Long COVID Foundation @LongCFoundation
USA based 501(c)(3) non-profit focused on supporting those with Long COVID & others affected by the COVID Pandemic. longcfoundation.org Joined September 2023-
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That SARS-CoV-2 is now confirmed to infect megakaryocytes long-term (studied in Long Covid patients) should definitely alarm the public health authorities everywhere. Intent is not to doom tweet here. But we should tackle this like we did for HIV. You can replace HIV with…
We must use every tool available to address the #LongCOVID crisis. Grateful for the work @The_BMC is doing with their Long COVID Clinic & honored to host Dir. Simon of @HHSGov's Office of Long COVID Research & Practice. We'll never stop fighting for our #LongHaulers.
We must use every tool available to address the #LongCOVID crisis. Grateful for the work @The_BMC is doing with their Long COVID Clinic & honored to host Dir. Simon of @HHSGov's Office of Long COVID Research & Practice. We'll never stop fighting for our #LongHaulers.
Neuroinflammation in #LongCovid (12 LC, 43 controls) "increased PET signal ... including midcingulate cortex, corpus callosum, thalamus, basal ganglia/striatum, subfornical organ, anterior cingulate cortex, medial frontal gyrus, and precentral gyrus" doi.org/10.1016/j.bbi.…
SARS-CoV-2 Omicron BA.1 variant effectively infects healthy donor-derived colonoids (cultured colon cells used in experiments) 👉Infection of the colon by SARS-CoV-2 can contribute to #LongCovid 👉Different variants can affect the intestine differently mdpi.com/1999-4915/16/4…
#HIV funding is often looked at by some as one of the best comparators to #LongCOVID when trying to figure out appropriate funding. The Ryan White’s AIDS Drug Assistance Program provides HIV related meds & insurance coverage to people with HIV. $900 million a year. 🧵
Mitochondrial dysfunction in long COVID: mechanisms, consequences, and potential therapeutic approaches 🔥Very interesting study, bear with me with some extra patience, you might learn a lot! ➡️"Mitochondria, the cellular organelles known as the powerhouses of the cell, are…
This THE 🩸 transcriptomic viral load test we’ve been highlighting at LCAP & to the press since it came out - shouting for NIH to open access to its SARS2 transcriptomic viral load tests to people w/ Long Covid that’s in use behind closed doors #AntiviralsNow #ViralLoadTestsNow
This THE 🩸 transcriptomic viral load test we’ve been highlighting at LCAP & to the press since it came out - shouting for NIH to open access to its SARS2 transcriptomic viral load tests to people w/ Long Covid that’s in use behind closed doors #AntiviralsNow #ViralLoadTestsNow https://t.co/qgtsP1JNPU
What did we find? 1. viral RNAs were higher in #LongCovid: Nucleocapsid, ORF7a, ORF3a, Mpro (=Paxlovid target), and antisense ORF1ab RNA. Of note, presence of antisense RNA suggests ongoing viral replication 2. #SARSCoV2-related host RNAs ACE2/TMPRSS2, DPP4/FURIN also higher!
Vascular Alterations following COVID-19 Infection: A Comprehensive Literature Review 🔥Elegant overview article again underscoring that C19 is a VASCULAR DISEASE, why….read 👇and remember EVERY part of your body is blood vessel dependent, to live and survive! ➡️"COVID-19 has a…
#LongCovid is complex to diagnose and treat, so we need #biomarkers! 1. to confirm viral persistence, and 2. to map the failing/overactive immune response. So we tried to hit two birds with one stone using digital transcriptomics 👇👇 (1/n) thelancet.com/journals/lanmi…
“Patient Advocacy Groups Mixed On Sanders’ Long COVID Proposal” Thanks Jalen @itsJalenB. Keep up the great stories on #LongCOVID. We are happy to provide our opinions anytime. #pwLC #LC #NotRecovered #WeDeserveMore #PatientsFirst dlvr.it/T5ywRm
NEW: Sen. Bernie Sanders’ $10 billion long COVID research proposal received mixed reviews from patient-advocacy groups ahead of his April 23 comment deadline. But these recommendations could influence what Sanders includes in the final bill. My latest: dlvr.it/T5ywRm
Were there minimisers back during the early days of the AIDS crisis denying that HIV continued to replicate in the human body for years? Did they talk about it just being leftover fragments of viruses too?
