NASS @NASSexercise
We are the National Axial Spondyloarthritis Society (NASS). We transform the diagnosis and care of axial SpA. Twitter monitored 1000-1600, Monday to Friday. linktr.ee/nass_exercise London Joined June 2011-
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Day 8 of #NASS #axialSpA awareness challenge How do I manage? 1. Heat therapy as often as needed 2. Little sit down stretches if being mobile is not an option 3. Ask for help if I can't do something. I am not a superhero! #ankylosingspondylitis #axialSpAlife @NASSexercise
Day 8 of #NASS #axialSpA awareness challenge How do I manage? 1. Heat therapy as often as needed 2. Little sit down stretches if being mobile is not an option 3. Ask for help if I can't do something. I am not a superhero! #ankylosingspondylitis #axialSpAlife @NASSexercise https://t.co/HU65KMB8bD
Day 8 @NASSexercise social media challenge My #AnkylosingSpondylitis top tips 3. Be mobile Honestly it keeps away the stiffness pain 2. Spoon theory How much energy things cost, and how much you have 1. Get a good mattress Changed my life, worth the investment #AxialSpALife
Day 8 @NASSexercise social media challenge My #AnkylosingSpondylitis top tips 3. Be mobile Honestly it keeps away the stiffness pain 2. Spoon theory How much energy things cost, and how much you have 1. Get a good mattress Changed my life, worth the investment #AxialSpALife https://t.co/0Uy6KxWZIg
Day 8 of raising awareness of AxialSpA. Things that help me manage Axial SpA symptoms: keeping as mobile as possible, getting enough rest, and taking recommended medication to reduce pain. #AxialSpALife #AnkylosingSpondylitis
@NASSexercise My #AxialSpALife never plays by the rules. Here is week 1 in a thread since I was covering the #SpondySummit last week. 1. I'm Carrie. I'm a Canadian patient living w. #AxialSpA and #PsA in Taiwan. 2. My symptoms started young, but I didn't realize what they were.
Day 8 of the @NASSexercise #axialSpALife social media challenge is 'top three tips: what top three things help you manage your #axialSpA symptoms?' Here are the top three things that help my #AnkylosingSpondylitis
Thank you to @sippedcoffee, who have decided to donate 5% of their profits to #NASS! Sip on your favourite drink while helping to provide support to people living with #axialSpA: sippedcoffee.co.uk #axialspondyloarthritis #AnkylosingSpondylitis #AS #coffee #donate
Stunning weather for a lunchtime #WYASO walk, but black jeans were not a #PoTS-friendly choice 🥵🤣 #WalkYourASOff
#AStretch and slowly mobilise in the morning, especially if you have young kids to get up, get up early, before them #Keepmoving #Love2Swim cold swim and lastly to pace myself and listen to my body. #AS #WYASO nass-walk-your-as-off.raiselysite.com/orang-eya-glad…
I feel any #autoimmune condition requires a #holistic #selfmanagement approach, it was hard for me to pick my top 3, here you go x #ankylosing #Spondylitis #AxialSpALife @NASSexercise @VersusArthritis
How have we completed week one already?! 😱 I’m loving the posts from everyone, thank you so much for sharing so candidly. I hope you’re enjoying it so far and it’s not too tough (emotionally and energy-wise). It’s so nice meeting other people who can relate 🧡
How have we completed week one already?! 😱 I’m loving the posts from everyone, thank you so much for sharing so candidly. I hope you’re enjoying it so far and it’s not too tough (emotionally and energy-wise). It’s so nice meeting other people who can relate 🧡
My symptoms now are not so good. My diagnosis came very late, as I was in the middle of developing severe walking problems after decades of pain,exhaustion,bowel ,eye ,skin problems. biologic failing after 9 months, using wheelchair due to pain. @NASSexercise #myAxialSpaLife
So as ever, I missed this last week as I wasn’t at my best due to AxSpa but seeing as it’s the last day, I’ll play catch up #myAxialSpaLife @NASSexercise
