Arthur @unreal_arthur
ME Patient-ly Waiting for Biomedical Research | Volunteer @WeCrunchME #GreatestMEdicalScandal https://t.co/9VY3sk6fK2 crunchme.org United Kingdom Joined October 2022-
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Highlights from ABC Primetime Live segment on #MECFS Hillary Johnson describes how CDC employees joked about #MECFS as a fake bogus disease. The segment marked the release of Hillary‘s book Osler’s Web, which exposed the government’s inaction investigating #MECFS.
We were really encouraged by the support we had from the many Senedd Members (MSs) who visited the Severe ME Difrifol Cymru stall at Y Farchnad (The Marketplace) in @SeneddWales on 15th July… 1/4
🔥 Please share - Very important care campaign for anyone with ME #pwME #pwLC ♥️💙🫂 "Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness" justice4me.uk
Decades of research and medical neglect means that ME, and now Long COVID, still have zero FDA-approved treatments 💊❌ Zero. By contrast, other major diseases (now with lower total disease burdens) have dozens. Hard to recover without treatment... #MECFS #LongCovid #IACI
ME/CFS weist eine der schlechtesten gesundheitsbezogenen Lebensqualität aller bekannten Erkrankungen auf @wecrunchme 💙 #MECFS #LongCovid
What an excellent podcast on ME/CFS from the Guardian Science team. Thank you to @iansample, @NickyProctor, @ChronicResearch and Madeleine Finlay for producing one of the best summaries I have heard on the condition. A few highlights: theguardian.com/science/audio/…
The biggest well done to @NickyProctor for this! A powerful story told with grace, conveying a clear sense of what needs to change 💪
The biggest well done to @NickyProctor for this! A powerful story told with grace, conveying a clear sense of what needs to change 💪
1/3 ITV News are preparing a news report about #PoTS for middle/late September. They are looking for people who have a diagnosis & are willing to share their story. Complete this form BEFORE Friday 22nd August: surveymonkey.com/r/RBKTZCT We are still looking for volunteers from…
We still know precious little about PEM, but one thing's for certain--it represents an impaired recovery response to exertion. How do we know this? We had data from systems to molecules, replicated across myalgic encephalomyelitis cohorts originating regardless of patho-etiology.
Really pleased to say our @wecrunchme video series on ME is now available as a single ~ 15 min video on our YouTube channel 🙌 Hopefully a v digestible but thorough introduction for sharing youtu.be/VCiVZZnEsVU?si… #MECFS #LongCovid
Resharing my thread on the 1999 BBC Panorama episode Sick and Tired about #MECFS. It includes clips on how some children were pressured into psychiatric treatment, with parental rights removed, and how enforced “rehabilitation” left one boy with PTSD.
Resharing my thread on the 1999 BBC Panorama episode Sick and Tired about #MECFS. It includes clips on how some children were pressured into psychiatric treatment, with parental rights removed, and how enforced “rehabilitation” left one boy with PTSD.
🔬New @BhupeshPrusty paper breakdown - very cool paper: The study finds that people with ME/CFS & Long COVID have antibodies in their blood that may directly interfere with mitochondria (how human cells create energy and regulate inflammation) In simple language all findings 🧵
🧵For decades, parents of children with #MECFS have faced false accusations of Fabricated or Induced Illness It’s like being committed to a psychiatric hospital when you’re not mad… easy to throw around, very difficult to disprove — Clip - Dr Nigel Speight, Panorama (1999)
🧵For decades, parents of children with #MECFS have faced false accusations of Fabricated or Induced Illness It’s like being committed to a psychiatric hospital when you’re not mad… easy to throw around, very difficult to disprove — Clip - Dr Nigel Speight, Panorama (1999) https://t.co/4EQIQ2WJLE
In Maeve Boothby O'Neill's final weeks, when she was dying of malnutrition caused by ME, social services were investigating her mother Sarah Boothby for fabricating or inducing her illness - and considering Maeve's removal from her care. thetimes.com/article/c5de6b…
‘As my daughter died of ME, the state met in secret to blame me.’ ‘Safeguarding’ nurses, social workers, & mental health workers were assessing Sarah Boothby. As Maeve remained untreated. The Times. thetimes.com/article/c5de6b…
Paediatrician Dr Nigel Speight, said parents of sufferers of ME are “a sitting duck” for allegations of FII (Fabricated or Induced Illness). “Without a diagnosis of ME, the guidelines on FII will raise the suspicion of FII in nearly every case of undiagnosed ME.”
