Bev Power @BevPower4
A good person to know and hang out with. Patient expert #CDH , research author, advocator of charity, Yoga Teacher. Loves family, travel and Yoga. Opinions mine UK Joined September 2019-
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@mbrrace By learning from these women's deaths we will improve care and prevent deaths in the future, which is the positive action to take away from the day. Thank you to all the volunteer midwives, doctors and nurses who have assessed women's care, lay summary writers and @mbrrace staff
Our data on the Amniotic Fluid are finally available on the @humancellatlas just in time for the #hca2024gm Come chat about it at the coffee break!
Wonderful! Always happy to support and promote these talks 🩷🩵 thank you @LeicChildHosp
Wonderful! Always happy to support and promote these talks 🩷🩵 thank you @LeicChildHosp
We had a fantastic day at our CDH Community Conference in Belfast yesterday, with a great turnout of families! Medical professionals from the RVI and Queen’s University Belfast ran focus groups to obtain patient and family perspectives and gave them the opportunity to engage in…
Today is the start of CDH Awareness Month! This is an opportunity to collectively draw attention to Congenital Diaphragmatic Hernia and to highlight its impact on patients and their families. It is also a chance to help improve outcomes. This year’s theme is ‘Family Impact’ and…
Great #CDH meeting in #Lille wonderful to share data and learn new things about this challenging conditions @CDHUK_CHARITY @giuseppecala94 @GerliLab and Giorgia D’Ariano @GreatOrmondSt @UCLchildhealth @DBC_ICH @bambinogesu
April has been a busy month! @ernica_ern annual meeting presenting on Patient priorities in research and perspectives in signposting and #cdh2024 symposium plus the launch of @CDHUK_CHARITY new information short film 😀 #cdh #ideaalliance
Every winter we see our services at breaking point due to illnesses caused by viruses such as RSV. An RSV vaccination programme could be transformative. We need your help to persuade the UK Government to make this a reality. Sign our open letter today! rcpch.eaction.org.uk/RSV
We are extremely excited by this research that we supported and of the potential it has to change diagnostic techniques and methods to improve prognosis and outcomes for patients and their families. It is vital that organisations like ours are involved because of the ethical and…
We are extremely excited by this research that we supported and of the potential it has to change diagnostic techniques and methods to improve prognosis and outcomes for patients and their families. It is vital that organisations like ours are involved because of the ethical and…
Thrilled to share that our article on primary organoids derivation from human amniotic and tracheal fluids, is now out on @NatureMedicine We present the first atlas of the unperturbed human amniotic fluid cells, containing epithelial progenitors of fetal small intestine, kidney…
Over the weekend details were released of the case of Lucy Letby the neonatal nurse found guilty of horrendous crimes and today she was sentenced to life imprisonment. We would firstly like to pass on our condolences to all of the families who suffered under her care. We want…
Fantastic Ellie!👏 😍 #cdh
If you witness this please tweet us a pic! #colours4cdh #joininjune4cdh
If you witness this please tweet us a pic! #colours4cdh #joininjune4cdh
We had a fantastic day yesterday at our CDH Community Conference at Alton Towers! It was so lovely bringing more families together for support and friendship and we raised lots of awareness throughout the park with our teach shirts and CDH symbol tattoos! We also had a visit from…
Medicines for Children have developed a series of posters displaying QR codes for medicines commonly prescribed to children or for general advice. Offering quick access to share our info in healthcare settings such as clinics or GP surgeries bit.ly/M4C-QR-posters
#JoininJune4CDH #ThinkPink&Blue #CDH&U #CongenitalDiaphragmaticHernia We’re excited to be joining the #JoininJune4CDH movement to help raise awareness of Congenital Diaphragmatic Hernia. What are you doing to #JoininJune4CDH? 💗💙
Giuseppe Calà @giuseppecala94
182 Followers 392 Following Postdoc playing with stem cells, organoids, and tissue engineering. From South Italy to @UCLchildhealth
Mattia FM Gerli, PhD @GerliLab
342 Followers 701 Following Lecturer in Stem Cell Science and Marie Skłodowska-Curie alumni @ UCL Division of Surgery.
S R @SeiSiarh
16 Followers 449 Following
Patrice Eastwood @EastwoodPatrice
61 Followers 146 Following Northern Irish Paeds Surgery Trainee. Interested in CDH, fetal surgery and good wine.
Rhiannon Jones @Rhi_jones83
431 Followers 987 Following ANP on NICU. Passionate about neonatal surgery. Mother and wife. A welsh country girl in the big city. All views are my own.
