Maya Uccheddu - Lady Myasthenia / LadyM @MayaUcc
Freelance digital artist and pharmacist. living with Myasthenia Gravis. LadyM on Instagram - lady.myasthenia) support @womensbrainpro mayaucc.com Joined February 2012-
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Our paper on empowering people with lived experience in neurological research made it to the cover of Nature Reviews Neurology ❤️🥳🤩 @MayaUcc @RichelleFlan
I'm thrilled to share an inspiring interview I recently conducted with Tánia Keramydá a remarkable athlete representing Greece at the Paralympics. As someone who also lives with Myasthenia Gravis, this conversation was incredibly special to me #myastheniagravis #paralympics2024
I'm thrilled to share an inspiring interview I recently conducted with Tánia Keramydá a remarkable athlete representing Greece at the Paralympics. As someone who also lives with Myasthenia Gravis, this conversation was incredibly special to me #myastheniagravis #paralympics2024
It's wonderful to see the unity and diversity across Europe in raising awareness for myasthenia during June! Discover all the activities we carried out in our latest article. Read here: eumga.eu/post/highlight… #myastheniagravis #myasthenia #MGawareness
Excited to share that I was interviewed by Vanity Fair Italia! Check out the full article vanityfair.it/branded/articl… #VanityFair #Interview #myastheniagravis
June is Myasthenia Gravis Awareness Month. Let’s spread the word and support those affected by this rare autoimmune disease. #MGAwareness #MGAwarenessmonth #myastheniagravis #myasthenia
Thrilled to join the board of the European Myasthenia Gravis Association! Looking forward to making a difference alongside our dedicated team. 💙✨#myastheniagravis
Thrilled to join the board of the European Myasthenia Gravis Association! Looking forward to making a difference alongside our dedicated team. 💙✨#myastheniagravis
A quick update: THANK YOU 🙏 so much to all the people who donated so far- this is absolutely great, I am mind-blown by your generosity! But we are still far from the goal, so any additional help out there is highly appreciated. Please share! gofund.me/1c426141
Anche un piccolo contributo può aiutare 💜
Anche un piccolo contributo può aiutare 💜
In a very first in my life, I am launching a fundraiser to support a cause that is very dear to me - #dementia. I will be running the #Frauenlauf in Vienna in May and will need your help to reach my goal 🙏! more infos-> gofund.me/45726cc5 (1/x)
In the last few months, some scientific articles have really caught my attention. -maternal and neonatal outcomes in #Myastheniagravis - A guide for MG - For the first time since many years, a new symptomatic treatment for MG. 👉 mayaucc.com/post/catching-…
Neurosexism: could this app bridge the gender gap in Parkinson’s disease? femtechworld.co.uk/entrepreneur/p… #womenshealth #Parkinsons #Parkinsonsawarenessmonth #WomenEmpowerment #tech #womenintech #womeninbusiness @MyMovesMatter
Having a rare disease can feel overwhelming, especially if you have a rare form of a rare disease. Join our seronegative #myastheniagravis support group. Find others who get it. Register here: ow.ly/54G450R5XFi
We take facial expression for granted. Without realising it one of my #parkinsons symptoms was possibly #facialmasking as my son remarked the year in which I was diagnosed that “I didn’t smile as much as I used too”. I never noticed. Now I put an extra effort in when I smile 😀
We take facial expression for granted. Without realising it one of my #parkinsons symptoms was possibly #facialmasking as my son remarked the year in which I was diagnosed that “I didn’t smile as much as I used too”. I never noticed. Now I put an extra effort in when I smile 😀
Let's come together to make a difference for MG 👉🏻 Sign the petition now! change.org/p/improve-qual… Let's make a difference together! #AllUnitedForMG #MGCommunity #MyastheniaGravis #MGpetition #MGCallforAction @AllUnitedforMG
for #IWD I guess this is a good message to send out there. In science, but also in life in general- girls you are good enough, GO FOR IT, the world needs you
for #IWD I guess this is a good message to send out there. In science, but also in life in general- girls you are good enough, GO FOR IT, the world needs you
Join me tomorrow 16:00 CET 9-10am CST Register here 👇
Lots of scientists are amazing artists. But this thread isn't about them. It's about the rest of us, who are just trying to get through our methods figure so we can get back to showing you graphs. First, a rat made entirely out of ovals: (Morales-Botello et al., 2012) (1/x)
We are pleased to share information about the XVII National Congress of #Myasthenia Gravis , organized by the Spanish association AMES. Register here: congresomiastenia.com The congress is open and free for anyone who wishes to attend in person or online.
I’ve just voted for My Moves Matters - Create your profile - select the category “Health and education “ You do not invest real money, it's a virtual system. -vote for my Moves Matter If you care for women With Parkinson disease, vote
I’ve just voted for My Moves Matters - Create your profile - select the category “Health and education “ You do not invest real money, it's a virtual system. -vote for my Moves Matter If you care for women With Parkinson disease, vote
#ENMC Workshop 'Seronegative #Myasthenia Gravis: An update paradigm for diagnosis and management' in Hoofddorp. I'm so grateful to have been invited as a patient representative, and it's a great opportunity as a patient to have access to these events.
#ENMC Workshop 'Seronegative #Myasthenia Gravis: An update paradigm for diagnosis and management' in Hoofddorp. I'm so grateful to have been invited as a patient representative, and it's a great opportunity as a patient to have access to these events.
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EuMGA @EuropeanMGA
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32K Followers 1K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
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