Paediatrician Dr Nigel Speight, said parents of sufferers of ME are “a sitting duck” for allegations of FII (Fabricated or Induced Illness). “Without a diagnosis of ME, the guidelines on FII will raise the suspicion of FII in nearly every case of undiagnosed ME.” https://t.co/pw7zH21tMQ
Melissa Jordan @melissacreate15
7K Followers 8K Following Passionate about: children's books, nurturing reading for pleasure, the role of literature and language in developing empathy and re-connecting with nature.
Linda @l_shedd35
251 Followers 3K Following
Oswexeex @Oswexeex6756
17 Followers 2K Following
Mae @m_mae97
175 Followers 3K Following
Measbou @Measbou5831551
6 Followers 476 Following
Mary 🧡🇬🇧🇪... @running4rights
5K Followers 6K Following Bolivia born Brit in France. Lefty Catholic Rad Fem. Biologist with consistently unpopular fact-based opinions. Rejoiner. Masked or outdoors. Free Palestine🇵🇸
Amba @Amba433069
2 Followers 95 Following The lord hates those whose lips tell telLise.but he pleases with people who tell the truth.- proverbs .12 22
Christine Williams @TillyFlop1
2K Followers 4K Following I'm an animal advocate. I hate cruelty to innocent animals. I'm against puppy farms, animal testing, circuses, hunting, dog & horse racing & BSL. I'm vegan
Dreamy Run @dreamy_run
1K Followers 856 Following 'Someone who knows what they're talking about.' ABD PhD, social science. LongCovid (Feb. 2020) & related illness (POTS, ME, etc.). 🇨🇦 🇺🇸
Rachel_LC @LongCovidRehab
138 Followers 97 Following long covid and ME/CFS June 22. Previous rehabilitation consultant. funcap27 2.2
Tony Field @theillme83
18 Followers 118 Following 4 years in horizontal mecfs prison/long covid 2021
Environmental and Com... @FatigueMe92484
1K Followers 1K Following Health educator/patient researcher. Background in biology/Public Health. Topics: #MECFS, #PTSD, #LongCovid, #MCAS, #MCS, environmental illness etc.
LuxyME💙 @LuxyME_
53 Followers 336 Following Myalgic Encephalomyelitis ❤️🩹 Encefalomielitis Miálgica ❤️🩹 #pwme #Anpe #Pots #HOPE 💚
verenabee @verenabee
420 Followers 373 Following Classical Pianist, Piano teacher and lover of the sea and the mountains (a little less). Thrown out of life as I knew it by Covid and ME/CFS since Feb 2023.
Nikkie Gallant 💜 @... @nikkie_music
2K Followers 5K Following Singer/Songwriter, potter, & a whole bunch of other things. She/her/they/them 🎶📖✍️🎤🎸🍶🏳️🌈🖼️💃🎛️ 🥄 bluesky mstdn ca & insta nikkiegallant #PwLC
Lou @loulabelleHK
280 Followers 2K Following #pwME since 2020 | stuck in a venlafaxine tapering hell haze | lover of cats/animal/funny videos or anything else that makes me belly laugh
cbra_ndstätter @cbra_streifen
479 Followers 1K Following Moving to bluer skies: https://t.co/exYeHIvMlG Bürgerliste/DIE GRÜNEN Solidarisches Salzburg #millionsmissing (sie/ihr)
Kyle @kylofone
1K Followers 1K Following carer for my partner with very severe ME / Long Covid. i like loud guitars and tiramisu
Catherine Harris @oovChirrupvoo
2K Followers 5K Following Christian, PLAID CYMRU 🏴. 🇹🇹. Long Covid, ME. Kidney cancer and DV survivor. Sometime HA NED, former Chair Haringey Pensions Committee.
Emily Johnson (is on ... @emily_rj
8K Followers 6K Following Design, news/book edits, social media, PR, linguistics. Medical/academic research & data. Disability/accessibility in media. Patient advocate. #FBLC #EDS #pwME
Chronically Illumise ... @ChronIllumise
416 Followers 781 Following Lily. #pwME, pwPOTS, Pokémon fan (she/her).
Yr buskined mistress ... @rhymeswithvery
2K Followers 4K Following PVS: Booster #2 05/22. Now: OH, dysautonomia, MCAS, pre-diabetic, fibromyalgia, #ME, corneal basement dystrophy syndrome. Pro-vax but #FcktheNIH. Mask up FFS.
