smashingwalnuts @smashingwalnuts

Our 10-y.o. daughter had terminal brain cancer the size of a walnut. Funding #ChildhoodBrainCancer research & appropriating #GabriellaMillerKidsFirstResearchAct smashingwalnuts.org Washington, DC Joined December 2013

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Nancy Goodman @NancyFGoodman

5 months ago

Thank you, @RepDebDingell, for championing the #GiveKidsaChanceAct in tonight's town hall. @JoeBaber1

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Joe Baber @JoeBaber1

5 months ago

Aren't all cancers the same? No. According to the National Cancer Institute, "Cancer in children and young adults is different from cancer that develops later in life. Some of the unwanted side effects of cancer treatments cause more harm to children than they do to adults. This…

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Gabriella Miller Kids First Data Resource Center @kidsfirstDRC

5 months ago

#KidsFirst supports your discoveries with more than data — check out the Cloud Credit Program to power your next project. Apply now: ecs.page.link/h8mny #NIHCommonFund

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Gabriella Miller Kids First Data Resource Center @kidsfirstDRC

5 months ago

#KidsFirstDRC virtual office hours are now held in collaboration with #Velsera and @wearecbtn. Tomorrow, get your technical questions answered by our experts and learn more about leveraging these great resources: ecs.page.link/wVdQX

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Gabriella Miller Kids First Data Resource Center @kidsfirstDRC

5 months ago

A single #KidsFirst dataset offers 2,000+ participants to study #congenitaldiaphragmatic hernias. Access data Kids First Data Portal ecs.page.link/LbmEH #DataForDiscovery

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Gabriella Miller Kids First Data Resource Center @kidsfirstDRC

7 months ago

With 1,204 genomes delivered in 2024, investigators have vast critical data at their fingertips. #KidsFirstDRC #RareDiseaseResearch #Genomics #DataForGood #TogetherWeRise

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Gabriella Miller Kids First Data Resource Center @kidsfirstDRC

7 months ago

Last year, more researchers than ever accessed the upgraded Kids First Portal, advancing discoveries globally. #KidsFirstDRC #PediatricResearch #ChildhoodCancer #RareDiseaseResearch #Genomics #TogetherWeRise

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Gabriella Miller Kids First Data Resource Center @kidsfirstDRC

7 months ago

A decade of progress in pediatric cancer and rare disease research—this year we highlight the advancements and innovators at #KidsFirst. #10yearsforcures, #KidsFirstDRC

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Gabriella Miller Kids First Data Resource Center @kidsfirstDRC

8 months ago

Patient foundations like @ccakids advocate for the Kids First Program to advance research of congenital conditions. #TogetherWeRise #KidsFirstDRC

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Joe Baber @JoeBaber1

8 months ago

Happy New Year! How appropriate that the 1st day of 2025 falls on #ChildhoodCancer Awareness Wednesday! Wear a gold ribbon today and spread awareness. May 2025 be the year for cures without late term side effects! It continues to be the number cause of death by disease. We need…

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Joe Baber @JoeBaber1

8 months ago

Give Kids a Chance, Priority Review Voucher, & Accelerating Access to Care acts were crafted to require NO Federal Funding, yet were cut by Congress. This must be first order of business! #FixIt4Kids #ChildhoodCancer can't wait! @SpeakerJohnson @johnthune @RepJeffries

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Rep. Jennifer Wexton @RepWexton

9 months ago

Gabriella was a courageous fighter and an inspiring advocate. This bill will change lives in her memory. Thank you to all those who pushed to get this across the finish line, especially @SenTimKaine and the relentless efforts of Gabriella’s mom, Ellyn, and her family.

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Joe Baber @JoeBaber1

10 months ago

About 1 in 257 children and adolescents (aged 0-19) will be diagnosed with cancer before age 20,* yet the general attitude is that's "rare." It certainly is not rare, but investment in research for kids' cancers is "rare." @cac2org @HappyQuailPress @leezawilllshe @TCellALLMom

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Joe Baber @JoeBaber1

12 months ago

INVEST IN RESEARCH that will reduce our dependency on chemotherapy to treat #ChildhoodCancer. Survivorship is increasing but so are those who have late effects from treatments. Today the lifespan of survivors is 57years while unaffected adults is 78 @cac2org @HappyQuailPress

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Joe Baber @JoeBaber1

a year ago

Every child should have the opportunity to grow up and be a senior citizen. You can help by supporting pending #ChildhoodCancer legislation to aid research funding. Check it out 4sqclobberscancer.com/on-capital-hil… @cac2org @HappyQuailPress @leezawilllshe @TCellALLMom @JanHalash @mary_lckc

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Joe Baber @JoeBaber1

a year ago

In the USA we see 47 daily conversations with parents about #ChildhoodCancer. It is NOT "rare!" Research to find a cure is what's rare. Make an impact. Tell your story & ask Congress to help you. 4sqclobberscancer.com/on-capital-hil… @cac2org @HappyQuailPress @leezawilllshe @Ellyn_Miller1

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Joe Baber @JoeBaber1

a year ago

Put a face on #ChildhoodCancer! From now until Sept. 9th, all of House of Reps & Senators are in recess & back home in their district offices. Make an impact. Show how all kids can benefit from good legislation @cac2org @HappyQuailPress @leezawilllshe 4sqclobberscancer.com/on-capital-hil…

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Joe Baber @JoeBaber1

a year ago

May is Brain Cancer Awareness Month. While brain cancers represent 25% of all childhood cancers, they kill more children than other cancers. While the 5-yr survival rate is 75%, some are as low a 2%. Use May to bring kids' brain cancer to the forefront! #ChildhoodCancer @cac2org

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Abbie's Army - Fight DIPG Brain Cancer @AbbiesArmy

a year ago

Beautiful Flo has sadly passed away after a valiant 13 month fight with #DIPG Sadly this is not yet a battle that can be won, her family wanted us to thank all that sent so many lovely pictures, cards & presents 💗 Sleep well beautiful girl. #ResearchMatters

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Lantern Pharma @LanternPharma

2 years ago

🎗️Today we raise awareness of #ATRT, an ultra-rare, aggressive brain tumor mostly affecting children under 3. We are committed to shifting the narrative for pediatric brain tumor patients, starting from our drug candidate, LP-184. $LTRN #ICCD2024 #ChildhoodCaner @hope4atrt