I am a mum with EDS, Autism and complex physical and mental health issues. I have an adorable son who is my world. Please help me make a change in medical law.Joined January 2015
As long as you get given the findings of the tests and not left 8 years not knowing. Please visit my page to read more about my story and please sign my petition to put a stop ✋️ to #nhs#failings
As long as you get given the findings of the tests and not left 8 years not knowing. Please visit my page to read more about my story and please sign my petition to put a stop ✋️ to #nhs#failings
What do we need to change at NHS Birmingham and Solihull?
Tell us if we’ve got it right in the second #OurOpenConversation which is now live!
Go to tinyurl.com/p58je4by to get involved.
Please can people help me stop people being failed by #NHS I was misdiagnosed for years 41 now just diagnosed with #EDS. Please look at my petition for other #NHSfailings Disclosure of All Medical Test Results to Patients - Sign the Petition! chng.it/pPhZ6jPBKS via @UKChange
PLEASE, PLEASE, PLEASE HELP ME MAKE IT LAW FOR DR'S TO INFORM PATIENTS OF ALL FINDINGS ON TEST RESULTS. THIS WILL SAVE LIVES #MayDay#Help#SaveLives#NHS Mandate Full Disclosure of All Medical Test Results to Patients - Sign the Petition! chng.it/pPhZ6jPBKS via @UKChange
It's Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) Awareness Month! [Thread]
What is #EDS?
The Ehlers-Danlos syndromes (EDS) are a group of 13 individual genetic conditions, all of which affect the body’s connective tissue: ehlers-danlos.org/what-is-eds/
This is so true. I used to put all my trust in drs, but since I was monumentally failed by them, I now make sure I look after my own health best I can so I can be the best mum and well enough to try and make a change in #MedicalLaw please visit my page to see my petition. Thanks
This is so true. I used to put all my trust in drs, but since I was monumentally failed by them, I now make sure I look after my own health best I can so I can be the best mum and well enough to try and make a change in #MedicalLaw please visit my page to see my petition. Thanks
My heart breaks 💔 this should not be happening. Drs/nurses/nhs need to be made accountable for their negligence. I have started a petition on @Change to make it mandatory that ALL FINDINGS ON MEDICAL TESTS ARE DISCLOSED TO PREVENT RISK OF DEATH. PLEASE HELP BY SIGNING ON MY PAGE
My heart breaks 💔 this should not be happening. Drs/nurses/nhs need to be made accountable for their negligence. I have started a petition on @Change to make it mandatory that ALL FINDINGS ON MEDICAL TESTS ARE DISCLOSED TO PREVENT RISK OF DEATH. PLEASE HELP BY SIGNING ON MY PAGE
Please help make awareness of Ehlers-Danlos Syndrome I got diagnosed in December 2023 age 41. As I learn about it, it explains so much of my health history and why I've struggled so much with other conditions on top. Hardly anyone knows about it or helps patients this must change
Please help make awareness of Ehlers-Danlos Syndrome I got diagnosed in December 2023 age 41. As I learn about it, it explains so much of my health history and why I've struggled so much with other conditions on top. Hardly anyone knows about it or helps patients this must change
Hi all you wonderful people. I am begging for your help to make it #Law the drs to inform us of any abnormalities found on #nhs tests. It will #SaveLives Mandate Full Disclosure of All Medical Test Results to Patients - Sign the Petition! chng.it/pPhZ6jPBKS via @UKChange
Good afternoon, #Britan. Please can i ask you lovely people to take a look at my petition, and if you agree, please sign, share, and RT. @Change#tuesdayvibe Mandate Full Disclosure of All Medical Test Results to Patients - Sign the Petition! chng.it/pPhZ6jPBKS via @UKChange
I can really relate to Paul from @CorronationStreet I have nothing like he has but I did get diagnosed with Ehlers-danlos Syndrome last December, it's a genetic condition so something I was born with but one a hand full of Dr's know anything about it. @Awareness for rare disease
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