APPG on Premature & Sick Babies @NeonatalAPPG
The official Twitter account for the All-Party Parliamentary Group on Premature & Sick Babies. Joined January 2019-
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This #WorldPrematurityDay provides an opportunity to raise awareness of the huge impact that a premature birth can have on a family. As Chair of the All Party Parliamentary Group on Sick and Premature Babies I’m proud to support @Blisscharity and their incredible work.
Yesterday during an important debate on baby loss and safe staffing in maternity care, APPG Chair @DavidLinden spoke of the need to amend the Shortage Occupation List to help protect neonatal and maternity workforce levels. #BabyLossAwarenessWeek
APPG Officer @AlexDaviesJones used her question to @beisgovuk earlier today to ensure that the issue of paid statutory neonatal leave is still on the Government's radar.
Absolutely right of @RachelReevesMP to mention the importance of parental leave for neonates in this important debate on maternity rights. @Blisscharity do some fantastic work in raising these vital issues & if you need support please reach out.
Thank you to APPG officer Laura Trott MP for securing a constructive commitment from @10DowningStreet today at #PMQs on parental access to neonatal intensive care units during the pandemic. And thank you to the Prime Minister for reaffirming parents as partners in care. #NICU
👉 Great to join the @NeonatalAPPG in speaking with the Education Secretary @GavinWilliamson today. 👶 An interesting discussion on the issue of how premature & sick babies may be impacted by the structure of the current academic year. 💪 It's vital that no child is left behind
Thanks @GavinWilliamson for joining @NeonatalAPPG today & speaking about how we can work together to ensure babies born prematurely or sick don't miss out or fall behind when they start school. Gavin committed to writing to admission authorities reiterating the guidance on this
This is really good news and something @NeonatalAPPG colleagues pressed the Secretary of State on at our recent meeting. Well done to @Blisscharity for all their campaigning work on this!
This is really good news and something @NeonatalAPPG colleagues pressed the Secretary of State on at our recent meeting. Well done to @Blisscharity for all their campaigning work on this!
APPG Vice-Chair @AlexDaviesJones today addressed the very important issue of parental leave for the parents of babies in need of neonatal care with @CommonsLeader.
Today is #WorldPrematurityDay. Good opportunity to come together with fellow MPs and parents of premature-born babies for a meeting of @NeonatalAPPG. Lots to discuss on employment legislation, school start dates, neonatal workforce and outcomes for multiple births.
📌 Today it's #WorldPrematurityDay & I'm thinking of anyone currently going through the absolute anguish of having their baby in the NICU. 👶 Sadly after #IVF my Sulley came two weeks early and was really poorly 👉 Please know that you're not suffering alone. @NeonatalAPPG
Good meeting with Secretary of State @MattHancock tonight to discuss @Blisscharity’s “Parents aren’t visitors” campaign. Laura, Alex, Gav & I might be from different parties but we are all parents of premmies & using our experience to advocate in Parliament.
Thank you to @DavidLinden for highlighting our #ParentsArentVisitors campaign in Parliament today. @MattHancock rightly acknowledges profound impact on parents, and we are delighted that he is willing to meet to discuss these issues further.
APPG Chair @DavidLinden today raised the impact of #coronavirus on the parents of premature & sick babies with the health secretary, drawing attention to @Blisscharity's #ParentsArentVisitors campaign.
A groundbreaking 20-year study has found that that the physical connections made by babies in their earliest days have implications for their health and their social development in later years, particularly their ability to empathise with others. neonatalappg.org.uk/news-major-new…
NEWS | The Government of Finland has revealed its new family leave policy which aims to equalise the amount of paid leave from work that each parent is entitled to. neonatalappg.org.uk/news-finland-p…
The APPG on Premature & Sick Babies is back up and running. Read about our first meeting and our newly-elected officers over at our blog - neonatalappg.org.uk/news-APPG-refo… cc: @DavidLinden @AlexDaviesJones @ranil @SharonHodgsonMP @DarrenG_Henry
Fantastic to see the @NeonatalAPPG reconvened for 2020! @Blisscharity are looking forward to working closely with you.