Points we emphasized with the Senator Sanders proposed legislation for #LongCOVID in our letter to them: 1. We support the ideas in this bill, but … 2. Concerned about who has the control over advisory board, grants, & picking head of Long COVID Research. 🧵🧵🧵
Points we emphasized with the Senator Sanders proposed legislation for #LongCOVID in our letter to them: 1. We support the ideas in this bill, but … 2. Concerned about who has the control over advisory board, grants, & picking head of Long COVID Research. 🧵🧵🧵
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4K Followers 5K Following Collaborating to promote skilled communication and attention to values for safe and compassionate health care. Since 2011. #RelationshipCentred
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403 Followers 958 Following Global citizen..Long COVID survivor 3/2020/advocate...Humanitarian..Creative Designer.,Strategic Planning..,Vegan.. Science/Technology
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441 Followers 3K Following Eats shoots and leaves, not necessarily in that order || Filmmaker/DP/Videographer from Hong Kong || Appalled by our response to Covid-19 & climate change
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289 Followers 2K Following Food Supply Chain • Grower • Surfer • Songwriter • Twin Brother • Best friend • Thankful son • (he / his / him) • All opinions are my own • #BLM • #LongCOVID
Billy Hanlon @bhanlon15
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Jalen Brown @itsJalenB
6K Followers 5K Following Congressional Health Care Reporter @InHealthPolicy | Past: @BGOV, @CNN, @Forbes | @NABJ | ❝The people must know before they can act...❞ — Ida B. Wells
Rete Long Covid Press @ReteLongCovid
146 Followers 1K Following Benvenuti nella Rete Long Covid Italia 💙 https://t.co/T6NThQfoQL
Massimiliano @Snipperspace
734 Followers 3K Following 52y/man/Nurse and Osteopath/#MECFS (Long Mumps, The only one in the world) from 13/08/2021.🇮🇹 Italy
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29K Followers 941 Following Physician-Scientist | Studying Long Covid #LongCovid Profile: https://t.co/ywweQn5DHA…
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141 Followers 3 Following Castaways is a docuseries shedding light on Long COVID & the fallout from the COVID Pandemic 💚💜
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AMACOP 🇬🇧🇺�.. @covid_madrid_e
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Long Covid Commentary @LongCovidComms
3K Followers 4K Following Long covid patient who thinks the world needs more resources to solve and treat long covid and me/cfs #FBLC #pwLC #LongCovid #mecfs #pwME treat #PEM
Public Herald @PublicHerald
3K Followers 2K Following Award-winning investigative newsroom. @newsCOUP podcast. #RightsOfNature documentary INVISIBLE HAND w/ EP @MarkRuffalo available for streaming/screenings.That SARS-CoV-2 is now confirmed to infect megakaryocytes long-term (studied in Long Covid patients) should definitely alarm the public health authorities everywhere. Intent is not to doom tweet here. But we should tackle this like we did for HIV. You can replace HIV with…
Researchers can now request access to data from thousands of adult long COVID patients who participated in NIH RECOVER, via a centralized data access system that agency officials hope will fast-track breakthrough treatments. ICYMI: dlvr.it/T64Ggp
"Being able to use this data is a good thing for them, but if they don't have the money to do their research, it's not going to be a tremendous benefit," Devin Russell, founder of the Long COVID Foundation (@LongCFoundation), told IHP.
The gift that keeps on giving #longcovid
Learn about Long COVID from people who are informed bc they are living with the effects of #LongCovid x.com/i/spaces/1jmjg…
@CarDen1974 I've had #LongCovid for three and a half years. I didn't get over it and neither did 2 million other people in England and Scotland alone
Should this turn out to be chronic #longcovid, we may have to take it as a clue that incidence has been higher in the NHL than other US sports leagues.
Sheldon Keefe on Auston Matthews: "For whatever reason, it's not one of those run-of-the-mill everyday type of illnesses that sort of come and go. This one has lingered. The affects have lingered and gotten worse when he gets on the ice and is asserting himself."
@amibanerjee1 @dremmacbw Wonderful to catch up with you today Ami. Grateful for all your work on #LongCovid 🙏
I made the mistake of going on a longish walk today and now I’m absolutely exhausted 🥱 #longcovid
Anyone have chronic migraine and occipital neuralgia? Annoyingly, the occipital neuralgia symptoms first started 2 days after speaking to migraine Dr. I'm pretty sure that is what I'm experiencing as it's v painful. Any tips? 🤯 #LongCovid #MECFS #POTS #ChronicMigraine
#LongCovid has given me cerebral small vessel disease, reactive gliosis, endothelial damage, reduced cerebral vasomotor reactivity, & reduced cerebrovascular reserves (lack of blood flow in the brain). This is likely what the vessels in my brain look like. This does not end well.
I have been seeing the same. #COVID19 is a serious vascular disease.
#LongCOVID people, if you haven't already, try low-dose naltrexone. I'm currently on 1.5mgs and titrating up. It's not a magic pill -- I'm still not well -- but it has measurably improved my quality of life. It's the first medical good news I've had in a long long time.
ONS LONG COVID DATA: I’m still working through the raw data released yesterday by ONS revealing the prevalence of Long Covid in England & Scotland. Some interesting (& concerning) data points are emerging so I wanted to do a quick thread on what it reveals for CHILDREN… 🧵
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
Just two years ago, #LongCovid kept me from reading books.
We must use every tool available to address the #LongCOVID crisis. Grateful for the work @The_BMC is doing with their Long COVID Clinic & honored to host Dir. Simon of @HHSGov's Office of Long COVID Research & Practice. We'll never stop fighting for our #LongHaulers.
Proud to host @RepPressley & Dr. Ian Simon, Dir. of the Office of Long COVID Research & Practice at @HHSGov, for a roundtable discussion to learn about BMC’s Long COVID clinic, treatment & research, as well as to hear directly from patients and caregivers. bit.ly/3UfO4va
@RepPressley it means so much to see our nation’s leaders advocating for #LongCOVID. Truly thankful
We must use every tool available to address the #LongCOVID crisis. Grateful for the work @The_BMC is doing with their Long COVID Clinic & honored to host Dir. Simon of @HHSGov's Office of Long COVID Research & Practice. We'll never stop fighting for our #LongHaulers.
COVID flags are no longer flying, although families’ grief remains phillytrib.com/news/health/co… #MyLongCovidAdvocacy #LongCovid
Do yall ever get the longing to do like an injured animal and go hole up alone in a cave and let nature take its course? #longcovid
A Case of Trigeminal Neuralgia Treated With Combination of Antihistamine, Montelukast, and Corticosteroid Nasal Spray #MECFS #LongCovid ncbi.nlm.nih.gov/pmc/articles/P…
Maple Leafs centre Auston Matthews has been sidelined by a “lingering illness” that head coach Sheldon Keefe says gets worse when he asserts himself on the ice. toronto.citynews.ca/2024/04/28/mat…
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