FLaNET Carcinoid Community @FLaNETcommunity
Creating greater NET awareness within our community that leads to earlier detection and subsequent treatment of these rare diseases. Florida Joined September 2022-
Tweets54
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Followers84
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Following105
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Likes14
Live right now! Join us as @TriageCancer CEO Joanna Doran discusses insurance FYIs and other nuances in part 3 of a multi-part series on Financial Toxicity that we're doing in collaboration with @CureNETs zoom.us/j/93905018003?…
Join us for a live webinar on Music Therapy in NETs 🎶 with Leighann Montoya, DNP, APRN, NP-C from Moffitt Cancer Center, TONIGHT at 5 PM — an inspiring session you won’t want to miss! 💜 Zoom link: bit.ly/FLANet Passcode (if promoted): 145584
Thank you to every patient, caregiver, and loved one who has been part of this journey and helped lead this field to a new FDA approval for #NET patients! Congratulations!
Thank you to every patient, caregiver, and loved one who has been part of this journey and helped lead this field to a new FDA approval for #NET patients! Congratulations!
We hope everyone is enjoying spring break🌻with their loved ones! Feel free to catch up on our recorded webinars this week from our library, and we look forward to being live again in April!🗓️ youtube.com/@FLaNET_CC
Recording of Today's Monthly Webinar for those who missed it - Unconventional Approaches to NET Care. Catch up and send any questions to [email protected]; we'll get back to you via email! youtu.be/BNwkN88ub1Q?fe… via @YouTube
Join us for FLANET's 2025 Advocacy Event in Orlando! Free registration and one lucky registrant who attends will win 2 tickets to that evening’s Cirque du Soleil show plus dinner at Disney Springs. Don’t miss out—register now! bit.ly/FLaNETevent #FLANET #LetsTalkAboutNETs
Don't forget to listen to @LACNETS podcast recapping #NANETS24, online now! lacnets.org/podcast/41 And if you missed our webinar, it's up on YouTube to rewatch at any time! youtube.com/watch?v=9wiynZ…
Don't forget to listen to @LACNETS podcast recapping #NANETS24, online now! lacnets.org/podcast/41 And if you missed our webinar, it's up on YouTube to rewatch at any time! youtube.com/watch?v=9wiynZ…
Live now! Please login to have a live NANETS 2024 recap discussion with these NET powerhouses! #neuroendocrine #NANETS24
Live now! Please login to have a live NANETS 2024 recap discussion with these NET powerhouses! #neuroendocrine #NANETS24 https://t.co/Gd9mB7giub
🚨We're back! Join us tomorrow, January 30th at 5PM EST for a live webinar recapping #NANETS24 with @ChandrikhaC and @lisayentwin! Bring your questions for this exciting webinar! bit.ly/FLANet #cancerawareness #Neuroendocrine
Live NOW! Join and ask your questions about all things NET related.
Live NOW! Join and ask your questions about all things NET related. https://t.co/h7ul2neEVU
🚨Don't miss out! Join us Thursday, November 14th at 12PM EST for a live webinar on the importance of seeking care at a NET center with expert insights from Dr. Jason Starr! 📅 Save the date, and bring your questions! bit.ly/FlaNETwebinars #cancerawareness #Neuroendocrine
🚨 Don't miss out! Join us Thursday, October 3rd at 5PM EST for a live webinar on Surgery in NETs with expert insights from Dr. Daniel Anaya and PA Rebecca Grillo. 📅 Save the date, and bring your questions! Link: bit.ly/FlaNETwebinars #cancerawareness #NeuroendocrineCancer
FYI, due to Hurricane Helene and the unstable internet today in Florida, our webinar has been rescheduled to 5 pm EST NEXT Thursday, 10/3. We look forward to an excellent discussion on surgery in NETs with Dr. Anaya and Rebecca Grillo then! Please be safe!
Live now! Tune in to ask the experts about all things pheo/para! bit.ly/3Mnl6G6
Join us in 30 minutes for an exciting talk! #neuroendocrine #net
Join us in 30 minutes for an exciting talk! #neuroendocrine #net
Join us Thursday 8/29 at 5PM EST for a live webinar on the diagnosis and management of Pheochromocytoma and Pargangliomas featuring Dr. Rachel Voss, certified genetic counselor Laura Barton, and Dr. Sarimar Agosto. bit.ly/3Mnl6G6 #cancerawareness #neuroendocrine
Tune in tonight at 5pm EST! us06web.zoom.us/j/82505708099 Webinar is featuring two rockstars from @MoffittNews and @SylvesterCancer!
