National Down Syndrome Policy Group @NDSPolicyGroup
The NDSPG supports people with DS to have a say in the formation of policy in matters that impact their lives. We provide the secretariat for @APPGDS ndspg.org Joined March 2021-
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Rula is a member of our Advisory Group, she would like to share her thoughts on @LiamFox amendment to the #CriminalJusticeBill, in her own words: #EqualityAt24 #NC41
Postal votes done! I have never missed the opportunity to vote since I was 18! Don’t miss your opportunity to this privilege. #Democracy #righttovote #haveyoursay #inclusion #emmelinepankhurst #LocalElections2024 @DSAInfo @Wountchangea1 @NDSPolicyGroup
📣 Chris Nikic officially first person with Down’s syndrome to run all major marathons. “how is it that, in 2024, a person with an intellectual impairment is being viewed as less than human? Why can't they even be included as a category? Chris father guinnessworldrecords.com/news/2024/4/ch…
.@BBCAccessAll spoke to Mencap's Dan Scorer and Sarah, a mum whose daughter is being inappropriately detained right now, about the government’s failure to reduce the number of people with a learning disability and autistic people in mental health hospitals. 🎧 Listen now.
.@BBCAccessAll spoke to Mencap's Dan Scorer and Sarah, a mum whose daughter is being inappropriately detained right now, about the government’s failure to reduce the number of people with a learning disability and autistic people in mental health hospitals. 🎧 Listen now.
We will soon be launching our report from 'Shape Research, Change Lives: setting priorities in genetic syndrome research'. surrey.ac.uk/research-proje… We were delighted to meet with @rachaelross21 and @kenross2011 last week to discuss how our work connects with the @NDSPolicyGroup.
What a fabulous evening, enjoy every minute!
What a fabulous evening, enjoy every minute!
Congratulations to @kenross2011 upon receiving his OBE today. Ken works tirelessly with @PortsmouthDSA and @NDSPolicyGroup putting words into action and making inclusion for people with Down syndrome a priority wherever he goes. We’re glad you and your family enjoyed your day! 🍾
Congratulations to @kenross2011 upon receiving his OBE today. Ken works tirelessly with @PortsmouthDSA and @NDSPolicyGroup putting words into action and making inclusion for people with Down syndrome a priority wherever he goes. We’re glad you and your family enjoyed your day! 🍾
Thanks to @LiamFox for clarifying his amendment to the Criminal Justice Bill clause to make it even more explicit about the intention. As stated before, this clause is to value people with Down syndrome equally at all times. bills.parliament.uk/bills/3511/sta…
“Showing the world what’s possible, one step at a time.” #Lloyd you are inspiring in so many ways, we hope you are taking it easy this week as you celebrate your wondrous achievement.
“Showing the world what’s possible, one step at a time.” #Lloyd you are inspiring in so many ways, we hope you are taking it easy this week as you celebrate your wondrous achievement.
Make a difference today, please sign @mencap_charity petition. Details below ⬇️ secure.mencap.org.uk/WasteOfLives?u…
Make a difference today, please sign @mencap_charity petition. Details below ⬇️ secure.mencap.org.uk/WasteOfLives?u…
#Oliverscampaign Very well said Millie
#Oliverscampaign Very well said Millie
Millie, a woman with #DownSyndrome makes a strong case in her support for the suggested #NC34 amendment to the Criminal Justice Bill by @LiamFox MP #NC34 to bring #EqualityAt24 to babies with the condition. Write to your MP here 👉🏼 bit.ly/EqualityAt24
Urge your MP to back @LiamFox amendment & cast a vote for equality! People with #DownSyndrome must benefit from the same rights as the vast majority of the population. It’s time to correct 34 years of discrimination. @NDSPolicyGroup #EqualityAt24 Thanks to all who already have!
Urge your MP to back @LiamFox amendment & cast a vote for equality! People with #DownSyndrome must benefit from the same rights as the vast majority of the population. It’s time to correct 34 years of discrimination. @NDSPolicyGroup #EqualityAt24 Thanks to all who already have!
