Matt's Promise @MattsPromise
Dedicated to making a difference in the lives of young people affected by terminal illnesses. Funding for treatment, research, education, and support programs. mattspromise.org New York, NY Joined July 2013-
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Followers71
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Following77
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Likes21
#SavetheDate Our 12th Annual #BenefitConcert will be on 5/11/17 bit.ly/2ePe8rY
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Here's the link to the original story in @people - UPDATE on our IG! goo.gl/FYl1aZ #defeatduchenne #cureDMD
Matt's Promise retweeted
Sarepta, Summit Therapeutics enter licensing deal for Duchenne muscular dystrophy drugs - FWP firstwordpharma.com/node/1421870?t… via @fwpharma
Matt's Promise retweeted
#MissionMonday! Charley's Fund has directed $37 million+ to research since 2004. Great job fundraisers! Why do YOU fundraise for us?
Join the 2016 Race Against Time!
Join the 2016 Race Against Time!
A Letter form our President about this epic week! mattspromise.org/understanding-…
Matt's Promise retweeted
CureDuchenne Celebrates FDA Approval of First Drug for Duchenne Muscular Dystrophy Eteplirsen, Developed by... fb.me/4DZYFlMxv
Matt's Promise retweeted
BREAKING NEWS! @US_FDA grants Accelerated Approval for Sarepta's exon skipping drug Eteplirsen in the USA!
Matt's Promise retweeted
We celebrate w/the #DMD community as the FDA has granted accelerated approval of eteplirsen bit.ly/eteplirseninfo
Matt's Promise retweeted
Majorly HUGE historic moment!!! The FDA finally approved Eteplirsen. #sciencespeaks #racetoyes ow.ly/FBJu304lQ9B
Matt's Promise retweeted
Breaking News! @US_FDA approved Sarepta's exon skipping drug, Eteplirsen. Thx to everyone that made this happen. fda.gov/NewsEvents/New…
Matt's Promise retweeted
We are delighted to hear #eteplirsen has received the green light from the #FDA. More info to come! #duchenne #dmd #drugs #treatment
Matt's Promise retweeted
BREAKING NEWS: Approved! Safe + effective treatment for #DMD. Grateful to every Duchenne Community member!
Matt's Promise retweeted
#Sarepta's keenly watched muscle dystrophy drug (FINALLY) wins #FDA approval reut.rs/2cYv0QS via @Reuters #DMD $SRPT
ETEPLIRSON HAS BEEN APPROVED! facebook.com/RacetoYes/phot…
Congrats to this powerhouse mom! #DefeatDMD #Duchenne #TEDxBerkshires
Congrats to this powerhouse mom! #DefeatDMD #Duchenne #TEDxBerkshires
We love seeing this kind support and action for the cause! If you're running the marathon let us know!
We love seeing this kind support and action for the cause! If you're running the marathon let us know!
Matt's Promise retweeted
Congrats @Robburnett1 on your LA premiere! Watch The Fundmentals of Caring on Netflix starting tomorrow. youtu.be/DdehdPI3orQ
Matt's Promise retweeted
R/t to encourage @ChuckGrassley senior Senator for FDA oversight to read and act on FDA DNP failures for $SRPT seekingalpha.com/article/3995679
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