HDLutece @HDLutece
HD patient positive (5 years Unversity postgraduate, bilingualhad to quit my job, and helped my mother to take care of my father for 17 years English, french France Joined January 2013-
Tweets39
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Followers106
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Following198
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Likes911
Prototype Covid test delivers results three times faster than lateral flow theguardian.com/world/2021/feb…
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Signed !
Roche announces details of its 'pivotal' huntingtin-lowering study en.hdbuzz.net/263 via @http://twitter.com/HDBuzzFeed
Went to my first protocle appointment yesterday. RMI, blood samples, cognitive tests, etc... This is my third protocole. Next appointment in 3 months for a total of 1 year.
HDLutece retweeted
Novel compound has promise for treatment of Huntington's disease massgeneral.org/News/pressrele…
Great day yesterday for the National Huntington's Disease Day conference in Paris (2nd one)
HDLutece retweeted
Annonce très importante : Premiers patients MH traités avec des médicaments de silençage génique fr.hdbuzz.net/204
Yesterday my father left this world after a long and brave battle with Huntington's Disease. May he rest in in peace... #huntingtonsdisease
HDLutece retweeted
ivanhoe.com/channels/p_cha… Interview on #stemcells for #HuntingtonsDisease at #UCDavis #science #RareDisease
HDLutece retweeted
Est ce trop dder twitter de faire tourner cette magnifique photo avec le nom de son auteur @argyroglo #JeSuisCharlie
Actu santé : Maladie de HUNTINGTON: Une huile synthétique pour rétablir le métabolisme cérébral santelog.com/news/neurologi… #santelog
HDLutece retweeted
Maybe the road isn't as long as we thought it was. Fantastic news! m.digitaljournal.com/life/health/is… #huntingtons #disease #treatment #cure #boots
HDLutece retweeted
Brain degeneration in Huntington’s disease caused by amino acid deficiency psypost.org/?p=23954
Frustré de mon RV d'hier avec la neuro à la Salpêt,Trravail baclé à chaque fois mais là elle ne le cache même plus! Changer?
HDLutece retweeted
CIRM awards $25M in grants for stem cell research wp.me/p2mY2S-1eh
HDLutece retweeted
Been outside a supermarket for 6 hours now raising funds and awareness. £200 in the pot! #charity #huntingtons #epic
Howard Griffiths ☀�... @HowardGriffiths
7K Followers 8K Following Broadcaster - Events - TV - Radio @BBC @ITV @Channel5_tv “When..GoesHorriblyWrong” @NHSuk @LifetimeTV #Concorde #NY @bbc5live Enq: [email protected]
@HDAwareness. @HDAwareness1
118 Followers 287 Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #huntingtonsdisease
Matt Ward @mattwardfromage
91 Followers 707 Following Living with (but not defined by) Huntington's Disease. My strength comes from my family & friends. https://t.co/lwTcZoxJUK
HD Genetics @HD_Genetics
320 Followers 245 Following Huntington's Disease Genetics (HD Genetics) offers best-in-class genetic counseling & testing directly to at-risk individuals in the USA.
Everything Is Illumin... @RenActually
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Tierney Tindall @TierneyTindall3
42 Followers 141 Following Trainee Clinical Psychologist. Currently recruiting for research project exploring experiences of irritability in Huntington's disease.
Bernadette O Leary @BerBarrett12311
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Soph Thomas @SophThomas5
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Wenzhen Duan @DuanWenzhen_Lab
71 Followers 241 Following Professor of Psychiatry and Neuroscience at the Johns Hopkins School of Medicine
Stephen @norto73
7 Followers 39 Following
Everyday is #HDAwaren... @AwarenessHD
2K Followers 5K Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #huntingtonsdisease
EHDN Collaborations @EHDN_GRANTM
929 Followers 833 Following European Huntington's Disease Network https://t.co/SW4uBnzahl -This account is no longer active. EHDN is now on LinkedIn and BlueSky
Geraldo @grannyGrouse60
69 Followers 225 Following I’m a Mammy x4 and a granny x 7 and counting. Happy with my lot. I believe in a fair just society. Just treat others as you’d like to be treated yourself.
50kforHD @50kforHD
65 Followers 204 Following Joe runs 50k for Huntington's disease awareness on the 17th September 2022. Joe lost his Dad in June and so this is now to honour his life.
Susan Quinlan @SusanQuinlan10
2 Followers 240 Following
Cathy Bytheway @bytheway_cathy
54 Followers 1K Following
Mohammed Al Hajri @onrhoman
1K Followers 945 Following Financial Advisor , Chairman of Abu Hamad Al Hajri Trading Group
EHDN News @EHDN_News
717 Followers 975 Following European Huntington's Disease Network newsletter. Please see our profiles on BlueSky and LinkedIn for the latest updates.
