Nigel Over @NigelOver
All views my own. Open to providing pro bono expertise to genetic syndrome charities. Freelance leadership for charity projects considered. West Lothian Joined November 2013-
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🧬 IT'S RARE CHROMOSOME AND GENE DISORDER DAY 2025, #RareChromoDay We're so excited to share two publications. Have a read, share and let us know what you think in the replies💬 - The Little Red Book: rarechromo.org/little-red-boo… - 'Unique experiences' report: rarechromo.org/get-ready-for-…
Congratulations Sue. Well deserved. @PittHopkinsUK @pitt_hopkins
£3 billion pa raised from apprentice level on large employers plus £188m on CITB levy on construction in 2023/4. Where is the rest of the apprenticeship money raised going? And why am I as a professional chartered engineer being included in the trades category?
£3 billion pa raised from apprentice level on large employers plus £188m on CITB levy on construction in 2023/4. Where is the rest of the apprenticeship money raised going? And why am I as a professional chartered engineer being included in the trades category?
A parent is putting this survey out to parents/carers across Wales, hoping to take this with a detailed report to Welsh Assembly, MPs and MS members to show the current situation lots of parents are in. buff.ly/3Vr2F8p
Its #SMSAwarenessDay2024! Smith-Magenis Syndrome (SMS) Awareness Day is celebrated on 17th November each year. The day is dedicated to educating the world about SMS and raising awareness of the syndrome. buff.ly/3Z8UGis
Aston University have recently launched the SAFEBED study, a new project investigating the Safety, Acceptability, Feasibility, and Efficacy of Bed Enclosure Designs. Please consider taking part: buff.ly/4ez7JiL
This has been my last week @GeneticAll_UK as I handed the baton on to new Chief Executive @MarkFlannCEO. Please follow Mark if you don’t already, and I look forward to seeing this amazing charity go from strength to strength under his leadership! 🏃♀️ 🏃♂️ 👀
A huge early milestone! Credit to our members who have fed into this project as it has developed and to the @GenomicsEngland team for prioritising the contribution of the rare community. @GeneticAll_UK is a proud partner in the all important evaluation of this study.
A huge early milestone! Credit to our members who have fed into this project as it has developed and to the @GenomicsEngland team for prioritising the contribution of the rare community. @GeneticAll_UK is a proud partner in the all important evaluation of this study.
Join #RAREfest24 launch at ‘Strictly Rare’ on Fri 22 Nov —a night of rare music, comedy, talks, & research-inspired art! Hosted by @hopemusicuk it celebrates embracing differences, resilience, & the joy of creativity. Tickets are out! bit.ly/RAREfest24_Str… #Strictly @Linseigh
FREE @CerebraCharity Sleep Webinar on the 26th September (12:30 - 2pm): eventbrite.co.uk/e/understandin… In this webinar, we will consider what #sleep is, why sleep problems occur more often in children with #GeneticSyndromes, and how to improve sleep.
Do you work with children and want to develop your skills to support families with their child's sleep? Then CIPSAC is the perfect course for you! Our Intermediate course is now accredited by OCN London as a Bespoke OCN Level 4 qualification. buff.ly/4dNYk6K
We are delighted to announce that our Cerebra Intermediate Paediatric Sleep Advice Consultant (CIPSAC) Training is now accredited by OCN London as a Bespoke OCN Level 4 qualification! Register your interest for any of our upcoming sessions now: buff.ly/4cEpP0Y
Last year, we had the pleasure of building a sensory water fountain in the sensory garden of a local Swansea school. The children absolutely loved it, and it turned out to be a fantastic community project. Seeing the joy it brought to the kids was truly rewarding! 💧🌟
We are delighted to announce that our Cerebra Intermediate Paediatric Sleep Advice Consultant (CIPSAC) Training is now accredited by OCN London as a Bespoke OCN Level 4 qualification! Register your interest for any of our upcoming sessions now: buff.ly/4cEpP0Y
Finding the right words when writing to official bodies can be difficult. We’ve created a series of template letters to make it less daunting for you to write to your local council or health body if you need to ask for information or make a complaint. buff.ly/2ovMLgq
Check out our the innovation centre's latest adaptation! 🚗✨ They have redesigned a remote control car for a young boy who previously struggled with the controls. It's now a simpler, more accessible design, and we can't wait to see it in use!