Tune in tonight at 5pm EST! us06web.zoom.us/j/82505708099 Webinar is featuring two rockstars from @MoffittNews and @SylvesterCancer!
Taking a break from regular programming for June but will be back in July for an exciting webinar highlighting APP/AHPs and Nurses in NETs. Please take this month to catch up on our recorded webinars! We hope you’re enjoying your summer ☀️🌊🏖️ flacarcinet.org/webinars/
Anne Bonny 🇺🇸 �... @Mctastic1113
2K Followers 4K Following Faith is believing in the things you can’t see. God gave you a ❤️&🧠 so use both.
Ganaesh @Ganaesh123
3 Followers 369 Following
Gurubramha @spandansb
493 Followers 1K Following mast,bindass,openminded, apolitical, nationalist ,music & sports lover, Doctor, parent, Husband, nationalist,
Heather Davis @AdvocateHLD
37 Followers 64 Following Associate Director of Advocacy & Outreach at https://t.co/SJrcucYdEl.
Mónica Meneses @MoniquMeneses
669 Followers 850 Following Medical Oncologist focused on gastrointestinal malignancies and neuroendocrine tumors @INCMNSZ 🇲🇽
Shpend Coma @ShpendComa
0 Followers 19 Following
No Cure Caravan @NoCureCaravan
24 Followers 45 Following X feed for updates on the upcoming No Cure Caravan feed. DM to be on the podcast.
voltage @digitaldave55
73 Followers 940 Following
Arun Nagarajan @ArunNagarajanMD
521 Followers 605 Following Section Head for GI Oncology, Cleveland Clinic, Florida.
juan antonio atocha v... @AtochaVilela
10 Followers 185 Following
Paddle Girl @PaddleGirl1111
12 Followers 54 Following Paddle Boarder. Sunset Admirer. Reiki Energy Healer. Peaceful Person. Nature/Outdoors. Travel. Animal/Wildlife Lover. Free Spirit.✨🇺🇸✨🇧🇷✨🌅✨❤️✨🏄🏻♀️✨
Samia DS @SamiaDS2412
27 Followers 712 Following
Pheo Para Alliance @PheoPara
2K Followers 667 Following Investing in research and supporting #pheochromocytoma and #paraganglioma patients globally. "Stronger United" #NETCancer #RareDisease #pheo #para
Melissa Frizziero @MelissaFrizzie1
149 Followers 152 Following Medical Oncology Consultant in HPB & NET at The Christie NHS FT and honorary member of the CRUK National Biomarker Centre in Manchester. Proud 🇮🇹
Jud Kimmel @JudKimmel
49 Followers 101 Following Neuroendocrine cancer patient / advocate. Founder of https://t.co/QIMdBNewM7, Men with NEN and Neuroendocrine Cancer Event Hub groups on FB. Member of https://t.co/FgEccS3CRE.
Patricia Novelli @patricianovelli
47 Followers 254 Following Ex-molecular HIV virologist and now a double cancer sufferer. Breast and lung neuroendocrine.
amensupport @amensupport
116 Followers 213 Following Our mission is to provide support to the families of and people with MEN Type 1, 2A and 2B
Thor Halfdanarson @OncoThor
5K Followers 2K Following 🇮🇸Medical Oncologist/Educator, NET/GI/CUP enthusiast. Husband/dadx4 (bad dad jokes). Cyclist. Avant gardener. Professor of Oncology, Mayo Clinic. Tweets mine.
FagaMoto @andypclarke
12 Followers 632 Following
EvaThera @EvaThera
61 Followers 415 Following The EvaThera Theranostics platform of Molecular Targeting Technologies, Inc. contains a new generation of Evans Blue-based radiopharmaceuticals.
Neurovision Medical P... @Neurovision_NMP
148 Followers 1K Following Our mission is to provide innovative IONM surgical solutions that empower clinicians to preserve motor nerves and improve patient outcomes.
