AdvMedProjects @AdvMedProjects
SCIENCE FROM THE HEART Focused on rare diseases goo.gl/K9QusY Madrid Joined February 2012-
Tweets287
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Followers405
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Following840
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Rare Disease Day is coming up! #RareDisease #AdvMedProjects #beautifulyoualways #cremassolidarias
Gracias @AlbaaSR por tú apoyo. Acabamos de abrir este área y esperamos ayudar a los niños con el apoyo de vosotros.
fantastic!
this can´t be right worldcancerday.org we need MORE signatures!!!
sign! it´s easy!
Let´s not forget the ones we have lost and keep fighting for those still with us!!!!
Let´s not forget the ones we have lost and keep fighting for those still with us!!!!
AdvMedProjects retweeted
Out now, 2016 @rarediseaseday video! Watch and share to raise awareness that 29 February 2016 is #RareDiseaseDay youtu.be/02zR9r-LOfQ
it only take a second!! and for a GREAT cause
super!!!!
Ya sabemos que estuvimos ausente por un montón de tiempo pero tenemos unas excusa muy buena - trabajando mucho y por las enfermedades raras.
AdvMedProjects retweeted
De interés para invidentes Gafas q detectan información no verbal ecodiario.eleconomista.es/interstitial/v… Vía @elEconomistaes
AdvMedProjects retweeted
Guía para familias sobre el síndrome de Lowe. Autora Dra @SerranoGimare cc @HSJDBCN @CIBERER en breve pdf interactivo
AdvMedProjects retweeted
"Queremos ver crecer a las estrellas", la nueva campaña para ayudar a niños con Neuroblastoma @AsociacionNEN... fb.me/3bVefmi5o
AdvMedProjects retweeted
Prevén reducir en un 50% el nacimiento de niños con #Hemofilia en la Región de Murcia con las técnicas de... fb.me/3s5Fy2nHL
5 ways you're not "living" with chronic illness @HuffPostBlog huff.to/1lMzN3z via @healthyliving
Amy Pope @7wNBL94FkUzX4
36 Followers 2K Following 現在、アルバイトの募集をしています。勤務時間:30~90分。日給7,000円～50,000円！ ✨ すぐお金になる副業 今直ぐ即金で稼ぐ事が出来る在宅ワークになります🌈 副業相談LINE追加:【https://t.co/oC1PYHitBL】
In Silico Regulatory ... @InSilicoUK
242 Followers 402 Following Making UK the best milieu for medical innovation via in silico regulatory science and innovation. Working with @AvicennaAlly. https://t.co/Wx3Aw8sCVc
Iñigo de la Fuente @InigoBiotech
174 Followers 1K Following Biotech & investing enthusiasm. Here to develop this wonderful science to get a safer, healthier and environmental friendly world. Words on my own. SP, EN, EUS.
PSP Society of Canada @PSPSocietyCDA
594 Followers 2K Following Serving Canadian patients & families dealing with Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) & Corticobasal Degeneration (CBD)
Molduras Pérez S.A @MoldurasPerezSA
11 Followers 106 Following Empresa dedicada al bricolaje de la madera; Molduras, listones, rodapies y demás complementos.⛏️🚪
What DNA test? @whatDNAtest
1K Followers 1K Following News and comments on #genetics, #genomics, #RareDiseases and DNA testing.
EL HOSPITAL @EL_H0SPITAL
74 Followers 1K Following Intolerante con la Negligencia Médica y la Mala Praxis, con los médicos prepotentes y con la corrupción sanitaria. Facebook:
Cell Projects Ltd @CellProjectsLtd
236 Followers 847 Following Manufacturer of #Molecular #Biological products. Sub-contractor for molecular biology product design and services program.
Meg Krench @MKrench
82 Followers 730 Following
Emily Barrios @Emily_brrs
95 Followers 156 Following ☀️Be yourself!☀️ lnspectora de Seguridad y Salud Laboral, gestionista de riesgos, Ergonoma, ex-paramedica
Francisco Mastery @FranMastery
373 Followers 969 Following Ayudo a empresarios en prevención y aseguramiento | Founder de @MasteryAxa +25años | Agente TOP #AXA | #FrancisoMastery #Seguro #Empresa Opiniones Personales
Aetheron Reality @TeoriaFinalX
82K Followers 92K Following Exploring the hidden code of our universe 🌌 Are we living in a simulation? Mind-bending theories, cosmic mysteries, and layers of | Join the chaos & subscribe!
