CADASIL Awareness @CADASILAware
cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy Joined April 2012-
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CADASIL Awareness retweeted
CADASIL should be ruled out before MS diagnosis reported in @USNewsHealth article! #spreadtheword #cureCADASIL
CADASIL should be ruled out before MS diagnosis reported in @USNewsHealth article! #spreadtheword #cureCADASIL
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For those suffering from CADASIL or love them - How could we spread the news and get awareness to those that can make a difference? #action
Good questions coming from online. Professor Chabrait is excellent in answering these questions.
Marijuana cannot be used as a treatment as it affects the cognitive levels. DON'T DO IT!
Question about l-argenine and aspirin. Answer. Not recommended. Not beneficial. Aspirin is efficient.
Q for panel about the severity of notch3 compared to other mutations. Answered by Dr Joutel
Q and A session starts with the panel. Support group discussion
Day 2 of CADASIL Conference begins. There is hope. #CadasilForum
Talking about CADASIL from clinical perspective from the doctors/scientists that discovered the mutation. #CadasilForum
Speaking of SSDI/SSI. If you get turned down - Appeal it. Don't quit! #CadasilForum
Lots of questions being asked of the panel the CADASIL Forum. If you have any that you'd like asked, please post. #CadasilForum
Respite is and will be important to the caregivers of those with CADASIL. #CadasilForum
Dr Scchenkenberg: You can become an advocate in your location. Find Dr's and educate.
Dr Anne Joutel is here, as well. She discovered the mutation in the gene that causes CADASIL. #CadasilForum
Heather Farnsworth speaking on SSI and disability claims. #CadasilForum
Dr Joe: Read a Patent on drug for treatment. Testing is ongoing. #CadasilForum
Elly Craane @ejm_67
98 Followers 884 Following
Pinkfloyd76 🇵🇸 @PinkFloyd762910
2K Followers 2K Following Antifascista per Costituzione Ingegnere per passione Juventino per amore Cristiano per grazia ricevuta "Prima gli ultimi" in onore del mio amico @StefanoMacondo
Paul @puinhas
24 Followers 80 Following
Daphne @DaphneKretz222
54 Followers 297 Following I love all animals, vegetarian,disabled due to CADASIL, former Teacher, xAI plz save my brother & from Terminal Gene NOTCH 3 Chromosome 19. Save Rain Forest !!
who-does @tgnurulhuda
22 Followers 301 Following #tgnurulhuda#who-does#shopee #CADASIL#stroke#dementia#migraine with aura
Stephen Fitzsimons @sfitzsimons081
236 Followers 459 Following Postdoctoral Fellow @IcahnMountSinai 🌎from @ucddublin @RCSI_Irl in Ireland. Research interests: CADASIL, Inflammation, macrophages, microRNAs, EVs and MS.
Andria Burroso @Burr52463Andria
2 Followers 24 Following
Global Secure @glosecresources
9K Followers 10K Following Empowering people with community awareness prevention programs Dedicated to safety and security where we work, live, & travel
Project CADASIL @ProjectCADASIL
183 Followers 216 Following Working to increase awareness of #CADASIL, share resources and news, and secure funding for the advancement of therapies, treatments, and ultimately a cure.
teamconnor4cadasilcur... @teamconnor4cada
39 Followers 108 Following The Connor family is dedicated to raising awareness and funds to for CADASIL research. Help us reach goal!
Tom Simmonds @Stomsimmo
7 Followers 98 Following
Nancy Counts @NancyCounts6
12 Followers 228 Following
Derek Sweazy @DuffSweazy
10 Followers 179 Following Chicago Bears, Chicago Cubs, Michigan Wolverines, Boston Celtics, Golf, Pistol Crossbows
RetroAlleyCat (she/he... @RetroAlleyCat
627 Followers 2K Following Seeker. Always learning. 🧙🏻♀️MAGIC - Behcet’s & RP; CAPS. Pursuing Coast FIRE.
Nikos Ferentinos @Ferentino2Nikos
2 Followers 46 Following
Ki @kibird
348 Followers 687 Following
Michelle Wootton @che112022
2 Followers 13 Following
bikini_krill @_amy_kate_
183 Followers 690 Following mostly re-tweets, because I’m not very funny or interesting
Andria Burroso @andiepasburr
16 Followers 41 Following
CADASIL_Consortium @cadasil_c
44 Followers 24 Following This NIH-funded study is looking at challenges in persons with a NOTCH 3 variant that causes CADASIL.
