and federal health policy. DM for Signal. (she/her)
Mark Hughes @SportmphMark
42K Followers 428 Following F1 for Motor Sport magazine, https://t.co/QaASJWBZJ4, https://t.co/g5CWHSJCR3 and SkyF1.
Tom Bellingham @TomP1Bellingham
266K Followers 586 Following 🎙️ Co-Founder of @MattP1Tommy & @we_know_wheel | 🏎️ F1 fan | ⚽️ LUFC | Contact [email protected]
Matt Gallagher @MattP1Gallagher
824K Followers 434 Following Co-Founder of @MattP1Tommy & @We_Know_Wheel, Presenter/Commentator [email protected]
Battery Voltas @BatteryVoltas
234K Followers 257 Following To whom it may concern, it's all F1 memes and fun. You won't read Valtteri Bottas the same way again. Parody account run by @FormulaJordi
Out of Context F1 @f1nocontext
209K Followers 63 Following @F1 / @Formula2 / @FIAFormula3 💙 Telegram: https://t.co/mPpAGXKfOv
Stephen Quake @StephenQuake
4K Followers 334 Following Head of Science @chanzuckerberg | Professor of #bioengineering and Applied Physics @stanford | Prolific #inventor focused on nexus of #biology, #physics + #tech
So, with the Tournament of Champions over, I can now say that my @Jeopardy Invitational Tournament game is... tomorrow!! Watch me, @tweetophobicpam and @gg_andrewhe do glorious battle on Wednesday for @KenJennings' amusement!
So... this was unexpected!! Watch me in the @Jeopardy Invitational Tournament, later this month!
Bringing the power of patients to accelerate rare disease research to @SheKnowsMedia co-lab at #SXSW today 💪🏻💪🏽💪🏾 #SXSW2024 #RareAsOne
We are proud to join landmarks around the world in illuminating our offices for #RareDiseaseDay—showing rare disease patients they aren’t alone ❤️💚💙💜 #LightUpForRare
We #LightUpForRare to help fill the world with color in celebration of everyone living with a rare disease ❤️💚💙💜 #RareDiseaseDay2024
#RareDisease patients are a powerful force in driving research forward. Find out how #RareAsOne is supporting their work: RareAsOne.org
#RareDisease patients are a powerful force in driving research forward. Find out how #RareAsOne is supporting their work: RareAsOne.org
🗣We’re expanding the #RareAsOne Network 🗣 Patients + families are leading the fight against #RareDisease & we’re excited to continue to support them with this RFA: czi.co/RareAsOneRFA
So thrilled to announce the 3rd Cycle of @czi's #RareAsOne Network, open to #RareDisease patient organizations around the world working to accelerate research in #channelopathies #ciliopathies and inborn errors of #metabolism. Applications due Feb 22!
Are you a patient advocate for a #RareDisease? #RareAsOne is uniting patient communities working to accelerate rare disease research. Your organization could be a part of this change—learn more about our new funding opportunity ➡️ czi.co/RareAsOneRFA
@ChanZuckerberg Science in Society Program announced a Request for Applications (RFA) for the Rare As One Network, a community of patient-led rare disease organizations that are working to accelerate research and drive progress in their disease areas. See below for more details!
Are you a patient advocate for a #RareDisease? #RareAsOne is uniting patient communities working to accelerate rare disease research. Your organization could be a part of this change—learn more about our new funding opportunity ➡️ czi.co/RareAsOneRFA
#Patient organizations are driving forward rapid progress in #RareDisease #research. We are thrilled @czi to announce the 3rd Cycle of the #RareAsOne Network, open to patient organizations around the world working in #channelopathies #ciliopathies and inborn errors of #metabolism
Are you a patient advocate for a #RareDisease? #RareAsOne is uniting patient communities working to accelerate rare disease research. Your organization could be a part of this change—learn more about our new funding opportunity ➡️ czi.co/RareAsOneRFA
Thrilled to announce the launch of a third cycle of the #RareAsOne Network - supporting #RareDisease patient organizations around the world driving forward #research in #channelopathies #ciliopathies and inborn errors of #metabolism. Applications due Feb 22!
Unlock new opportunities in rare disease research. New #RareAsOne RFA will support patient-led organizations driving research in channelopathies, ciliopathies or inborn errors of metabolism. Apply now! czi.co/RareAsOneRFA
We are so excited to expand the #RareAsOne Network!
Unlock new opportunities in rare disease research. New #RareAsOne RFA will support patient-led organizations driving research in channelopathies, ciliopathies or inborn errors of metabolism. Apply now! czi.co/RareAsOneRFA
📣 Amazing opportunity for #raredisease orgs (including international groups!) Spread the word! @rarediseasesint @eurordis @RareBeacon @irdirc @LaraBloom @CasaHunterBR @RareRevolutionM
Unlock new opportunities in rare disease research. New #RareAsOne RFA will support patient-led organizations driving research in channelopathies, ciliopathies or inborn errors of metabolism. Apply now! czi.co/RareAsOneRFA
I am very proud of the work we are doing at @ChanZuckerberg @cziscience and excited to announce the Measuring Metabolism Across Scales RFA grantees. Congratulations! #CZI #metabolism #singleCell #metabolome
Meet the 18 new teams diving deep into the mechanisms of metabolism, featuring projects exploring spatial mapping, metabolic networks + metabolite biosensors czi.co/490Wk97
Last week in Dakar, Senegal, we recognized the 20th anniversary of the #GrandChallenges Annual Meeting. The last 20 years have brought extraordinary advances in health innovation, from mobile apps to mRNA vaccines. Imagine what’s possible in the next 20 years if we continue to…
We’re thrilled to share that we’re launching a new @czbiohub in New York! Bringing together engineers + scientists at @Columbia, @RockefellerUniv and @Yale, #CZBiohubNY will engineer immune cells for earlier detection & treatment of disease
Had a wonderful day attending and presenting the impact of #RareAsOne at the 3rd annual @NotreDame Patient Advocacy Summit. The Minor in Patient Advocacy in the College of Science is an innovative program 🔬🎓and needs to be replicated! #RareDisease
We are a network of #GrandChallenges partners Supporting innovation in global health. GC US, GC Brazil, GC India, GC South Africa, GC Africa panel beautifully moderated by Sarah O'Brien #GHS
Excited to officially kick off the #GrandChallenges Annual Meeting in Dakar. Always inspired by this global community of problem solvers.
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