Fay Peatross @fay_peatross
941 Followers 4K Following
HDSA San Francisco Ba... @HDSA_SF
271 Followers 537 Following Updates and news from the Huntington's Disease Society of America San Francisco Bay Area Chapter. #LetsTalkAboutHD. Recommendations? email [email protected]
Leslie Brewer @LeslieB0821
81 Followers 1K Following I love my boys, and I hate Huntington's Disease.
Nicola maloney @nmnoonoo
77 Followers 2K Following
BJ Viau @BJsView
801 Followers 2K Following #HuntingtonsDisease Community Advocate. Entrepreneur. Passion to Help Others. Founder @HD_Genetics & Co-F @hdyofeed Viau’s Are My Own. Tommie Hoops Fan
Louise Mackay @LouiseMackay19
2K Followers 4K Following
kellymatheson @kellymatheson
256 Followers 918 Following Highland woman #highlander #mother #huntingtonsdisease #HDawareness #scotlandsnature #scottishhistory #scotland #highlands #HDpositive
mikal @carronmikal1
270 Followers 2K Following
Sandile Shabangu @sandile_gadaffi
203 Followers 968 Following am open humble and very bubbly so am interested in meeting ppl of the same
Facebook @dsummons25
579 Followers 5K Following
sintia_ccb @sintia_ccb
448 Followers 2K Following フォローしてくれてありがとう🎌 Me siga no Twitter 🐦 Aquariana ♒ Instagram sintia_x_rodrigo❤️
BIOVIIIx @BIOVIIIx
2K Followers 5K Following BIOVIIIx è una biotech & pharmaceutical company operante nel campo delle Emocoagulopatie e delle malattie rare con particolare specializzazione nell'emofilia.
Danton @TribunDANTON
3K Followers 4K Following Tribun. Tribune. Tribunitien. Tribulations. Tribunal. Tribut.
Fondazione LIRH @LirhOnlus
279 Followers 1K Following Sosteniamo e conduciamo attività di ricerca scientifica, promuoviamo la conoscenza sulla Malattia di Huntington, forniamo assistenza gratuita ai pazienti
Lauren Holder @laurencurehd
567 Followers 494 Following HD advocate, #rarediseases advocate, Producer of Help4HD Live, caregiver, mom, and much more!
Kyra Ashley Clarke @kyraashley93
52 Followers 363 Following Working for HDANI as their Youth Events and Fundraising Officer. Fighting the HD fight both personally and professionally. Creator of #imnotdrunk Lifestyle Blog
RE Martin ☮️ @Mar1Edge
393 Followers 2K Following Southern liberal, dog lover, retired ID physician.
Lisa Smart’s Huntin... @lisasmarthst
144 Followers 293 Following Help, support and advice for Huntington's Disease sufferers and their families, plus a place to talk :)
Sean Murphy @murphyslaw1987
2K Followers 2K Following Philosopher of science/bioethics. I completed Purdey’s research by discovering the true causes (oil pollution, mercury, & mycotoxins) of “Huntington’s Disease”.
Shirley Johnstone @Shirley66537736
5 Followers 84 Following
Londen Tabor @londen_tabor
155 Followers 442 Following My daughter is a JHD Warrior and I am her biggest advocate. Together we raise awareness for our Juvenile Huntington's Disease Community 💜💙
jean47 @jean4760110889
380 Followers 565 Following Retired, former carer for husband, who had Huntington’s disease. I enjoy time with family & friends, reading, walking, the arts and travel . Ask b4 sending DM.
Loiner_nick77 @Loiner_nick77
1K Followers 2K Following
HD Insights @HD_Insights
106 Followers 196 Following HD Insights is a semi-annual publication that highlights the latest research on Huntington's disease.
Run4Hun @Run4Hun
35 Followers 79 Following Charity run from Colchester to Newcastle (275 miles) to raise awareness and funds for the Huntington's Disease Association. #Run4Hun #TeamHDA
Adrienne L. @Hdwarriormomma
320 Followers 3K Following #Proudmom of 2 #beautiful #kiddos #Married #HuntingtonDisease #Warrior. #disabled #proud to be #🇮🇹 #🇮🇱 southern girl so I may talk loud & w/ my ✋.
Kait @mutantvsmonster
72 Followers 132 Following I'm Kait. I'm 28 and I tested positive for the #HuntingtonsDisease mutation. I'm a mutant and I'm fighting a monster. I cope through writing & art on my blog.
Antonia Campolongo @acampolongo1975
360 Followers 481 Following Nurse and coordinator of Movement Disorders Unit of Neurology. Hospital de la Santa Creu i Sant Pau. Barcelona , Spain
Ana Blan @Ana1Blan
3K Followers 634 Following Il n'est pas plus sourd que celui qui refuse d'entendre. Lanceur d’alerte sur les corruptions suis-moi je te suis je follow back Follow for follow
Jason Crowl @Jason_Crowl
472 Followers 3K Following Huntington's Disease positive since 2018 and still fighting the good fight.
HelpCureHD @HelpCureHD
602 Followers 220 Following MLB Pitcher Joe Smith & Sports Reporter Allie LaForce charity supporting families & helping eradicate Huntington's Disease.
