GenomicExperienceProject @GenExProject
A research study interested in how people make meaning of genomic information, goal is improving care & decision making re: hereditary illness. PI @frommarlaine Seattle, WA Joined June 2019-
Tweets10
-
Followers70
-
Following275
-
Likes70
@luckytran @lizzo This brought me to tears today. #covid #VaccinesSaveLives #VaccinesWork #hcwaresuperheroes
The 6 month mark in any sustained crisis is always difficult. We have all adjusted to this "new normal", but might now feel like we're running out of steam. Yet, at best, we are only 1/3 the way through this marathon. How can we keep going? THREAD /x
“It was the first time I would be staring cancer face on and saying NO.”
Launching a new study about how people make sense of genetic predispositions to cancer as they think about preserving fertility and building a family. We would love to learn from you. #bcsm #gyncsm #gencsm #brca #hboc #brca1 #brca2 #previvor #hereditarycancer #lynchsyndrome
Excited to launch this new study! The Genomic Experience Project is focused on how people make meaning of genomic information. The goal is to improve care and decision making for people with hereditary illness.

Steakandfries.eth @Hoover1915660
14 Followers 194 Following Pioneer Wealth: Prof. Matthew’s AI + finance pros boost profits! Free 1st month. AI scans data, experts guide stocks/crypto. Click to join now!
Blythe @Thetyt317498
18 Followers 2K Following Be brave enough to choose the life you want to live and stick to it. This is a great life.
International Gyn Can... @IGCANetwork
1K Followers 1K Following Transcending barriers to create & empower patient advocates, unite advocacy groups, and improve the lives of those affected by gynecologic cancers worldwide.
Jocelyn Banks Toto @jobatoto
54 Followers 649 Following mother, wife, daughter, nurse, friend, veteran, Delawarean and Biden fan - he will unite us all, you will see.....
C Maxwell @mcatmax
9 Followers 256 Following
Living LFS @LivingLFS
563 Followers 1K Following Supporting patients with Li-Fraumeni syndrome, an inherited #cancer predisposition. #LFS #LiFraumeni #LiFraumeniSyndrome #TP53 #P53 #GeneticCancer #genetics
Sharon Greene @lilyrosesharon
1K Followers 3K Following Single Mom to 2 beautiful children, 1 lab retriever dog. I'm a 4 time breast cancer survivor. Anti-Trump and pro BLM. Vote blue no matter who.
Breast Advocate @BreastAdvocate
16K Followers 12K Following Free #BreastCancer #Surgery #SharedDecisionMaking App for newly-diagnosed, Survivors, Thrivers & Previvors. Co-created by physicians & patient advocates.
Parents in Academia @AcademicParents
3K Followers 1K Following Supporting parents/carers in Academia. Career disruptions,return to work after parental leave. For Women/Men/All in Academia. Equal opportunity. Est. by @anibio
Saving Jewish Lives @SavingJewish
651 Followers 4K Following Saving Jewish lives is a nonprofit organization that raises awareness to all humankind on the deadly hereditary BRCA gene mutation.
Dolo @DraDolo
565 Followers 4K Following Breast Surgeon at @institutoroffo #hereditarycancer #precisionmedicine . Mamaculposade3 #workingmom
Christine Seward @csewardallred
123 Followers 203 Following Mom of three and #geneticcounselor who loves working in the #precisionmedicine and #moleculardiagnostics space. My tweets are my own.
