Cardiomyopathy UK @Cardiomyopathy
UK charity supporting families affected by heart muscle disease. For free specialist advice, freephone 0800 018 1024 or email [email protected]. cardiomyopathy.org Joined March 2009-
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🔬 Researchers identify factors that affect the risk of developing dilated cardiomyopathy (DCM) in people with a genetic change that can cause the condition but who don't yet have symptoms. 📰 medicalxpress.com/news/2024-04-s…
Researchers at Great Ormand Street Hospital are developing a simple cheek swab to monitor arrhythmogenic cardiomyopathy (ACM) in children. independent.co.uk/news/uk/patien…
The latest issue of MyLife magazine is out now and available to read on our website. learn more about our five-year strategy, the latest updates in cardiomyopathy research and more.💻 Follow the link below to read the latest issue: 📲 cardiomyopathy.org/mylife
Join us & @Cardiomyopathy in building a survey on living with cardiomyopathy. If you are UK based, over 16 and have been affected by #cardiomyopathy, share your insights in an online interview. Help shape better services & receive a voucher! Learn more: bit.ly/CMUKsurvey24
So proud of this amazing lady, smashed her PB @LLHalf running for @teffers15 and raising over £1300 for @Cardiomyopathy #NeverGiveUp #runforjosh #teamcardio
📢 Mavacamten has been approved in Scotland for the treatment of obstructive HCM 📢 Mavacamten, the first ever drug specifically for a type of cardiomyopathy, has been approved for use in Scotland. Learn more: 📲 cardiomyopathy.org/news-blogs/lat…
❤ April Support Group Meetings❤️ For more information ⬇️ 🔎 cardiomyopathy.org/support-groups 💌 [email protected] (+ Coffee & Catch Up ☕ every Friday at 2pm!) #cardiomyopathy
Living with PPCM (peripartum cardiomyopathy) in South East Wales? ❤ 🏴 We now have a South East Wales PPCM Support Group, which will meet 6 times a year, both online and in-person (Newport). For more info, head to our website ⬇️ cardiomyopathy.org/PPCM-Wales #cardiomyopathy
📌Based in Hertfordshire/West Essex? 📌 We now have a #Hertfordshire & #WestEssex Support Group, which will meet 6 times a year, both online and in-person (Bishop's Stortford). For more info, head to ⬇️ cardiomyopathy.org/herts-west-ess… #cardiomyopathy ❤️
Thriving With Your Child’s #Cardiomyopathy A 4-week online programme for parents & carers of young people with cardiomyopathy. Led by a trained counsellor w/ personal experience of raising a child with cardiomyopathy. To find out more, email: [email protected]
Register for our new webinar ‘Life insurance & pension advice for those affected by cardiomyopathy’ hosted by our Cardiomyopathy Specialist Nurse Jayne and Bill Bartholemew Dip PFS, a wealth management partner from True Potential Wealth Management. 📲 buff.ly/3TwRlab
Yesterday marked the start of #Ramadan. Our @Cardiomyopathy UK Specialist Nurse advice for fasting can be found on our website here: cardiomyopathy.org/news-blogs/ram… #cardiomyopathy
Cardiomyopathy UK ❤️ March 2024 Support Group Meetings ❤️ For more information: 📩[email protected] 🌐cardiomyopathy.org/support-groups #cardiomyopathy
📌Based in Oxfordshire/the surrounding counties?📌 We now have an #Oxfordshire Support Group, which will meet 6 times a year, both online and in-person (Witney). The group will be led by trained volunteer Laura, who is excited to meet you! ❤️ cardiomyopathy.org/oxfordshire
@Cardiomyopathy UK are looking for volunteers to lead Regional Support Groups across the UK 🇬🇧💞 If you're sociable, empathetic, and well-organised, please get in touch to find out more ⬇️ 📩services@Cardiomyopathy.org 🌐 cardiomyopathy.org/volunteer-roles #cardiomyopathy
Whatever your age, however #cardiomyopathy impacts you, our Specialist Nurse Helpline is there for you. Reach out by phone/email/live chat, Monday to Friday, 8:30am - 4:30pm 📞📩💻 Questions about cardiomyopathy? Our @Cardiomyopathy UK specialist nurses are here to help! ❤️
❤ Cardiomyopathy UK February Support Group Meetings ❤️ For more information ⬇️ 🔎cardiomyopathy.org/support-groups 💌[email protected] #cardiomyopathy
Carys Barton 💙🫀.. @CarysBarton
3K Followers 1K Following Heart failure nurse consultant. London. Views are my own. She/Her #TheFword #Freedomfromfailure
