MainEvent @MainEvent24
MAIN is a research and knowledge exchange network focused on mental health and wellbeing for people impacted by serious life-limiting illness. University of Edinburgh Joined December 2023-
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New: estimates of population-level palliative care need in the UK 2017-2021 bmcpalliatcare.biomedcentral.com/articles/10.11…
Next MAIN webinar: 24 Sept 2024 at 12.30-2pm BST Acceptance and Commitment Therapy (ACT) for people with Motor Neurone Disease With Prof Rebecca Gould (UCL) Funded by @MarieCurieEOLC All Welcome Register for free here: events.teams.microsoft.com/event/f78b5146…
Still time to register to join our webinar on Monday 17th June! With Prof Gary Rodin…
Still time to register to join our webinar on Monday 17th June! With Prof Gary Rodin…
Review finds that most psychological interventions for people receiving palliative care are effective in reducing negative emotions including depression, anxiety and distress; & can improve hope, meaning and dignity. shorturl.at/csizm Need for implementation studies next!
Next MAIN Webinar: 17.06.24 @ 1pm BST Managing Cancer and Living Meaningfully (CALM): A Psychotherapeutic Approach to Life-Threatening and Advanced Disease. With Prof. Gary Rodin (@gary_rodin). Funded by @MarieCurieEOLC All welcome. Register here: events.teams.microsoft.com/event/19427132…
@JonathanKoffman @SimonNoahEtkind @libby_sallnow @larapivodic @a_samuels_ planning exciting study exploring how #religion & #spirituality help people when faced with #uncertainty from long-term or life-threatening illness. Go to tiny.cc/rgu5yz to share views. Thanks!
Lancet editorial on the COMMEND trial: ACT improves quality of life in people with MND: thelancet.com/journals/lance… And the COMMEND trial paper itself: thelancet.com/journals/lance…
This Mental Health Awareness Week, we're reflecting on the mental health needs of people living with a terminal illness and those that support them in a new blog. Our researchers talk about different therapeutic approaches, and what support is needed: bit.ly/3UYI37R
BBC Breakfast this morning - forward to 1hr 35 - psychological support for people with MND - new research (only available for 24 hours) bbc.co.uk/iplayer/episod…
Our next @MainEvent24 webinar is on Family centred approaches to supporting wellbeing in advanced illness. With @LizForbat and Louise Allen, chaired by @LissetteAvilesR 14.05.24 at 12pm. Register here for free: events.teams.microsoft.com/event/0f2e9154… Pls RT!
This is such a great idea & central to whole person care for people with serious life-limiting illnesses @LeonieHerx @palliativeire @_IPMCA @annedohertypsy @IrishPsychiatry @HMChochinov @IraByock @mcgillwpc @kelleher_eric @stabrennan @Stanford_PC @CarolUHS @IASW_IRL 1/
This is such a great idea & central to whole person care for people with serious life-limiting illnesses @LeonieHerx @palliativeire @_IPMCA @annedohertypsy @IrishPsychiatry @HMChochinov @IraByock @mcgillwpc @kelleher_eric @stabrennan @Stanford_PC @CarolUHS @IASW_IRL 1/ https://t.co/h4fQE7nEkI
Join us for our next MAIN event "Family centered approaches to improving wellbeing in advanced illness and at end of life". With @LizForbat @LissetteAvilesR & Louise Allen. Tues 14th May at 12 noon (BST). All welcome! Hosted by @EdinUniHealth. Funded by @mariecurieuk.
Our next webinar:Family centred approaches to improving wellbeing in advanced illness and end of life will take place on 14 May. Register here for this free event: events.teams.microsoft.com/event/0f2e9154…
Do you use the term "loved ones" as a general term? Ever wondered what it means or how it might be understood? @KateWoodyBath and I did: endoflifestudies.academicblogs.co.uk/is-everyone-a-… Tl:dr Emphasising "love" misses the diversity of reasons people care for each other @EndofLifeStudy
@MainEvent24 webinar, 12.03.24, 12 noon GMT: "Mental health, the social determinants of dying and trauma-informed palliative care." With @DrNaomiRichards @DrEmmaCarduff @_RiniJones_ All welcome. Register for free here: events.teams.microsoft.com/event/7339c142… Funded by @MarieCurieEOLC
New paper on practitioners views of Acceptance & Commitment Therapy (ACT) for bereavement support. Led by @NikolausWilli & our excellent MSc students @EdinUniHealth. With funding from @MarieCurieEOLC
New paper on practitioners views of Acceptance & Commitment Therapy (ACT) for bereavement support. Led by @NikolausWilli & our excellent MSc students @EdinUniHealth. With funding from @MarieCurieEOLC
MAIN Webinar: Mental health, the social determinants of dying and trauma-informed palliative care. All welcome to our next free webinar (presentation, case studies & discussion). Tuesday 12th March @ 12 noon With @DrNaomiRichards. Register here: events.teams.microsoft.com/event/7339c142…
Yingna Li @YingnaLi_
7 Followers 20 Following PhD student in Clinical Psychology at the University of Edinburgh
Caitlin McShane @Caitlin_McS
40 Followers 183 Following PhD Student @QUBSONM in partnership with @NIPANC_ | PGCert & BSc Psychology @QUBPsych | Psycho-oncology | Parental Cancer | Supporting Children & Young People
Danny Penman @DrDannyPenman
103K Followers 2K Following Author of the bestsellers 'Mindfulness: Finding Peace in a Frantic World' & 'Deeper Mindfulness: The New Way to Rediscover Calm in a Chaotic World.'
