ITP Support Assoc @ITPSupportAssoc
UK charity supporting sufferers of the auto immune bleeding disorder Immune Thrombocytopenia. Views expressed are those of individuals & not the ITP Supp Assoc itpsupport.org.uk The Platelet Mission, MK44 2EL Joined August 2011-
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💬 Curious about ITP? Here's our rapid-fire overview of ITP. It's just the basics, but there's much more to learn. Head to itpsupport.org.uk for detailed info, resources, and real patient stories. If you're ready to connect and advocate, join the ITP Support Association…
What's one thing you wish you knew when you were first diagnosed with ITP? 💜 A new diagnosis can be overwhelming and full of uncertainty. The ITP community is full of people who have been there. Today, we want to hear from you. What's one piece of advice or one thing you wish…
It's September 1st, and that means it's ITP Awareness Month! 💜 Throughout September, we'll be sharing stories, facts, and resources to shine a light on ITP - a rare autoimmune bleeding disorder. Our goal? To increase understanding, provide support, and empower those living…
📘 Support for Young Patients with ITP - Free Book Available ITP & Me is a free book written by teenagers, for teenagers navigating life with Immune Thrombocytopenia. It offers real stories, peer-led advice, and emotional support that helps young patients feel understood and…
This is a recording of Dr Andrew Morgan’s Session Two Virtual Patient Meeting covering ITP and Stress, this is the second of a series of three virtual meetings. #ITPAwareness youtu.be/ugkFNd8kJ-w?si…
💡Help Light Up Your Town for ITP Awareness! 💜 Every September, landmarks across the UK turn purple for Global ITP Awareness Week and you can help make it happen in your area. Know a local town hall, library, NHS building, or heritage site with exterior lighting? Reach out and…
What’s a normal platelet count, and why does it matter? For most people, it’s between 150–450. For those living with ITP, it can drop dramatically… sometimes without warning. 💬 Understanding your numbers helps you manage the condition and speak up for your needs. Learn more…
Whether you're a teen with ITP, a parent, or a teacher — this free book helps start the conversation that changes lives. ITP & Me is filled with real personal stories and advice from teenagers who know what it’s like to live with Immune Thrombocytopenia. It’s a fantastic…
👋 Meet Mervyn Morgan - Chief Executive Officer (UK & Ireland) Mervyn has been with the ITP Support Association since 2016 and became the CEO in 2018 on the retirement of the Charities founder Shirley Watson MBE. He works closely with specialists, patients, and volunteers to…
Emma Roger-Lund’s story is a powerful example of living with ITP from childhood through adulthood. 🎓 As the 2024 ITP Support Association Scholarship Winner, Emma shares how her experience shaped her perspective and commitment to raising awareness. 📍 Read her full journey on…
#LightUp4ITP – Let's Raise Awareness Together Each September, monuments, buildings, and landmarks across the UK and beyond light up purple to mark Global ITP Awareness Week — showing support with those affected by Immune Thrombocytopenia. 💡 We’re inviting local landmarks,…
💜 Become a Member – Support the ITP Community Whether you’re newly diagnosed, supporting a loved one, or simply want to help raise awareness - joining the ITP Support Association is a meaningful way to stay informed and connected. Annual Membership UK Members: £15 per year…
📘 ITP & Me is here - a heartfelt guide for teenagers and young adults living with Immune Thrombocytopenia. Packed with real-life experiences, practical advice, and honest reflections, this 48-page book helps young people navigate diagnosis, treatment, and everyday life with…
Are you a young person who has been diagnosed with ITP? Then this book is for YOU! ITP and Me - An ITP Book for Young Adults and Teenagers Filled with the real-life experiences of teenagers with ITP, you’ll find everything you need to know about the condition, along with lots…
Join us online on Tuesday 16th September 2025 at 7pm for the Scotland ITP Support Association Virtual Patient Meeting, an opportunity to connect with fellow patients, caregivers, and the advice of ITPSA Medical Advisor Dr Catherine Bagot , to learn more about living with ITP.…
In 2024, hundreds of locations around the world turned PURPLE during September to help raise awareness for those living with Immune Thrombocytopenia. This is the 10th year of our community celebrating Global ITP Awareness Week (22–28 September 2025) and as part of the…
We are pleased to be able to share the video recording of the first session of our ITP Support Association Annual Patient Convention which took place at the Bridgewater Hall in Manchester on Saturday May 10th. youtu.be/JYVCqPdJwrs This is a recording of the first session…