British Society for H.. @BSHeartFailure
11K Followers 2K Following Making heart failure a national priority whilst improving the delivery of equitable, high quality heart failure care #theFword #freedomfromfailure #25in25
BSH Nurse Forum @BSHNurseForum
3K Followers 618 Following Nurse forum for Heart Failure Nurses by Heart Failure Nurses #TheFword #Freedomfromfailure Please note we do not respond to direct messaging
Patricia Campbell @drpmcampbell
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Dr Tootie Bueser💙 @2tbueser
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Maggie Simpson @m4ggiesimpson
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Poppy Brooks #25in25 .. @PoppyBrooks1
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Stephanie Cruickshank @stephanie2453
2K Followers 2K Following Cardiac transplant 11/2021, cardiac arrest survivor x 3, Arrhythmia nurse NHS, mother to three sons, Cardiomyopathy UK Change Maker
Heart_BMJ @Heart_BMJ
60K Followers 11K Following Publishing research and reviews in #cardiovascular diseases. Companion #OpenAccess journal, @Open_HeartBMJ Published with @BritishCardioSo
A/Prof Jodie Ingles @jodieingles27
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Pumping Marvellous Fo.. @pumpinghearts
23K Followers 3K Following Patient-led UK Heart Failure Charity helping patients & their carers self manage. Advising as an advocate locally, nationally & globally. Let's #BeatHF together
Dr Rani Khatib FESC @DrRaniKhatib
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BACPR @bacpr
4K Followers 843 Following The British Association for Cardiovascular Prevention and Rehabilitation represents health and exercise professionals engaged in the specialism
Dr.Rajiv Sankaranaray.. @DrRajivsankar
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Matters of the Heart .. @MattersoftheH14
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British Cardiovascula.. @BritishCardioSo
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Stevenage FC 🔴⚪ @StevenageFC
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Richard wells @rwells1877
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Louise Rose @lou040169
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Cardio-renal-metaboli.. @CVRMUK
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Cara Morgan @Dr_CaraM
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Denes Dulka RN @DenesDulka
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Harrogate Heart Failu.. @HGHeartFailure
62 Followers 80 Following We meet on the last Friday of every month 2pm-4pm at The Chocolate Factory Cafe next door to the Odeon Cinema. Come and have a chat with fellow sufferers.
hanna @h40tic
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Terry ⓣ @terryma05125141
382 Followers 494 Following The world is a book and those who dont travel only read one page ✈🌍
Daniel Tardo @DrDanTardo
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Fabiano Albrecht @FabianoAlb37266
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lynne pardoe @LPsocialwork
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Leigh Manley @rugby_poet
374 Followers 669 Following New phase poet, writing for wellbeing. Representing Wales writers’ development programme (2023/24).
Alexandra Cook RD @Diet360_
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GiveWheel @GiveWheel
164 Followers 1K Following The UK's multi-charity fundraising platform for individuals and companies. Free to use and 0% platform commission.
Katie Le Blond @KatieLeBlond
2 Followers 33 Following Research and Involvement Manager at Cardiomyopathy UK
nia mills @NiaSian3
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PRINCE GARG @PRINCEG09828004
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neilirwin @neilirwin
2K Followers 306 Following 6th Generation Belfast. Haemochromatosis campaigner, Victoria Homes Trust secretary. Genealogy and dodgy car time-waster.
Edoardo Bressi @edobressi
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Claire 🌍💜👑�.. @chocolatey4
4K Followers 5K Following Hi , i'm Claire from the South Wales Valleys UK .Nice to meet you . I’ve Owned your Music 🎶 for 22 years 👑 🌎💜🏴
