Global Hidradenitis Suppurativa Atlas (GHiSA) @GlobalGhisa
#globalhealth #hidradenitissuppurativa #epidemiology ghisa.org Joined May 2022-
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Exciting News from GHiSA We are thrilled and honored to have met with the Psoriasis, Vitiligo, Atopic Dermatitis, and Epidermolysis Bullosa Atlas during the EADV 2023 in Berlin, a meeting arranged by the ILDS🤝🌐
The Global Hidradenitis Suppurativa Atlas (GHiSA) (@GlobalGhisa) is a non-profit active, available, and evidence-based organization. The mission of GHiSA is to create and promote expert #healthcare of #HidradenitisSuppurativa #patients globally. See: ghisa.org
Information on HS for patients - the school for patients who want to learn about their disease
We are happy to announce that GHiSA's first in-person steering committee meeting has taken place! Stay tuned for updates on our progress! #hidradenitissuppurativa #globalhealth #ILDS #dermatology #who
GHiSA is proud to have held a successful session at the #EHSF2023 Thank you to everyone who attended our session, and we look forward to continued collaboration to drive positive change in global health. #Dermatology #globalhealth #ILDS #Hidradenitissuppurativa #MedTwitter
GHiSA is proud to be part of the upcoming EHSF 2023 conference! Join us at the EHSF 2023 and let's work together to shape the future of Hidradenitis Suppurativa ehsf2023.com #EHSF2023 #dermatology #ILDS #HidradenitisSuppurativa #GlobalDermatology #MedTwitter
🇫🇷 F stands for France, Fantastic and Finished! 🇫🇷 France has officially finalised the data collection! Thank you to Dr Guillem and the volunteers for their important contribution to GHiSA - Amélie, Anne-Sophie, Chantal, Christelle, Marianne, Marion, Myriam, Samantha and Sylvia
...and there is more directly comparable, #datadriven #epidemiology to come. #hidradenitis is becoming a part of #globalmedicie
...and there is more directly comparable, #datadriven #epidemiology to come. #hidradenitis is becoming a part of #globalmedicie
🌐Most of the available prevalence data for #HidradenitisSuppurativa is from Europe, USA and Australia 🇬🇭This study reports on the prevalence and demographics of HS in Ghana with comparisons to data from other countries onlinelibrary.wiley.com/doi/10.1111/bj…
Welcome to our newest Members! @GlobalGhisa (ghisa.org) #Hidradenitis #MiaThrives (miathrives.org) #EpidermolysisBullosa Bald and Beautiful #Alopecia Warriors #AAPDA (alianzadermatitisatopicapr.com) #Eczema
🇱🇰 Good day - good news!🇱🇰 Sri lanka has received ethical approval. They will start the data collection right away! What do you think the prevalence of HS in Sri Lanka will look like? #srilanka #globalhealth #medtwitter
GHiSA is currently on the lookout for new global collaborating partners. Do you want to join GHiSA? Visit our website and reach out to us: ghisa.org #GHiSA #hidradenitissuppurativa #dermatology #EADV #HS #epidemiology
We are proud and honoured to receive support from @asdvafrica The true burden of Hidradenitis Suppurativa (HS) in Africa is close to unknown due to a lack of studies. Currently, GHiSA is investigating the epidemiology of HS in 11 countries spread across Africa! #MedTwitter
GHiSA is growing🇧🇩🇵🇱🇩🇿🇳🇬 We are excited to announce that Bangladesh, Nigeria, Poland, and Algeria have finalised the data collection! Thank you to the global research partners for the data collection! #globalhealth #WHO #GHiSA #epidemiology #medtwitter #Hidradenitissuppurativa
One of the biggest problems concerning the disease #hidradenitis_suppurativa, is that the global, and in most instances national disease burden is still unknown. When such basic information is still lacking how can we expect stakeholders to realize the scope of the problem? 🤔
In Denmark the figure is well known. 0.2% of the population have been diagnosed with HS. jamanetwork.com/journals/jamad… (if for some reason you cannot access the article, reach out to me at researchgate.net/profile/Rune-A…) However as HS is still widely unknown how many go undiagnosed?