Victoria @victoriakref
643 Followers 5K Following ME. LC. MCAS. Dysautonomia. Pots. Chronic Pain. Celiac. Hashimoto. mostly bedbound #F95
Gwyn @gw411954
251 Followers 957 Following
Lou Thornley @Lou_vs_ME
696 Followers 995 Following Prevention beats harm. Ramp up pandemic protections. Might look well at times - but battery often flat. #ME #LongCovid
Suzaku has Long Covid... @Suzaku_is_tired
1K Followers 2K Following Long Covid / MECFS patient since March 2021 • 🇪🇦🇨🇵🇬🇧 •
🔴🔴🔴 Jo Hanna... @Jo_Hanna_Jo
2K Followers 5K Following Lit.wiss., Autorin (Pseudonym), viel zu früh verwitwet, Hunde-"Mama", Team Wiss.,#NoCovid. Kontrollgruppe. Die Maske bleibt auf! KEINE NOMINIERUNGEN!! (Block)
Gwen B. with LC🦩�... @PenGwenWithLC
7K Followers 5K Following P/w Long Covid, writer, nerd, ENM, loudmouth, green thumb, artist, queer, ND, & Disability Extremest! No alt text= no RT. Dont tag me, ask to be added to the GC
Carly Welton @carlywelton
561 Followers 1K Following She/her. Mostly talking about life housebound by chronic illness (when I have enough energy to). #pwME
Liz That Girl CA @LizThatGirlCA
3K Followers 7K Following Brave magical realist, nurse, musician, outdoor enthusiast. Rollin' with it, baby! As long as we're able to laugh, there's hope...
Bradypus torquatus @izaugsmei
1K Followers 2K Following Teacher, activist, nature lover. Purpose, community, education, global & local... inner & outer. On a #longcovid quest. All views my own.
btduv @btduvhmnfr
80 Followers 202 Following
Pwd Online Safety @pwdonlinesafety
410 Followers 3K Following People with Disabilities deserve respect, safety, kindness and compassion. Bullying, harassment, elitism, ableism, hate, insults, belittling are UNACCEPTABLE.
💚🤍💜Hoardosau... @coccinellanovem
21K Followers 10K Following “If a woman cannot stand in a public space & say, without fear of consequences, that men cannot be women, then women have no rights at all.” Helen Joyce
Laurie Grace @laurie43922
120 Followers 1K Following Human kind cannot bear very much reality.🐈🌱🌎🌈😷🇵🇸🌻♿
Jürgen Sasse @DeeJaySas
857 Followers 648 Following Hydrino®/SunCell® Energy Proponent | https://t.co/xvJpaAmrJS | Invested in BLP Inc, Tesla Inc, ONT plc | Scientist, Chem, Mol Biol PhD
Unironisch 🍋 @kmpl_unironisch
762 Followers 618 Following Survival artist, Temu version. she/her * @ 343 ppm.
MRussell @DrJizo
783 Followers 2K Following PsychClinician(30+yrs),caring4 those injured by a crazy world. Science! Birdlover•Plant&Insect Defender#Lupus#Vasculitis #MasksInHealthcare#LongCovid 💚🤍💜🇺🇦
Karl @karlander_
2K Followers 3K Following Ich twittere zum Thema ME/CFS. I tweet about the topic ME/CFS.
Cinnamon rolling alon... @LongCovidFight
2K Followers 2K Following Supporting people with chronic illnesses, including #MECFS #pwME #LongCovid #pwLC #LongCovidKids #PoTS #MCAS. #CovidIsNotOver #AirborneAware
Nele @NeleHelena
5K Followers 1K Following I tweet about the things I don't like: severe chronic illness / ableism / toxic positivity / medical gaslighting / dysautonomia / MEcfs / autoimmunity
Lara 💜🤍💚 @Lara1273
3K Followers 4K Following Former paediatric nurse. Ex fencer and 🤺 coach. Cervical Myelopathy. Spinal cord compression. Disabled Lhermitte’s. Longcovid. POTS.
Dr LG (is a longhaule... @subversivepsych
5K Followers 6K Following 🇮🇪Dr(MD/MRCPsych)BSc(Hons)Pharmac. Covid 04/20⏭️ #LC+VI 02/21 ⏭️ ⬆️coag,#MECFS, ⬇️T4. Now in remission. Not medical advice.
Arsen Balls @ArsenBalls
1K Followers 3K Following Former taxi driver of Cab 666, Satan’s official driver. Fmr political staffer to hazzas. MECFS certified meat in human skin. Living on unceded Kokatha land.
Jenny Bunker (PhD) @JennyBunker
873 Followers 3K Following Pepperaddict, Spinoza fan, glitter evangelist. Never knowingly underdressed. (Suffering from Long Covid since March 2020)
NHS woman @NhsWoman
1K Followers 3K Following Sex not gender. Fighting to help my daughters with Long Covid (4 years). Politically homeless. Good egg.