Cure HCM 🫀 @CureHCM
16 Followers 88 Following Weekly updates on the latest in HCM gene editing & therapy.
Laura Cook @LauraVCook1980
176 Followers 236 Following
Vennessa Sookhoo @VennessaS_Card
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Pablo Revilla @rvyya
156 Followers 538 Following
British Society for H.. @BSHeartFailure
11K Followers 2K Following Making heart failure a national priority whilst improving the delivery of equitable, high quality heart failure care #theFword #freedomfromfailure #25in25
Dr Tootie Bueser💙 @2tbueser
2K Followers 2K Following Dir for N&M @SEgenomics | CN @NorthThamesGLH | Nurse rep @AiccUK council | Trustee @cardiomyopathyUK | NIHR CDRF & NIHR70at70 alum | #cardiogen Nurse
Stephanie Cruickshank @stephanie2453
2K Followers 2K Following Cardiac transplant 11/2021, cardiac arrest survivor x 3, Arrhythmia nurse NHS, mother to three sons, Cardiomyopathy UK Change Maker
Heart_BMJ @Heart_BMJ
60K Followers 11K Following Publishing research and reviews in #cardiovascular diseases. Companion #OpenAccess journal, @Open_HeartBMJ Published with @BritishCardioSo
Pumping Marvellous Fo.. @pumpinghearts
23K Followers 3K Following Patient-led UK Heart Failure Charity helping patients & their carers self manage. Advising as an advocate locally, nationally & globally. Let's #BeatHF together
European Society of C.. @ESC_Journals
103K Followers 7K Following Official @ESC_journals account for the most successful family of CV journals. Articles FREE for 24h from time of post. European Society of Cardiology @escardio
BACPR @bacpr
4K Followers 843 Following The British Association for Cardiovascular Prevention and Rehabilitation represents health and exercise professionals engaged in the specialism
Dr.Rajiv Sankaranaray.. @DrRajivsankar
4K Followers 3K Following MBBS FRCP FESC FHFA PhD #heartfailure Cardiologist @LivHospitals Researcher VW Clinical Lead @NHSGIRFT #YNWA #renalcancer survivor #vegan Tweet=myopinion
Royal Papworth Hospit.. @RoyalPapworth
12K Followers 441 Following UK’s leading heart and lung hospital 🫀🫁 | Biggest sleep centre | World leader in transplants | ECMO | Values: compassion, excellence, collaboration.
British Cardiovascula.. @BritishCardioSo
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American College of C.. @ACCinTouch
148K Followers 2K Following Official American College of Cardiology account. Join us to transform cardiovascular care & improve heart health. Find us: @JACCJournals @Cardiology
Alison Fielding @Alisonrfielding
622 Followers 492 Following Genomics fan. Cardiomyopathy UK Vice President. NCRI consumer rep. Living with dilated cardiomyopathy and S4 kidney cancer. Cover photo is my 5.7cm heart met.
Libby Jarman @libbyjarman
469 Followers 909 Following Senior Research Physiotherapist. MRes. Trustee at Cardiomyopathy UK. Erstwhile Pianist . Views entirely my own.
Sanjay Sharma @SSharmacardio
9K Followers 4K Following Manage best hearts in the UK. Prof of Cardiology. Medical director London marathon. Sports cardiology Don. Author of Rapid Review in Medicine.
Christie Jones (he/hi.. @christiecardio
463 Followers 866 Following Communities Engagement Manager at Cardiomyopathy UK (@Cardiomyopathy). All opinions are my own.
CRY @CRY_UK
19K Followers 7K Following Cardiac Risk in the Young supports those affected by young sudden cardiac death & funds research, screening, CRY Cardiac Pathology & Sports Cardiology Centres
BANCC💙 @bancccouncil
2K Followers 984 Following The British Association for Nursing in Cardiovascular Care is a forum for communication, professional development and national representation. Join now!
Mamas A. Mamas @mmamas1973
73K Followers 41K Following Professor of Cardiology @KeeleUniversity. Research: CV Epidemiology. Associate Editor @CircIntv. Senior clinical editor @TCTMD. @BCIS_uk audit lead.
Heart Failure Policy .. @HFPolicyNetwork
2K Followers 781 Following We are a multidisciplinary network of patient advocates, HCPs and policymakers. We work to raise awareness of #HeartFailure among decision-makers across #Europe
Jamie Walton @CardiacJamwal
196 Followers 198 Following Clinical Cardiac Scientist, HSST Trainee (DClinSci), Head of Cardiac Implantable Devices - Queen Elizabeth Hospital Birmingham
Brian Halliday @bp_halliday
919 Followers 594 Following Clinical Senior Lecturer & Consultant Cardiologist @imperialNHLI @RBandH | Cardiomyopathy & CMR | DCM | recovery vs remission | London via Belfast & Edinburgh
Centre for Mental Hea.. @CentreforMH
61K Followers 2K Following Speaking up for social justice in mental health.