Our Innovation Centre (CIC) team were recently challenged to adapt a standard paddle board so Rhys could safely enjoy paddle boarding with his friends. buff.ly/47JVWLl
We are collaborating with @UniversityLeeds on research that seeks to better understand the extent to which parents of disabled children experience trauma as a result of navigating the various social welfare and education systems. buff.ly/3A5GnBy
How can sensory processing difficulties impact upon behaviour? Here's the links between sensory hyperreactivity and anxiety. Download our full Sensory Processing Guide: buff.ly/2DNX1s8
humble boy @HumbleB72407
95 Followers 3K Following
Thorzau @Thorzauu0SR
194 Followers 5K Following
Titur @TiturmN8
11 Followers 512 Following
Dr Jane Waite @Waite_Aston
1K Followers 1K Following Researcher & Clinical Psychologist. Working with people with rare syndromes, autism & intellectual disability @astonpsychology #PMLD #SEND
Salena Begley MBE @airgold12
685 Followers 3K Following Mum. Daughter. Partner Engagement Manager (Scotland) @ Family Fund . Rescue cat minion. Occasional ultra runner. From the Drum. Island incomer. Views my own.
Cerebra @CerebraCharity
10K Followers 1K Following We're the charity dedicated to helping families with children with brain conditions discover a better life together.
Susan Over @SusanOver176872
5 Followers 27 Following Passionate about helping others | Psychology student looking to make a difference
O'Donnell Associates @odonnassociates
2K Followers 5K Following Mark O'Donnell, Charity Consultant, Chair @AgainstAMD, Trustee @heartresearchuk, Committees member @mariecurieuk
Angela @Head2Green
6K Followers 6K Following
Lucy Mckee @Lucy_ENABLE
616 Followers 704 Following @Enable_Tweets Ambassador ***All Views My Own***
Richard Baker MP @RichardBakerMP
3K Followers 3K Following Scottish Labour Member of Parliament for Glenrothes and Mid Fife. Constituents please email [email protected] for assistance.
Cambridge Bioscience @CambridgeBiosci
2K Followers 2K Following We're a leading distributor of cutting edge life science research products. Follow for the latest #bioscience news and #research
ACOSVO @ACOSVO
7K Followers 4K Following The Association of Chief Officers of Scottish Voluntary Organisations - For Scotland's Voluntary Sector Leaders #Leadership #VoluntarySector #ACOSVOMembers
Rareminds @RaremindsUK
945 Followers 2K Following Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Hannah Scott @HannahM_Scott20
1K Followers 3K Following Research assistant @QMUL | PhD candidate @CSI_KCL
Alan Davidson @scottishcarman
11 Followers 216 Following Living in Scotland 🏴 On Twitter to keep up with current events 🌎 Formula 1 and Racing Enthusiast 🏎🍾
Unique @Unique_charity
8K Followers 2K Following Unique supports and informs anyone born w/a rare chromosome or gene disorder, their families and carers. Eurordis Patient Organisation Award winner.
Natalie Frankish @DO_Scotland
498 Followers 962 Following Policy & Engagement Manager for Scotland Genetic Alliance UK & Rare Disease UK Views my Own
MedicsforRareDisease @MedicsForRare
5K Followers 2K Following This account is no longer active, please continue to follow our work on Instagram and Bluesky! @medicsforrare
Cambridge Rare Diseas... @camraredisease
8K Followers 6K Following making #rarediseases an everyday conversation https://t.co/kZWskP9Ojj
Sharon Faulke @FaulkeSharon
87 Followers 176 Following Work hard, love managing events and delivering the best for all my clients, but most of all love being the best mum I can be because I was blessed
Anna Fowlie 🕷 @AnnaFowlie
6K Followers 2K Following Chief Executive of SCVO. Mother, baker, bowler, Ross County supporter. Trustee at Dads Rock. Proud to #KeepThePromise.