Missed Day 7 yesterday: #NASS social media challenge raising #axialSpA awareness Symptoms - it started as hip pain, 30 yrs on, despite best possible medication lower spine and neck also hurt a lot now. Fatigue is much worse. #ankylosingspondylitis #axialSpAlife @NASSexercise
There is only one week left to sign up to the #GreatWestRun or the #GreatManchesterRun (both taking place on 26 May 2024) to help raise vital funds for people living with #axialSpA. Sign up now and make an impact while taking on a challenge: runforcharity.com/national-axial…
Day 7 @NASSexercise social media challenge My #AnkylosingSpondylitis symptoms today; Chronic pain and fatigue. Constant dull ache in hands and knees, that can intensify if I over do things. Lower back always hurts, specially if I sit, stand or lie down for to long #AxialSpALife
Day 7 @NASSexercise social media challenge My #AnkylosingSpondylitis symptoms today; Chronic pain and fatigue. Constant dull ache in hands and knees, that can intensify if I over do things. Lower back always hurts, specially if I sit, stand or lie down for to long #AxialSpALife
🧡#axialspa is not a #male condition 👉🏼Male:female ratio of #axialspondyloarthritis is 1:1 @NASSexercise 👉🏼There are other factors that differ as well Check out the post here 👇 #axialspa #axialspondyloarthritisawareness sciencedirect.com/science/articl…
And lastly before the end of the bank holiday weekend for #WorldASDay2024 we have Suzi one of our committee and volunteers giving her advice on exercise, even when away from home! #axialSpA #ankylosingspondylitis #exerciseworks #physiotherapy
Had a pit stop while getting some steps in for #WalkYourASOff today. A good little motivator with my sore hip and SIJs #WYASO #NASSOrangeApples @NASSexercise @Gillianeames #axialSpA
Day 7 #AxialSpALife My #ankylosing #spondylitis symptoms today; Chronic pain and fatigue is crushing, but also raising 4 young kids 🤯Burning pain in neck and shoulders. Crunchy acute pain in SIJ and dull ache in dysplastic hips. Neuropathy in hands. nass-walk-your-as-off.raiselysite.com/orang-eya-glad…
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Chloë Pilbeam/Kirk @CPilbeamKirkPT
282 Followers 475 Following Physiotherapist, Accredited HT, Clinical Specialist Rheumatology & BAHT ESC. Passions: quality healthcare & Girlguiding adventures. Mum of 3🐾👣👣 Own opinions.
Laura Cockram 💙�.. @Lozzaram
1K Followers 1K Following Head of campaigns at Parkinson's UK. I ❤️ movies, TV, travelling, meeting people, silent discos, dancing, driving & giggling. Views expressed my own.Day 8 of raising awareness of AxialSpA. Things that help me manage Axial SpA symptoms: keeping as mobile as possible, getting enough rest, and taking recommended medication to reduce pain. #AxialSpALife #AnkylosingSpondylitis
@NASSexercise It's my pleasure! Better late than never and I love fun challenges. I will do week two tomorrow as it's far past my bedtime now. Take care of yourself and great job! ~Carrie
@NASSexercise My #AxialSpALife never plays by the rules. Here is week 1 in a thread since I was covering the #SpondySummit last week. 1. I'm Carrie. I'm a Canadian patient living w. #AxialSpA and #PsA in Taiwan. 2. My symptoms started young, but I didn't realize what they were.
@ZoeClarkOsteo @NASSexercise Tens machine Rest Laughter 🤛
I feel any #autoimmune condition requires a #holistic #selfmanagement approach, it was hard for me to pick my top 3, here you go x #ankylosing #Spondylitis #AxialSpALife @NASSexercise @VersusArthritis
@lizzie55119920 @NASSexercise Thank you Lizzie . I'm hoping they can find an alternative to ease the inflammatory pain. I have a feeling the walking pain is just damage and I'm stuck with it. Being positive and getting out and used to the wheelchair though !