Krishnan Guru-Murthy @krishgm
711K Followers 7K Following Main Anchor, Channel 4 News. Unreported World. Ways to Change the World, Strictly Class of 2023, Trustee RBG Kew. Chairman Duchenne UK [email protected]
Helplines Partnership @HelplinesUK
3K Followers 4K Following The UK’s only membership body for helpline organisations. 🎓 Training 🏅Certification 📋 Consultancy ☎ Tech support 🗳 Policy/Research Monitored weekdays 9-5
Bristol Heart Institu.. @BHIBristol
557 Followers 85 Following Specialist Research Institute @BristolUni. World-leading centre for translational cardiovascular research & leading academic cardiac surgery centre in the UK.
willow @riverthistle
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Evelyn Tweed MSP @EvelynTweedSNP
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Kate Abernethy @abernethykate1
196 Followers 240 Following Cardiology Nurse Consultant; Inherited Cardiac Cardiac Conditions, @lhch
Rebecca Jarman @mwrebeccajarman
530 Followers 1K Following Clinical Research Midwife|NIHR Research Midwife Champion @ResNetLondon • MW rep @theUKMCS Council • Volunteer @Cardiomyopathy • #OHCA survivor •Own views.
SteppingStonesLuton @steppingstonesl
757 Followers 612 Following Providing a safe, welcoming, non-judgmental environment for women in Luton and C Beds, who are seeking support around domestic abuse and associated issues.
EmmylouG @EmmylouG1
95 Followers 139 Following School nurse / Cardiomyopathy nurse / Child advocate 😀
Wilfred Frost @WilfredFrost
35K Followers 625 Following Presenter @SkyNews Today with Wilfred Frost, 10am UK M-F (& 5am EST on @NBCNewsNow); Contributor @CNBC, @NBCNews, @MSNBC; CEO, Paradine Productions.
Duke-NUS Medical Scho.. @dukenus
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Munir Pirmohamed @MPUoL
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Mike Inouye @minouye271
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Barbara Spiller 💙 @BarbaraSpiller
398 Followers 312 Following Retired from a career in Marketing after the death of my child. Now living a gentle life in memory of Maddy
Dr Tom Butler @drtom_butler
3K Followers 2K Following PhD. Dietitan. Senior Lecturer @EHU_FHSCM 💥Food💥 to treat #CVD & #heartfailure. Scientific Officer @BACPR @BDAPublicHealth Opinions are own
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мѕ. кαтιє ℓ�.. @KateInwood3
142 Followers 669 Following • ᴡᴇʟꜱʜ-ɪᴛᴀʟɪᴀɴ • ᴀɴɪᴍᴀʟ ʀᴇꜱᴄᴜᴇʀ • ᴄʜᴀʀɪᴛʏ ꜰᴜɴᴅʀᴀɪꜱᴇʀ • ᴅɪᴄᴋʏ ᴛɪᴄᴋᴇʀ • ꜱᴀʟᴀᴅ ᴅᴏᴅɢᴇʀ • ʟᴜꜱᴛ ꜰᴏʀ ʟɪꜰᴇ •
Stephen Kirkham @SKirkhamcardio
270 Followers 233 Following Heart transplant recipient 2015 Passionate about change and progress in organ donation, transplantation, and all things @Cardiomyopathy. #changemaker
AMRC @AMRC
12K Followers 1K Following The membership organisation of leading medical and health research charities in the UK. Tweets by our team.