Jacob Vorstman 🇺�... @Jacob_Vorstman
935 Followers 1K Following Father of four, husband of one. Child psychiatrist & researcher genetics & development, autism, schizophrenia, 22q11DS. Hospital for Sick Children Toronto
Lauren_Enable @LaurenEnable
586 Followers 1K Following Programme Manager with @Enable_Tweets. All views are my own. #EnableCommunities
Andrew Surtees @DrAndrewSurtees
530 Followers 324 Following Associate Professor of Psychology at the University of Birmingham and Clinical Psychologist with Forward Thinking Birmingham
Aston Institute of He... @Aston_IHN
915 Followers 717 Following We conduct research to answer the questions which matter to children & young people, their families & the services that support them. @AstonUniversity
Unique Venue Finders @UniqueVenueFind
1K Followers 838 Following Unique Venue Finders: A professional & experienced Venue finding & Event Management service for businesses. https://t.co/kgl6d7LwCq
Susan @SusanOver111
0 Followers 5 Following On twitter purely to upload a picture of Jenny bear at the SMS conference
Holly Walton @HollyWalton15
955 Followers 1K Following Senior Research fellow | Implementation, process evaluation, care organisation, health/social care evaluations | Views my own
Louise Fish @LouiseFish1
795 Followers 2K Following Chair of Rare Disease Advisory Group (RDAG), former CEO at Genetic Alliance UK and TSA. Passionate about improving health and social care. All views my own.
Stacey Bissell @BissellStacey
249 Followers 203 Following Assistant Professor School of Psychology University of Birmingham. TSC and TAND research in sleep, intellectual disability and eating behaviour.
Lynn Mumford @lynn_mumford
2K Followers 3K Following CEO @JeansForGenes. Previous @MaydayTrust. Trustee @CTC_productions. @NewSystemAlly. Believes in being more human! Drinks a lot of tea.
Metabolic Support UK @weareMSUK
397 Followers 408 Following Metabolic Support UK are the leading patient organisation for Inherited Metabolic Disorders supporting thousands of patients worldwide.
Genetic Alliance UK @GeneticAll_UK
15K Followers 2K Following National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign Rare Disease UK and support network @SWAN_UK.
Dr Catherine Laverty @Catherine__L
458 Followers 638 Following Research fellow at the University of Birmingham. Research interests preterm birth, autism, child development & all things open science! @catherinel.bsky.social
Smith-Magenis Syndrom... @SmithMagenisAUS
84 Followers 93 Following Dedicated to driving local SMS awareness, enabling family collaboration & facilitating broader community education
Lawn Mowing Simulator... @SkyhookGames
4K Followers 514 Following Independent Games Developer & Outsource Studio | Providing 2D/3D Art Services | @DovetailGames | Creators of Lawn Mowing Simulator
Jo Moss @JoannaFMoss
457 Followers 556 Following Senior Lecturer @SurreyPsych @UniofSurrey. Interested in social, cognitive & emotional diversity in people with neurodevelopmental conditions. Views my own
Effie Pearson @effiepearson_
131 Followers 165 Following Post-doc researcher at @astonpsychology aiming to improve lives of individuals with neurodevelopmental conditions and intellectual disabilities
Melissa Munro @Melrsa
22 Followers 70 Following I'm a gamer chick always searching to be inspired to do my art. Always short of time to do it whilst mothering 3 little sprites.