Able Report @AbleReport
438 Followers 4K Following
AHC Foundation @AHCkids
728 Followers 579 Following Our vision is to find the cause(s) and a cure for Alternating Hemiplegia of Childhood & provide support to AHC families #Raredisease #Spreadawareness
ColinTheKiwi 🥝🏳... @ColinTheKiwi
645 Followers 1K Following Colin-54 - Gay-Single-Humor-Fun-Crazy-Creative- Photography-Smoker-Dutch-born in NZ-Tatoos-SmallFiberNeuropathy- Rare nerv disease - Dog 🐶
Connexion Healthcare @ConnexionHC
401 Followers 1K Following The first + only thought leader engagement + education company exclusively dedicated to #Oncology + #RareDisease
FundacionNadiaNerea @fun_nadia_nerea
40 Followers 122 Following
RareX @RareX_2018
796 Followers 2K Following The second biennial Rare Diseases Conference (RareX 2018) will take place from 13 to 16 September 2018 at The Canvas Riversands in Fourways, Gauteng.
Personal Assistant @PersonalAssis17
813 Followers 3K Following I'm a personal assistant supporting young adults with different learning disabilities #autism #fragilex #epilepsy #GlutenFree #nonverbal #Downsyndrome
American MedChem @americanmedchem
12K Followers 14K Following #Meds4Kids for childhood Rare/Neglected Diseases; Philanthropy; Drug Discovery Research; ‘nonprofit biotech company’; social enterprise (via @RobtSelliah)
Dominic Lapointe @XFragileQuebec
177 Followers 91 Following Je suis parent d'un garçon avec le Syndrome de l'X Fragile. Parent of a Fragile X Kids.
Global Down Syndrome ... @GDSFoundation
21K Followers 7K Following GLOBAL is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome.
Daniel J-Mendaño @DanielGenyca
810 Followers 4K Following
PersonalizeMyMed @MyPrecisionMed
1K Followers 5K Following Personalize My Medicine (PMM) keeps you updated on the latest in medical innovation, personalized medicine, and digital health. PMM is an Amazon Affiliate.
Patti M Hall @PattiMHall
2K Followers 3K Following Master Story Alchemist. Book and writing coach. Creator of The Story House STUDIO https://t.co/oGQv3Sxyr2 and FOUNDATION masterclass
Cinema Alterna @CinemaAlterna
252 Followers 495 Following Independent film production company. On VOD soon: BLUE
CrowdVenCure @crowdVenCure
130 Followers 543 Following A non-profit Equity Crowdfunding platform for early-stage Rare Disease Research to connect Patients, Investors and Life Science Projects to find a Cure.
The Miracle 2015 @themiracle2015
266 Followers 2K Following Join us on December 2nd for an exciting night benefitting Miracle Flights. Celebrate the holiday season with hors d'oeuvres and cocktails, live entertainment.
dan @daniel3141592
110 Followers 2K Following
Team Telomere @TeamTelomereInc
2K Followers 5K Following An international community for telomere biology disorders. Facebook: https://t.co/tSo9D8DpcM | Instagram: TeamTelomere | Email: [email protected]
MedicinaJoven @MedicinaJoven
41K Followers 43K Following - Soy Médico de Familia y otras cosas - Mi escaparate de Amazon con una lista de los mejores libros, juegos y regalos de tema sanitario https://t.co/0X0MqkJLbp
Del @facc7dad9be1427
45 Followers 794 Following
XRpro Sciences @XRproSciences
163 Followers 1K Following XRpro provides high-value services, from assay development & HTS through data analysis, for ion channels & transporters using its proprietary tech.
Rare In Common @RareInCommon
860 Followers 456 Following MANY VOICES. ONE MISSION. A user-generated short-film about the inspiring people in the rare disease community — Rare in Common.
Cystinosis CRN @CystinosisCRN
795 Followers 1K Following Cystinosis Research Network is dedicated to supporting research, providing family outreach & educating the public & medical communities about #cystinosis
Asanol (Asoc. LHON) @Asanol
893 Followers 672 Following Asociación española atrofia nervio óptico de Leber (lhon) (nohl). Trabajando por la investigación, la divulgación y el apoyo a los afectados.
urddad-foundation @TerenceHoey
1K Followers 5K Following Children are affected by Ultra Rare Diseases from six months to ten year old Urddad-Foundation we raise awareness ,lobbying, counselling ,advocacy ,
Help Disease @HelpDiseases
78 Followers 545 Following
Fighting HARD @FightingHARD2
743 Followers 2K Following Helping kids who are Fighting Having A Rare Disease or chronic illness to know that they are not alone!
