Hilgos Foundation @IRememberBetter
Documentary narrated by Olivia de Havilland on positive impact of art, museums, music & creativity on people w/ Alzheimer’s. Co-host weekly care chat @alzchat …ememberbetterwhenipaint.wordpress.com/about/ Joined July 2010-
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Having somewhere to share your story is important. Some people create a life book, with images, tickets, their values in scrapbook decorated pages as a keep sake. These have also been made with fabric pages, with photos printed onto fabric, which feel special. #AlzChat
Here's an example of where people sharing their stories and leaving a rich legacy for other families, about their experiences, ideas and tips. #AlzChat nidirect.gov.uk/articles/stori…
#AlzChat We will all leave a legacy without even trying. Lives we have touched, values we have passed on, moments we have shared.
It's a great start to list your digital assets... what social media are you using? do you use the cloud for storage? The @DigitalLegacyCo has a free downloadable social media form to get you started. Their website is full of useful tips #AlzChat
@bikerwise LOL .. yes.. it go either way! Several ppl have talked about the joy of growing plants from garden cuttings of loved ones. The pet stories seem to vary! One person was left the dog that had never liked her! #AlzChat
so true.. legacy making can be more important for the relatives, friends, fans etc than for the people leaving the legacy. #AlzChat
Some families create 'experience journals' ...recording memories as much as possible each week or month, which helps ppl realise that there can still be times of joyfulness, meaning, music, etc whilst living with dementia.. and this is another important legacy #AlzChat
@creativitycare @PlutoPlaysUK Yes, indeed. Tells the story of my parents' lives as well as facing challenges of my mum's dementia years & my dad's MND/ALS. Play is all about creating a space for people to talk about what they have watched, identify with & want to be part of making things better #Alzchat
@helenfindlay @PlutoPlaysUK To create a space to talk about the challenges and consider the possibilities is a great gift and legacy. #AlzChat
@creativitycare I wrote a booklet with my mum about her early life & gave copies to family members. Also gave a copy to nursing home, which they were pleased to have as it helped draw a picture of who she was as a young person & without dementia #AlzChat
#AlzChat soon winding down for today. Thanks to all for joining / listening in. See you next Monday 3pm/8pmUK @creativitycare
It's time for #AlzChat Topic today: Talking about legacy in dementia care @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging @THEVDOVault
#AlzChat 3pm/8pmUK Topic today: Talking about legacy in dementia care @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging @THEVDOVault
More here about @scottishballet TimeTo Dance scottishballet.co.uk/move-with-us/d…. 'By developing communication, expression, coordination, balance, creativity, problem-solving and social interaction, dancing supports brain health and improves quality of life' #AlzChat
#AlzChat Hi @AllIrishDance23 and Happy Dance Day
#AlzChat Hi @AllIrishDance23 and Happy Dance Day
#AlzChat enjoy this webinar by the Ontario Caregiver Organisation Dancing with dementia: Fostering Social Inclusion youtube.com/watch?v=knPfjA… Humans have been dancing for over 40,000 years ... it's our nature to dance
#AlzChat Article Dr Richard Coaten communitydance.org.uk/DB/animated-li… "Sylvia rose unaided from her chair, went to the centre of the room and danced for a full 17 minutes. ...with grace and serenity through movements that had been hidden for over 40 years. The staff were in tears"
@IRememberBetter @creativitycare @nursesKidONE @bethyb1886 @UnicornSpark @MyCareMatters @artsaging @THEVDOVault #AlzChat What a perfect description. “Dancing with dementia” says it all. Different steps depending on the day..even the hour. 💜
It's time for #AlzChat Topic today: Dancing with dementia @creativitycare @nursesKidONE @AlzJoyThruTears @bethyb1886 @UnicornSpark @MyCareMatters @artsaging @THEVDOVault #InternationalDanceDay
Ian Kremer @LEAD_Coalition
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29K Followers 22K Following #dementia #delirium #disability #neurodiversity primrose hill hon visiting prof @LivUni hon res fellow @ucl #cats #books pro #EU #ageing persl views
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Dr Clarissa Giebel �.. @ClarissaGiebel
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s82aucsxby7fr0z @kanv850e5
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29K Followers 22K Following #dementia #delirium #disability #neurodiversity primrose hill hon visiting prof @LivUni hon res fellow @ucl #cats #books pro #EU #ageing persl views
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3K Followers 1K Following Millennial Daughter trying to navigate losing both of her parents from dementia. former teacher, current lover ❤️
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716 Followers 2K Following PhD | Occupational Therapist | Researcher | Dementia | Assistive Technology | Person-centred | National Autism Implementation Team @NAITScotland
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Consultant Admiral Nu.. @Hannahdementia
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534 Followers 568 Following A transdisciplinary journal committed to advancing our understanding of the global processes of ageing
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6K Followers 5K Following #AgingInPlace, #AgeingInPlace #Retirement #RetirementActivities #dementiaCare #thriftshopper #scavenger #recycler, #waffler. RTs r not endorsements.