Kate Kapalo, Ph.D. (s... @HazMatBarbiePhD
247 Followers 1K Following Human Factors. Whipple Warrior (pNET). Views are my own.
@laylastephen @laylaPLANETSCh1
144 Followers 432 Following Co-founder and CEO of PLANETS Charity, 15 year NET cancer patient, Hadley’s mum- reluctant house renovator- Singer 🎤💜🩵
Coleman Clifford @ColeymanColeman
71 Followers 959 Following
Ericka Calton @ErickaFelice
373 Followers 918 Following IV #NET. BME PhD @HSpecialSurgery Boskey lab (FTIRI #bone #cartilage) MS BME @UTSWGradSchool #BaylorMedOrtho #SportsMed#Knee BSEE @UTAustin🤘🏽Hook ‘em Horns
Brendon Herring, MD P... @brendonherring
510 Followers 815 Following @Mayo IM/Onc CITP via UAB. 🔬Neuroendocrine cancer🦓genomics🧬. Creek Native American/Army Officer/Dog dad/Gardener/Tinkerer™
Suite @suitesuite1131
70 Followers 2K Following
Jeffrey Friedman @JeffreyFri21836
0 Followers 46 Following
Neuroendocrine Cancer... @ncukcharity
5K Followers 6K Following Supporting the #Neuroendocrine Cancer community, incl diagnosis, access to best treatment & care - and stimulating research. Helpline 0800 434 6476
Amit Tirosh @TiroshAmit
481 Followers 457 Following Director, ENTIRE Center for Endocrine Neoplasia Translational Research • Head, NET and VHL Clinic • Sheba MC • My posts, not representing institute or team
Simon L. April-Monn, ... @SimonAprilMonn
238 Followers 177 Following #biomedicine | XCski&hiker | orophilous 𝑣𝘪𝑒𝘸𝑠 𝑒𝘹𝑝𝘳𝑒𝘴𝑠𝘦𝑑 𝑎𝘳𝑒 𝑚𝘺 𝘰𝑤𝘯.
Maria Grazia Maratta @MGMaratta
136 Followers 264 Following MD| Medical Oncologist | PhD Student, Fondazione Policlinico A. Gemelli - IRCCS @policlinicogemelli @unicatt |📚👩🏻⚕️| 📍Based in Rome
Amy Bonnaure @AmyBonnaure
55 Followers 891 Following
Curium Pharma @Curium_Pharma
480 Followers 303 Following Redefining the experience of #cancer through our trusted legacy in #nuclearmedicine.
Esther Paguey @estherpaguey
56 Followers 333 Following
Jenny_US_ @JennyUS489081
25 Followers 1K Following
Oncology Data Advisor @OncData
938 Followers 6K Following #OncData delivers up-to-date, clinically relevant content for the multidisciplinary #cancer care team including the latest medical news, research, and more.
Niraj J. Gusani, MD �... @NirajGusani
13K Followers 13K Following Surgical Oncologist, HPB Surgeon, Cancer Doctor, Patient Advocate. Tumors of Liver, Pancreas, Biliary System, Upper GI Tract.
Tulsi Jose, MD @drtulsijose
2K Followers 5K Following Heme-Onc Fellow at @stanfordmed @stanfordcancer🏅Founder @hemeoncfellow🏅 2025 Council Member @ascotecag & @stanforddomfellows ✨️
Anakaren @KarinAusti69599
260 Followers 888 Following
نسرین @aF1q9XAIKouTexA
1 Followers 28 Following
Gma @kd9qmnzcyy
173 Followers 164 Following
Tanaz Vaghaiwalla, MD... @TVaghaiwalla
844 Followers 890 Following Endocrine & NETs @UMJMHSurgery I APD Endocrine Fellowship I Surgical Education I Global Surgery Enthusiast
AMEND Info USA @AMENDInfoUSA
150 Followers 156 Following We’re here to connect those who are impacted by MEN disorders–patients, family, friends, and providers–with useful resources.
Dr. Patrick Hwu @PatrickHwuMD
26K Followers 2K Following Moffitt Cancer Center President and CEO, @MoffittNews. Tumor immunologist. Inspired leader. Girl dad. #DocsWhoRock. Driven to save more lives from #cancer.
Mysti Motz @MystiMotz
23 Followers 145 Following Wife, Mom, Neuroendocrine Nurse Specialist, PRRT coordinator, traveler, foodie, VSG 2022, 2025 MBA candidate. Tweets are my own.