Stacy @stacyciaschini1
80 Followers 278 Following Wife, Mother of 2 sons: 24 & 22 yr olds & 10 yr old daughter Cavalier King Charles Spaniel, RN BSN 27yrs, OR Circulator, TNBC Survivor, 50 & Fabulous
Metastatic Breast Can... @BreastPatiet
814 Followers 1K Following Diagnosed #BC 2013 Living with #MBC #SBC #ABC since 2017 #ER + #PR + #Her2negative #BRCA2+ #PI3K #invasivelobularcarcinom #bonemets #livermets #patientadvocate
Dr. M Usman Rashid @drmusmanrashid
96 Followers 481 Following Cancer Geneticist, Medical Doctor, Genetic Counsellor, Senior Research Scientist SKMCH&RC. Professor of Human Genetics, University of Health Sciences
Alicia Dietrich @ADietrichPhD
290 Followers 403 Following Came for the science 🧬 stayed for the fellowship 🦬 VDMA ✝️
Maryam Najafi @MaryamNji
166 Followers 807 Following Working as a genetics data analyst for Centogene company/ Former PhD student of @RadboudUMC & former Postdoc of @klinik_freiburg
GenomicContrast @GenomicContrast
76 Followers 278 Following Seeking more inclusive health systems for people with rare genetic mutations. Sharing accessible & empowering genomic research, cancer prevention & care.
Sid Yadav MD, FACP @SidYadavMD
4K Followers 3K Following Breast & GYN Oncologist @MayoCancerCare | Associate Professor of Oncology @MayoClinic | Research in DNA damage repair deficiencies & familial cancers.
The MLC Cancer Founda... @THEMLCCF
75 Followers 206 Following The MLC Cancer Foundation offers resources for financial assistance to CANcer patients to cover expenses incurred due to diagnosis. #breastCANcersurvivor
Linda Holden @lpholden
1K Followers 2K Following Advocate for Metastatic & Male Breast Cancer. Former caregiver for my husband Bob. Bob lived 17 years with MBC, 2003 - 2020.
Emily Rauscher, PhD @EmilyRauscher
101 Followers 220 Following Associate Professor at the University of Utah/Huntsman Cancer Institute. Health/Family Communication. Hereditary disease risk #BRCA #genetics #hereditarycancer
Kim Horner @KimHorner
839 Followers 3K Following Author, Probably Someday Cancer, poems @tangledlockslit, creative NF @TypehouseLitMag, @CarterFellows ‘08-09, volunteer @FacingOurRisk
Rod Ritchie @malefitness
3K Followers 2K Following Breast cancer Stage IIIb in 2014. Advocate for men with this disease In 2016 treated for prostate cancer. NED for both. NBCC Project LEAD grad 2018. SABCS 2019
Complete Shaping @CompleteShaping
354 Followers 384 Following Prosthetic mastectomy clothing created by a breast cancer survivor. Patented all-in-one garments with built-in lightweight prostheses, and NO bra band on scars!
Kristen Carbone @k_carbon
154 Followers 235 Following Mom, Innovator, Community Builder, Breast Cancer Previvor, CEO of Brilliantly.
BRCAStrong @BRCASTRONG
522 Followers 496 Following Support comes in all forms , from post-mastectomy garments and prosthetics, to lymphedema sleeves and other treatment necessities; and is provided at zero cost.
My Gene Counsel @MyGeneCounsel
5K Followers 4K Following Digital genetic counseling reports for patients and providers that keep you up-to-date.
Jill Holdren @JillHoldren
595 Followers 2K Following #BRCA1 Activist, Patient Advocate, Hereditary Cancer, Ovarian Cancer, Epi, #BlackLivesMatter, Co-Founder of The Light Collective (@belikelight) she/her
Comondo @ghilasg09650055
353 Followers 3K Following May I have a sixth sense .. Inspire me about what is inside you .. You steal your news .. And what is happening around you .. So, assure me of your comfort! I l
Roberta Horgan 🇮�... @HorganRoberta
3K Followers 3K Following
Bailey Machek @bluegenebailey
507 Followers 701 Following actually three raccoons in a trench coat. (she/her/hers)
Turna Ray @TurnaRay
1K Followers 445 Following Journalist: Personalized medicine, genomics, cancer @GenomeWeb https://t.co/MJTiedX6Di Managing editor: Precision Medicine Online https://t.co/ZhPdXijId5
Prime @PrimeGlobalBuzz
888 Followers 1K Following We are Prime. We accelerate progress. One diverse, worldwide, highly skilled team, sharing a vibrant, dynamic, open culture.
