Cure MSD @CureMsd
Our mission is to cure Multiple Sulfatase Deficiency #TogetherWeCan #CureMSD curemsd.org Joined August 2017-
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Happy 14th Birthday, Riley! š From all of us at the United MSD Foundation, we hope you have an awesome, fun-filled day with your friends, family, and horses! Please wish Riley a very happy birthday in the comments! #TogetherWeCan #EveryBirthdayIsSpecial #RareAware #MSD
Today is Analynn's 14th birthday! š We hope you have the most wonderful day filled with all your faves, Analynn. With much love from all of us at United MSD Foundation! Please be sure to wish Analynn a very happy birthday in the comments! #HappyBirthday #TogetherWeCan #MSD
AAV9 gene therapy is moving forward with vector manufacturing underway & protocol review complete. We're grateful for our committed partners at BGTC working urgently to bring this critical #MSD treatment to trial. Learn more about our progress here: ow.ly/zCot50WGaQJ
August's E-News is out! Are you signed up for the latest updates on our AAV9 gene therapy trials, Silent Auction, & all the ways YOU can join the fight to find a treatment for MSD? Donāt miss a beatāsign up here: curemsd.org/newsletter-sigā¦
Itās that time already! š¦ The 9th annual Zebra Run returns March 2026 ā & we need amazing volunteers to help make it happen! Live on the MS Gulf Coast? Join the planning committee: [email protected]. #ZebraRun #Volunteer #RareAware #Fundraiser
So much BLUE thanks to YOU! š A Blue Wave of Hope lit up landmarks across the globe for #MSDWorldDay ā shining bright for families facing Multiple Sulfatase Deficiency. Each light was a beacon of awareness & hope. Thank you. š”š #BlueWavesofHope #BlueForMSD #RareAware #MSD
Incredible news! Thanks to YOU, weāve surpassed our #MSDWorldDay goal: over $10K to fight MSD! But the fightās not over. Every gift fuels research, trials & hope for #MSDFamilies. Letās keep the BLUE wave going! Donate here: secure.qgiv.com/event/msdworldā¦ #MSDWorldDay #StrongerTogether
You showed up BIG for MSD World Day š Weāve already hit 60% of our fundraising goal ā and the wave of hope is still rising. š From blue #MSDWorldDay gear to blue lights, YOU helped shine a global spotlight on MSD. Hope is in motion. Letās keep it going.
Thank you @fitwithgrise for spreading the #BlueWaveofHope this #MSDWorldDay !! instagram.com/reel/DMu3gyaxbā¦
#MSDWorldDay is HEREš Today, we fight for a future where MSD is treatableānot terminal. #TogetherWeCan š Wear blue šø Donate (Power Hour = 2X impact @ 12 CT!) šIf you're in Ocean Springs ā join Blue Waves of Hope! youtu.be/QkGyx-Wih0QMSD š„thanks to @gagermedia
Join us July 30 in Ocean Springs for our #MSDWORLDDAY Blue Waves of Hope Giveback Day! #ShopLocal in support of families facing MSD š Wear blue, the color of MSD awareness šStart at Valās; grab walking tour map to blue-themed stops šļø Dine & shop to help light the way to a cure
A second clinical trial is in the works! Dr. Lars Schlotawa, in partnership with @REMEDi4ALL, is repurposing (the already-approved drug) tazarotene as a potential therapy for MSD patients. We're so excited about this collaborative effort to speed progress & offer incredible hope!
Happy 6th Birthday to Orla! We hope you have the most amazing day filled with all your favorite things. Sending you lots of love from everyone at the United MSD Foundation. #Birthday #MSD #HappyBirthday
MSD World Day is just 1 month away! š Show your support with exclusive #MSDWorldDay gearāhoodies, tees & more! ā”ļø Shop & learn: ow.ly/ULvN50WgVvv #UMSDF #MSDAwareness #RareAware #MultipleSulfataseDeficiency
Today we remember Max Anseth, who passed away from MSD 25 years ago today, at the age of 16. The joy and love he brought to his family and to all who knew him will forever be cherished and never forgotten. #MSDAngel #NeverForgotten
Happy 23rd Birthday to Kamil! We hope you have a wonderful day with lots of fun and lots of love. Read more about Kamil and his family here: ow.ly/XvpO50W5TzV
Student Ambassador Applications are live! Launched in 2021, the UMSDF Student Ambassador program brings together engaged advocates from around the United States to learn about MSD and bring awareness to their communities. Learn more and apply here: ow.ly/bWEA50W9Nxe
Happy Father's Day to all the #RADDads out there! Our #MSD dads carry so much for their children and their families and today (and everyday) we honor their bravery, strength and resilience. Give a shout out to an amazing #dad in your life below! #FathersDay
Student Ambassador applications go live 6/16. If you want to be notified when applications are open, sign up on this form here: ow.ly/Urtn50W8Mf3
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