Joe Davidson @PaedSurgJoe
587 Followers 1K Following Paediatric Surgery Trainee // @The_MRC CRTF // PhD candidate @UCLchildhealth @UCL_IfWH
Tim Van Mieghem @TimVanMieghem
819 Followers 307 Following maternal fetal medicine, prenatal diagnosis, obstetrics, fetal surgery, fetal neurology, @uoftobgyn, @SinaiHealth
Sarah @SarahxHx_87
521 Followers 993 Following You can close your eyes to the things you don't want to see but you cannot close your heart to the things you don't want to feel
GIFT Surg @GIFT_Surg
365 Followers 247 Following Guided Instrumentation for Fetal Therapy and Surgery: @KingsImaging @ucl @WEISS_UCL @KU_Leuven @uclh @uzleuven. Funded by @wellcometrust & @epsrc
Fetal Maternal 2020 V... @Fetal2020
83 Followers 443 Following Fetal and Maternal Virtual Congress [email protected] Whatsapp +447459639914
IDEA @IDEA_ALLIANCE
27 Followers 35 Following We are the International Diaphragmatic & hiatus hernia, Eventration & Abdominal Wall anomalies alliance. Working together for better outcomes what a great idea!
Chris D @Chazdavies1084
325 Followers 2K Following
Pediatrics and Neonat... @neonatal_med
755 Followers 1K Following Journal of Pediatrics and Neonatal Medicine is an International Peer Reviewed Open Access Journal publishing original research contributions from researchers
Louise Bowman @LouiseB67213401
81 Followers 120 Following Head of Family Services @twinstrust. Raising awareness on multiple births, life with Twins, triplets or more, IVF, prematurity and baby loss @twinstrustbsg
sharon @sharon38366023
7 Followers 13 Following
Infant Journal @InfantJournal
880 Followers 472 Following
Soban Hameed @ChSoban9
336 Followers 3K Following Consultant Paeds Surgeon at Children's hsptl Lahore l Father and Husband l Love fun family n friends l like perfumes l Love to hangout l Love nature
HAPP-e: Health of Adu... @happeispup
199 Followers 340 Following We are inviting adults with a history of preterm birth to be part of an innovative way of doing research. For inquiries, please contact: [email protected]
Global Birth Defects @GlobalBirthDfx
351 Followers 338 Following Through an app & resources, improving birth defect surveillance systems in low-resource areas.
The PALOH Trial @PALOH_Study
384 Followers 327 Following The Pharmacogenetics To Avoid Loss of Hearing Trial | Supported by @NIHRresearch @RNID and @ManchesterBRC | Reporting March 2022
Neonatal Surgery @NeonatalSurgery
2K Followers 669 Following A group of Neonatal and Paediatric Nurses, AHPs ACPs with a drive to standardise and improve the care of Surgical Neonates. A special interest group of @NNAUK1
Jacob Westaway @JacobWestaway
104 Followers 288 Following Bioinformatician. Working on zoonotic malaria and dabbling in microbiome.
David K @ELBANDITO77
30 Followers 305 Following
Emilly Jane @emillymurray
200 Followers 571 Following Mum to Esmae, Ellie & Joseph #autism #parentcarer #supportthestrikes
Sarah Winfield @winners352
3K Followers 5K Following Consultant in Obstetrics & Maternal Medicine. Head of Obstetrics Service @MidYorkshireNHS. Safe and kind maternity care. Mum of two👭 & 🐶. Views own.