Proactive Genes @ProactiveGenes
417 Followers 467 Following Empowering families to start a convo about family health history; Sharing news, wellness tips, support, and positivity for those at risk for hereditary cancer
Nicki Boscia Durleste... @NickiDurlester
5K Followers 3K Following #BRCA2 #BreastCancer #Survivor, #Author & Founder #BeyondthePinkMoon support group @facebook for survivors, previvors, MDs & HCPs w/ 8.5k members. #bcsm #gyncsm
Lisa Rezende @LisaRezende1
305 Followers 1K Following @UArizonaMCBio. @Facingourrisk. she/her STEM education, public understanding of science, media literacy, & hereditary cancer
lynch syndrome irl @l... @Lynchsyndromirl
2K Followers 4K Following Central point to chat about Lynch related issues, build a bank of information and support for families affected by Lynch Syndrome in Ireland
Kyle W. Davis @kylewalterdavis
1K Followers 3K Following Full-time: genetic counselor @VUMCgenetics, husband, father. Part-time: fiction & science writer, basketball, tex-mex food. He/him; tweets = mine
Mimi @L2653PAndMe
160 Followers 250 Following #BRCA2 #HBOC Mother and grandmother of girls. FTC/BC detected early by genetic counseling and risk reducing surgeries. Miraculously, the mutation ended with me.
Karen Lazarovitz @karenBRCAMTL
4K Followers 3K Following Creator #BRCA Sisterhood & EMPOWERink #Montreal #breastcancer I’m a proud outspoken Jew! #bringthemhone
Matt Tschirgi, CGC @Matt_Tschirgi
3K Followers 4K Following Genetic counselor, #entrepreneur, #adoptive dad, consultant, UTHSC-H. Opinions belong to me and my #DNA. #GoCougs! #GeneChat #NerdGang
Oneinforty @oneinforty
509 Followers 1K Following #Oneinforty is stopping #BRCA/#BRCA1/#BRCA2 #ovariancancer, #malebreastcancer, female #breastcancer and #prostatecancer in the #Ashkenazi #Jewish community.
Minas Chrysopoulo MD ... @drchrysopoulo
40K Followers 38K Following President,PRMA #PlasticSurgery (@diepflapbreast).Passionate about #BreastReconstruction & #SharedDecisionMaking.Creator of @BreastAdvocate App & @InviCibleSkin
Dr. Raven the Science... @ravenscimaven
155K Followers 169 Following Molecular biologist helping people + companies globally learn + share science, for a scientifically engaged world. President of @TheScienceHaven. Views my own.
Antonio French @AntonioFrench
104K Followers 2K Following Small business owner. Editorial Board member, @stltoday. Former St. Louis City alderman. I may disagree with what you say, but I’ll defend your right to say it.
Bryan Welm @BryanWelm
2K Followers 892 Following Associate Professor. Huntsman Cancer Institute. Univ of Utah. Breast cancer researcher. Science art and sculptures. Profile painting by: Jamie Forchic
Academic Mama @AcademicMamaPhD
591 Followers 141 Following Professor, mother of 3, wife, researcher, writer of https://t.co/gZAjq6REeH blog
Academic Mama @AcademicMamas
2K Followers 1K Following Bits and pieces of what's it's really like being an academic mom. ykyaamw=you know you're an academic mama when
Parents in Academia @AcademicParents
3K Followers 1K Following Supporting parents/carers in Academia. Career disruptions,return to work after parental leave. For Women/Men/All in Academia. Equal opportunity. Est. by @anibio
Mothers in Science @mothersinsci
10K Followers 1K Following Global non-profit organization that advocates for mothers in STEMM and creates evidence-based solutions to promote workplace equity & inclusion of caregivers.
The PhD Parent @parent_phd
3K Followers 288 Following A supportive space for parents/carers in #highereducation (any level!). Tag us with #ThePhdParent or @parent_phd. Founded by @LouiseJupe. Join the forum below!
Academic Chatter™ @AcademicChatter
253K Followers 882 Following Join #AcademicChatter for support & community.