Fantastic to see the @NeonatalAPPG reconvened for 2020! @Blisscharity are looking forward to working closely with you.
Delighted to have @NeonatalAPPG back up and running in the new Parliament alongside fellow officers, Lord Moynihan, @ranil, @AlexDaviesJones and @DarrenG_Henry!
Bliss Baby Charity @Blisscharity
48K Followers 841 Following Our vision is that every baby born premature or sick in the UK has the best chance of survival and quality of life. Contact us for support: [email protected]
Dr Jacinta Cordwell @JacintaCordwell
2K Followers 3K Following Consultant Clinical Psychologist and Lead Psychologist for TV&W neonatal ODN and neonatal psychology services at the John Radcliffe, Oxford. All views my own!
Rebecca Chilvers 💙 @Neonatalpsych
3K Followers 3K Following Consultant Clinical Psychologist working in neonatal intensive care, occasional writer, photographer and musician. Mother of three boys. Views my own.
Neonatal Nurses Assoc.. @NNAUK1
3K Followers 909 Following The national organisation representing, supporting & celebrating neonatal nurses & promoting neonatal nursing for the benefit of newborns & families.
Karen Luyt💙 @KarenLuyt
2K Followers 397 Following Professor of Neonatal Medicine - University of Bristol - focused on improving outcomes for newborns. @NCMD_England & @PReCePT_MgSO4 National Clinical Lead
NW Neonatal ODN @NWNeonatalODN
4K Followers 857 Following North West Neonatal Operational Delivery Network. Working together to provide the highest standard of care for babies and their families.
OurSamBabyLossCharity @OurSamCharity
2K Followers 5K Following Raising awareness, understanding and support for #babyloss. Registered Charity Number 1191411 https://t.co/KkNuFyv4BB Founder/CEO @PhilippaWriter
Alex Mancini (Smith)�.. @mancini_smith
2K Followers 933 Following National Lead Nurse for Neonatal Palliative Care. Passionate about supporting families and staff. Proud wife to Tony and Mum to 3 fantastic young men & Coco.
Twins Trust Bereaveme.. @twinstrustbsg
1K Followers 915 Following We support bereaved families who experience the death of their twin(s), triplet(s) or more during or after pregnancy.
Dr Natalie Shenker @DrNShenker
7K Followers 8K Following UKRI Future Leaders Fellow @imperialcollege; Cofounder @heartsmilkbank, @milk_foundation GAMBA. Building research and education networks with @GillyWeaver. MBE.
Jane Plumb 💙 @JanePlumb
2K Followers 1K Following 🤹🏻♀CEO @GBSSupport | 📢 Women's Voices Lead @RCObsGyn | 🪑 Chair @COMOmeningitis | Passionate about #womenshealth, #maternitysafety, & #groupBStrep she/her
Amy Lochtie @AmyLochtie
5K Followers 5K Following Nurse| Innovation Hub Director- WYH|Author|TedTalker |NHS Assembly Member|Clincial Senate| FRSA| FSBP| Mum| Wife| Pirate 🏴☠️@morethanmyband
Roisin @MckeonCarter
2K Followers 1K Following Consultant Practice Development Lead Uni Hosp Plymouth. Chair NNA & Focus on baby/family & parity of roles/pay for neonatal nurses. FNF Leadership Scholar
The Smallest Things @_SmallestThings
7K Followers 6K Following Premature Baby Charity • Supporting children and families after Neonatal Intensive Care • Founded 2014 • Award winning campaign #SmallestThings
SWNeonatal @swneonatal
3K Followers 770 Following For all news, events, updates relating to Neonatal Services across the South West. Partnering with @thenicufoundation to support delivery of Neonatal Care in SW
Group B Strep Support @GBSSupport
14K Followers 5K Following Leading UK charity working to stop life-threatening group B Strep infection in babies. #GroupBStrep #GBSS Registered charity 1112065
National Child Mortal.. @NCMD_England
2K Followers 2K Following An @NHSEngland funded programme delivered by @BristolUni to gather information on all children who die in England so we can save children’s lives in the future.
