CdLS Foundation @CdLSFoundation
Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.676.8166 #raredisease #cdlsawareness cdlsusa.org Avon, CT Joined November 2011-
Tweets3K
-
Followers1K
-
Following964
-
Likes177
🎉 Happy National Grandparents Day! 🌟 Share a story about your grandchild with CdLS by clicking this link. ⬇️ CdLSFoundation.memfox.io/cdlsgrandparen…
📚✨ Happy Read a Book Day! 🎉 Share a pic of your loved one with CdLS reading their favorite book! Click the link and upload a photo under the prompt "Reading a Book Photo." ⬇️ CdLSFoundation.memfox.io/submityourphot…
What better day than International Day of Charity to donate to the CdLS Foundation! 💜 We depend on your monetary donations to keep up our nationwide advocacy - and most importantly our research to better serve the CdLS community. Donate today! givebutter.com/cdlsdonation
Not every day is easy, but we do it because of the love and light our loved ones with CdLS have given us. 💜 Share this post with someone that needs to hear this today, or tag a friend in the comments.
Happy Labor Day from the CdLS Foundation Board Members and staff! The Foundation will be closed today, September 1. It will reopen tomorrow at 8:30 AM EST.
It’s only in recent years that a future including fulfilling work in an integrated setting has been the expectation large numbers of parents have for their children with disabilities. Read more tips for preparing for your child's future on our website. cdlsusa.org/finding-a-fulf…
🌊🏖️ Happy National Beach Day! 🎉🌞 Let’s soak up the sun, feel the sand between our toes, and create unforgettable memories! Want to see your photos featured? Submit them here! ⬇️ CdLSFoundation.memfox.io/jqyojh
Don't miss these virtual and in-person events! 💜 Get to know our community! Register and find out more info on our website. cdlsusa.org/calendar/
Not a golfer but still want to be involved? 💜 Be a volunteer at the 37th Amber Gaines Memorial Golf Classic on Monday October 13th at the beautiful Tapawingo Golf Club! Email Lisa Schroeder at [email protected] for more information.
💜 You asked - What is your best advice around genetic testing for older individuals with CdLS? We answered! Watch this video on Youtube from our experts! youtu.be/UER0vQWG6Rg?si… Have a question? Submit to Ask the Experts on our website. cdlsusa.org/ask-the-expert/
Congratulations to our Family Service Coordinator, Ashley Fernandez! 💜 Read here about her Shoreline Chamber Women of Excellence Award. ⬇️ patch.com/connecticut/no…
Does digital media help or hinder language development in young children? 🤔 What does the research say about how parents and caregivers can foster an optimal environment for language learning? Read more about this on our website. cdlsusa.org/early-childhoo…
Meet a Team CdLS Chicago Marathon ambassador! 💜 Oliver is 9-years-old and loves to have fun with his family. They will be cheering on a runner this fall during the Chicago Marathon. Learn more about Oliver and how you can support Team CdLS on our website. cdlsusa.org/oliver-teamcdl…
The nation’s pediatricians are getting new guidelines for how to go about evaluating children who present with global developmental delay or intellectual disability. Read more about these new guidelines on our website - cdlsusa.org/pediatricians-…
Physicians are being told to play a bigger role in ensuring that children with disabilities have access to needed augmentative and alternative communication technologies. Read more about this report on our website. cdlsusa.org/pediatricians-…
Don't miss these virtual events! 💜 Get to know our community through our monthly support group, and educational webinars. Register and find out more info on our website. cdlsusa.org/calendar/
Thank you to our wonderful volunteers Jodi and Dayna who help with the Amber Gaines Memorial Golf Classic! 💜 Don't miss out on this year's event Monday October 13, at the Tapawingo National Golf Course. Register, be a sponsor or make a donation: givebutter.com/AmberGainesGol…
Happy birthday to all our community members celebrating in August! Tag us in your August birthday pics! 💜
The long vacation doesn’t simply hit the “pause” button on reading, math and writing skills. Learn the best way to balance school skills and summer fun on our website! cdlsusa.org/should-my-chil…
🎉 Happy National Disability Independence Day! 🎈 Today, we celebrate the resilience and achievements of individuals with disabilities. #DisabilityIndependenceDay #CelebrateInclusion
Rare Disease Day @rarediseaseday
42K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Lauren Jenner @laurenamyjenner
240 Followers 286 Following Postdoctoral Fellow @UofSC researching autism, intellectual disability and genetic syndromes.