Birgit Barth @OrphaStammtisch
632 Followers 625 Following Selbsthilfegruppe für Menschen mit seltenen Krankheiten +++ German self-help group for people with rare diseases +++ Privat im @BarthiLand :) | #ForTheWeb
PJ @pj_mbmg51
22 Followers 322 Following
Cure AHC @CureAHC
772 Followers 2K Following Alternating Hemiplegia of Childhood (AHC) is a complex, ultra-rare neurological disease. Cure AHC exists to drive research, support, and find a cure for AHC.
EURORDIS-Rare Disease... @eurordis
32K Followers 1K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
DownSyndrmePregnancy @DownSynPreg
2K Followers 426 Following University of Kentucky program providing balanced, honest, compassionate info & support for parents in their pregnancy after a Down syndrome diagnosis.
World Down Syndrome D... @WorldDSDay
12K Followers 333 Following Join us on 21 March to ask the world to #EndTheStereotypes
The Down Syndrome Cen... @Downsyndromecen
11K Followers 895 Following Providing clinical, educational & training services to children with Down syndrome from birth to 18 years - and their families! [email protected]
EUPATI @eupatients
7K Followers 2K Following The European Patients' Academy on Therapeutic Innovation is an independent, non-profit organisation committed to patient engagement through patient education.
Down Syndrome Interna... @DSiupdate
12K Followers 449 Following DSi is the global network of people with Down syndrome and their families. Together, we speak up for the human rights of all people with Down syndrome worldwide
Jeans for Genes UK @jeansforgenes
16K Followers 9K Following Wear your jeans, donate & transform the lives of people living with genetic disorders. Find out more about us and all the ways to get involved!
Canadian Down Syndrom... @CdnDownSyndrome
7K Followers 887 Following Canadian Down Syndrome Society (CDSS) supports platforms that respect DEI. We will no longer be using this account. Join our community on Bluesky!
Down Syndrome Group o... @dsgolife
3K Followers 485 Following WE EXIST to bring life and wellness to families who are advocating towards a community of inclusion for individuals with Down syndrome.
Gene People @GenePeopleUK
5K Followers 2K Following Charity supporting families affected by genetic conditions providing the UKs only free Genetic Counsellor-Led Helpline 0800 987 8985 | [email protected]
Down Syndrome Assoc. @DSAGC
7K Followers 142 Following Down Syndrome Assoc of Greater Cincinnati's mission is to empower individuals, educate families, enhance communities and together, celebrate the extraordinary
Down Syndrome Today @DownSynToday
6K Followers 317 Following
Madeline Stuart @Madeline_Stuart
8K Followers 223 Following World's 1st Super model with D.S, NO.1 game changer FORBES mag, walked the past 6 seasons NYFW, PFW, LFW. Account run by Team Maddy. Ambassador RODF.
Global Down Syndrome ... @GDSFoundation
21K Followers 7K Following GLOBAL is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome.
Dominic Lapointe @XFragileQuebec
177 Followers 91 Following Je suis parent d'un garçon avec le Syndrome de l'X Fragile. Parent of a Fragile X Kids.
Grupo HLA @GrupoHLA
13K Followers 8K Following Somos uno de los principales proveedores de servicios sanitarios en España con una red de 18 hospitales y 38 centros médicos
FX Alliance of Texas @texasfxalliance
381 Followers 106 Following Providing support to the Fragile X Community in Texas. Contact us at [email protected]
Fragile X Awareness @fragilexsyndrom
2K Followers 135 Following Spreading awareness of Fragile X Syndrome, FXTAS, FXPOI
Central IL Fragile X @centralilfx
420 Followers 185 Following Founded in 2006 we provide support for families with Fragile X Syndrome in Central Illinois!
NFXF @NFXFoundation
3K Followers 1K Following News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders
FRAXA Research @FRAXAresearch
2K Followers 830 Following Working to find effective treatments & a cure for #FragileX, the most common inherited cause of intellectual disabilities and autism. Facebook: fraxaresearch
Fragile X Canada @FragileXCanada
703 Followers 260 Following The Fragile X Research Foundation of Canada is dedicated to raising awareness of and funding research for Fragile X Syndrome.
Fragile X Australia @FragileXAus
1K Followers 492 Following Connections, information, support & advocacy for the Fragile X community - those living with Fragile X syndrome or Fragile X Premutation-Associated Conditions.