Academic Mom, PhD @Momademia
31K Followers 413 Following Why choose between mom guilt and writing guilt when you can have both? Encouraging and connecting parents in academia. (she/her)
Global Genes @GlobalGenes
29K Followers 6K Following Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
Bright Pink @BeBrightPink
20K Followers 2K Following We're on a mission to save women's lives from breast & ovarian cancer by empowering them to live proactively.
Julie Gralow @jrgralow
11K Followers 965 Following Chief Medical Officer, American Society of Clinical Oncology (ASCO). Tweets are my own.
Kate Wilson @Katencstate
1K Followers 1K Following Chicken impersonator, inappropriate crafter, nerdy genetic counselor. She/Her. These are my own thoughts. #GeneChat
Amy Curry Sturm @AmyCurrySturm
2K Followers 851 Following Director of Population Health Genomics @23andMe, NSGC Past President, Voted Most Likely to Conquer the World in HS, Interior Designer in Alternative Life, Mama
HCI & Design at UW @uwdub
4K Followers 182 Following News, blogs, and publications from one of the most vibrant HCI & Design communities in the world. University of Washington & UW affiliated.
UW Human Centered Des... @hcdeUW
5K Followers 989 Following University of Washington Human Centered Design & Engineering. We advance systems and technologies to build accessible, sustainable, and prosperous futures.
Sean Munson @smunson
2K Followers 1K Following Associate Professor @HCDEuw. Supporting people in getting value from personal data. Former political blogger & airplane designer. Concerts, hikes, travel, food.
Cecilia Aragon @CeciliaRAragon
4K Followers 3K Following Scientist, pilot, speaker, author: HUMAN-CENTERED DATA SCIENCE (2022), FLYING FREE (2020), SECRET GARDEN (2019). Rep: @LaneHeymont. #STEM #fanfic #latina
Cecilia Aragon @craragon
2K Followers 858 Following UW professor, pilot, speaker & author: HUMAN-CENTERED DATA SCIENCE (2022), FLYING FREE (2020), SECRET GARDEN (2019). #WomenInSTEM #dataviz #fanfic #latina
Geska Lima @Geskalima
2K Followers 719 Following A Catholic mom harvesting the sour grapes of Vatican II. I'm battling ovarian cancer and I might block you without notice if you give me unnecessary stress.
SBM Theory @SBMTheory
1K Followers 508 Following Theories and Techniques of Behavior Change Interventions Special Interest Group (TTBCI SIG) of Society of Behavioral Medicine @BehavioralMed. RTs≠endorsements.
Liz Salmi @TheLizArmy
8K Followers 1K Following Be one, do one, teach one. Co-Investigator for @myopennotes. Bringing punk rock to health care. @thelizarmy.bsky.social
Charlie Blotner @CBlotner_
2K Followers 649 Following Queer hospice social worker, here to learn from you. Witness to how love is happy and sad. Endless supply of diapers in my🚙. #hpm + #hapc + #btsm content
Rod Ritchie @malefitness
3K Followers 2K Following Breast cancer Stage IIIb in 2014. Advocate for men with this disease In 2016 treated for prostate cancer. NED for both. NBCC Project LEAD grad 2018. SABCS 2019
BRCAchatter @BRCAchatter
210 Followers 292 Following #BRCA mutant | Vlogger | Previvor | Health Advocate |Hula Hooper| YouTube link below 🗣🧬
Mariana Lestelle @MarianaLestelle
122K Followers 2K Following Medica (UBA)(MD). Bloqueo sin tapujos SI TWITTER HUBIESE EXISTIDO HACE 25 AÑOS...... hubiesemos dicho más #meTOO💜💜💜
JuliMontreal @juliMontreal
27 Followers 54 Following
Abigail Johnston @AMJohnston1315
7K Followers 8K Following Wife, mom, daughter, sister, lawyer, and shenanigator, living out loud with stage IV MBC since 2017.