Oliveira Lab @CHR_lab
2K Followers 415 Following Chromosome Dynamics Lab @ Católica Biomedical Research. Aiming to understand how mitotic chromosomes are assembled and influence mitotic fidelity
Aurèle Piazza @aurelepiazza
536 Followers 370 Following @CNRS group leader at @ENSdeLyon @Lyon_LBMC studying DNA recombination and spatial genome organization. Bye bye X, now on @aurelepiazza.bsky.social
Jo Moss @JoannaFMoss
457 Followers 556 Following Senior Lecturer @SurreyPsych @UniofSurrey. Interested in social, cognitive & emotional diversity in people with neurodevelopmental conditions. Views my own
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
cohesin_papers @cohesin_papers
2K Followers 1 Following Pubmed RSS paper feed on cohesin and its 'friends': condensin, Smc5/6, Scc2 (NIPBL), Scc4 (Mau2) and MukBEF.
Aaron Viny @TheDoctorIsVin
4K Followers 2K Following Physician Scientist @cohesinlab @CSCIcolumbia @columbiacancer Leukemia Doc and Survivor, Devoted Husband/Dad, CLE/UMich/NYR Fan, Tweets/opinions are my own
Susirl @Susirl641
2 Followers 198 Following Focused on investing in U.S. stocks, happy to discuss stock market trends.
NoraAlsopp @vNxY6F9LyXZsr0
4 Followers 314 Following Focused on investing in U.S. stocks, happy to discuss stock market trends.
Audrey @73W00b03tI36042
21 Followers 540 Following Need a new content parntnerrr heheeh, link beloww lets see if we are closeeee!
Multiple Sclerosis Ne... @MSNewsToday
12K Followers 3K Following We are dedicated to sharing the latest news, research, and multiple sclerosis patient perspectives.
Ietwerxal @Ietwerxal11127
0 Followers 778 Following
Clodagh @FHomenick80045
43 Followers 2K Following
Sloulu @Sloulu9109
43 Followers 1K Following
Maribeth @Maribeth422
240 Followers 1K Following I believe in God ✝️. 🩵my grandson. ♥️my kids. Be kind & give to our fellow human beings 🌎 I’m not perfect. #NINERS #GIANTS #WARRIORS ♥️ 💛🧡🖤💙💛#DUBNATION
Uduitap @Uduitap848781
8 Followers 1K Following
Nian Liu @NianLiu7
6 Followers 137 Following
Udorpod @Udorpod48478
36 Followers 1K Following
Kaljaum @Kaljaum189135
9 Followers 1K Following
Ieblorduc @Ieblorduc704
18 Followers 776 Following
Vowu @Vowu20476
5 Followers 660 Following
Andres Shanahan @AndresShan34216
29 Followers 2K Following
Asoonu @Asoonu599172
1 Followers 87 Following
Anna @MannVladim39
92 Followers 4K Following
Huaufol @Huaufol8032
2 Followers 186 Following
Erqocie @Erqocie85496
1 Followers 25 Following
Michael Meier @mikemeiers85
7 Followers 168 Following
Povar @Povar9865967
7 Followers 170 Following
Orsouqi @Orsouqi1247
43 Followers 2K Following
Giving Voice @GivingVoiceUK
15K Followers 592 Following @RCSLTpolicy (mainly @PeterDJust & @elissacregan) covering how SLT transforms lives, charity partners' work & people's stories. #GVTwitterTakeover host.