Delayed Gratification @dgquarterly
11K Followers 2K Following The Slow Journalism magazine Quarterly in print, weekly in your inbox – https://t.co/bKqw2gaEgT
Sarah Weston RD pwLC/... @SarahWestonRD
2K Followers 5K Following UK Dietitian living in 🇳🇱 #LongCovid #PVS #OI Jan 21 #ME Facilitator PACE Programme Trustee @healthedtrust
@misskaterob @misskaterob
73 Followers 78 Following 🏴representative @longcovidkids 🧡 #Longcovid advocate🧡 #Longcovid parent .
Severe ME Difrifol Cy... @Severe_ME_Cymru
9 Followers 16 Following Informal group of people in Wales with Severe/Very Severe ME and their carers. Campaigning to get Motion 8884 through to a debate at the Senedd. #MEadvocacy
WhistleblowersUK @WB_UK
8K Followers 2K Following Not-for-profit organisation supporting #whistleblowers everywhere. #OfficeOfTheWhistleblower. [email protected]
mecfs.hu @mecfs_hu
7 Followers 1 Following Cikkek, hírek magyarul. A magyar ME/CFS betegközösség oldala.
PostX #UniteToFight20... @TeamPostX
2K Followers 2K Following Co-Founder of @U2Fight_World /#UniteToFight2024//Long Hauler since 2020
The Whiteley Clinic @whiteleyclinic
1K Followers 843 Following World-renowned leaders in #varicoseveins treatments. First in UK to do endovenous surgery in 1999; #Microwave in 2019 and #HIFU #Sonovein in 2019.
Beth Pollack @ChronicResearch
160 Followers 5 Following Research Scientist @MIT🔬Leads Research on Chronic Illnesses & How They Connect🕵🏻♀️ME/CFS Long COVID Lyme POTS EDS MCAS & Co | Env Health🌱Advocate & Advisor
Ian Sample @iansample
44K Followers 1K Following Guardian science editor and podcast presenter | PhD | Massive, shortlisted Royal Society Science Book Prize | Sony Award | Leaks to [email protected]
Co-operative Party @CoopParty
32K Followers 4K Following The party of the UK's co-operative movement, in partnership with @UKLabour.
Rachel ♿ 🌍 🇪�... @ChasingGlimmers
20K Followers 22K Following Northumbrian. Severe M.E Sufferer. SEND Mam. Disability Rights Advocate. Opinions Own. Writer @TheCanaryUK Blogger @wearecarers
AccentureUK @AccentureUK
17K Followers 1K Following Discover the innovative and market-leading work Accenture in the UK does every day to make a positive impact within the communities we live and work in.
MBwLCME @marinaflares
562 Followers 364 Following PhD in physics, Post-Covid condition, ME and POTS from SarsCov2 since 2022, was an athlete, scientist, and science communicator, now mostly housebound, she/her
Mary 🧡🇬🇧🇪... @running4rights
5K Followers 6K Following Bolivia born Brit in France. Lefty Catholic Rad Fem. Biologist with consistently unpopular fact-based opinions. Rejoiner. Masked or outdoors. Free Palestine🇵🇸
Dr. Ashley | The Pani... @PanickedFoodie
9K Followers 3K Following Scientist | Cornell Alum | Bedbound w/ severe illness | Gamer | #NutcrackerSyndrome #MayThurnerSyndrome #Endometriosis #B12 #FluidMechanics #CovidIsAirborne
Dr. Pat Soon-Shiong @DrPatSoonShiong
113K Followers 1K Following Chairman of Chan Soon-Shiong Family Foundation, Exec Chairman ImmunityBio, Exec Chairman of Los Angeles Times
RonaldwDavis @Ronaldw_Davis
656 Followers 22 Following
Brain Inflammation Co... @BrainInflCollab
8K Followers 70 Following We are organizing a coordinated research effort to revolutionize the diagnosis and treatment of #neuroinflammation illnesses and #mentalhealth symptoms.
Alba Azola, MD @AzolaAlba
3K Followers 858 Following Passionate about treatment & research of ME/CFS and LC. Chronic illness deserves chronic curiosity. @RehabHopkins and @HopkinsKids. My opinions are my own.
Dr Michelle Scoullar ... @MJLScoullar
947 Followers 1K Following Paediatrician.👶🏽👧🏻🧒🏽 Researcher. Global health specialist. Health equity | Preg, newborn, child. Stop stunting | Stop LongCovid.