Amanda @livingmbestlife
959 Followers 1K Following I SAID NO TO BREAST CANCER And I'm a KitchenNinja!! #Previvor #IBD #survivor #WPWSyndrome #CHD
Heather @expattravelmom
3K Followers 3K Following 📱 Raising Tweens & Teens amongst screens! 🧘 Balanced Device Use! Certified Digital Wellness Educator, mom to 3, baker, International Teacher l Free Download
Turna Ray @TurnaRay
1K Followers 445 Following Journalist: Personalized medicine, genomics, cancer @GenomeWeb https://t.co/MJTiedX6Di Managing editor: Precision Medicine Online https://t.co/ZhPdXijId5
Olena Heu @OlenaHeu
12K Followers 626 Following Multi-Award-Winning Journalist, Emmy® Nominated Food/Travel/Beauty/Wellness Writer, TV Host, Voice Over Actor and Creator @dabesthawaii
the_brca_adventurer @brca_adventurer
112 Followers 96 Following 💙BRCA2+ Awareness building and fundraising #brca #adventure #lovelife 🚴Cycling🗻Mountains🏊Challenge🏃 🚴1300milesin13 day13/8/17🚴
Tanya Temkin @tanyaltee
199 Followers 361 Following Data nerd/research advocate/gardener. Major life changes since 2017 #BRCA2 #ovariancancer & #braintumor dxs. Claiming that experience but not letting it own me.
Nicki Boscia Durleste... @NickiDurlester
5K Followers 3K Following #BRCA2 #BreastCancer #Survivor, #Author & Founder #BeyondthePinkMoon support group @facebook for survivors, previvors, MDs & HCPs w/ 8.5k members. #bcsm #gyncsm
Lorelei Phillips @LoreleiSurvivor
1K Followers 3K Following 2X survivor of breast cancer. Ultimately a mastectomy. Goal - to be an Advocate & Motivational Speaker #breastcancer #survivor #cure #PTSD #depression #hope
GenomicContrast @GenomicContrast
76 Followers 278 Following Seeking more inclusive health systems for people with rare genetic mutations. Sharing accessible & empowering genomic research, cancer prevention & care.
Joanna Rudnick @JoannaRudnick
810 Followers 3K Following documentary storyteller #inthefamily @onbeauty @storyandpicturesby & producer of several docs that make you think (& need kleenex) @kartemquin
BRCA Center @BRCA_Center
24 Followers 94 Following
Ovarian Cancer Canada @OvarianCanada
5K Followers 2K Following We reject the notion that ovarian cancer can’t be eradicated. Nous rejetons l’idée que le cancer de l’ovaire ne peut pas être éradiqué.
Mutant Heirloom @mutantheirloom
34 Followers 15 Following Curse of the Mutant Heirloom is a documentary film. What happens when WWII trauma and a genetic mutation collide in the suburbs of New Jersey?
BCW Magazine @BCWmagazine
2K Followers 2K Following Publisher, Breast Cancer Wellness Magazine In publication since 2005 Click the link to subscribe: https://t.co/nUOLzjcjTI
Hunter Moyer, MD @HunterMoyerMD
2K Followers 3K Following Board certified plastic & reconstructive surgeon in Rapid City, SD. Member of the Plastic Surgery Research Council, SESPRS, & GA Society of Plastic Surgeons.
Alicia Dietrich @ADietrichPhD
290 Followers 403 Following Came for the science 🧬 stayed for the fellowship 🦬 VDMA ✝️
Mama GRAYce @MamaGRAYceSays
117 Followers 605 Following Mama GRAYce says MANY things, some she should & some she shouldn't! BRCA1+ PREVIVOR/Patient Advocate https://t.co/sjmBsoxyph
LADY is now Love, Dan... @LadyParts_film
196 Followers 381 Following Follow @lovedanielleflm for more
Anne Marie Mercurio @chemobrainfog
12K Followers 5K Following Patient research advocate. #SWOG PAC co-chair, BreastCancer NED 2007, #Caregiver #Medidata Patient Insights Board FD: https://t.co/SDGi78y43y
Friend for Life @fflcancersprt
6K Followers 6K Following We provide peer-to-peer emotional support to persons diagnosed with cancer and their loved ones by connecting them with a trained survivor who has been there.