Eguouawqqu @Eguouawqqu3492
23 Followers 2K Following
TheRareAdvocate @HopewithATS
0 Followers 32 Following Living with Hope with a rare disease, ATS HyhpoPP-Mom, Wife, Advocate, Former Nurse.
Gorouqo @Gorouqo0019
29 Followers 728 Following
Victor Nexus @nexus_victor34
596 Followers 5K Following The American Dream I believe in is one that provides anyone willing to work hard enough with the opportunity to succeed
Hudson Rath @HudsonRath97096
12 Followers 675 Following
Rervie @Rervie120756
20 Followers 468 Following
Trouarbek @Trouarbek99606
21 Followers 497 Following
Marcus Sanford @MarcusSanf63867
21 Followers 690 Following
Richard Ingledue @RIngledue61350
51 Followers 64 Following
Suzy @SoughzYnpQ5
0 Followers 71 Following
datamining-omics @DataminingO
94 Followers 522 Following We share tweets relating to datamining with a preference for omics related topics
StardustWanderer @Bruiri2533991
5 Followers 154 Following
HazelThunder @Weevi0404
6 Followers 178 Following
Seschar @Sescharo34hA
34 Followers 613 Following
Shasta Sparks @ShastaSparks3
22 Followers 167 Following
Conner Dodson @conn82000
26 Followers 876 Following
Benjamin @helptheneedy_0
409 Followers 2K Following Campaign strategist offering tips and insights to help your campaign succeed. Let's turn your vision into a reality!
Thearsoa @ThearsoahIlza
5 Followers 470 Following
Molecular Cell @MolecularCell
142K Followers 525 Following Molecular Cell is a Cell Press journal that aims to publish the best papers in molecular biology.
Rare Disease Day @rarediseaseday
42K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Lauren Jenner @laurenamyjenner
240 Followers 286 Following Postdoctoral Fellow @UofSC researching autism, intellectual disability and genetic syndromes.
Oliveira Lab @CHR_lab
2K Followers 415 Following Chromosome Dynamics Lab @ Católica Biomedical Research. Aiming to understand how mitotic chromosomes are assembled and influence mitotic fidelity
Aurèle Piazza @aurelepiazza
536 Followers 370 Following @CNRS group leader at @ENSdeLyon @Lyon_LBMC studying DNA recombination and spatial genome organization. Bye bye X, now on @aurelepiazza.bsky.social
Jo Moss @JoannaFMoss
457 Followers 556 Following Senior Lecturer @SurreyPsych @UniofSurrey. Interested in social, cognitive & emotional diversity in people with neurodevelopmental conditions. Views my own
eLife - the journal @eLife
171K Followers 709 Following The funder-researcher collaboration and open-access journal for research in the life and biomedical sciences | @eLifeCommunity
bioRxiv @biorxivpreprint
137K Followers 23 Following Daily summaries of preprints posted in each bioRxiv Subject Area. Find ways to get social media alerts to individual papers at https://t.co/wrlEW1phDV
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
EURORDIS-Rare Disease... @eurordis
32K Followers 1K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
cohesin_papers @cohesin_papers
2K Followers 1 Following Pubmed RSS paper feed on cohesin and its 'friends': condensin, Smc5/6, Scc2 (NIPBL), Scc4 (Mau2) and MukBEF.
Richards Lab @RichardsLabUoB
1K Followers 835 Following Research into sleep and behaviour in neurodevelopmental conditions led by Professor Caroline Richards @unibirmingham (retweets are not endorsements)
BCSN @BCSNsports
41K Followers 701 Following Your home for the most complete coverage of high school, college, and professional sports in NW Ohio and SE Michigan since 2004. Only on @BuckeyeInternet.
Sevinç Ercan @ErcanLab
1K Followers 1K Following Associate Professor of Biology at NYU. Chromatin structure, SMCs, condensin, gene regulation, X chromosomes.