HDSA's NYA @HDSANYA
677 Followers 92 Following Supporting young people all over the United States who are impacted by Huntington's disease #HDSANYA
Welcome Abroad @WelcomeAbroadWA
38 Followers 83 Following Content Creator | Youtuber | Hotel Reviews | Travel Vlog | 4K Walking Tours | Tiktok: welcome.abroad.wa
Noémie Halioua @NaomiHalll
41K Followers 4K Following Vadrouilleuse / scribouillarde. Essayiste. ✍ La Terreur jusque sous nos draps (Plon) Ex rédac chef @i24news_fr /Ex grand reporter au Moyen-Orient.
HDSA New Jersey @HDSANJ
498 Followers 239 Following New Jersey Chapter of the Huntington's Disease Society of America. http://t.co/B43vqW8bj1
Howard Griffiths ☀�... @HowardGriffiths
7K Followers 8K Following Broadcaster - Events - TV - Radio @BBC @ITV @Channel5_tv “When..GoesHorriblyWrong” @NHSuk @LifetimeTV #Concorde #NY @bbc5live Enq: [email protected]
J Dobbie @DobbieJoanne
131 Followers 216 Following Head of Fundraising at Huntington's Disease Association. Opinions are my own and not the views of my employer.
Reine des prés 👸�... @pres_reine
25K Followers 12K Following ⚜️ Les remèdes existent, Vitamine D3, Aubépine, Moutarde, Tribulus, HDNDCoco 🌴🥥 • Compilation des remèdes 🎥 https://t.co/TYN8KgyFll
PSSD Network | Post-S... @PSSDNetwork
9K Followers 326 Following Nonprofit dedicated to awareness, education, and research for PSSD (Post-SSRI Sexual Dysfunction) https://t.co/YlOQhbyIGw
emma de Lioncourt @enjolrasinparis
491 Followers 728 Following ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #filmtwt⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ᴬᵐᵒʳ ⱽⁱⁿᶜⁱᵗ ᴼᵐⁿⁱᵃ
All of Us Strangers @AOUStrangers
2K Followers 1 Following Directed by Andrew Haigh. Starring Andrew Scott, Paul Mescal, Jamie Bell, and Claire Foy. Now available on digital.
Prilenia @PrileniaTx
2K Followers 260 Following Clinical stage biotech company focused on developing novel treatments for neurodegenerative and neurodevelopmental disorders
Huntington Baleares @Huntington_IB
283 Followers 118 Following Asociación sin ánimo de lucro, que lucha por la mejora de la calidad de vida de las personas con la Enfermedad de Huntington y sus familias.
VvHuntington (niet ac... @VvHuntington
263 Followers 52 Following De officiële X-pagina van de Vereniging van Huntington. Voor nu is deze pagina niet meer actief. We zien je graag op Facebook of Instagram!
@HDAwareness. @HDAwareness1
118 Followers 287 Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #huntingtonsdisease
Dancing at the Vatica... @dancing_vatican
198 Followers 411 Following A film about making history. https://t.co/JzKlwQrAIP And find us at https://t.co/tEitiUl1cA
Dr Lauren Byrne @LaurenByrne7337
1K Followers 401 Following Huntington's disease researcher (@houseofbyrne) and family member. Tweets are my own. Passionate about dogs, wine, cheese and curing HD.
CUREHDSA.ORG @CUREHDSAORG
2K Followers 4K Following 61 YR OLD MOM WHO LOVES JESUS CHRIST! W/ HUNTINGTONS DISEASE,BREAST CANCER ♋️ survivor JUMPED OFF A 3 STORY BLDG WITH MY DAUGHTER FROM A FIRE and recovering.
Huntingtonsdisease @_Huntingtons
87 Followers 0 Following
James Keutufey @ElCascador1603
20K Followers 18K Following ᴠɪᴠʀᴇ ᴇɴ ꜰʀᴀɴᴄᴇ ᴅᴇᴠʀᴀɪᴛ Êᴛʀᴇ ᴜɴ ᴘʀɪᴠɪʟÈɢᴇ, ᴘᴀꜱ ᴜɴᴇ ᴀᴜʙᴀɪɴᴇ... Secondé par @JamesKeutudy 🇫🇷 Union des droites / Macron = tiers-mondisation dehors 🚮
HDSA Washington State... @hdsa_wa
96 Followers 70 Following The Huntington’s Disease Society of America Washington State Chapter mission is to improve the lives of everyone affected by Huntington's disease
HD Genetics @HD_Genetics
320 Followers 245 Following Huntington's Disease Genetics (HD Genetics) offers best-in-class genetic counseling & testing directly to at-risk individuals in the USA.