Andrea Thomas (she/th... @Andrea_Thomas_1
312 Followers 847 Following Carer and Mom of 3. Doctoral researcher @RichardsLabUoB #Dyslexic #Bipolar #WorkingClassAcademic - Research in #CHARGEsyndrome. Views are my own
Beacon for Rare Disea... @RareBeacon
12K Followers 10K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Ashley Liew @ashleypcliew
343 Followers 271 Following Paediatric Liaison Neuropsychiatrist @EvelinaLondon @MaudsleyNHS #CYP #neurodevelopmental #learningdisability #epilepsy #digital Personal account
Cerebra Network @CerebraNetwork
844 Followers 566 Following Information resource from the Cerebra Network. A research network dedicated to improving the well-being of individuals with ID.
Sarah Elsea @sarah_elsea
206 Followers 319 Following mom, daughter, sister, friend, geneticist, dog lover, baker, professor, scientist, advocate, rare disease researcher...
Tribunal Tweets @tribunaltweets
45K Followers 1 Following Citizen journalists -"a valuable service" The Lawyer Magazine See also @tribunaltweets2
Olly @Olly25Olly
113 Followers 479 Following
Nicola Killean @NicolaKillean
2K Followers 454 Following Children and Young People’s Commissioner Scotland @cypcs
Salena Begley MBE @airgold12
685 Followers 3K Following Mum. Daughter. Partner Engagement Manager (Scotland) @ Family Fund . Rescue cat minion. Occasional ultra runner. From the Drum. Island incomer. Views my own.
Rare Disease Research... @RDRUKHub
227 Followers 177 Following We hope to be able to significantly impact the RD research landscape and improve the lives of those directly or indirectly affected by rare diseases.
The National @ScotNational
156K Followers 2K Following The newspaper that supports an independent Scotland.
Genomics England @GenomicsEngland
29K Followers 2K Following We’re working to enable faster and deeper genomic research, to bring genomic healthcare to all who need it.
Caitlin Ashleigh Will... @CaitlinAshleig2
230 Followers 333 Following Research Fellow (@RichardsLabUoB) and Research Assistant (@UCLPsychiatry) focusing on well-being in families of children with intellectual disability (she/her)
Roads Policing Unit @MerPolTraffic
34K Followers 784 Following Official Twitter page of @MerseyPolice’s RPU. Follow us for news, advice, & occasional humour. DM @MerPolCC to report crime. For emergencies call 999
StaffsRCT @StaffsRCT
58K Followers 1K Following In an emergency always call 999. For reports of crime or general enquiries please visit our website.
ITV Granada Reports @GranadaReports
335K Followers 10K Following The ITV regional news programme covering the North West of England and the Isle of Man, plus our politics and current affairs programme The Granada Debate.
GMP Traffic @gmptraffic
109K Followers 99 Following Updates from GMP Traffic Officers. Not monitored 24/7 & not for reporting collisions or crimes. Emergency: call 999. Non-Emergency: report online or call 101
Lancs Police DogUnit @LancsPolDogUnit
19K Followers 69 Following Official X feed for Lancashire Police Dog Unit. Not monitored 24/7. In an emergency call 999, if a crime is not in action report online 👇
Lancashire Police @LancsPolice
233K Followers 555 Following Official X feed for Lancashire Police. Not monitored 24/7. In an emergency call 999, if a crime is not in action report online 👇
Lancs Road Police @LancsRoadPolice
53K Followers 171 Following Official X feed for Lancashire Road Police. Not monitored 24/7. In an emergency call 999, if a crime is not in action report online 👇
North West Motorway P... @NWmwaypolice
212K Followers 601 Following Cheshire, Greater Manchester and Merseyside Police work together as the North West Motorway Police Group. DO NOT report crime via Twitter, call 101 or 999.
