Sickle Cell Disease Coalition @ConquerSCD
The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD! scdcoalition.org Global Joined August 2017-
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Sickle Cell Awareness Month is here! 🩸 Take a look at some of the key events happening across the sickle cell community this September. 📅 View the full calendar: ow.ly/LE1M50WS5ZA 🔁 Share & help spread awareness. #SickleCellAwarenessMonth #SCD #SickleCell"
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We’re ONE MONTH out from the 2025 SCDC Summit — and registration is officially OPEN! And yes, we’re back on Whova! Our members loved the experience. Connect with others, and personalize your Summit journey from anywhere. 🎟️ Register now: ow.ly/ANTl50WQtsG
🗣️ Join the SCD Coalition Peer Learning Exchange! 📅 Sept 11 | 10 a.m. EST 🎙️ Featuring Bukola Bolarinwa & Jenica Leah. 💡 Patient voices lead to smarter research. 📲 Register:ow.ly/mGMu50WOrlF #SCDCoalition #SickleCell #PatientVoices #SCD #PeerLearning
National Sickle Cell Awareness Month is around the corner! Planning events, toolkits, or campaigns? One perk of being in the SCDC network: we help promote your work. 📩 Send us your plans—we'll help amplify them! #SickleCellAwarenessMonth #SCD#SCDCNetwork
August is #MedicAlert Awareness Month. For people with #SickleCellDisease, medical ID jewelry can mean faster, safer care in a crisis. SCDAA is continuing their partnership with @MedicAlert to improve ED experiences for those living with SCD. Learn more: ow.ly/f6ew50WCWRU
Subscriber Notice: A technical issue may have removed some from our SCDC Update mailing list, delaying this month's edition. We're fixing it! Keep sending events via email! Thank you for your support! #SCDCoalition
Don’t be that person who hears SCDC news 3 months later 👀 Get the latest tools, events & updates straight to your inbox. 📬 Not on our list? Have your organization join us: ow.ly/zLZ550WCVfN
🌍 GANSID is surveying clinical research pros in high-resource countries to identify barriers to sickle cell & inherited blood disorder trials. Your insights matter! 🧬 Learn more & take the survey: ow.ly/WG4N50WCT1R
🚨 New SCDC Resource Alert! 🚨 The SCD Strategic Dissemination Model is now live! This guide helps orgs & individuals plan how to share resources & initiatives with the #SickleCell community & beyond. 📥 Download here: ow.ly/QXrL50WCRiP
Last chance! Abstract submissions for the #ASHAnnualMeeting are due tomorrow! Share your research with thousands of heme & heme-onc professionals this December and help drive innovation in the field. Submit now: ow.ly/OzJx50WztLm #ASH2025 #Hematology #CallForAbstracts
We're thrilled to welcome Friends of Sicklers Foundation Uganda to the SCDC! 🌍 This CBO advocates for sickle cell awareness, provides psycho-social support, and leads water sanitation and hygiene initiatives. Learn more about them here: ow.ly/juuG50WiJ3S
This Disability Pride Month, and every month, we affirm: -Sickle Cell Disease is real -Sickle Cell Disease can be disabling -People living with sickle cell disease deserve to thrive #DisabilityPrideMonth #DisabilityJustice #SickleCellAwareness"
The SCDC is proud to welcome CrimsonBow Sickle Cell Initiative! They are improving the lives through care support, empowerment and awareness. Visit their website to learn more: ow.ly/lMmS50WiIOE
🚨 Ready to lead? Co-chair nominations are officially open! We’re filling spots on all 5 subcommittees! 🗓️ Deadline: July 23, 2025 🧬 Must be part of an SCDC member org in good standing. 🔗 Nominate here: ow.ly/i8Yw50WiIE9
🎉 The 12th Annual Warriors Convention in Orlando, FL is almost here! Community Presentations on July 17.🌟 Theme: Legacy of Leadership: A Sickle Cell Family Reunion Still time to register for virtual attendance. 🔗 ow.ly/PWYj50WiIv7 #SickleCell #WarriorsConvention #SC3
Will you be attending the 2025 NASCC Annual SCD Centers Meeting & Consensus Conference starting tomorrow? 💻 In-person & virtual options available Collaborate, learn, and advance care for the SCD community. 🔗 Info: ow.ly/OAw450WiGcg #SickleCell #NASCC2025 #SCDCPartner
🚨 Just released: The first report from the ASH RC SCD Data Hub! It highlights key insights on patient demographics, comorbidities, ED & inpatient utilization, and more. A major step in advancing hematology through real-world data. 🔗 Read it here: ow.ly/6UBl50WiE4n
We're excited to welcome Warrior Ozioma Foundation as a SCDC member! They are raising awareness in schools & expanding access to eye care. Learn more about them here: ow.ly/2kuA50Wizup
📢 Abstracts due July 3! SCDPAIN is calling for poster submissions for the 2025 Meeting. Topics: 🔹 Pain measurement methods 🔹 Mechanistic insights 🔹 Whole-person approaches Details & submission information here: ow.ly/aks750Wiz0y #SCDPAIN2025 #SickleCell #PainResearch
Happy WorldSickleCellDay! 🩸 Join the 24-hour global event hosted by @IBloodDisorders & @CayenneWellness NOW! Catch the SCD Coalition presentation at 6–6:30 PM ET. Polls, giveaways & powerful resources await: ow.ly/LqVj50W2J7L Together we can #ConquerSCD.
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ASH @ASH_hematology
71K Followers 2K Following The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
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50 Followers 58 Following A non-profit organization that promotes awareness, education, and prevention of sickle cell disease within our community through education and service.Trends for United States
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