Born together, grow together, but protected differently before birth. This isn't the equality we’ve come to expect. Write to your MP to ask them to support and vote for @LiamFox’s amendment #NC34 to ensure #EqualityAt24 bit.ly/EqualityAt24
Heidi is my hero. 24 weeks is fair for everyone. Currently it is legal to terminate a pregnancy of a baby who has Down’s syndrome up to the day of birth. I believe this has to be changed. Disability discrimination should be challenged. #Equalityat24
Heidi is my hero. 24 weeks is fair for everyone. Currently it is legal to terminate a pregnancy of a baby who has Down’s syndrome up to the day of birth. I believe this has to be changed. Disability discrimination should be challenged. #Equalityat24
It’s all about equality #EqualityAt24
It’s all about equality #EqualityAt24
@ElliotColburn Thank you for having discussions with @LiamFox about #NC34 #EqualityAt24
@ElliotColburn Thank you for having discussions with @LiamFox about #NC34 #EqualityAt24
Heidi Crowter-Living .. @HeidiCrowter95
9K Followers 4K Following Law allows abortion to 24 wks- unless u have DS its BIRTH! Tweets by Heidi & her team! https://t.co/k9GxCCYLBz…#wouldntchangeathing @Wouldntchangea1
8K Followers 2K Following Making negative perceptions of Down Syndrome a thing of the past.Down's Syndrome Assoc.. @DSAInfo
22K Followers 3K Following Supporting people who have Down's syndrome to live full and rewarding lives.Don't Screen Us Out @dontscreenusout
5K Followers 4K Following Creating a world where people with Down’s syndrome are equally valued and have an equal chance of being born.Ciara Lawrence @ciarale01
13K Followers 5K Following I Work @Mencap_charity - This is My Work Account Only. Disclaimer - All of My Views are All My Own & don't represent any organisations I work for.Sally Phillips @sallyephillips
85K Followers 4K Following Official account of actor Sally Phillips. Enthusiastic about Finland, seriously over having a serious side.Tommy Jessop @tommyjessop
28K Followers 634 Following Award-winning actor, writer and activist: Line of Duty, Hamlet, A Life Worth Living. Football fan. #TommyJessopGoesToHollywoodManni Coe @ManniCoeWrites
2K Followers 948 Following Author ✍️ & Private Guide in Spain. “brother. do. you. love. me. " SUNDAY TIME BESTSELLERPortsmouth Down Syndr.. @PortsmouthDSA
3K Followers 1K Following Rachael Ross MBE – Chair & Fundraising Dir. Providing friendship, support and educational services to children with Down syndrome and their familiesDan White : Disabilit.. @Danwhite1972
30K Followers 11K Following Disability & care campaigns / children’s author / DAD ❤️/ CARER / art & words / Ambassador / neurodivergent / Agent: [email protected] / VIEWS OWNPaula McGowan OBE. @PaulaMc007
41K Followers 12K Following •Hon Fellow Fac Health @PlymUni •The Oliver McGowan Mandatory Training •You have gone too far not to go further You have done too much not to do more •AutisticDown Syndrome UK | Po.. @PositiveaboutDS
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574 Followers 351 Following Lets celebrate everything precious about people with Down Syndrome. Celebrate their talents, achievemnets & everything they have to offer this world.Jannah & Musa @JannahHayah
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109 Followers 601 Following once addicted to hokey cokey. But ive turned myself around and that's what its all about.sri 💀 @SrikantSwamy
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13 Followers 61 FollowingDr Andrew Woodhead (A.. @WoodheadAndy
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20 Followers 136 FollowingElizabeth @ElizabethS123m
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251 Followers 1K Following Part of BBC Writersroom group & WFTV scheme . Acting agent: ECN Talent Literary Agent: Gary Wild JFL AgencyHeidi Crowter-Living .. @HeidiCrowter95
9K Followers 4K Following Law allows abortion to 24 wks- unless u have DS its BIRTH! Tweets by Heidi & her team! https://t.co/k9GxCCYLBz…#wouldntchangeathing @Wouldntchangea1
8K Followers 2K Following Making negative perceptions of Down Syndrome a thing of the past.Don't Screen Us Out @dontscreenusout
