#ImNotInvisible @ImNotInvisible5
#ImNotInvisible is a campaign to have deafblindness recognised as a unique disability in Ireland, per EU Written Declaration 2004/1. Please support us. facebook.com/ImNotInvisible… Ireland Joined September 2015-
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Really happy to receive this endorsement from a client this evening. #gratitude
@ImNotInvisible5 @ASCDeafblind 13,635 people ticked a&b. See E9041:Persons with a Disability 2011 to 2016 by Type of Disability, Disability Type and Census Year. Rgds, CSO
@ImNotInvisible5 @CSOIreland According to Census 2011, 1,749 people ticked both boxes . We are waiting on Census office to get back to us with figures from the 2016
Disability in numbers - what #census2016results tells us
Urgent plea from our @UsherChair: Keep the Coalition and our incredible #Ushersyndrome community alive usher-syndrome.org/our-story/blog…
.@ProQR in USHTalk @UsherCoalition de exon skipping methodiek van onderz. ErwinvanWijk @KNO_Radboudumc #exon13 …rsyndromecoalition.hosted.panopto.com/Panopto/Pages/…
The ASC is supporting DFI's Make Way Day Campaign...a fantastic campaign which you are sure to hear more about... fb.me/1hhxBPoRa
Its estimated 250 people in Ireland with #ushersyndrome. Without national register, we'll never know exact no. #imnotinvisible #USHEQX
Its estimated 250 people in Ireland with #ushersyndrome. Without national register, we'll never know exact no. #imnotinvisible #USHEQX
Did my mile in Chicago yesterday. #USHEQX
Today it was a 4 mile jog in San Francisco. #USHEQX
Luister zaterdag 16/9 om 9.30-10u naar @stubru tijdens #kickoff #MusicForLife. Ik stel ons goede doel @AnnaTimmeman voor #MFL17 #USHEQX
"Klimmen, op een hoogte van bijna 1000 meter boven een fjord Ja dat leek ons wel wat" #USHEQX #DeEersteKeer ushersyndroom.nl/usher-en-eerst… Blog 13
Day 16 #OwnTheEquinox #USHEQX #Positiveathon Never give up hope, never give up trying, never… instagram.com/p/BY_YYvEh2dZ/
Usher Fact: Usher is #1 genetic cause of deaf blindness affecting 25,000 in US. #takebackthelight2020 #usheqx usher2020.org
There's a global treasure hunt going on to find the cure for #UsherSyndrome. #usheqx #ushcure
Day 17 #OwnTheEquinox #USHEQX #Positiveathon Travel to meet other ushers is now a wonderful and… instagram.com/p/BY_kgWTnWjM/
Day 18 #OwnTheEquinox #USHEQX #Positiveathon Help is always nearby, thanks to the wonderful… instagram.com/p/BY_nMKXHR79/
Day 19 #OwnTheEquinox #USHEQX #Positiveathon Every moment matters, whatever your mood is or… instagram.com/p/BZAcBidB5wu/
Day 20 #OwnTheEquinox #USHEQX #Positiveathon #Educate is the way to reduce isolation. Spreading… instagram.com/p/BZAd0jqhYBC/
Tonight I got my mile in LA. #USHEQX

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