Jessica Thomas, MSW, ... @jsalinisthomas
293 Followers 375 Following Director of Patient Education at NETRF, LCSW, healthcare advocate, facilitator of the MS Mental Wellness Chat #emotionalwellness #chronicillness
UKINETS @UKINETS
1K Followers 615 Following Official account of the UK & Ireland Neuroendocrine Tumour Society - for professionals involved in NETs https://t.co/F3RJMlWCB8
Erik Mittra, MD, PhD @ErikMittraMD
234 Followers 24 Following Associate Professor of Radiology, Section Chief of Nuclear Medicine, Oregon Health & Science University
GI Cancers Alliance @GICAlliance
854 Followers 684 Following The Alliance works to raise awareness, provide education and advocate to prevent, treat and cure gastrointestinal cancers.
ITM Isotope Technolog... @ITM_Radiopharma
1K Followers 203 Following Developing radiodiagnostics and therapeutics for hard-to-treat tumors. Guidelines: https://t.co/zuROhUsruu
UCSF Patient and Fami... @UCSF_CRC
343 Followers 398 Following We support wellness and healing by providing patients and their loved ones with information, emotional support, and community resources.
CarcinoidSpain @CarcinoidSpain
162 Followers 75 Following Trying to contact with other NET patients & groups. Unofficial. Intentando contactar con otros pacientes de carcinoide, especialmente de España
NET Patient Support @NetPtSupport
172 Followers 272 Following Neuroendocrine Tumour Awareness. 🦓🦋 Ran by the NET Team at the Royal Free Hospital 💜 ask for Ash or Priscilla
Novartis Cancer @NovartisCancer
28K Followers 348 Following Join the conversation as we work to improve the lives of those with cancer. See our community guidelines: https://t.co/KWTwKv5451
Lisa Bodei, MD, PhD @lisabodei
407 Followers 103 Following Nuclear Medicine physician, theranostics specialist and researcher @MSKCancerCenter. Tweets and views are my own.
Help With Hope @HelpWHope
193 Followers 814 Following Previously Hot for Hope. Help with Hope was created by kids Mikey and Emily. Helping kids whose parents hv cancer with care packages and online support groups.
Chandrikha Chandrasek... @ChandrikhaC
577 Followers 478 Following GI Oncologist and Palliative Care physician.I speak my mind and tweet my own.
Middle Eastern NETs @MiddleEastNETS
84 Followers 62 Following Teaching patients and their loved ones how to live with Neuroendocrine cancer as a chronic disease Virtual congress on 12-13 April 2022 - Register online now
Teodora Kolarova @TeodoraINCA
159 Followers 159 Following
Peter Hosein, MD @PeterHoseinMD
1K Followers 778 Following GI Medical Oncologist @SylvesterCancer specializing in pancreatic cancer #WageHope
Grupo_GGNET @GgnetGrupo
343 Followers 412 Following Grupo Gallego Multidisciplinar de Tumores Neuroendocrinos y Endocrinos. Galician Research Group on Neuroendocrine and Endocrine Tumors (SPAIN)
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
RDLA @RareAdvocates
6K Followers 2K Following A program of the EveryLife Foundation committed to growing the patient advocacy community and working collaboratively, thereby amplifying the patient voice!
Curium Pharma @Curium_Pharma
480 Followers 303 Following Redefining the experience of #cancer through our trusted legacy in #nuclearmedicine.
AACR Foundation @AACRFoundation
25K Followers 705 Following The AACR Foundation supports the American Association for Cancer Research, the first and largest cancer research organization in the world.
J. Bart Rose @JBartRose
431 Followers 106 Following HPB surgeon, scientist, husband, and father to 3 amazing little girls.
@laylastephen @laylaPLANETSCh1
144 Followers 432 Following Co-founder and CEO of PLANETS Charity, 15 year NET cancer patient, Hadley’s mum- reluctant house renovator- Singer 🎤💜🩵
NET Patient Network @NETPatient
534 Followers 5 Following We are a patient support group for Neuroendocrine Tumour patients in Ireland
The Innovation Oncolo... @InnovOncology
3K Followers 1K Following The official account of The Innovation Oncology
Net Italy ETS @netitalyonlus
216 Followers 260 Following Associazione italiana pazienti con Tumori Neuroendocrini
Po Hien Ear, PhD @PoHienEar
753 Followers 766 Following U Iowa Surgery Asst Professor, Neuroendocrine Tumors & Rare cancer models, sharing own thoughts
Neuroendocrine Cancer @Neuroendocrine
6K Followers 3K Following @HealthUnion Certified Patient Leader, 3 x WEGO Health (now Health Union) Award Winner, Brit/Scot, Veteran, opinions mine. Also @ronnyallan1 and @World_WNCD
Radioligand therapy @radioligand
1K Followers 196 Following We aim to highlight radioligand therapy as a component of cancer care. The project is supported by @adacap_news.