💜SfhNICU💜 @SfhNICU
1K Followers 1K Following 🌳Neonatal Unit at Sherwood Forest Hospitals - Level2 (@SFHFT) 🏥12xNeonatal Beds & 6xTransitional Care Beds 🌈❤Supported by the Emily Harris Foundation Charity
Spoons Charity @SpoonsCharity
3K Followers 3K Following Charity supporting families of sick and preterm babies in Greater Manchester. This account is monitored periodically to get in touch email [email protected]
Davy Evans @DrDavyEvans
652 Followers 548 Following Clinical Psychologist working in paediatric and neonatal care in Birmingham. All views are my own.
Maleah Branch @maleah_bra71998
23 Followers 359 Following
Patricia Meckova @meckova_
6 Followers 45 Following
Neonatal Clinical Tea.. @ClinicalIhc
21 Followers 197 Following 👶Neonatal Care Innovators | Advancing neonatal care through education & clinical insights | Here to connect & collaborate with clinicians & nurses #neonatal
LGBTQ+ parents with N.. @LGBTQneonatal
28 Followers 166 Following Researching LGBTQ+ parents with neonatal unit experience [email protected]
Katie Cullum @KatielouiseHa14
1K Followers 2K Following Lead Nurse@EoENeonatalODN . @NHSEngland Maternity and Neonatal Stakeholder Council Member. @BAPM Quality Steering Group Member. Advanced Nurse Practitioner.
Letice Roberson @evans_leti38936
37 Followers 132 Following I am a mother seeking help out here. Please read my go fund me. This is my life.
Lisa Darrah @lisad_ni
82 Followers 244 Following
Celina Mariam @Neonatolog2023
35 Followers 398 Following Program Manager at Longdom Group SA | 11th International Conference on Neonatology, and Neonatal Care | December 07-09, 2023 | Dubai, UAE.
@parli-training @ParliTraining
132 Followers 1K Following Award Winning training company, established 22 years ago, we specialize in providing vocational training for policy, public affairs & parliamentary staff.
Philippa Rees @PhilippaCRees
469 Followers 603 Following Paediatrician/Epidemiologist, leads @CHERuBstudy on perinatal #braininjury | Lover of coffee/big data/#familycentredcare #newbornbrains #Welsh #feministacademic
Vicki Brown @VicstarANNP
72 Followers 309 Following ANNP Neonatal Intensive Care on the move Scotstar Woodland lover Expert in daydreaming
John Swiss @JohnSwiss93600
243 Followers 2K Following There's more (lor less) going on than you think there is.
Rachael Cheddarson @RCheddarson
46 Followers 786 Following
Penmark One @PenmarkOne
434 Followers 4K Following Welcome to Penmark One, the thought design company.
M. Victoria Saavedra @mvitchory
15 Followers 163 Following
APPG News @APPG_News
101 Followers 464 Following Independent account tracking the latest news, events and inquiries from All Party Parliamentary Groups (APPGs) in the UK Parliament
JoKer @jocoombs11
787 Followers 2K Following Wife, Rock Choir member, Gym goer, NICU Nurse, pawrent to a beautiful Sprocker.
Mara Tesler Stein (sh.. @MaraTeslerStein
158 Followers 1K Following Clinical Psychologist | Educator | Author | Advocate Founder and Director of The Touchstone Institute
Sarah Walker @sarah_walk4
427 Followers 570 Following
Claire Fenn @ClaireFenn1
147 Followers 322 Following Lead Nurse Quality & Improvement Neonatal ODN. Advanced Nurse Practitioner MSc. Non-Medical Prescriber. QI lover. NICU & Paediatric Nurse. Preemie Mom 💜
Lauren Ingledow @l_prem_88
179 Followers 452 Following Adult born prem (26 weeks gestation, 430g) Co-founder Adult Preemie Advocacy Network Adult Preemie Network @Adultpreemies
Alan Tenório @alantenoriog
67 Followers 438 Following MS4 from 🇧🇷| Research enthusiast | Interested in Critical Care and Pediatrics | Tweets are my own
Hazel A Smith PhD @smithhazelann
2K Followers 2K Following Associate Professor of Maternal and Child Health at Staffordshire University and Deputy Lead for CeNREE. Own views. Retweets & likes ≠ endorsement.