Fiona @fiona_metcalfe
659 Followers 1K Following Lead Nurse Neonatal Surgery. PNA. Passionate about babies, families, surgery, collaboration and doing our best.Chair- National Neonatal surgical interest group
CDH UK @CDHUK_CHARITY
2K Followers 597 Following Leading Reg. Charity 1106065 helping to improve outcomes for Congenital Diaphragmatic Hernia. Supporting, Raising Awareness, Promoting & funding research #CDH
Abhishek Gautam @Abhishe01485161
30 Followers 263 Following Computer Science Eng and Spiritual Seller.
Marian Knight MBE @Marianfknight
6K Followers 84 Following Maternal and child health researcher and public health physician @UniofOxford. Scientific Director for Research Infrastructure @NIHRresearch. See also 🦋
Giuseppe Calà @giuseppecala94
182 Followers 392 Following Postdoc playing with stem cells, organoids, and tissue engineering. From South Italy to @UCLchildhealth
Patrice Eastwood @EastwoodPatrice
61 Followers 146 Following Northern Irish Paeds Surgery Trainee. Interested in CDH, fetal surgery and good wine.
Mattia FM Gerli, PhD @GerliLab
342 Followers 701 Following Lecturer in Stem Cell Science and Marie Skłodowska-Curie alumni @ UCL Division of Surgery.
MAYAH’S LEGACY @MayahsLegacy
166 Followers 315 Following We guide women to feel confident and heard when discussing their health. We build confidence rooted in empathy
Midwifery Society @ B... @themwcircle_BNU
120 Followers 153 Following 🤱🏽 Views our own 🫄🏿 Retweets aren't endorsements 👩🏼🍼 For advice/support in your pregnancy journey please contact your healthcare provider 🩺
Baby Loss Awareness W... @BLA_Campaign
14K Followers 1K Following 9-15 October. A time to come together, remember our babies, raise awareness and drive change💖💙 #WaveOfLight🕯️ #BLAW
ERN eUROGEN @ERN_eUROGEN
1K Followers 536 Following Improving diagnosis, treatment & care for rare uro-recto-genital diseases & complex conditions needing highly specialised surgery. Funded by the EU.
ERDERA @ERDERA_org
4K Followers 2K Following The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
ISUOG @ISUOG
21K Followers 853 Following #LoveUltrasound ❤️ International Society of Ultrasound in Obstetrics and Gynecology.
Giving at UCL @UCLGiving
979 Followers 291 Following We bring together visionary supporters at @UCL to change the world.
UCL Great Ormond Stre... @UCLchildhealth
7K Followers 892 Following @UCL Great Ormond Street Institute of Child Health: improving the health & well-being of children and the adults they'll become. LinkedIn: https://t.co/F0hD562szz
Paolo De Coppi @paolodecoppi
2K Followers 212 Following Consultant Paediatric Surgeon at Great Ormond Street Hospital/UCL Institute of Child Health with interest in congenital malformation and regenerative medicine
Mediaplanet UKIE @MediaplanetUK
5K Followers 1K Following Mediaplanet specialises in the local production of unique and engaging campaigns, created in collaboration with renowned influencers and associations.
Milanka Brooks @MilankaBrooks
2K Followers 410 Following USS Callister: Into Infinity Black Mirror, Season 4 and 7 Actress & writer of ‘Mum And I Don’t Talk Anymore’
Simon Eaton @simonjeaton1
224 Followers 233 Following Apple through and through...but like the fruit
Joe Davidson @PaedSurgJoe
587 Followers 1K Following Paediatric Surgery Trainee // @The_MRC CRTF // PhD candidate @UCLchildhealth @UCL_IfWH
James Sanderson @JamesCSanderson
10K Followers 1K Following CEO @Sue_Ryder, Chair @GSP_Alliance My Views
WHF Events @WHFEvents
2K Followers 513 Following Informative and impartial health policy seminars from the Westminster Health Forum #WHFEvents Retweets ≠ Endorsement
Chris D @Chazdavies1084
325 Followers 2K Following
Tim Van Mieghem @TimVanMieghem
819 Followers 307 Following maternal fetal medicine, prenatal diagnosis, obstetrics, fetal surgery, fetal neurology, @uoftobgyn, @SinaiHealth
Biomedical Engineerin... @KingsImaging
7K Followers 1K Following This account has been archived. For news follow us on https://t.co/cX0AEhOqfB
Rajath @FoolzWizdom
3K Followers 1K Following Sober but funny, prone to epiphany ।Wordsmith। Coffee & books। Hassled Bangalorean। Medtwitter।Earworms। Photos। Neonatology + Child advocacy @DrRajathAthreya
Disabled Children's P... @DCPcampaign
18K Followers 2K Following The DCP is a coalition of organisations campaigning to improve support for disabled children, young people & families. #FightForOrdinary
CDC @CDC_tweets
24K Followers 2K Following Hello! The Council for Disabled Children (CDC) is the umbrella body for the disabled children’s sector in England. Part of the @ncbtweets family
Fetal Maternal 2020 V... @Fetal2020
83 Followers 443 Following Fetal and Maternal Virtual Congress [email protected] Whatsapp +447459639914
Contact @contactfamilies
33K Followers 6K Following UK disability charity for all families caring for a disabled child ☎️ support, info & advice ❤️ bringing families together 📢 campaigning for change!