My symptoms now are not so good. My diagnosis came very late, as I was in the middle of developing severe walking problems after decades of pain,exhaustion,bowel ,eye ,skin problems. biologic failing after 9 months, using wheelchair due to pain. @NASSexercise #myAxialSpaLife
@gurdeep_dulay @My_AS_Journey @globetrotteri @joelvsarthritis @ZoeClarkOsteo @Jill_marie81 @ClareClark78 @CymruVArthritis @NASSexercise @danni_welsh @NASSchiefexec Thanks Gurdeep. It’s a classic story unfortunately, much more to do 💪
@LleuWilliams @My_AS_Journey @globetrotteri @joelvsarthritis @ZoeClarkOsteo @Jill_marie81 @ClareClark78 @CymruVArthritis @NASSexercise @danni_welsh @NASSchiefexec Thanks for kindly taking time to document your journey with #AxSpA #MyAxialSpALife
Please follow these amazing advocates: @gurdeep_dulay @My_AS_Journey @globetrotteri @joelvsarthritis @ZoeClarkOsteo @Jill_marie81 @ClareClark78 @CymruVArthritis @NASSexercise @danni_welsh @NASSchiefexec
@AHappierSarah @NASSexercise Thanks! When I eventually move I'll contact NASS (I'm a member) then I'll find out how to change rheumatology consultants if it's not too stressful.
So as ever, I missed this last week as I wasn’t at my best due to AxSpa but seeing as it’s the last day, I’ll play catch up #myAxialSpaLife @NASSexercise
Missed Day 7 yesterday: #NASS social media challenge raising #axialSpA awareness Symptoms - it started as hip pain, 30 yrs on, despite best possible medication lower spine and neck also hurt a lot now. Fatigue is much worse. #ankylosingspondylitis #axialSpAlife @NASSexercise
@NASSexercise @AHappierSarah OK many thanks, much appreciated!
@Lucy65779856 @NASSexercise So sorry to hear this, it took me many trips to rheumatology and over 30 years until i got a diagnosed, keep reaching out to your health care team, you can contact PALS, and your MP, I Hope you get the correct support.
Day 7 @NASSexercise social media challenge My #AnkylosingSpondylitis symptoms today; Chronic pain and fatigue. Constant dull ache in hands and knees, that can intensify if I over do things. Lower back always hurts, specially if I sit, stand or lie down for to long #AxialSpALife
Day 6 @NASSexercise social media challenge If I could go back in time to when I was first diagnosed I would tell myself to keep mobile, not moving to avoid pain makes moving more painful. And that I'm not alone Also spoons, they're so good #AxialSpALife #AnkylosingSpondylitis
🧡#axialspa is not a #male condition 👉🏼Male:female ratio of #axialspondyloarthritis is 1:1 @NASSexercise 👉🏼There are other factors that differ as well Check out the post here 👇 #axialspa #axialspondyloarthritisawareness sciencedirect.com/science/articl…
Day 7 #AxialSpALife My #ankylosing #spondylitis symptoms today; Chronic pain and fatigue is crushing, but also raising 4 young kids 🤯Burning pain in neck and shoulders. Crunchy acute pain in SIJ and dull ache in dysplastic hips. Neuropathy in hands. nass-walk-your-as-off.raiselysite.com/orang-eya-glad…
Any autoimmune condition is unpredictable, and varies daily. Just sharing my symptoms today. #AxialSpALife #ankylosing #Spondylitis #backpain @NASSexercise @VersusArthritis
Day 6 @NASSexercise social media challenge If I could go back in time to when I was first diagnosed I would tell myself to keep mobile, not moving to avoid pain makes moving more painful. And that I'm not alone Also spoons, they're so good #AxialSpALife #AnkylosingSpondylitis
Day 5 @NASSexercise challenge is all about self care, so take this as your reminder It's okay to take time for yourself Recharge those batteries Refill those spoons Do something you enjoy, that takes your mind from the pain. What do I do? I play Minecraft 😁 #axialSpAlife
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