Helen Large (Stockpor.. @lively_helen
956 Followers 1K Following Proud Mummy to 2 gorgeous boys 👬 Neonatal Matron at Stockport & passionate about improving service's for SEND . All views are my own 🤗
Izzy @Isobel_Anne123
88 Followers 2K Following
Stuart McDonald MP @Stuart_McDonald
14K Followers 3K Following @theSNP MP for Cumbernauld, Kilsyth & Kirkintilloch East. 01236 453 969 / [email protected]
Danielle @Daniell26018283
3 Followers 62 Following
JL @JL71735000
31 Followers 148 Following
Sally Gibbins Childre.. @SallyGAuthor
401 Followers 901 Following Love writing Children's Books, Shakespeare, Music and Dogs - not necessarily in that order. 'Lovely stories about the importance of companionship & friendship.'
Hopes & Dreams Podcas.. @HopesDreamsPod
247 Followers 268 Following 🎙️ Podcast talking openly about fertility & baby loss | Breaking the stigma & offering hope, advice & support | You're not alone 💖 | Host @embrooksy8
Hannah Mackay-Christi.. @HannahMackayCh1
162 Followers 606 Following Mam of 4. Christian. VCS and community devt. West End of Newcastle. Policy Officer @ChildrenNE Trustee @ElswickPool.
Espoir BUDIEDIE MILAM.. @EBudiedie
68 Followers 620 Following
Sarah Fiddes @JustMissSarah
368 Followers 1K Following 31, Mummy, Wife, passion for raising awareness about pre-eclampsia, NICU life and baby loss.
marc tamid @marctamid
12 Followers 230 Following
Sarah Tandy @SarahTandyOT
453 Followers 793 Following Neonatal Network Occupational Therapist @NWNeonatalODN Clinical @PrestonNICU Special Interests #DevelopmentalCare #FiCare #Sensory #CoOccupation views my own
Bliss Baby Charity @Blisscharity
48K Followers 841 Following Our vision is that every baby born premature or sick in the UK has the best chance of survival and quality of life. Contact us for support: [email protected]
Catriona Ogilvy @catriona_ogilvy
6K Followers 7K Following Founder @_SmallestThings Charity | Advocacy | Political Campaigns • Children’s Occupational Therapist | SEND | Education
Amy Lochtie @AmyLochtie
5K Followers 5K Following Nurse| Innovation Hub Director- WYH|Author|TedTalker |NHS Assembly Member|Clincial Senate| FRSA| FSBP| Mum| Wife| Pirate 🏴☠️@morethanmyband
The Smallest Things @_SmallestThings
7K Followers 6K Following Premature Baby Charity • Supporting children and families after Neonatal Intensive Care • Founded 2014 • Award winning campaign #SmallestThings
Group B Strep Support @GBSSupport
14K Followers 5K Following Leading UK charity working to stop life-threatening group B Strep infection in babies. #GroupBStrep #GBSS Registered charity 1112065
Ranil Jayawardena MP @ranil
14K Followers 813 Following 💼 Member of Parliament for North East Hampshire | 🌳 Conservative | 📩 For help or response: [email protected] | 🔄≠👍
Darren Henry MP #Serv.. @DarrenG_Henry
11K Followers 655 Following Member of Parliament for Broxtowe • Former RAF Squadron Leader • Per Ardua Ad Astra • Casework & Enquiries 👉🏿[email protected]
Alex Davies-Jones MP @AlexDaviesJones
13K Followers 5K Following Labour Member of Parliament for Pontypridd • Shadow Home Office Minister • Need my help? Email: [email protected] • (she/her) 🌹🏴
Rachel Reeves @RachelReevesMP
210K Followers 5K Following Shadow Chancellor of the Exchequer 🇬🇧 | MP for Leeds West 🌹 Former economist at the Bank of England.