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466 Followers 424 Following Modern choir with a community spirit One Community, One Voice
Business Fives @BusinessFives
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412 Followers 302 Following A CME-accredited initiative designed to transform the identification, diagnosis, and management of patients with hypertrophic cardiomyopathy
Mayor of Brentwood @brentwoodmayor
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Molly Schiller @Molly_Schiller_
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Society of Hypertroph.. @societyhcm
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Societat Catalana de .. @catcardio
4K Followers 2K Following Difonem l'activitat de l'entitat i l'actualitat #cardiovascular
Alex Bailess @alex_bailess
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Hashtag United FC Wom.. @hashtagutdwomen
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Scottish Obstetric Ca.. @S_O_C_N
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Unidad Cardiopatías .. @CardiopatiasH
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Dr Abigail Barkham Ph.. @AbigailBarkham
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CharityComms @CharityComms
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Natalia Bartolome Die.. @Natalia_BD
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Join us & @Cardiomyopathy in building a survey on living with cardiomyopathy. If you are UK based, over 16 and have been affected by #cardiomyopathy, share your insights in an online interview. Help shape better services & receive a voucher! Learn more: bit.ly/CMUKsurvey24
So proud of the best mother in the world @SuzanneDeakin for taking on the @LLHalf today in memory of @teffers15 & for @Cardiomyopathy I'll be cheering, giving snacks n defo Cadbury's as reqdOh yeah & drinks. You've got this my Luvva #runforjosh #nevergiveup #teamcardio
@LLHalf @SuzanneDeakin is running for @teffers15 @Cardiomyopathy today
So proud of this amazing lady, smashed her PB @LLHalf running for @teffers15 and raising over £1300 for @Cardiomyopathy #NeverGiveUp #runforjosh #teamcardio
A year of our Cardiomyopathy Support Group, outstanding numbers again this morning! June even made us a cake to celebrate 🥳 @Cardiomyopathy @christiecardio @rossiusmaximus
We had the first Essex ICC (Inherited Cardiac Conditions) clinic today 🎉🥳 Managing patients with confirmed or suspected ICC, and screening relatives at risk of serious ❤️ disease including cardiomyopathy. Huge thanks to @AHardyWallace for her excellent work as new ICC nurse 👏🏾
❤ Cardiomyopathy UK December Support Group Meetings ❤ (PLUS - Coffee & Catch Up every Friday at 2pm ☕) --- For info on any of the meetings listed below, email ⬇️ [email protected] Or head to ⬇️ cardiomyopathy.org/support-groups #cardiomyopathy
A portion of @Cardiomyopathy UK’s legendary Coffee & Catch Up family! Whether you’re from Torquay or Toronto, this group is a must-join for emotional support and laughs in equal measure! Every Friday at 2pm! ❤️ cardiomyopathy.org/coffee #cardiomyopathy
@Cardiomyopathy thanks to all the staff & speakers for a wonderful conference. Met lots friends again & the weekly Coffee & Chat crew finally met in person after 3 years chatting virtually, such a special group of friends ❤️
A big shout out to @Cardiomyopathy UK’s Adrian Taylor, who has once again been working flat out to make this year’s National Conference such a huge success 👏🏻. #cardiomyopathy
Excited to be speaking to patients today about Cardiac Devices, at the @Cardiomyopathy UK conference!
Down in London for @Cardiomyopathy National Conference. Very pleased to be here in person this year to discuss #diet and cardiomyopathy @bacpr @edgehill @EHU_FHSCM @BDA_Dietitians
I'm thrilled to be running @LondonMarathon ‘24 to fundraise for @Cardiomyopathy 🏃♂️❤️ This charity offers help, resources, & hope to those battling this heart condition. Every donation will mean the world & help in pushing through those training miles!🏃♂️ shorturl.at/aenEP
As our #Cardiomyopathy Patient Council 3-day meeting concludes today in Florence, Italy, we would like to extend a huge thank you to our Affiliates for their commitment and dedication to raising awareness and improving diagnosis, management and understanding of cardiomyopathy.
📢 DO YOU HAVE CARDIOMYOPATHY?📢 The new Cardiomyopathy UK West Scotland Support Group is meeting online on Monday. Please email Gabriella if you're interested in attending. RT to spread the word. #cardiomyopathy @Cardiomyopathy #CardiacRehab #HCM #DCM #RCM #LVNC #PPCM #ARVC
Raising awareness amongst staff at COCH this lunchtime secondary care and community team working together Proud to be part of this amazing team @cwpnhs @TheCountessNHS @pumpinghearts @Cardiomyopathy
One week today, get your tickets early to watch this special game whilst raising funds for @CorporalScotty @Cardiomyopathy ⬇️
Another Norwich legend back at Wroxham #Pitchero wroxhamfc.club/news/another-n…
Looking forward to hosting a @Cardiomyopathy UK table at the Healthy Heart Open Day at East Trees Health Centre this Saturday! Come and say hello to myself and our wonderful volunteers Steve and Betsy ❤️. For more information, please see the poster below ⤵️ #cardiomyopathy
Great to see our Swansea Support Group thriving! For more information about our Support Groups, head to: cardiomyopathy.org/suport-groups #cardiomyopathy
Another hugely successful @Cardiomyopathy Support Group - 30 attendees came along to drink tea & socialise and hear our lead Nurse, Louise Norgrove talk about the types of Cardiomyoapthy & we were also joined by #CherieAdamson from #BreathOfLifeProject @christiecardio
Really good to see a #cardiomyopathy focus in the core curriculum for #cardiovascular practice! Richard Mindham hones down the importance of patient-centred care @Cardiomyopathy #ACNAP2023 #cardiogen
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