Breaking Down Barrier... @BarriersDown
1K Followers 3K Following BDB is a network of organisations working together to improve the lives of people from marginalised communities and addressing health inequalities.
Liz Kennerley #LongCO... @LifeAccrdingLiz
2K Followers 2K Following #chronicillness #patient & Federal Health Policy #Advocate @SimmonsAlumni, @remember_girls Board member @RareDiseaseDiv1 Patient RISE award recipient. My views.
CRID - Unique Patient... @_TheCRID
292 Followers 655 Following More data sharing, less data silos. I prefer BlueSky . Find me at: https://t.co/UtXFYW1OZx
J Org Chem/Org Lett @JOC_OL
53K Followers 531 Following JOC and OL serve as the leading international forums for communicating important research in all branches of the theory and practice of organic chemistry.
marianne vennitti @mvennitti
1K Followers 1K Following Passionate #RareDisease Patient-Advocate. Co-Founder@allianceforcryo #MedX ePatient Scholar @vpprn #Patient Partner #cryoglobulinemia #vasculitis
NY Genome Center @nygenome
40K Followers 2K Following An independent, nonprofit academic research institution at the forefront of transforming biomedical research to advance genomic science and precision medicine.
Shriners Children's S... @ShrinersSLC
1K Followers 394 Following Healthcare facility specializing in pediatric orthopedics. Learn more about our care ⬇️
PNASNews @PNASNews
181K Followers 1K Following Cutting-edge news & reports from PNAS, one of the world's most-cited scientific journals, sibling journal of @PNASNexus & an official journal of @theNASciences.
Nature Chemistry @NatureChemistry
273K Followers 1K Following A chemistry journal from @NaturePortfolio & @SpringerNature.
Chemistry News @ChemistryNews
518K Followers 115 Following Breaking chemistry news from only the best sources. Connecting chemists, students, academics & researchers worldwide. Most followed Chemistry account 🙏
Royal Society of Chem... @RoySocChem
156K Followers 1K Following This account has been archived. Stay connected with us on https://t.co/4ezsp9fcsX, LinkedIn, Bluesky, Facebook, Instagram, WeChat, YouTube and TikTok.
Cell Press @CellPressNews
161K Followers 1K Following Cell Press partners with scientists across all disciplines to publish and share work that will inspire future directions in research. #ScienceThatInspires
Rare Disease Innovati... @rdii_org
460 Followers 207 Following RDII is a non-profit organization focused on education, engagement and to equip the rare disease community
Nature Communications @NatureComms
248K Followers 488 Following Nature Communications is an open access journal publishing high-quality research in all areas of the biological, physical, chemical and Earth sciences.
Nature Methods @naturemethods
151K Followers 1K Following Nature Methods publishes cutting-edge methods, tools, analyses, resources, reviews, news and commentary, supporting life sciences research. Tweets by editors.
Fred Yadisernia @Fredyad11
41 Followers 33 Following
Natera Women's Health @NateraWomen
2K Followers 2K Following From planning a family and prenatal testing to hereditary cancer screening, @NateraGenetics offers high-quality genetic tests.
Malan Syndrome Founda... @MalanSyndrome
422 Followers 345 Following Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene.
Cell @CellCellPress
262K Followers 603 Following Cell aims to publish the most exciting and provocative research in biology. Posts by Scientific Editors on the Cell Editorial team.
Natera Organ Health @NateraNeph
952 Followers 1K Following @NateraGenetics helps improve patient outcomes through an innovative platform for genetic testing in kidney health and organ transplant.
Alek Erickson @AlekErickson
376 Followers 1K Following evolutionary/developmental biology, abstract games, and music
UC Irvine @UCIrvine
72K Followers 575 Following The official account of the University of California, Irvine. 🐜🍽💙💛 #UCIPride
J. Am. Chem. Soc. @J_A_C_S
185K Followers 10K Following Research, news, and information from the Journal of the American Chemical Society.