Tiny Tickers Charity @tinytickers
7K Followers 3K Following We aim to improve the detection, diagnosis & care of babies with serious heart conditions, before & immediately after birth. #chd #chdawareness #pulseoximetry
James Cooper @James_Cooper_
557 Followers 2K Following Head of External Affairs @tog4shortlives 📢 husband, father, children's hospices and palliative care, #avfc. Views own.
Tommy's @tommys
29K Followers 2K Following We're here to stop the heartbreak and devastation of baby loss and make pregnancy and birth safe - for everyone.
TinyLife @TinyLifeCharity
4K Followers 960 Following The Premature Baby Charity offering practical and emotional support to parents of premature and sick babies in Northern Ireland. 💛💜
Sophie Dodgeon @sophiedodgeon
1K Followers 3K Following Head of Policy and Public Affairs (interim) at RNIB. My views, not RNIB's. Change-making, policy, politics, trail running up and down hills.
Ben Lake AS/MP @BenMLake
9K Followers 2K Following Aelod Seneddol Ceredigion | Member of Parliament for Ceredigion | [email protected] 🏴 https://t.co/3SUi5txGrB
Steve Reed @SteveReedMP
43K Followers 28K Following Labour MP for Croydon North. Shadow Secretary of State for Environment, Food & Rural Affairs. 020 7219 7297 [email protected] Slava Ukraini 🇺🇦🇬🇧
Paul Masterton @pmasterton1985
8K Followers 546 Following Comms and Policy Engagement @DefenceHQ. Ex-MP. 'The most mild-mannered of mutineers.'
Kevin Hollinrake MP @kevinhollinrake
15K Followers 2K Following Conservative MP for Thirsk & Malton, Business Minister. 4 kids, ❤️🏏🏉 & family life. Promoted by Kevin Hollinrake MP of 109 Town Street, Old Malton, YO17 7HD.
Sharon Hodgson MP @SharonHodgsonMP
35K Followers 4K Following Member of Parliament for Washington and Sunderland West | I can't take casework over twitter please email [email protected]
Jim Shannon MP @JimShannonMP
6K Followers 628 Following Democratic Unionist Party DUP Health Spokesperson in Westminster Member of Parliament for Strangford [email protected] 02891827990
Helen Kirrane @helenkirrane
294 Followers 584 Following Head of Policy, Campaigns and Mobilisation @DiabetesUK, formerly @Blisscharity
bethmccleverty @bethmccleverty
175 Followers 796 Following Charity policy & public affairs person, DIYer, feminist. Views are all my own.
Noah's Star @NoahsStar
940 Followers 1K Following We support individuals challenged by #disability and/or #prematurity through training, support groups and a #volunteer led sibling support service.
Fauzia Paize @fauziapaize
986 Followers 622 Following Consultant Neonatologist, Liverpool. Dedicated to improving FICare, neonatal palliative care, death, bereavement and beyond. Non-exec Director at Bliss.
Laura Anne Mackay @lauraannebeth
509 Followers 663 Following Community Activist. Fundraiser. CLD. @Girlguiding volunteer. Student @writersprogram. ex-Health Scientist. 🏳️🌈 🏴💛. Views my own.
Dr Philippa Brice @PhilippaBrice
2K Followers 521 Following Health & research champion - loves innovation & ideas, policy & people. Head of R&D for NHS Cambridgeshire & Peterborough; all tweets = own views
Victoria Prentis @VictoriaPrentis
17K Followers 1K Following Member of Parliament for Banbury and Attorney General for England and Wales. Email [email protected] for all constituent enquiries.
Josie Anderson @josieanderson89
328 Followers 851 Following Policy, Research and Campaigns Manager @Blisscharity, but currently on maternity leave. Tweeting about neonatal care. And cats. All views are my own.
David Linden MP @DavidLinden
15K Followers 1K Following @theSNP MP for Glasgow East | 🗳️ #voteSNP #ForScotlandToday is #WorldPrematurityDay. Good opportunity to come together with fellow MPs and parents of premature-born babies for a meeting of @NeonatalAPPG. Lots to discuss on employment legislation, school start dates, neonatal workforce and outcomes for multiple births.