ITP Support Association Online Support Group The second of Dr Andrew Morgan's support group meetings via Zoom is taking place on 26th August at 6pm GMT. Dr Andrew Morgan will be talking to us about living with ITP and Stress. Anyone with any interest in ITP may join us but…
This is a recording of Dr Andrew Morgan’s Virtual Patient Meeting covering ITP and Stress, this is Session One in what will be a series of three virtual meetings. The interest in this meeting was outstanding with scores of people joining online. You can download a copy of Dr…
Teenagers and ITP Prof Nichola Cooper This is a presentation from our 2024 UK and Ireland ITP Support Association Annual Patient Convention which was held at the Cavendish Conference Centre in London. As we have just published our new ITP guide to teenagers and young adults we…
Dr Kate Khair PhD @katekhair
1K Followers 866 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
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Cambridge Rare Diseas... @camraredisease
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Jackie Rowe (Johnston... @jackiepaige14
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Michael Makris @ProfMakris
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EHC_Haemophilia @EHC_Haemophilia
3K Followers 409 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
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1K Followers 866 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Clive Smith @Clive_Smith_
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Haemophilia Society @HaemoSocUK
5K Followers 705 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
Rare Disease Day @rarediseaseday
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ASH @ASH_hematology
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Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee Chair. Wife & mum, artist, forever learning. Winner of Nursing Times Nurse of the Year Award 2024. Opinions are mine.
haemnet @haemnet
1K Followers 371 Following Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
European Hematology A... @EHA_Hematology
31K Followers 414 Following "Towards a cure for all blood disorders" | We promote excellence in patient care, research and education in hematology. #YoungEHA #HemaSphere #EHA2025
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548 Followers 739 Following Lover of sport, WFC, SACY, Edgware & Kingsbury FC, fun & family. UEFA coach. FA referee. Be positive; minds like parachutes only function when they're open!
Zack Pemberton-Whitel... @ZPWHITELEY
2K Followers 1K Following #PatientEngagement, #PatientAdvocacy, evidence, questions, perspective, gifs, collaboration & @PGtips. Views my own, repost ≠ endorsement
Cambridge Rare Diseas... @camraredisease
8K Followers 6K Following making #rarediseases an everyday conversation https://t.co/kZWskP9Ojj
David Ross @mensraredisease
726 Followers 840 Following MRDMH supports men’s mental health for those suffering with a rare disease. #raredisease #malementalhealth #mentalhealth #rarementalk #mrdcharity
Yoni - יוני (and ... @Primary_Immune
46K Followers 25K Following Proud Jew. Proud Israeli. הודו לה' כי טוב כי לעולם חסדו offline every Shabbat
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695 Followers 513 Following Lead Nurse for Haematology @ImperialNHS Loves: lemon drizzle cake, hugs from my daughter, Cornish rolling waves and summer time in London. Views my own.
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2K Followers 2K Following Londoner exiled in Berkshire, lover of books, music, history & quality threads. A Spur since 1967
EAHAD @EAHADnews
3K Followers 470 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Rpg @robingkpol
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Anita Brikman @AnitaBrikman
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PPTA @PlasmaProteins
999 Followers 336 Following Advocating, educating, & collaborating to bring lifesaving #plasma protein therapies to patients around the 🌎. @PPTAEurope #PlasmaDonorsSaveLives
PPTAEurope @PPTAEurope
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United Grand Lodge of... @UGLE_GrandLodge
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Warwickshire Masonic ... @WarksCharity
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123 Followers 92 Following Content Creator || Commissioned SO || Chaplain-in-Training || Follower of Jesus, the living Son of God Business Email: [email protected]
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120 Followers 472 Following #seniormanager, #lifesciences, #pharmaceutical #solutions, #recruiter #volumerecruitment #capex
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