5K Followers 4K Following Creating a world where people with Down’s syndrome are equally valued and have an equal chance of being born.Ciara Lawrence @ciarale01
13K Followers 5K Following I Work @Mencap_charity - This is My Work Account Only. Disclaimer - All of My Views are All My Own & don't represent any organisations I work for.Sally Phillips @sallyephillips
85K Followers 4K Following Official account of actor Sally Phillips. Enthusiastic about Finland, seriously over having a serious side.Tommy Jessop @tommyjessop
28K Followers 634 Following Award-winning actor, writer and activist: Line of Duty, Hamlet, A Life Worth Living. Football fan. #TommyJessopGoesToHollywoodManni Coe @ManniCoeWrites
2K Followers 948 Following Author ✍️ & Private Guide in Spain. “brother. do. you. love. me. " SUNDAY TIME BESTSELLERPortsmouth Down Syndr.. @PortsmouthDSA
3K Followers 1K Following Rachael Ross MBE – Chair & Fundraising Dir. Providing friendship, support and educational services to children with Down syndrome and their familiesDan White : Disabilit.. @Danwhite1972
30K Followers 11K Following Disability & care campaigns / children’s author / DAD ❤️/ CARER / art & words / Ambassador / neurodivergent / Agent: [email protected] / VIEWS OWNPaula McGowan OBE. @PaulaMc007
41K Followers 12K Following •Hon Fellow Fac Health @PlymUni •The Oliver McGowan Mandatory Training •You have gone too far not to go further You have done too much not to do more •AutisticDown Syndrome UK | Po.. @PositiveaboutDS
6K Followers 2K Following UK charity. Empowering people who have Down syndrome and their families, health & maternity professionals and educational settings.Richard Baker @RichardBaker15
805 Followers 1K Following Parent to a Toddler and Twins (one with a little extra chromosome), Baggies Fan, Accountant, Amateur Beer and Food ExpertJannah & Musa @JannahHayah
2K Followers 2K Following Mum to Musa who happens to have Down syndrome. Come have a look what it’s like to live with Down syndrome, hearing loss & a feeding tube. Disability AmbassadorGlobal Down Syndrome .. @GDSFoundation
22K Followers 7K Following GLOBAL is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome.Liz Crowter @LizCrowterDSmum
2K Followers 2K Following working with @heidicrowter95 to get #equality24. equality in the womb for babies with down syndromekaty_dss @KLironi
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8K Followers 194 Following "I have Downs Syndrome but that's not all that I am. I am a woman and an actor first" Drama Agents - Conway Van Gelder, Commercial Agents - Visable People :)Stephen McGann @StephenMcGann
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10K Followers 5K Following Solicitor . Conservatives. Former London East Area Chairman. Mayor of Newham candidate 2022. MEP candidate 2019. Leaving the #EU was only the beginning #Brexit.Bridget Smith @_smith_bridget
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5 Followers 24 FollowingAlison Davies-Bell @alisonjohn
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792 Followers 381 Following Enjoying every little moment of happiness in my life. Always interested in learning. Mother, Academic, Researcher, Engineer 🇪🇸 🇬🇧Dr Melanie J Hodgkins.. @MelanieJHodgki1
390 Followers 824 Following Clinical Psychologist: Doctorate in Clinical Psychology, Southampton University. Director of Admissions & Experts by Experience. Intellectual Disabilities Lead.Somos Familia🇬🇶 @Malabo240
2K Followers 654 FollowingA Year of Reasons to .. @VisitMoorlands
44 Followers 59 Following Showcasing a year’s worth of reasons to visit the Staffordshire Moorlands 🫖🐄⛺️🌳🍺 Account run by the Office of the Rt Hon Karen Bradley MPLord (David) Alton @DavidAltonHL
39K Followers 975 Following Former Liverpool MP Crossbench Peer. Member Joint HOL/HOC @HumanRightsCtte Campaigning on #HumanRights, #Genocide, #SocialJustice,#FoRB, #RightToLife. 🇺🇦 🇹🇼NHS England @NHSEngland
531K Followers 2K Following We lead and support the NHS in England to deliver improved care for patients.RT Hon Ian Paisley MP.. @ianpaisleyuk
2K Followers 247 Following Freeman, Freedom of Ballymena. Council dinner organiser. Human rights lobbyist. Elected by the people of North Antrim with 90.6% of the vote. Parody. 🇬🇧Lee Anderson MP @LeeAndersonMP_