Phyllis @singer38phyllis
286 Followers 3K Following
Julia Hackett @JuHackett
286 Followers 743 Following Senior Research Fellow at the Cicely Saunders Institute of Palliative Care, King’s College London | Paediatric & end-of-life care; grief and bereavement
Lesley Bull @Drlesleyfish
465 Followers 739 Following Reader, tea drinker, feminist, doctor. Medical director @comm_hospice caring for residents of Bexley & Greenwich. (Opinions my own, she/her)
Victoria Fisher @victoriaefisher
183 Followers 653 Following Research Associate at the Cicely Saunders Institute of Palliative Care, King’s College London
The Mental Elf @Mental_Elf
100K Followers 24K Following Follow me to keep up-to-date with reliable #MentalHealth research.
Lorna Fraser @lornafraser10
2K Followers 2K Following Professor of Palliative Care and Child Health at Kings College London
Dr Stephanie Yin @steph_therapy
25 Followers 64 Following Psychotherapist and Psychologist specialising in cancer and rare diseases
Rachel Foxwell @rfoxwell87
43 Followers 175 Following Clinical psychologist in Hull Neonatal Unit @hullNICU; passionate about supporting women's health
Sam Royston @sam_royston
2K Followers 1K Following Exec Director for Policy and Research at Marie Curie (@mariecurieuk). Formerly @childsocpol. Wrote 'Broken Benefits' https://t.co/Gmq5cCLRXU
Libby Ferguson @libbyferguson13
312 Followers 444 Following Palliative physician @MarieCurieSCO and @NHSGGC Views are my own
Anne Finucane @A_Finucane
2K Followers 993 Following Marie Curie Senior Research Fellow in Clinical Psychology at the University of Edinburgh. Palliative care, psychological interventions, implementation.
Kevin F McCarthy @kfinmccarthy
2K Followers 2K Following Migrating to t'other place. https://t.co/RxOYwYgh0A.
Celine O Connor @CelineOConnor12
1K Followers 2K Following Social worker. Views my own. Retweets not endorsements #NMMO https://t.co/jUstEGBaEH
Louise @LouShep
177 Followers 659 Following Clinical Psychologist supporting stroke survivors (@LivHospitals). I re-tweet things of interest. Views expressed are my own.
Leonie Herx @LeonieHerx
2K Followers 1K Following Palliative Medicine MD | Clinical Professor, University of Calgary | Director, Rotary Flames House, Children’s Hospice & Palliative Care Services | views my own
Sarah Brennan 🤱�... @stabrennan
1K Followers 3K Following GP, NUI Galway lecturer, breastfeeding advocate and researcher. Mindfulness teacher. Mother to 5 boys. Personal opinions.
Pola Grzybowska @PolaGrzybowska
782 Followers 2K Following Polish and northern. Palliative medicine consultant Bridgend 🏴. Thinking lots about health sustainability. Forever bereaved due to GBM4.
Dr Suja Somanadhan @sujas15
3K Followers 4K Following Associate Dean for Global Engagement | Associate Professor I Researcher| #UCD #FulbrightScholar |Paediatrics I PhD I RCN|#RareDiseases #RAIN Views are my own
Clinical & Pastoral S... @ClinicalPastor1
40 Followers 47 Following Professional supervision for safe and effective practice and wellbeing in healthcare and ministry.
