Cardiac Sarcoidosis Consortium @CSCregistry

Joined April 2022

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Nisha Gilotra @ngilotraMD

2 years ago

Please join the FSR @StopSarcoidosis on 6/8 for an exciting and interactive symposium on hot topics in #CardiacSarcoidosis @JonChrispinMD @fsheikh22 @mpsotka @JLovellMD @JanMGriffin @sanjaydivakaran @jordanakron1 @cshenoy3

Cardiac Sarcoidosis Consortium @CSCregistry

2 years ago

Show your support for #worldsarcday! Thank you to the all the sarcoidosis patients who support #sarcoidosis research and awareness!💜

FSR @StopSarcoidosis

2 years ago

Show your support for #worldsarcday! Thank you to the all the sarcoidosis patients who support #sarcoidosis research and awareness!💜

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Cardiac sarcoidosis affects more than 10% of people with #sarcoidosis in the United States, and perhaps as many as 25%. Because heart problems can be very serious, everyone who has sarcoidosis should be screened for cardiac sarcoidosis. Learn more: loom.ly/hpq0iQA

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Cardiac Sarcoidosis Consortium @CSCregistry

3 years ago

Another insightful Cardiac Sarcoidosis Consortium site-wide call! Thank you to all sites and investigators for your continued support and dedication! #cardiacsarcoidosis #sarcoidosis #csc

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AntonioAbbate @AbbateAntonio

3 years ago

Many more trials needed in cardiac sarcoidosis Very nice editorial from @RonBlankstein @sanjaydivakaran From @JACCJournals jacc.org/doi/10.1016/j.… @jordanakron1 - planning for MAGIC-ART-2 at @VCUHealthHeart @CardioUva @UVACVRC

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FSR @StopSarcoidosis

3 years ago

In Episode 72 of the FSR Sarc Fighter #podcast, Regina Gordon shares the story of how #sarcoidosis has curtailed her life for decades. But Regina is not willing to give up! Listen now: loom.ly/8T4RX7U #chronicillness #raredisease #sarctwitter #medtwitter

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FSR @StopSarcoidosis

3 years ago

Are you interested in being a voice or providing support for the #sarcoidosis community in your area? Consider using your skills and applying to become a an FSR Global Sarcoidosis Clinic Alliance Volunteer! loom.ly/R7RKABU #sarctwitter

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Cardiac Sarcoidosis Consortium @CSCregistry

3 years ago

Update on CSC in European Heart Journal! Thank you to all the CSC centers! @True_EP @KennethEllenbo1 @jordanakron1 @ehj_ed @rhythmkris @NoStaticAtAll @PlatonovPyotr @konsiont @DRosenth_ @cshenoy3 @EpRoukoz @BhanAdarsh @VCUHealthHeart @StopSarcoidosis doi.org/10.1093/eurhea…

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VCU Health @VCUHealth

3 years ago

Offered through @VCUHealthHeart, this program brings students to MCV Campus for rotations and mentored research experience. bit.ly/3KAOQxr

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FSR @StopSarcoidosis

3 years ago

FSR is pleased to partner with ATS in order to provide funding support for this important research project. We congratulate Dr. Ghosh and look forward to the critical learnings that will stem from his research efforts!

American Thoracic Society (ATS) @atscommunity

3 years ago

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FSR @StopSarcoidosis

3 years ago

TODAY IS THE LAST DAY TO REGISTER FOR THE SUMMIT! Watch the video below for a special sneak peek of the summit experience: loom.ly/AI97daI Learn more and register here: bit.ly/38KTD14 #sarcoidosis #raredisease #sarcevent #sarcoidosisawareness

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FSR @StopSarcoidosis

3 years ago

Check out our new blog, as Patient Advocate Susan writes about her experience attending the Summit and what she is most looking forward to this year: loom.ly/pxE_5oQ Read the Summit FAQ for learn more about the Summit: loom.ly/Ea0duDs #sarcoidosis

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VCU Health Pauley Heart Center @VCUHealthHeart

3 years ago

It is our great honor to announce the 2023 Dr. Carolyn McCue Award for Woman Cardiologist of the Year will go to Annabelle Santos Volgman, MD, FACC, FAHA. ❤️🎉bitly.ws/sWKS @avolgman @RushMedical @jordanakron1 @PAshleyMD @SharonneHayes

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AntonioAbbate @AbbateAntonio

3 years ago

Welcome @JamesMbualungu to #MedTwitter and to @UVACVRC - excited to have him as part of the research team here @UVACVRC after a long and successful partnership @VCUHealthHeart, wishing him best of luck for medical school @uvamedicine

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Cardiac Sarcoidosis Consortium @CSCregistry

3 years ago

Ueberham et al. from the University of Leipzig examined 62 patients with suspected cardiac sarcoidosis and compared the WASOG, HRS, and JCS criteria. They also found a substantial disagreement among the current diagnostic recommendations. sciencedirect.com/science/articl…

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FSR @StopSarcoidosis

3 years ago

Looking for insights on how to manage #fatigue? Or tips on how to navigate the healthcare system? Life Hacks: Unveiling Your Best Life with #Sarcoidosis at this year’s FSR Global Sarcoidosis Virtual Patient Summit is for you! Learn more: loom.ly/tPy687k #sarctwitter

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William H. Sauer, MD @True_EP

3 years ago

Great to see cardiac sarcoidosis getting airtime. In 2007, Frank Bogun met me at an HRS poster (ECGs in Sarcoidosis). We committed to collaborating and found out that Jordana Kron was collecting data on ICDs with @KennethEllenbo1…from there, @CSCregistry was born.

Heart Rhythm TV @HeartRhythmTV

3 years ago

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FSR @StopSarcoidosis

3 years ago

Newly diagnosed and long-term #sarcoidosis patients and caregivers are invited to attend FSR's Global Virtual Patient Summit on July 30 - 31! Early Bird Reg is $60 until June 30. Learn more and register: bit.ly/38KTD14 #sarcoidosisawareness #raredisease #sarctwitter

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FSR @StopSarcoidosis

3 years ago

Newly diagnosed with sarcoidosis? Join FSR TODAY May 31, 2022 from 5:00 PM – 6:00 PM CT for an Introduction to Sarcoidosis virtual event! Learn more and register: loom.ly/arYuwy4 #sarcoidosis #sarcoidosisawareness #virtualevent #raredisease #sarctwitter