149K Followers 569 Following Proud Reform UK MP for Ashfield. Promoted by Lee Anderson of 83 Victoria Street, London, SW1 0HWDavid Duguid MP @david_duguid
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242K Followers 754 Following Official Twitter channel for the UK Government's Department for Work and Pensions. We cannot reply to individual benefit queries: https://t.co/rF1YxazrqGSusan Buckley © 🦋 @SuBuckley
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220 Followers 470 Following Down Syndrome Microbiome Research Initiative; Citizen Science, focusing exclusively on studying the microbiota of persons with Down Syndrome.James Avery RN NHS @James_Avery_
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43 Followers 671 Followingsurreyinfopageuk @surreyinfpageuk
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7 Followers 49 FollowingDr Philippa Whitford @Dr_PhilippaW
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195 Followers 497 Following Down’s syndrome advocate, Speech and Language therapist working with people with Down’s syndrome and also in Youth Justice TeamsGIOVANNI ULLERI @giovanni_ulleri
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287 Followers 173 Following The official Cognus Therapies Twitter page. Providing Speech and Language Therapy and Occupational Therapy to children and young people. Part of @CognusLimitedJala (Joanne) vally m.. @JalaVally
150 Followers 406 Following Community matron for the child development service. in East London.All opinions are my own. Striving for equality, peace and justice xJess Barnes @BarnesJessere
1 Followers 1 FollowingPostal votes done! I have never missed the opportunity to vote since I was 18! Don’t miss your opportunity to this privilege. #Democracy #righttovote #haveyoursay #inclusion #emmelinepankhurst #LocalElections2024 @DSAInfo @Wountchangea1 @NDSPolicyGroup
📣 Chris Nikic officially first person with Down’s syndrome to run all major marathons. “how is it that, in 2024, a person with an intellectual impairment is being viewed as less than human? Why can't they even be included as a category? Chris father guinnessworldrecords.com/news/2024/4/ch…
.@BBCAccessAll spoke to Mencap's Dan Scorer and Sarah, a mum whose daughter is being inappropriately detained right now, about the government’s failure to reduce the number of people with a learning disability and autistic people in mental health hospitals. 🎧 Listen now.
New podcast incoming! Why are so many disabled people in mental health hospitals when they don’t need to be? What changes to PIP is the PM proposing? Plus, we chat to the most influential disabled person in the UK, Shani Dhanda! Listen now! bbc.co.uk/programmes/p0h…
The opportunity to correct a serious disconnect in how people with Down syndrome are valued within society. Someone at some point made a decision to limit outcomes for people with Down syndrome - this firmly says, ‘not anymore’ - this is not political this is about people! #NC41
Thanks to @LiamFox for clarifying his amendment to the Criminal Justice Bill clause to make it even more explicit about the intention. As stated before, this clause is to value people with Down syndrome equally at all times. bills.parliament.uk/bills/3511/sta…
Incredibly honoured today to be at Windsor Castle with my beautiful family for my investiture. I was presented with my OBE by HRH Princess Anne and was able to chat with her about my hopes for a more inclusive country for people with Down syndrome. @JackHFRoss @mrtomross
Well done Lloyd 👏
Today 19 year old Lloyd Martin became the youngest known person with Down syndrome to complete a marathon. Thank you for showing us what’s possible, Lloyd. ❤️
#Oliverscampaign Very well said Millie
Millie, a woman with #DownSyndrome makes a strong case in her support for the suggested #NC34 amendment to the Criminal Justice Bill by @LiamFox MP #NC34 to bring #EqualityAt24 to babies with the condition. Write to your MP here 👉🏼 bit.ly/EqualityAt24
Urge your MP to back @LiamFox amendment & cast a vote for equality! People with #DownSyndrome must benefit from the same rights as the vast majority of the population. It’s time to correct 34 years of discrimination. @NDSPolicyGroup #EqualityAt24 Thanks to all who already have!