Daniel Nuzum @danielnuzum
4K Followers 5K Following Husband,father, PhD-impact of stillbirth,lecturer UCC, Director Clinical Pastoral Education Cork University Hospital. Spiritual care. Palliative care Own views
Gemma Allen (she/her) @gemma_allen1
5K Followers 4K Following Director of Strategy, Innovation & Communications, Mary Stevens Hospice. Co-Founder, No Barriers Here. Independent consultant. Ally 🏳️⚧️🏳️🌈 BlueSky🦋
Hannah Linane @HannahLinane
403 Followers 331 Following Palliative Medicine Doctor. Fellowship in Adolescent and Young Adult Palliative Med, Children’s Health Ireland. Value compassion and kindness. Views are my own.
Miriam Ní Challarái... @Miriamcolleran2
2K Followers 3K Following Mom, Gaeilgeoir, palliative med. Pulmonary capillaritis. Narrative medicine. Tuairmí pearsanta, personal views, Ravenclaw, harper
Nat @nat_camp96
68 Followers 174 Following chronically over caffeinated. she/her 🏳️🌈 editor: @hysteriaABDN
Assisted Lab @AssistedLab
340 Followers 1K Following ERC project on #aesthetics #law & #ethics of assisted dying. Rather @assistedlab.bsky.social, newsletter coming soon
XinyiYang @XinyiYangPsy
12 Followers 54 Following the University of Edinburgh🏴PhD Candidate of Health in Social Science (mental health and public health)🖋️Original novels writer
Shivangi Talwar @talwar_shivangi
308 Followers 1K Following
Yuze Shi @shiyz_ClinPsy
25 Followers 138 Following Clin Psych PhD Candidate @EdinUniHealth | Researching Interpersonal Resilience Mechanisms thru contextual lens | CU Boulder '22 | My own views
Claire Arthur @ClaireArthur17
127 Followers 311 Following Senior Research Nurse, Supportive & Palliative Care. Passionate about ensuring access to research for all and that patients receive dignified palliative care.
Sue Mitchell @SueRFDMHaSS
31 Followers 19 Following
John MacArtney @johnmacartney
651 Followers 542 Following Marie Curie Associate Professor Sociologist of dying, palliative and end-of-life care, and bereavement. https://t.co/6HVncqIsc4
mhairi-jane ramage�... @mjosiris
183 Followers 175 Following specialist practitioner district nurse team leader - my views represent my own opinions and experiences.
Jakki Birtwistle @BirtwistleJakki
30 Followers 228 Following Research Fellow in Palliative Care || Psychologist ||
End of Life Studies @EndofLifeStudy
5K Followers 2K Following We are an interdisciplinary @UofGlasgow led network of academics, policy makers and practitioners researching end of life issues in Scotland & around the world
Anne Cullen @ladylovestorun
413 Followers 910 Following Registered Social Worker, PhD. Schwartz Round Mentor, Point of Care Foundation; MP's Caseworker; Opinions my own.
Lucy Selman @Lucy_Selman
6K Followers 5K Following Professor of Palliative & End-of-Life Care. Communication, ACP, bereavement, community. Founding Director @GoodGriefFest. she/her
Alex Fisher @alex_fisher1969
786 Followers 2K Following Tall, multi hair coloured Occupational Therapist in #Neuropsychiatry. Loves Abba, chocolate, cinema, Guinness, dancing. #Huntingtons Disease Module Lead @UOB
Marci Kay Livingston ... @MarciKayRN
207 Followers 585 Following She/Her Certified Hospice and Palliative Nurse. HRB-TMRN PhD Scholar at the University of Limerick. All opinions are my own.
Daisy McInnerney @daisymcinnerney
426 Followers 942 Following Research Psychologist / Public Health 📚Visiting Research Fellow at QMUL Wolfson Institute of Population Health ✊ Health equity (cancer + EOL focus @ work)
Dylan Harris @drdylanharris
66 Followers 260 Following
Philosophy of Grief a... @GriefYork
1K Followers 1K Following Investigating experiences of Grief and Loss at @UoYPhilosophy. Posting our own work, and things we find interesting.
Gemma Clarke @Dr_GClarke
524 Followers 1K Following Senior Research Fellow in Palliative Care, University of Leeds. Views my own.
Rachel Foxwell @rfoxwell87
43 Followers 175 Following Clinical psychologist in Hull Neonatal Unit @hullNICU; passionate about supporting women's health
Libby Ferguson @libbyferguson13
312 Followers 444 Following Palliative physician @MarieCurieSCO and @NHSGGC Views are my own
Kevin F McCarthy @kfinmccarthy
2K Followers 2K Following Migrating to t'other place. https://t.co/RxOYwYgh0A.