📌 Today it's #WorldPrematurityDay & I'm thinking of anyone currently going through the absolute anguish of having their baby in the NICU. 👶 Sadly after #IVF my Sulley came two weeks early and was really poorly 👉 Please know that you're not suffering alone. @NeonatalAPPG
Good meeting with Secretary of State @MattHancock tonight to discuss @Blisscharity’s “Parents aren’t visitors” campaign. Laura, Alex, Gav & I might be from different parties but we are all parents of premmies & using our experience to advocate in Parliament.
Delighted to have @NeonatalAPPG back up and running in the new Parliament alongside fellow officers, Lord Moynihan, @ranil, @AlexDaviesJones and @DarrenG_Henry!
.@DavidLinden's Ten Minute Rule Motion would give more parental leave to the parents of premature and sick babies. We gave him 60 seconds to explain why he thinks the law should change. Find out what he said; then watch the debate: parliamentlive.tv/event/index/de…
It's fantastic to see @DavidLinden's Parental Leave (Premature and Sick Babies) Bill supported by MPs in the House of Commons today, so it can progress for further discussion and debate. Thank you to all MPs who have supported this important Bill today.
@DavidLinden is now on his feet in the House of Commons - after some delay - introducing his legislation to extend parental leave for parents separated from their babies due to their need for specialist hospital care after birth. Watch live now at tiny.cc/ecb67y
Today I've joined @Blisscharity @_SmallestThings @tamba_twins_mb & @DavidLinden in writing to @KellyTolhurst to ask that BEIS publish their review into parental leave for parents of premature, sick and multiple babies. The Government must not kick this issue into the long grass.
Bliss, @_SmallestThings, @tamba_twins_mb, @DavidLinden and @RachelReevesMP are sharing our growing concerns with the government's review into parental leave for parents of premature & sick babies.The review has ended but the findings haven't been shared. bliss.org.uk/news/leading-b…
Charities join MPs in calling for the publication of review into parental leave for parents of babies needing neonatal intensive care thesmallestthings.org/2019/06/06/cha…
We’ve joined with @RachelReevesMP @DavidLinden @Blisscharity & @tamba_twins_mb in urging minister @KellyTolhurst to publish the results of the @beisgovuk review into parental leave provision for families whose babies require neonatal intensive care. Families need support now.
Premature birth means watching your baby grow in an incubator, hooked up to countless wires and being given assistance to breathe. Asking dads to go back to work after a fortnight is as ridiculous and insensitive. 📹 Today I raised this important, and personal, issue at #PMQs
[THREAD] The next couple of nights are quite significant for our little girl. Jessica was born premature 5 months ago and has been at home with us on 24/7 oxygen for the last four months.
Thank you @RachelReevesMP, joining other MPs in calling for extended parental leave for mums & dads of premature babies. After wks & mths visiting a baby in neonatal intensive, families need more time to recover & bond. We hope to hear the out come of the @beisgovuk review soon.
I’m calling on the Government to extend parental leave for the parents of premature babies.
Many thanks to @RachelReevesMP for joining other MPs in calling for rapid progress on provision for extended parental leave for parents of babies in neonatal care - look forward to hearing more from @beisgovuk soon
I’m calling on the Government to extend parental leave for the parents of premature babies.
Improving maternity and neonatal care | Good to see Scottish Government make this investment. @NeonatalAPPG news.gov.scot/news/improving…
A big THANK YOU (and Happy Birthday) to @RachelReevesMP for raising this issue again with the Prime Minister, calling for extended parental leave for mums and dads of premature babies. #NotMatLeave @NeonatalAPPG
I’m calling on the Government to extend parental leave for the parents of premature babies.
I’m calling on the Government to extend parental leave for the parents of premature babies.
Good to see @RachelReevesMP raising the issue again of extending parental leave for families of premature babies. #PMQs @NeonatalAPPG
Good to attend the inaugural @NeonatalAPPG on Premature & Sick Babies with @Blisscharity. Look forward to working with colleagues to take this forward as the APPG's vice-chair.
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