ERNICA @ernica_ern
680 Followers 130 Following The European Reference Network for Rare Inherited Congenital Anomalies
Family Fund @FamilyFund
11K Followers 2K Following Championing families with disabled children through partner collaboration, research and family voices.
Cochrane Neonatal @CochraneNeonate
10K Followers 215 Following We prepare systematic reviews of randomized controlled trials (RCTs) for treatment for neonatal diseases or problems.
Evidence-Based Neo @EBNEO
15K Followers 2K Following The international society disseminating neonatal clinical research evidence: #ebneoalerts curate, #ebneoreviews appraise, #ebneopolls survey.
The Neonatal Society @NeonatalSociety
7K Followers 93 Following Brings together scientists and clinicians with an interest in the fetus and newborn with the objective of promoting neonatal science (registered charity 260349)
Neonatal Education @LeedsNeoEd
2K Followers 104 Following Tweeting neonatal education tips for all in accessible bite sized chunks!
GIFT Surg @GIFT_Surg
365 Followers 247 Following Guided Instrumentation for Fetal Therapy and Surgery: @KingsImaging @ucl @WEISS_UCL @KU_Leuven @uclh @uzleuven. Funded by @wellcometrust & @epsrc
IDEA @IDEA_ALLIANCE
27 Followers 35 Following We are the International Diaphragmatic & hiatus hernia, Eventration & Abdominal Wall anomalies alliance. Working together for better outcomes what a great idea!
Paediatric Critical C... @PICSociety
9K Followers 187 Following PCCS is a professional, multi-disciplinary, membership organisation representing the interests of those delivering paediatric critical care in the UK
UCL EGA Institute for... @UCL_IfWH
2K Followers 456 Following University College London (@UCL) Elizabeth Garrett Anderson Institute for Women’s Health. Better lives for women and babies across the world.
Anna David @PrenatalTherapy
3K Followers 349 Following Obstetrician and specialist in maternal fetal medicine, with an interest in developing prenatal therapies for pregnancy complications and congenital disease
Louise Bowman @LouiseB67213401
81 Followers 120 Following Head of Family Services @twinstrust. Raising awareness on multiple births, life with Twins, triplets or more, IVF, prematurity and baby loss @twinstrustbsg
Neema Kaseje @NKaseje
2K Followers 877 Following #communityaction #youth & #tech | surgeon @MSF | @WEF ygl17 | PhDc @LSHTM | @SSRG_solutions | integrated COVID19 response #Siaya | Children’s surgery #Turkana
Infant Journal @InfantJournal
880 Followers 472 Following
NW Neonatal ODN @NWNeonatalODN
4K Followers 855 Following North West Neonatal Operational Delivery Network. Working together to provide the highest standard of care for babies and their families.
vCreate NICU Diaries�... @vCreateNICU
3K Followers 1K Following Secure video diaries supporting family engagement in the Neonatal Intensive Care Unit.
Nick Embleton 🦋�... @NeoResearch_Net
5K Followers 2K Following #NEC #Breastmilk #Babyloss https://t.co/bEsaJA9NKO personal tweets #MDS stem cell transplant https://t.co/qTJNvbh81z
Neonatal Nurses Assoc... @NNAUK1
3K Followers 941 Following The national organisation representing, supporting & celebrating neonatal nurses & promoting neonatal nursing for the benefit of newborns & families.
Global Birth Defects @GlobalBirthDfx
351 Followers 338 Following Through an app & resources, improving birth defect surveillance systems in low-resource areas.
Jacob Westaway @JacobWestaway
104 Followers 288 Following Bioinformatician. Working on zoonotic malaria and dabbling in microbiome.
Neonatal Surgery @NeonatalSurgery
2K Followers 669 Following A group of Neonatal and Paediatric Nurses, AHPs ACPs with a drive to standardise and improve the care of Surgical Neonates. A special interest group of @NNAUK1Trends for United States
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