Cold Spring Harbor La... @CSHL
38K Followers 763 Following Non-profit research and educational institution at the forefront of molecular biology, cancer, neuroscience, plant biology, and genetics.
Science Careers @ScienceCareers
269K Followers 219 Following ScienceCareers is the careers component of @ScienceMagazine and produced by @AAAS. Scientists rely on Science Careers for #career information and #job postings.
chuanbin @chuanbin_su
69 Followers 178 Following Postdoc @Creminslab @pennbioeng @PennGenetics @PennEpiInst | Exploring genome instability, genome structures, neurological disease, Alumni @FudanUniv @Yale
IpswichGov @IpswichGov
17K Followers 401 Following The official Twitter channel of Ipswich Borough Council. Monitored during office hours. #Ipswich Suffolk, UK.
Stowers Institute @ScienceStowers
5K Followers 1K Following At the Stowers Institute, great minds are at work seeking to understand the function & behavior of living organisms, paving the way for future medical advances.
Cornelia España @CorneliaEspana
142 Followers 41 Following Asociación Española del Síndrome Cornelia de Lange
The Wiedemann-Steiner... @WSSFoundation
246 Followers 739 Following The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by #WSS.
BMC Biology @BMCBiology
9K Followers 679 Following BMC Biology is an #OpenAccess journal publishing research articles and reviews of broad interest and importance in all areas of biology. Part of @SpringerNature
Congenital Heart Init... @ACHD_CHI
2K Followers 400 Following A patient-powered registry dedicated to improving the lives of adults living with CHD. Follow on Instagram: https://t.co/VZ1lYPYHgi
Rareminds @RaremindsUK
944 Followers 2K Following Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…
Radina Georgieva @radinagg
129 Followers 254 Following Bioinformatics Data Scientist | PhD in Computational Biology @imperialcollege @MRC_LMS @GroupLenhard
Joe Mussatto @joe_mussatto
19K Followers 2K Following Sports columnist @OklahomanSports | @OKCDreamTeam contributor | Have a story to tell? Email: [email protected]
Sean Burgess @smburgessucd
746 Followers 739 Following Professor @ucdavis researching chromosome biology using budding yeast and zebrafish. Affiliations @Burgesslab @aggietranscript @ucdavisbiology @UCDavisGenetics
Ze Parisienne™🇺�... @ZeParisiennetm
1K Followers 5K Following UPRRP #MolecularBiology #BioPolitics #Philosophy #Sociology #ProStatehood #Pierluisi2024🇺🇸 #Feminista💜Penepé💙Life w/o sarcasm would be a mistake #MAGA🇺🇸✊
Tae Hoon Kim @taehoonkim
787 Followers 847 Following Professor - Scientist - Inventor https://t.co/qDMXAOgBtg
Natera Oncology @NateraOncology
3K Followers 2K Following @NateraGenetics is transforming the management of cancer with #Signatera—the personalized test for molecular residual disease detection & recurrence monitoring.
Visit Connecticut @VisitCT
11K Followers 251 Following We're here to help you plan your trip to Connecticut! We've got all the info you need, from great places to visit to top-notch dining &lodging recommendations.
CT Visit @CTvisit
38K Followers 2K Following The Official Connecticut State Tourism Twitter page. Your go-to source for information on traveling to and around Connecticut. #CTvisit
The Innovation | Medi... @Innov_Medicine
254K Followers 14K Following The Innovation Medicine is a new journal on medical science from The Innovation Group, a sister journal of The Innovation @The_InnovationJ. #Medicine #Science
SoniyaFit @SoniyaFit
4K Followers 2K Following Ultra-Rare Disease Warrior 🧬 Familial Chylomicronaemia Syndrome (affects 1 in 1 million) | Healing Out LoudTrends for United States
You might like