Leonie Herx @LeonieHerx
2K Followers 1K Following Palliative Medicine MD | Clinical Professor, University of Calgary | Director, Rotary Flames House, Children’s Hospice & Palliative Care Services | views my own
Pola Grzybowska @PolaGrzybowska
782 Followers 2K Following Polish and northern. Palliative medicine consultant Bridgend 🏴. Thinking lots about health sustainability. Forever bereaved due to GBM4.
Dr Suja Somanadhan @sujas15
3K Followers 4K Following Associate Dean for Global Engagement | Associate Professor I Researcher| #UCD #FulbrightScholar |Paediatrics I PhD I RCN|#RareDiseases #RAIN Views are my own
Daniel Nuzum @danielnuzum
4K Followers 5K Following Husband,father, PhD-impact of stillbirth,lecturer UCC, Director Clinical Pastoral Education Cork University Hospital. Spiritual care. Palliative care Own views
Gemma Allen (she/her) @gemma_allen1
5K Followers 4K Following Director of Strategy, Innovation & Communications, Mary Stevens Hospice. Co-Founder, No Barriers Here. Independent consultant. Ally 🏳️⚧️🏳️🌈 BlueSky🦋
Miriam Ní Challarái... @Miriamcolleran2
2K Followers 3K Following Mom, Gaeilgeoir, palliative med. Pulmonary capillaritis. Narrative medicine. Tuairmí pearsanta, personal views, Ravenclaw, harper
Nat @nat_camp96
68 Followers 174 Following chronically over caffeinated. she/her 🏳️🌈 editor: @hysteriaABDN
Yuze Shi @shiyz_ClinPsy
25 Followers 138 Following Clin Psych PhD Candidate @EdinUniHealth | Researching Interpersonal Resilience Mechanisms thru contextual lens | CU Boulder '22 | My own views
Sue Mitchell @SueRFDMHaSS
31 Followers 19 Following
Anne Cullen @ladylovestorun
413 Followers 910 Following Registered Social Worker, PhD. Schwartz Round Mentor, Point of Care Foundation; MP's Caseworker; Opinions my own.
Alex Fisher @alex_fisher1969
786 Followers 2K Following Tall, multi hair coloured Occupational Therapist in #Neuropsychiatry. Loves Abba, chocolate, cinema, Guinness, dancing. #Huntingtons Disease Module Lead @UOB
Marci Kay Livingston ... @MarciKayRN
207 Followers 585 Following She/Her Certified Hospice and Palliative Nurse. HRB-TMRN PhD Scholar at the University of Limerick. All opinions are my own.
Dylan Harris @drdylanharris
66 Followers 260 Following
Philosophy of Grief a... @GriefYork
1K Followers 1K Following Investigating experiences of Grief and Loss at @UoYPhilosophy. Posting our own work, and things we find interesting.
Daisy McInnerney @daisymcinnerney
426 Followers 942 Following Research Psychologist / Public Health 📚Visiting Research Fellow at QMUL Wolfson Institute of Population Health ✊ Health equity (cancer + EOL focus @ work)
Clare Gardiner @claregardiner8
762 Followers 332 Following Professor of Palliative Care at The University of Sheffield. Co-director of Mesothelioma UK Research Centre. Mum & wife. Climber & runner.
Kathryn Mannix @drkathrynmannix
39K Followers 1K Following Retired palliative care doctor. Writer: 'With the End in Mind', 'Listen.' Wants us to understanding dying more, fear it less, listen better. Rep: @DHAbooks
Gemma Clarke @Dr_GClarke
524 Followers 1K Following Senior Research Fellow in Palliative Care, University of Leeds. Views my own.
Dr Lissette Aviles�... @LissetteAvilesR
589 Followers 466 Following Nurse RN, MN, AFHEA, PhD, Lecturer @nursing_studies Critical care, OrganDonation, Emotions, Qualitative Research and Nursing Theory and Education
Cathryn Pinto 💙 @CathrynPinto
868 Followers 1K Following Researcher in emotional wellbeing for people with neurological diseases Mental health | Digital health| Health Psychology trainee | Views are my own.
kirsten morris @KirstenMorris2
157 Followers 591 Following lead clinical nurse educator for palliative care at LUFHT. All views are my own
Prof Mari Lloyd-Willi... @LloydwilliamsM
973 Followers 1K Following Professor & Hospice consultant Liverpool & Marie Curie Hospice / Live in N Wales ; Co-chair NCRI LWBC; Winston Churchill Fellow; Champion of the voiceless
Harvey Max Chochinov @HMChochinov
4K Followers 3K Following 35+ yrs research in palliative care. Created Dignity Therapy; Co-Ed. Handbook of Psychiatry in Palliative Medicine; Dignity in Care: The Human Side of Medicine
Dr. Lisa Graham-Wisen... @lgrahamwisener
1K Followers 2K Following Reader in Health Psychology @QUBPsych Psycho-oncology | Palliative & End of Life Care | Own views
Marie Curie EOLC @MarieCurieEOLC
7K Followers 4K Following News from @mariecurieuk for health professionals, researchers and those working in end of life care. Together we’ll ensure a better end of life for all.