Hung-Jen Chen (Oliver... @oliverch77
598 Followers 185 Following Postdoctoral Scientist in #immunology, #immunometabolism, #infectiousdisease, and #longcovid
Esther Melamed @MelamedEsther
103 Followers 142 Following
Keystone Symposia @KeystoneSymp
15K Followers 916 Following A catalyst for accelerating life science discovery and connecting scientists within and across disciplines at symposia worldwide. RT does not imply endorsement.
Maureen Hanson @DrMaureenHanson
6K Followers 146 Following I am a Professor in the Molecular Biology and Genetics Department at Cornell University in Ithaca, NY.
@PolarGlobal @PolarGlobal
39K Followers 500 Following Inventors of the world's first heart rate monitor, we're here to keep you posted on all things Polar and help you with any questions about Polar products.
Carrie Kellenberger -... @globetrotteri
5K Followers 1K Following 👩🦼 9 biologics later 🎨 Artist & Author 🦋 I write about #Disability #Arthritis #axSpA #Fibromyalgia #ME #ChronicPain 🤝 @spondylitis @teamfibro
Eliza @elizaclove
687 Followers 137 Following 28 🇬🇧 😷 M.E + Long Covid since hospitalised with Covid in 2023. I’m using this account to vent and find friends with my condition.
Paul Lewis @paullewismoney
158K Followers 2K Following Financial journalist, broadcaster, and speaker. Seek the truth, find the truth, tell the truth. Unequivocally for free speech & press. Wilkie Collins expert too
Rachel_LC @LongCovidRehab
138 Followers 97 Following long covid and ME/CFS June 22. Previous rehabilitation consultant. funcap27 2.2
Susan Kandarian @susan_mecfs
1K Followers 787 Following Professor-scientist disabled due to worsening #MECFS. Ally for ppl with infection-associated chronic conditions. #longcovid 🏳️🌈
Tony Field @theillme83
18 Followers 118 Following 4 years in horizontal mecfs prison/long covid 2021
AliveCor @AliveCor
8K Followers 760 Following AliveCor is transforming cardiological care for patients and providers. Our KardiaMobile devices are the most clinically validated personal ECGs in the world.
Rob Messenger @RobertDMesseng2
40 Followers 272 Following Carer - son very severe ME - longing to see him live again
Ayshah Tull @AyshahTull
11K Followers 3K Following Journalist | Presenter| Friend | @channel4news | Netballer | Trustee @JSchofieldTrust Agent @KnightAyton
Suzannah Rogerson @Suzannah_journo
341 Followers 587 Following Specialist Multimedia Producer @Channel4News | Lancashire lass living in Yorkshire | Dog lover | Views my own |
Joe Lajszczuk @JoeLajszczuk
203 Followers 293 Following Producer - Digital, Channel 4 News | Previously TV stuff for Discovery, National Geographic, Smithsonian, ITV & Channel 4 | #bcafc
TPP @TPP_SystmOne
5K Followers 2K Following World-leader in digital health. Electronic Health Records, clinical systems, data and research. For patients, follow @AirmidCares
Heidi @tryheidi
219 Followers 8 Following Meet your new clinical listening partner - a free, HIPAA-compliant AI-Resident for medical notes.
LuxyME💙 @LuxyME_
53 Followers 336 Following Myalgic Encephalomyelitis ❤️🩹 Encefalomielitis Miálgica ❤️🩹 #pwme #Anpe #Pots #HOPE 💚
ChronicleBio @ChronicleBioAI
132 Followers 18 Following AI-ready data for real-world impact. We're driving actionable insights that fuel breakthroughs.
Rishi N. Reddy @rishi_n_reddy
620 Followers 1K Following Healthcare Entrepreneur and Investor | MD @ Tarsadia | Co-Founder @ Chronicle Bio | https://t.co/AWHt2c0iAa | https://t.co/rXjm2aCvRg
Rohit Gupta @rogupta50
201 Followers 24 Following
MRussell @DrJizo
783 Followers 2K Following PsychClinician(30+yrs),caring4 those injured by a crazy world. Science! Birdlover•Plant&Insect Defender#Lupus#Vasculitis #MasksInHealthcare#LongCovid 💚🤍💜🇺🇦
🔴🔴🔴 Jo Hanna... @Jo_Hanna_Jo
2K Followers 5K Following Lit.wiss., Autorin (Pseudonym), viel zu früh verwitwet, Hunde-"Mama", Team Wiss.,#NoCovid. Kontrollgruppe. Die Maske bleibt auf! KEINE NOMINIERUNGEN!! (Block)
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