Dr. Cathy Eng @CathyEngMD
12K Followers 5K Following VICC Assoc Director, Strategic Relations and Research Partnerships, Co-Director/Co-Leader GI Oncology Research; Exec Dir YA Cancers Program; Co-Chair, NCI GISC
Kate 💙 #LetsTalkAb... @KateNCUK
705 Followers 977 Following PROs (Lung NETs) Neuroendocrine Cancer UK Patient Support. INCA Research Committee Member. @TheChristieNHS Ask: - if not, why not?
NeuroEndocrine Cancer... @NECancerAus
2K Followers 1K Following Formerly the Unicorn Foundation, NeuroEndocrine Cancer Australia provides support, advocacy, awareness, funding & research for Neuroendocrine cancer patients.
JNM @JournalofNucMed
4K Followers 167 Following The journal of the Society of Nuclear Medicine and Molecular Imaging. Clinical investigations, basic science reports, continuing education articles and more.
Pheo Para Alliance @PheoPara
2K Followers 667 Following Investing in research and supporting #pheochromocytoma and #paraganglioma patients globally. "Stronger United" #NETCancer #RareDisease #pheo #para
Lisa Yen @lisayentwin
754 Followers 599 Following Director of Programs/Outreach, Neuroendocrine Cancer Foundation @NCFCancer (formerly @LACNETS); NP Hospitalist turned NET caregiver+pt advocate. Tweets mine
Arvind Dasari, MD, MS @adasarimd
822 Followers 253 Following Professor, @MDAndersonNews GI Oncology; Neuroendocrine Tumors and Colorectal Cancer. Tweets are my own.
NETs México @NETsMexico
302 Followers 601 Following Creando conciencia del Cáncer Neuroendocrino. Perfil dirigido a proveedores de servicios de salud. Pacientes y/o familiares? Búscanos en Instagram y Facebook.
Soulman @michaelsoulen
1K Followers 47 Following Interventional Oncologist, SIO Board, Professor of Radiology & Surgery University of Pennsylvania
Xavier Keutgen @XKeutgen
320 Followers 71 Following Endocrine and Neuroendocrine Surgeon, UChicago Medicine
Mauro Cives @cives_mauro
330 Followers 269 Following Associate Professor of Medical Oncology at the University of Bari, Italy. Focused on NETs.
Julie Hallet @HalletJulie
6K Followers 1K Following 🎓MD MSc FRCSC FSSO 😷HPB Cancer Surgeon 👩🏻💻Associate Professor @UofTSurgery ⚜️Québec City Girl 🐣 See tweet highlights for #NETs oncology posts
Rachel Riechelmann @RachelRiechelm2
2K Followers 158 Following Clin Oncology Director-AC Camargo Cancer Canter 🇧🇷focus: neuroendocrine tumors, colorectal/anal cancer. Love animals, travels, research. All are born equal.
Jaume Capdevila @Ja_Capdevila
3K Followers 280 Following Medical Oncologist focused on GI & Endocrine Malignances. Vall Hebron University Hospital. Vall Hebron Institute of Oncology (VHIO). Teknon Cancer Institute.
Hagen Kennecke @HKennecke
1K Followers 434 Following GI and NET Oncologist, Professor @OHSU Knight Cancer Institute, Chief & Med Dir CHO and Knight-Legacy Collaborative, Dad, cycling & ski enthusiast!
Lauren Fishbein @LMFendo
2K Followers 886 Following Physician Scientist. Endocrinologist. PheoParaDoc. NET researcher. Science nerd. Genetics geek. Pun enthusiast.
Amit Tirosh @TiroshAmit
481 Followers 457 Following Director, ENTIRE Center for Endocrine Neoplasia Translational Research • Head, NET and VHL Clinic • Sheba MC • My posts, not representing institute or team
Jennifer Gile, M.D. @jennifer_gile
132 Followers 189 Following Community hematologist. Mayo Clinic Heme/Onc Trained. University of Colorado graduate. Idaho raised. Tweets are my own.
Stefano Partelli @spartelli
1K Followers 481 Following Associate Professor of Surgery at Pancreatic and Transplant Surgery Unit, “Vita-Salute” San Raffaele UniversityTrends for United States
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