William Makis (McGill... @MakisMedicine
590K Followers 37 Following Cancer Researcher. McGill Medicine. 110 papers. Largest Ivermectin Cancer Clientele globally! [email protected] Top Substack Author. https://t.co/SBv9DfCcFx
CNEWS @CNEWS
2.6M Followers 666 Following Toute l'info sur le canal 14 de la TNT, mais aussi sur Facebook, Twitter, Instagram et TikTok
Florian Philippot @f_philippot
504K Followers 1K Following Président de @_LesPatriotes #Frexit #Gaulliste #Libertés #Paix🇫🇷
Everything Is Illumin... @RenActually
979 Followers 689 Following Life is a parody. Music junkie. Sassy pants. Keep moving. Dream big. Be kind. #curehd #stay
Paul van de Groep @PaulvandeGroep
232 Followers 334 Following Pensionado, volunteer at the Heemhof Apeldoorn, supporter of @CTeamHuntington, granddad of 6 grandchildren, 2 at risk of Huntington's Disease
Grant Walker @SHAYouth_Grant
165 Followers 247 Following Youth Service Lead for Scottish Huntington's Assoc. (@ScottishHD) (@shayouth). Views my own or RT'd, may not represent SHA/YS.
HD Reach @HDReach
1K Followers 80 Following HD Reach is a nonprofit organization dedicated to providing access to healthcare, education, and social assistance for those affected by Huntington’s disease.
Loiner_nick77 @Loiner_nick77
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Europe 1 @Europe1
1.7M Followers 4K Following Europe 1, la radio qui vous informe et vous divertit au quotidien. En direct ou en #podcast. 🎧🌍📻 📞 01 80 20 39 21 (non surtaxé)
Martial Bild @BildMartial
50K Followers 1K Following Directeur stratégie de TVL - https://t.co/zKmN2gVRYc Journaliste, éditorialiste Presse audiovisuelle alternative Auteur de "Défaire le Parti des médias"
Driss Ghali @DrissG5
22K Followers 1K Following Intellectuel engagé (là où on ne m'attend pas). J'aime l'ordre mais je déteste l'injustice.
Le media pour tous @lemediapourtous
10K Followers 61 Following
Bocquet Annelise 🔬... @AnneliseBocquet
29K Followers 3K Following Docteur en Biologie Santé, enseignante d'hématologie/immunologie. En Science, on ne peut rien affirmer mais on peut tout discuter.
jules serkin @julesserkin
21K Followers 10K Following #Radio presenter @scoffquaff Xmas special show #BBC #PR #health #hospitality Listen: https://t.co/3DXO3weePd
Marion Maréchal @MarionMarechal
677K Followers 1K Following Présidente @ID_Libertes | Député français @ECRgroup au Parlement européen | Vice-présidente @ECRparty | Co-fondatrice de @ISSEP_France
Chris Alvino @ChrisAlvino
15K Followers 4K Following Sex & Dating Coach | Creative | Computer Scientist | AuDHD | disabled from LASIK & C19 | he/him | #ActuallyAutistic | #CovidIsAirborne | obligatory ░🐈░
Pierre Perret @pierreperret
23K Followers 128 Following Compte X Officiel de Pierre Perret : suivez mon actualité, mes concerts, mes coups de cœur !
Robert A Ryan @LazyRLizard
639 Followers 2K Following Newfoundlander, stamp & coin collector, who enjoys a good laugh, loves good music, food, books, photography, card & board games. Advocate for accessibility.
Mohammed Al Hajri @onrhoman
1K Followers 945 Following Financial Advisor , Chairman of Abu Hamad Al Hajri Trading Group
Soph Thomas @SophThomas5
229 Followers 2K Following
Mark Hitchin @markhitchin1980
159 Followers 487 Following My Story,Amateur golfer who lives for Golf. ⛳️ Life's to short Follow your dreams!✨️@Hawkstonegolf partner @SophThomas5 @HDA https://t.co/FHloszYa8j
Josh David @JoshBeasley4
231 Followers 593 Following Criminology with Law Graduate from Hull Uni📚🎓🚨 Huntington's Disease Advocate 🙏🏻
Gabrielle Cluzel @gabriellecluzel
158K Followers 959 Following Journaliste, chroniqueuse, éditorialiste (Boulevard Voltaire, Famille chrétienne, CNEWS, Europe 1...). Auteur de « YES KIDS » (Fayard)
VERITY France @verity_france
232K Followers 6K Following Association de victimes d'effets secondaires suite aux injections COVID. Adhésion à VERITY France : https://t.co/httPxo2axHTrends for United States
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