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Feedback Media @IMfeedback

The speedy platform system to professionally create videos. Click link to see to make your first video for $25. x.co/25video Boston, MA Joined September 2016
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  • Followers
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  • Following
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IMfeedback Profile Picture

Feedback Media @IMfeedback

2 years ago

lnkd.in/dKsUEvfF

IMfeedback Profile Picture

Feedback Media @IMfeedback

4 years ago

Hello @DescriptApp. I upgraded to your PRO account. I am really interested to use audiogram with the custom image. I follow the instructions in your support video but the output does not contain the JPG. To the other @DescriptApp users are others having this issue? #descript

Feedback Media retweeted
rarepatientvoic Profile Picture

Rare Patient Voice @rarepatientvoic

5 years ago

The word is #positivity and RPV panelist John McElory exudes it. Despite having MS, and being wheelchair-bound, for 18 years, it doesn’t stop him from surfing. #mrx #rxmrx #MultipleSclerosis #PatientsFirst

Feedback Media retweeted
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Rare Patient Voice @rarepatientvoic

5 years ago

When Keith was diagnosed w MS there were only 3 treatments. Today there's about 15. If you or someone you know has MS you should see the full video: youtu.be/WUSiNcFnwoc #RareDisease #PatientExperience #medicine #DisabilityAwareness #MultipleSclerosis

Feedback Media retweeted
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Rare Patient Voice @rarepatientvoic

5 years ago

Even though John McElroy has been confined to a wheelchair for 18 years, he still does physical therapy twice a week at Planet Fitness! The power of #positivity! Judgement Free Zone #PlanetFitness #MultipleSclerosis #RareDisease

Feedback Media retweeted
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Rare Patient Voice @rarepatientvoic

5 years ago

Rare Patient Voice partners with patient and disease advocacy groups. We pay $5 for every referral you or your group, makes. We are honored to have worked with many advocacy organizations. #PatientExperience #MultipleSclerosis #DisabilityAwareness #invisibleillness #cure #cancer

Feedback Media retweeted
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Rare Patient Voice @rarepatientvoic

5 years ago

“Participating in @rarepatientvoic surveys gives purpose to what I’m going through”. Here is the link that’s mentioned at the end of the video: lnkd.in/e2MKyp9 #mrx #rxmrx #PatientExperience #MultipleSclerosis #DisabilityAwareness #invisibleillness #cure #cancer

Feedback Media retweeted
rarepatientvoic Profile Picture

Rare Patient Voice @rarepatientvoic

5 years ago

If you have a rare disease, please join @rarepatientvoic and let your voice be heard! #PatientExperience #MultipleSclerosis #BeAHero #DisabilityAwareness #invisibleillness #cure #cancer #chronicillness #patientengagement #breastcancer #masectomy #chemotherapy

Feedback Media retweeted
rarepatientvoic Profile Picture

Rare Patient Voice @rarepatientvoic

5 years ago

If you have a rare disease, please consider joining @rarepatientvoic and let your voice be heard! #PatientExperience #MultipleSclerosis #BeAHero #DisabilityAwareness #invisibleillness #cure #cancer #chronicillness #patientengagement #breastcancer #masectomy #chemotherapy

Feedback Media retweeted
rarepatientvoic Profile Picture

Rare Patient Voice @rarepatientvoic

5 years ago

We often get asked by patients and clients "Who are your clients?" Click this link youtube.com/watch?v=q82vu1… to learn more about the types of clients we work with. #RareDisease #PatientExperience #medicine #DisabilityAwareness

Feedback Media retweeted
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Rare Patient Voice @rarepatientvoic

5 years ago

Today we’re introducing a new video series called “In Their Own Words”. The series showcases brave RPV panelists who want to share their stories. Click this link lnkd.in/eS2svqh to see a short video about how this panelist is overcoming MS. #mrx #rxmrx #RareDiseases

Feedback Media retweeted
rarepatientvoic Profile Picture

Rare Patient Voice @rarepatientvoic

5 years ago

#RareDiseaseDay 2019 is today! #ShowYourRare What action are you taking to raise the awareness of rare diseases today? How about joining @rarepatientvoic and let your voice be heard! Together we can make a difference!

Feedback Media retweeted
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Rare Patient Voice @rarepatientvoic

5 years ago

The inside story behind how @wesmichael first started to sign up panelists for @rarepatientvoic! #PatientExperience #RareDiseases

Feedback Media retweeted
rarepatientvoic Profile Picture

Rare Patient Voice @rarepatientvoic

5 years ago

@rarepatientvoic conducts paid surveys for #medical and #pharmaceutical companies. We pay at the rate of $100 per hour. Visit our website to join. Watch one of our members - Marcie - explain more. #RareDisease #PatientExperience #medicine

Feedback Media retweeted
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Rare Patient Voice @rarepatientvoic

5 years ago

We've been asking members of @rarepatientvoic to share their stories via video. Stories help us expand our mission to improve the lives of #RareDisease patients. #healthIT #digitalhealth #mhealth #ehealth #healthcareIT #hcldr #womeninHIT #healthcaretech #medtech #healthcare

IMfeedback Profile Picture

Feedback Media @IMfeedback

5 years ago

#caregivers are so important in the lives of rare patients. That's why we pay them at the rate of $100 per hour to participate in our research studies. Please share this post so we can help get the word out and improve the lives of many. #PatientExperience #RareDiseases

Feedback Media retweeted
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Rare Patient Voice @rarepatientvoic

5 years ago

Members of @rarepatientvoic at times have to show INCREDIBLE bravery. We were formed to provide patients and caregivers an opportunity to voice their opinions and improve medical products and services. #PatientExperience #MultipleSclerosis #BeAHero #DisabilityAwareness

Feedback Media retweeted
rarepatientvoic Profile Picture

Rare Patient Voice @rarepatientvoic

5 years ago

What were my thoughts when I was first diagnosed? My life stopped but everyone else’s life continued. #mrx #rxmrx @rarepatientvoic #MultipleSclerosis #RareDiseases #BraveSouls

Feedback Media retweeted
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Rare Patient Voice @rarepatientvoic

5 years ago

In 2018 the FDA set an all time record with 59 new drug approvals & over half (34) were for orphan drugs. I’m pleased to say that @rarepatientvoic has patient panels for 28 of them - 82% coverage. #FDA #rareDiseases #clinical #diagnoses #rare #rareGeneticDisorders #OrphanDrugs

Feedback Media retweeted
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Rare Patient Voice @rarepatientvoic

5 years ago

Many patient panelists at @rarepatientvoic find the questions our surveys ask to be very helpful and get them to think about issues they haven't given much thought to. #RareDisease #PatientExperience #medicine #Medical

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