Such a question can be answered by looking at how large a part of the population experience symptoms of the disease, and subsequently offer those a psychical examination. In that regard I would like to point your attention towards @GlobalGhisa. 😃👏
GHiSA at the #EADV2022 ! 🇮🇹 We are very happy to have met so many of our amazing global GHiSA colleagues. A special thanks to our GHiSA collaborater from Tunisia, Professor Nejib DOSS, for this amazing Tunisian gift! #GlobalHealth #hidradenitissuppurativa #dermatology
GHiSA is proud to announce that we are currently working together with GlobalSkin - International Alliance of Dermatology Patient Organizations @IADPO! Together we hope to create global awareness of Hidradenitis Suppurativa (HS). #EADV #medtwitter #globalhealth #hsresearch
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4K Followers 988 Following Former Complex Med Derm Fellow 21-22 @Harvard Assistant professor of derm @KSAUHS_JD #Scientist| #MedTwitter epi/biostat| Opinions my own| Available in Ar En FrExciting News from GHiSA We are thrilled and honored to have met with the Psoriasis, Vitiligo, Atopic Dermatitis, and Epidermolysis Bullosa Atlas during the EADV 2023 in Berlin, a meeting arranged by the ILDS🤝🌐
The Global Hidradenitis Suppurativa Atlas (GHiSA) (@GlobalGhisa) is a non-profit active, available, and evidence-based organization. The mission of GHiSA is to create and promote expert #healthcare of #HidradenitisSuppurativa #patients globally. See: ghisa.org
#Prevalence of #HidradenitisSuppurativa in an #African #population: Validation of a screening questionnaire in #Lagos, … @GlobalGhisa pubmed.ncbi.nlm.nih.gov/37343527/
#GhiSA study: Prevalence of #HidradenitisSuppurativa (HS) in an #African population: validation of a screening questionnaire in Lagos, Nigeria. Note: - HS prevalence = 2.2% - no significant #gender predominance - HS not linked to #BMI @GlobalGhisa pubmed.ncbi.nlm.nih.gov/37343527/
#GHiSA is a non-profit active, available, and evidence-based organization. The mission of GHiSA is to create and promote expert #healthcare of #HidradenitisSuppurativa #patients globally. ghisa.org
The Global Hidradenitis Suppurativa Atlas (GHiSA) (@GlobalGhisa) is a non-profit active, available, and evidence-based organization. The mission of GHiSA is to create and promote expert #healthcare of #HidradenitisSuppurativa #patients globally. See: ghisa.org
The Global Hidradenitis Suppurativa Atlas (GHiSA) (@GlobalGhisa) is a non-profit active, available, and evidence-based organization. The mission of GHiSA is to create and promote expert #healthcare of #HidradenitisSuppurativa #patients globally. See: ghisa.org
The Global Hidradenitis Suppurativa Atlas (GHiSA) (@GlobalGhisa) is a non-profit active, available, and evidence-based organization. The mission of GHiSA is to create and promote expert #healthcare of #HidradenitisSuppurativa #patients globally. See: ghisa.org
Sonoderm 2023 in Cluj was a marvelous experience, a mix of teaching, learning, and enjoying the warmth of the Romanian people and the natural landscapes. A highlight was the launch of my book “Textbook of Dermatologic Dermatologic Ultrasound,” kindly introduced by @ecoalfageme
Incredible first day at the @WHO Skin NTD meeting in Geneva. Honoured to be amongst all the professionals working in this field. Thank you to everyone who attended our side meeting about patient organizations this evening. #SkinNTDs #beatNTDs #StrongerTogether
Yesterday I had the pleasure to discuss and defend my PhD on #genitalwarts, #epidemiology, and #medicalgenetics with Prof. Skerlev, Associate Prof. Svensson, and Prof. Skov. Great day! Thanks also to @DitteSaunte @Ole_B_Pedersen @gbj_jemec @dermatologisk @Bloddonorstudie
GHiSA is proud to have held a successful session at the #EHSF2023 Thank you to everyone who attended our session, and we look forward to continued collaboration to drive positive change in global health. #Dermatology #globalhealth #ILDS #Hidradenitissuppurativa #MedTwitter
We are happy to announce that GHiSA's first in-person steering committee meeting has taken place! Stay tuned for updates on our progress! #hidradenitissuppurativa #globalhealth #ILDS #dermatology #who
@liveidsmo @GasbjergL @TBandholm @datta_nabanita Feeling honored to help facilitate important discussions on how to support sustainable career paths for scientist at all academic levels together with Prof @ElisabethLo, Associate Prof @lenehgarvey, Prof Dalhoff and Medical Student Marie E Møller at @koebenhavns_uni
@liveidsmo Thanks for sharing your journey in #healthcare #science and #clinical #dermatology as an inspiration for young researchers within various medical fields. Also thanks to the other excellent speakers Postdoc @GasbjergL, Prof @TBandholm, Prof Kim Dalhoff, and Prof @datta_nabanita.
Here Assoc Prof. Mads Lerdrup is explaining how epigenetics may be altered doing #aging, and how those alterations may lead to disease. After lunch we will hear about reallife application of epigenetics.
...and there is more directly comparable, #datadriven #epidemiology to come. #hidradenitis is becoming a part of #globalmedicie
This study was an initiative of the Global Hidradenitis Suppurativa Atlas (GHiSA). Please see our website for more information - GHiSA.org
🌐Most of the available prevalence data for #HidradenitisSuppurativa is from Europe, USA and Australia 🇬🇭This study reports on the prevalence and demographics of HS in Ghana with comparisons to data from other countries onlinelibrary.wiley.com/doi/10.1111/bj…
Welcome to our newest Members! @GlobalGhisa (ghisa.org) #Hidradenitis #MiaThrives (miathrives.org) #EpidermolysisBullosa Bald and Beautiful #Alopecia Warriors #AAPDA (alianzadermatitisatopicapr.com) #Eczema
🇱🇰 Good day - good news!🇱🇰 Sri lanka has received ethical approval. They will start the data collection right away! What do you think the prevalence of HS in Sri Lanka will look like? #srilanka #globalhealth #medtwitter