Emma Chapman @DrEmmaChapman1
243 Followers 338 Following Senior Research Fellow in Palliative Care. University of Leeds. RESOLVE programme. Symptom management and patients with advanced disease. All views are my own.
Mental Health at the ... @EdinUniMentalH
3K Followers 1K Following #MentalHealth research @EdinburghUni & beyond. YouTube: https://t.co/epaQ4LnBXt Website: https://t.co/B2HHt95jM7 Email: [email protected]
@drcenz.bsky.social @DrCeNz
1K Followers 2K Following
Amy Dalrymple @amy_dalrymple
2K Followers 4K Following Associate Director Policy & Public Affairs @MarieCurieSco | Board @JRRT1904; @DSScotland & @CSPPScotland| my views not theirs! |(re)tweet ≠ like| Red: go @LFC
Tracey McConnell @DrTMcConnell
233 Followers 312 Following Senior Research Fellow @mariecurieuk @QUBelfast palliative care and heart failure
Kate M @katemaitland
711 Followers 3K Following Senior Nurse. Evidence-informed palliative & EoL practice. Proud to lead #NTAwards 2024- Clinical Research Nursing category winners 💛💛💛
Amara Nwosu - Palliat... @amaranwosu
2K Followers 461 Following Senior Clinical Lecturer #PalliativeCare @LancasterMedSch @IOELC Research lead @LiverpoolHosp. @PalliativeMedJ Churchill Fellow @ChurchillFship #hapc
Widow in Waiting @widow_waiting
28K Followers 737 Following Adjusting to life with my husband’s #TerminalCancer… Grappling with #AnticipatoryGrief, parenting 3 kids (12/4/baby), & preparing for loss
John MacArtney @johnmacartney
651 Followers 541 Following Marie Curie Associate Professor Sociologist of dying, palliative and end-of-life care, and bereavement. https://t.co/6HVncqIsc4
Mark Hazelwood (mostl... @Palliative_Scot
4K Followers 1K Following CEO of Scottish Partnership for Palliative Care (SPPC). Mostly posting on @palliativescot.bsky.social
Erica Borgstrom @EricaBorgstrom
3K Followers 2K Following Prof of Medical Anthropology: end of life care & death studies.Prev Ed @Mortality_TandF. @deathinageofco1 @formsofcare @openthanatology she/her
Amy Gadoud @agadoud
1K Followers 523 Following Senior Lecturer in Palliative Medicine @ioelc @LancasterUni and Community Consultant @BlackpoolHosp @trinity_hospice Views my own
Lisa Jane Brighton @Lisa_Brighton
1K Followers 1K Following Lecturer in Applied Health Research @CSI_KCL | psychology | respiratory | loneliness | palliative care | rehabilitation | complex interventions | She,Her
Lucy Coombes @DrLucyCoombes
385 Followers 311 Following PhD in palliative care (interest in PROM development in CYP palliative care) Nurse Consultant in Paed Pall Care @royalmarsdenNHS
JoElversonSOH @ElversonJo
1K Followers 1K Following Palliative Medicine Consultant @stoswaldsuk Passionate about palliative care for young adults and people with learning disabilities. Views are my own.
The Queen's Nursing I... @TheQNI
30K Followers 5K Following This account has been archived. Stay connected with us on our other social media channels.
Simon Noble @SimonNoble
4K Followers 1K Following Marie Curie Professor in Supportive and Palliative Medicine. Director Division of Population Medicine, Cardiff University.
EAPC VZW @EAPCvzw
10K Followers 1K Following The European Association for Palliative Care (EAPC) aims to promote palliative care and to act as a focus for all those involved in the field.
Noura Rizk @Nourarzk
124 Followers 355 Following Research Officer at @mariecurieuk | Pharmacist | @MPHonCampus Alumnus | Interested in hospice, palliative care and public health. All views are my own.
Nathan Davies @NathanDavies50
2K Followers 759 Following Professor in Ageing, Applied Health and Care Research, @QMULPsychiatry Research in Ageing, dementia, palliative care. Views my own.Trends for United States
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