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92 Followers 69 Following I am 60 years old and living with young onset dementia. I am also co founding member of a peer support group in Fife called STAND.
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45 Followers 234 Following Empowering people in the dementia community through relevant, timely information on the rapidly changing paradigm on dementia causes and treatments.
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974 Followers 757 Following 30+ years acute hospital pall med consultant. Still learning. Love normalising palliative care; should be part of mainstream health care All views are my own.
Deborah Hall @dmh226
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Joyful Recreation @JoyfulRec
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The Forget Me Notes P.. @FMNProject
231 Followers 87 Following Edinburgh-based charity that uses music to build community and combat social isolation, supporting people living with dementia, their families and friends.
Karah Lynea, MPH @miss_karah
478 Followers 750 Following PhD Candidate @EmoryUniversity👩🏾⚕️| examining health literacy in Black dementia caregivers | @Spelman alumna💙| literacy & equity
Helena Quaid @helenaquaid1
1K Followers 3K Following Chair of the DCCN Dementia Carers Campaign Network @DCCNIRL Co-Founder of Lewy Body Irl
Dr. Zoe Menczel Schri.. @zoemschrire
271 Followers 246 Following Postdoc 🎶 🧠@HBAProgram_USYD running a clinical trial investigating musical intervention in at-risk dementia & researching sleep and circadian rhythm 💤🕰️
Sharon Naismith @Prof_Naismith
2K Followers 1K Following Leonard P Ullmann (Picasso) Chair, Charles Perkins Centre; Director, Healthy Brain Ageing Program, Brain & Mind Centre; @cogsleep @istaart Sleep PIAHi everyone and welcome to #AlzChat 3pmEST/8pmUK Topic today: Talking about legacy in dementia #DemystifyingDeath week @LifeDeathGrief we'll chat about ways to be remembered, as well as handling digital legacies. Join with hashtag #AlzChat
Sharing your story is popular and valuable way of leaving a legacy: #AlzChat dementiauk.org/information-an…. It's important to be mindful that life stories belong to the person, so consider who will read these stories, and honour what person wants/ or would want.
#AlzChat here's another space for sharing stories digitally as part of leaving a legacy: alzheimers-brace.org/my-story/?gad_… #AlzChat
Having somewhere to share your story is important. Some people create a life book, with images, tickets, their values in scrapbook decorated pages as a keep sake. These have also been made with fabric pages, with photos printed onto fabric, which feel special. #AlzChat
Here's an example of where people sharing their stories and leaving a rich legacy for other families, about their experiences, ideas and tips. #AlzChat nidirect.gov.uk/articles/stori…
yes! so true.. gardens and pets can be a fabulous legacy! #AlzChat
We've been hearing about some of the unwanted legacies, such as unruly pets and heavy books. What kind of disappointing legacies have you ever encountered? #AlzChat
#AlzChat legacy includes intangible (but influential) aspects such as memories, values, ideas about the world, traditions... What would you want to be remembered for? Or how would you wish to be remembered?
@artsaging @ConcertsinCare @SchlegelVillage also legacy-in-the-making ❤️ #AlzChat
We're doing a Facebook live chat about Digital Legacies on Friday 10th May 2pm(UK) facebook.com/creativityinca… but posting a few points to consider here #AlzChat
#AlzChat Whilst we may wish to leave a legacy of money for our loved ones, many people are not in a position to do that. It's important to know that other forms of legacy: stories, favourite music playlists; shared wisdom; a handmade gift are often highly valued/priceless.
@bikerwise this came up @bikerwise from over a year ago... a little bit of his legacy. Wonderful #AlzChat take good care
Your digital legacy includes online accounts, photos, videos and anything in between stored online, in the cloud, on your phone or laptop... Have you considered what you would like to happen to these things? #AlzChat
@helenfindlay @PlutoPlaysUK This play matters @helenfindlay - I guess part of your family's legacy too. Important message/ learning #AlzChat
It is important to make plans for the online accounts that we use and all the personal photos, videos etc, so these assets are not lost. Here's @MartinSLewis youtu.be/0X5EQgW-FAg talking (fast) about digital legacy. #AlzChat
#AlzChat We will all leave a legacy without even trying. Lives we have touched, values we have passed on, moments we have shared.
It's a great start to list your digital assets... what social media are you using? do you use the cloud for storage? The @DigitalLegacyCo has a free downloadable social media form to get you started. Their website is full of useful tips #AlzChat
@bikerwise LOL .. yes.. it go either way! Several ppl have talked about the joy of growing plants from garden cuttings of loved ones. The pet stories seem to vary! One person was left the dog that had never liked her! #AlzChat
We'll be sharing more about digital legacy on Friday 10th (Facebook Live) at 2pm and will put a reminder here that morning. xx #AlzChat
so true.. legacy making can be more important for the relatives, friends, fans etc than for the people leaving the legacy. #AlzChat
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