Born together, grow together, but protected differently before birth. This isn't the equality we’ve come to expect. Write to your MP to ask them to support and vote for @LiamFox’s amendment #NC34 to ensure #EqualityAt24 bit.ly/EqualityAt24
@sharon_l_smith @mumof3amigos @NDSPolicyGroup All the adult men and women I know who have Down’s syndrome, including my 21 year old daughter are right behind Heidi. So am I and I’m not religious and I’m fiercely pro-choice. And pro-equality. 24 weeks for all.
Heidi is my hero. 24 weeks is fair for everyone. Currently it is legal to terminate a pregnancy of a baby who has Down’s syndrome up to the day of birth. I believe this has to be changed. Disability discrimination should be challenged. #Equalityat24
Write to your MP to ask them to support and vote for Sir Liam Fox’s NC34 amendment to remove disability discrimination after 24 weeks pregnancy. Find out more and email your MP here bit.ly/EqualityAt24
@HeidiCrowter95 @NDSPolicyGroup @LiamFox Well done Heidi ❤️ I have emailed my MP. Good luck with your amazing campaign x
It’s all about equality #EqualityAt24
We need YOU! Pls write to your MP to ask them to support and vote for Sir Liam Fox’s NC34 amendment to remove disability discrimination after 24 weeks pregnancy. Find out more and email your MP here bit.ly/EqualityAt24 @NDSPolicyGroup @LiamFox #EqualityAt24
@ElliotColburn Thank you for having discussions with @LiamFox about #NC34 #EqualityAt24
Show your support for #EqualityAt24 by writing to your MP NOW at bit.ly/EqualityAt24 Learn more at ndspg.org/equalityat24 Get yourself this Twibbonize frame at twb.nz/equalityat24 Thanks as ever for your
@NDSPolicyGroup @PortsmouthDSA #EqualityAt24 #NC34 @LiamFox @AlanMakMP
Show your support for #EqualityAt24 by writing to your MP NOW at bit.ly/EqualityAt24 Learn more at ndspg.org/equalityat24 Get yourself this Twibbonize frame at twb.nz/equalityat24 Thanks as ever for your
@NDSPolicyGroup @PortsmouthDSA #EqualityAt24 #NC34 @LiamFox @AlanMakMP
Thank you for your consistent support @DavidAltonHL and your unwavering commitment to people with Down syndrome. Together we can make a positive change and make #EqualityAt24 a reality.
Thank you for your consistent support @DavidAltonHL and your unwavering commitment to people with Down syndrome. Together we can make a positive change and make #EqualityAt24 a reality.
Sir @LiamFox MP is doing great work to stop discrimination against those with #Downsyndrome, I encourage all disability charities to get behind this endeavour for legal equality before birth #TimeToMoveOn
Discrimination starts before birth for people with #DownSyndrome & can set a life-long precedent. Given advances in medical science it’s time to reconsider outdated, discriminatory laws.@PennyMordaunt @StephenMorganMP @cj_dinenage will you be voting @LiamFox's amendment #NC34?
We need YOU! Pls write to your MP to ask them to support and vote for Sir Liam Fox’s NC34 amendment to remove disability discrimination after 24 weeks pregnancy. Find out more and email your MP here bit.ly/EqualityAt24 @NDSPolicyGroup @LiamFox #EqualityAt24
Time to reconsider outdated laws and stop discrimination @PennyMordaunt @LiamFox @NDSPolicyGroup and @PortsmouthDSA #TimeToMoveOn #EqualityAt24 #NC34
Discrimination starts before birth for people with #DownSyndrome & can set a life-long precedent. Given advances in medical science it’s time to reconsider outdated, discriminatory laws.@PennyMordaunt @StephenMorganMP @cj_dinenage will you be voting @LiamFox's amendment #NC34?