Fragile X Society, UK @fragilexuk
3K Followers 1K Following Fragile X Syndrome is the most common inherited cause of learning disability. We support & empower individuals, families & professionals.
Aware of Angels @childgenetics
723 Followers 645 Following Non-Profit Org- Raising awareness 4 children who r undiagnosed, rare & those w/genetic disorders. Promoting research, connecting families & Photography project.
Team Telomere @TeamTelomereInc
2K Followers 5K Following An international community for telomere biology disorders. Facebook: https://t.co/tSo9D8DpcM | Instagram: TeamTelomere | Email: [email protected]
Chromosome 6 Project�... @c6study
797 Followers 1K Following Parent-driven research on individuals with #Chromosome6 disorders (deletion and duplication) #ProfessorConny @UMCG #Awareness #worldwide 🌏 #crowdfunding
Fundación CroniCare @cronicare
164 Followers 265 Following Brindamos acompañamiento a pacientes con enfermedades huérfanas, propendiendo por hacer efectivos sus derechos fundamentales a la salud y la vida.
RareShare @RareShareOrg
5K Followers 2K Following RareShare is a social platform building communities for patients, families, and healthcare professionals affected by rare medical disorders.
Rare Diseases Ireland @RareDiseasesIE
4K Followers 1K Following Equitable access to healthcare and opportunity for all! RDI - advocating for equitable access for the 300,000 people in Ireland living with rare diseases.
CAUSES @CAUSES_genomics
284 Followers 560 Following #Genomic #sequencing for children who have complex, undiagnosed disorders at BC Children's & Women's Hospital.
GeneAdviser @GeneAdviser
414 Followers 504 Following GeneAdviser is an online marketplace for genetic testing, making it easy for doctors to search for and order tests from accredited labs.
EUROPLAN project @EUROPLANproject
1K Followers 1K Following EU Project for Rare Diseases National Plans Development (#europlanproject) coordinated by @cnmr_ISS; @DTaruscio; Join: @RAREBestP @RARE_Journal
NationalCentre forRD @cnmr_ISS
1K Followers 897 Following Official account of the Italian National Centre for Rare Diseases. Join us: @EUROPLANproject; @RAREBestP; @Rare_Journal; @DTaruscio; #raredisease
Connecticut Children'... @ctchildrens
10K Followers 2K Following When things seem impossible, we think bigger — beyond imagination. ¸.·✩ The only health system in CT 100% dedicated to kids.
CORD @raredisorders
5K Followers 693 Following CORD Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.#Canada4Rare
Jeff Szer @marrow
2K Followers 950 Following Clinical Haematologist, marrow transplanter. expertise in Gaucher Disease and PNH. Past President of WMDA and WBMT. Editor-in-Chief Internal Medicine Journal.
Heather 🇺🇸 @ZHeatherChamp
3K Followers 799 Following Latter-day Saint living w/#PTEN and #CHEK2 mutations, and 2 cerebellar brain tumors | Psalm 92:1 | #90DayFiance | #Jarlena💔
Nagarajan Paramasivam @naga_rna
790 Followers 3K Following Senior Bioinformatics scientist | Precision oncology | DKFZ-NCT, Heidelberg | Views are my own
Denis Costello @rarecare
3K Followers 3K Following Director at @cmlnet Empowering leukemia patient leaders (CML). Patient advocate, formerly @eurordis & @RareConnect Own views
A.M.Kingsley @profA_M_K
1K Followers 3K Following Ex-Ebola Researcher, Founder/CEO, Bioterrorism Expert, Artist, Author, Professor, 2X Spinal cord surgery
William S. Hempsted @biotechinvestor
650 Followers 1K Following Biotech Investor and a Rare Disease Advocate! .
Vitor De Mario @vdemario
637 Followers 288 Following Faço software. Falo de tecnologia, política e heavy metal. Pronomes: ele/dele/-o. Mastodon: @[email protected]
Liftstream @liftstream
2K Followers 4K Following Executive Search, Board and Leadership Advisory, Human Capital Management Solutions. Life Sciences, Biotech, Digital Health. #leadership #corpgovernance
Laurie Edwards @achronicdose
2K Followers 2K Following Writer; Teaching Prof. at Northeastern. Books: LIFE DISRUPTED (2008); IN THE KINGDOM OF THE SICK (2013)
🧜🏻♀️Merm... @xoKaylaNicole
1K Followers 1K Following God! Heart defect! Pulmonary Hypertension! Fighting rare, progressive, life-threatening lung &heart disease! Living on HOPE & FAITH! ⚓️Trends for United States
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