Fathering Fancy @FatheringFancy
Personal/Professional Musings In Fatherhood, Service Systems, and Health Care for Children with Developmental Disabilities & Complex Medical Needs Joined August 2021-
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Following57
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In the US, more than 50 million family #caregivers provide approximately $500 billon in unpaid support for their loved ones annually. The #RAISECaregiving report shares research and information about them, including their needs and concerns: ACL.gov/RAISE
With the #pandemic worsening #nursing shortages, parents of children with complex medical conditions or #disabilities are being forced to hospitalize their kids or take on additional duties at home. disabilityscoop.com/2021/10/06/for… #specialneeds
It’s truly a sad reality, as we would really much rather be engaged in ways other colleagues and parents are.
I say this a lot but I really want to reiterate that many of us are involved with advocacy because of experiences, trauma, and we are trying to survive, not because it’s something to put on the resume. I speak out because I don’t want anyone to experience what I have.
More Research Shows Dads Stepping Up During the Pandemic bit.ly/3yL7KdC
This #LaborDayWeekend we're calling on Congress to recognize the work of millions of unpaid family caregivers, underpaid home nurses and care workers, and the needs of disabled people, by pledging to pass the #BetterCareBetterJobsAct to improve our families futures! #CareCantWait
Not just cancer patients, but also people with intellectual and developmental disabilities and/or medical complexity too! #thegreedisreal
Not just cancer patients, but also people with intellectual and developmental disabilities and/or medical complexity too! #thegreedisreal
REGISTER NOW✅ for 'The Journey: Get Acquainted with OCALI Resources' at 2:30 p.m. on Aug. 30. This series of webinars is designed to support you in helping youth with complex needs and their families navigate the journey from school to adult life. buff.ly/3jdAoj1
To think there are over 1 billion of these superheroes!! 🙌🏼
To think there are over 1 billion of these superheroes!! 🙌🏼
Transition needn’t be the ‘Everest’ that it is, but more of an ant hill. Subsequently, families indeed need to be prepared, but systems must better engage them, empower them, and value them from the very beginning.
Transition needn’t be the ‘Everest’ that it is, but more of an ant hill. Subsequently, families indeed need to be prepared, but systems must better engage them, empower them, and value them from the very beginning.

Joan @j_dowell2
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SPIRE Network @SPIREConcept
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Ilsevh @Ilsevhs
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Accessibility in the ... @A11yNews
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APHA Disability @APHADisability
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Center for Disability... @ThinkEquitable
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Syreeta Nolan ❤️ ... @nolan_syreeta
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American Hospital Ass... @ahahospitals
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His View From Home @hisviewfromhome
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The Father Factor @thefatherfactor
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The Health Care Blog @THCBstaff
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Medical Economics @MedEconomics
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kaiserfamfound @kaiserfamfound
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KFF Health News @KFFHealthNews
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HealthLeaders @HealthLeaders
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Gavin Preston, M.D. @GavinPrestonMD
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FierceHealthcare @FierceHealth
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André Blackman @mindofandre
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Developmental Disabil... @ddnanational
741 Followers 596 Following The non-profit assoc. for nurses who specialize in the care of persons with intellectual and developmental disabilities. A RT is not necessarily an endorsement.
Center for Health Adm... @UChicagoCHAS
564 Followers 521 Following Experts in health service delivery, policy, and research associated with vulnerable populations. Supporting innovation and discovery everywhere.
Health Affairs @Health_Affairs
165K Followers 4K Following At the intersection of health, health care, and policy. Follows/Tweets/RTs ≠ endorsements.
BMJ Quality & Safety @BMJ_Qual_Saf
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Quality Forum @QualityForum
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Atul Gawande @Atul_Gawande
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Institute for Healthc... @TheIHI
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Supporting Families @familieswithidd
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HealthMattersProgram @HealthMCAP
265 Followers 223 Following Improving health of people w/ intellectual/developmental #disabilities by informing/educating/empowering w/ practical solutions for sustainable changes!
State of the States @SOS_in_DD
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ACLgov @ACLgov
14K Followers 571 Following Official govt acct. Authenticate: https://t.co/IAFZ2Qzfjx. Following/being followed is not endorsement.
APSE @NationalAPSE
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OCALI Family Center @OCALIFamilyCtr
345 Followers 280 Following Inspiring change and promoting access so people with disabilities can live their best lives.
OCALI @OCALIofficial
3K Followers 750 Following #InspiringChange, promoting access, and linking research to real life with and for people with disabilities. https://t.co/9dKlEJcm6g - https://t.co/LOHPEZ8TeA
Community Inclusion @ICInclusion
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AAPD @AAPD
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JIDR @JIDR_Wiley
2K Followers 787 Following The Journal of Intellectual Disability Research is devoted exclusively to the scientific study of intellectual disability. BlueSky: https://t.co/qhKnFE7Z5m