ChronicallyJess @ChronicallyJess

Patient advocate living with #Crohns. Collaboration with patients is the future of medicine. #IBDparenthoodproject @trellushealth @dartmouthMHCDS ‘20 chronically-jess.com New Hampshire, USA Joined September 2016

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Aline Charabaty, MD, FACG, AGAF @DCharabaty

2 years ago

#AIBD2023 Pregnancy in #IBD @ChronicallyJess 💎B clear: healthy🤰🏼on Rx = healthy 👶🏻 🤰🏻needs to know she’s doing the right thing for👶🏻 AND fight misinformation & “advice” from “internet & well-meaning in-laws” 💎Enroll🤰in #PIANO: it’s empowering for🤰🏽to be part of ⏩ science

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ChronicallyJess @ChronicallyJess

2 years ago

“Our job is to give patients more hope and reduce their fear.” Thank you for doing that, and so much more, over our many years together. Im so very lucky and I know it. Congratulations on your INCREDIBLY well deserved Sherman Prize, Corey! #aibd2023

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ChronicallyJess @ChronicallyJess

2 years ago

You did an amazing job with this article, and inspired me in the process! 💜

Katie Dunleavy @dunleavy_katie

2 years ago

You did an amazing job with this article, and inspired me in the process! 💜

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ChronicallyJess @ChronicallyJess

2 years ago

Patients don’t fail treatments. Let’s commit to stop phrasing it as if they do. It matters!

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Tina Aswani-Omprakash, MPH @ownyourcrohns

2 years ago

#IBD patients: hang on to this slide! #EmilyBlock sharing resources for how to get access to medications 💊💉 #AIBD2023 @IBDConference

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Uma Mahadevan @UmaMahadevanIBD

2 years ago

One of the most important things I learned @IBDConference was on panel w/@ChronicallyJess “when pt comes in w/certain beliefs/therapies, they’re coming from a place of hope, hope that therapy “x” cures them & they don’t need y&z” . Understanding that changes the whole interaction

ChronicallyJess @ChronicallyJess

2 years ago

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ChronicallyJess @ChronicallyJess

2 years ago

LOVING convos about fatigue at #aibd2023, but want more about how pts measure fatigue, and how they currently compensate in their life to manage fatigue, because if patients rate their fatigue as improved, but are still opting out of activities, fatigue is not actually improved

Aline Charabaty, MD, FACG, AGAF @DCharabaty

2 years ago

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ChronicallyJess @ChronicallyJess

2 years ago

After being diagnosed with Lyme disease this summer, following development into severe neurological symptoms before I was heard by doctors and properly tested/treated, I’m finally stepping outside of my safe, home-based space to travel to #aibd2023! Feeling thankful to be here ✈️

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ChronicallyJess @ChronicallyJess

3 years ago

What an amazing opportunity for #ibdmoms to create additional research for future parents with #crohns #ulcerativecolitis

PIANO @PIANOIBD

3 years ago

What an amazing opportunity for #ibdmoms to create additional research for future parents with #crohns #ulcerativecolitis

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About IBD: Amber-Writer, Journalist, Podcast Host @aboutIBD

3 years ago

📣 The latest #AboutIBDPodcast covers a tool called CDPATH, which is available now for some people w/ #Crohns. It could help in deciding, for instance, about medications. @DrCoreySiegel and @ChronicallyJess give the details on Ep 128! Listen or read here: bit.ly/AIBD128

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Tina Aswani-Omprakash, MPH @ownyourcrohns

3 years ago

Incredible meeting @ChronicallyJess & @UmaMahadevanIBD IRL! And @SCKimCHP @IBD_Afzali seeing you again! The work you all do for women & children w/ #IBD is groundbreaking. I am humbled to know you 💜🙏🏽 #AIBD2022 @MRegueiroMD @IBDConference

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Crohn's and Colitis Young Adults Network @CCYANetwork

3 years ago

“We getting pulled up tonight” 🎶 When GI docs pull up at #AIBD2022 with patients…@IBDConference @MRegueiroMD @MLongMD @NMH_SHanauerMD @SCKimCHP @JeremyAdlerMD

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Tina Aswani-Omprakash, MPH @ownyourcrohns

3 years ago

Amazing discussion with @UmaMahadevanIBD & patient advocate @ChronicallyJess on #pregnancy & #IBD! 💎 Have conversations early & discuss safety of therapies 💎 Share data with patient & loved ones + discuss openly as the emotional process is enormous #AIBD2022 @IBDConference

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Angelina Collins, NP @AngelinaIBDNP

3 years ago

Thank you to @ChronicallyJess and @ownyourcrohns for sharing your courage, candor and wisdom. We are better with you on the podium! #AIBD2022

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ChronicallyJess @ChronicallyJess

3 years ago

Congrats to ⁦@UmaMahadevanIBD⁩ on her #shermanprize, as her work is particularly impactful for women with #ibd who are pregnant or wanting to become pregnant. She has helped bring the data to #ibdmoms who want to make safe, informed decisions on how to become moms. 💜🤰🏻💜

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ChronicallyJess @ChronicallyJess

3 years ago

LOVING #aibd2022, but I’m dreaming of a day when conferences do away with all the wasteful handouts. We know that the environment impacts chronic illness… here’s one way to help reduce waste - we’ve all gone digital at this point, anyway.

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Ahmed Kurdi @Ahmed_Kurdi_88

3 years ago

IBD Summit:Highly educational meeting for fellows interested in #IBD! Basic &🔥 topics by leaders who revolutionized management & treatment!Thx to @DrCoreySiegel @IBDMD @NMH_SHanauerMD @VindicoMedEd @EdwardLoftus2 @ibddocmaria @MLongMD @ChronicallyJess @MRegueiroMD #MarlaDubinsky

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Elisa Boden, MD @ElisaBodenIBDMD

3 years ago

Diet as therapy for IBD. Patient perspective @ChronicallyJess: Pts can internalize blame related to diet- important to reassure patients IT IS NOT THEIR FAULT. #aibd2022 @IBDConference

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Elisa Boden, MD @ElisaBodenIBDMD

3 years ago

@oridamas @GIdietitian @ChronicallyJess #JimLewisMD #IkuoHiranoMD. Promising data on Diet as therapy: Low fat diet, SCD. Mediterranean diet - common denominator may be HIGH FIBER. ? Effects on symptoms vs inflammation @IBDConference #aibd2022

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Tina Aswani-Omprakash, MPH @ownyourcrohns

3 years ago

As an #IBD patient, really exciting to see positioning of newer therapies being discussed. Personalization is coming, fellow patient community! 🙌🏽 Thank you to @IBD_Afzali @MLongMD @DrCoreySiegel for explaining strategies to use newer tx VEDO, UST & RISA. #AIBD2022