Susan Lee @SusanLe35407646
1 Followers 10 Following
Stefania Koutsokosta @s_koutsokosta
2 Followers 86 Following
Cadasil Awareness @Awarene1Cadasil
5 Followers 57 Following Η κάθε στιγμή μου με την #cadasil και τον #lupus
Marta Urbańska @MartaUrbaska8
0 Followers 2 Following
Steve Connor @stevechess
2K Followers 3K Following Webmaster, chess fan, and player. Once shared a hotel lift with Victor Korchnoi & Vladimir Kramnik. Caring for my disabled wife who has CADASIL. Remainer.
Britney Bezdek @britneybezdek
3 Followers 61 Following
Acorns Academy Tuitio... @acornsacademy
271 Followers 292 Following 1-2-1 Tuition specialising in transfer, SpLD, early reading intervention, confidence and self-esteem boosting. #scienceofreading Facebook/Instagram 🌳
Pharmaceutical Compli... @PharmaCompli
9 Followers 83 Following Pharmaceutical Compliance Partners is a management consultancy focused on Regulatory Affairs, Quality Assurance and Commercial Compliance & Ethics consulting.
latasha holloway @moneybag1212
26 Followers 109 Following
Amy @amytm1975
1 Followers 97 Following
Samira Hosseini-Algha... @SamirasHosseini
334 Followers 983 Following Research Fellow at @officialUoM Vascular Dementia, CADASIL, Notch Signalling. PDRA Rep at @EGS_UoM @NotchCancer
Beth w @Bethw00327142
5 Followers 126 Following
Melissa Horne @melllyhorne
2 Followers 88 Following
Clau @ClaudiacaVet
489 Followers 875 Following MV UChile y ser humano , mi corazón hacia la izquierda :). 🌳🌳🌳🌳
Pakitorra @Pakitorra
26 Followers 139 Following No tengo tiempo ni pa peinarme por culpa del twitter!!!
Christi Lushbaugh @clushbaugh
2 Followers 102 Following
Gustavo C. Santo @GustavoCSanto1
42 Followers 372 Following
Adriaan Wijt @adriaan_wijt
241 Followers 939 Following Algemeen Directeur Hof Hoorneman Bank | Startups | Cleantech | Solar | Energy Storage | Vitesse
Fanny Elahi, MD, PhD @FannyElahi
2K Followers 1K Following Physician-scientist on a mission to prevent dementia. CADASIL expert. Blood vessel enthusiast. Associate Professor @IcahnMountSinai – We’re hiring!
A nossa bandeira jama... @amarante_gabi
514 Followers 1K Following Deus criou vidas e não raças. Preguiça do politicamente correto. Brasil, minha pátria amada!! 💚💛💙
Will Bernard @WillBernard_
179 Followers 497 Following Director of Cell Type Development @bitbio | Whisky enthusiast | always hopeful @scotlandteam follower
Patrick W Clementson @pclementson64
10 Followers 72 Following Interests - mental health; photography; CADASIL; stroke recovery; maintaining equilibrium; peace; acceptance; learning.
د:دياب أبور�... @ClinicalPsyc
516 Followers 2K Following علم النفس السريري فرعي الأمراض النفسية الجسدية psychiatry and neurology, specializing in clinical psychology sub- psychosomatic medicine
Jennifer Van Vleet @JenVanVleet
407 Followers 377 Following Marketer & Communicator. Chronic volunteer for philanthropic causes. Lover of travel, languages, sports, and outdoors. Keeper of the faith.
Life.Faith.Hope.Love.... @FaithIllness
21 Followers 64 Following I love Jesus Christ. Joyful wife. On my knees, all my days. I have advanced CADASIL. Disabled. Poet.
cureCADASIL @cureCADASIL
457 Followers 91 Following cureCADASIL is a non-profit organization committed to curing #CADASIL and improving the quality of life for those affected by this genetic disease.
Anne McGuinness @amborowski
9 Followers 401 Following
Linda @LindaRuddy
760 Followers 1K Following Producer at BBC News NI. Personal tweets. Interested in politics, white wine and #CADASIL research. Story idea? [email protected]
Mark Alan Starnes @MarkStarnes
157 Followers 212 Following Lord of the follicle, Fashion Daddy, Trophy husband
The Karl @karlbstumpf
102 Followers 173 Following Father, Husband, Son, Brother, Tech Geek, Graphic Artist • CADASIL and Autism Awareness Advocate• Member of The Church of Jesus Christ of Latter-Day SaintsTrends for United States
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