Live Traffic - M6 @Traffic_M6
92K Followers 1 Following Live #M6 traffic information updated every 5 minutes by @MotorwayCameras - SEE the traffic, live CCTV images @ http://t.co/SUStaPuNys
Susan Over @SusanOver176872
5 Followers 27 Following Passionate about helping others | Psychology student looking to make a difference
O'Donnell Associates @odonnassociates
2K Followers 5K Following Mark O'Donnell, Charity Consultant, Chair @AgainstAMD, Trustee @heartresearchuk, Committees member @mariecurieuk
Angela @Head2Green
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Lucinda godfrey @LucindaGodfrey
295 Followers 259 Following
Alan Surgeon @AlanSurgeon
2K Followers 2K Following Trustee: @onekind @Bhealthytgether @DogAidSociety Day Job: Executive Search - Non Profits, Charities & BCorps (Views -Own) [email protected]
Ross McCulloch @ThirdSectorLab
34K Followers 2 Following Founder & Director at Third Sector Lab - Helping charities deliver more impact with digital, data & design ⚡️ Connect with me on LinkedIn and Bluesky.
Richard Baker MP @RichardBakerMP
3K Followers 3K Following Scottish Labour Member of Parliament for Glenrothes and Mid Fife. Constituents please email [email protected] for assistance.
Lauren_Enable @LaurenEnable
586 Followers 1K Following Programme Manager with @Enable_Tweets. All views are my own. #EnableCommunities
Cambridge Bioscience @CambridgeBiosci
2K Followers 2K Following We're a leading distributor of cutting edge life science research products. Follow for the latest #bioscience news and #research
The Neurological Alli... @NeuroAlliance
7K Followers 910 Following People affected by neurological conditions still can’t get the healthcare they need. We need action now. Sign our open letter: https://t.co/b5h5bdfxtM
Rareminds @RaremindsUK
945 Followers 2K Following Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Alan Davidson @scottishcarman
11 Followers 216 Following Living in Scotland 🏴 On Twitter to keep up with current events 🌎 Formula 1 and Racing Enthusiast 🏎🍾
Natalie Frankish @DO_Scotland
498 Followers 962 Following Policy & Engagement Manager for Scotland Genetic Alliance UK & Rare Disease UK Views my Own
Traffic Scotland @trafficscotland
400K Followers 918 Following Hello! We monitor Scotland's Trunk Roads. Use DM to get updates quickly from our Chatbot. Account not monitored 24/7. Customer Care Line: 0800 028 1414
Jess Morgan @drjessmorgan_
23K Followers 3K Following Paediatrician. Lived experience of burnout & mental illness. Compassion & humanity in healthcare. Speaker, writer, teacher. Views my own. (She/Her)
Keele Careers @KeeleCareers
3K Followers 1K Following We support @KeeleUniversity students to find placements, internships, graduate jobs and become more employable! Tweets by Rob and Lisa
Kirsty Rollings @kirstyvale
2K Followers 1K Following Head Corp Comms @keeleuniversity | Board member @wearestaffs | Governor @endonhighschool | #JohnRudge Statue Committee | ❤️@Parkrun & Port Vale | 🌎 explorer!
New Routes Home @newrouteshome
126 Followers 23 Following A group who campaign for the right of all people with disabilities in Scotland to their own home, replacing out of area placements and institutions as solutions
Anna Fowlie 🕷 @AnnaFowlie
6K Followers 2K Following Chief Executive of SCVO. Mother, baker, bowler, Ross County supporter. Trustee at Dads Rock. Proud to #KeepThePromise.
Jacob Vorstman 🇺�... @Jacob_Vorstman
935 Followers 1K Following Father of four, husband of one. Child psychiatrist & researcher genetics & development, autism, schizophrenia, 22q11DS. Hospital for Sick Children Toronto
Contact @contactfamilies
33K Followers 6K Following UK disability charity for all families caring for a disabled child ☎️ support, info & advice ❤️ bringing families together 📢 campaigning for change!
Andrew Surtees @DrAndrewSurtees
530 Followers 324 Following Associate Professor of Psychology at the University of Birmingham and Clinical Psychologist with Forward Thinking Birmingham
Down's Syndrome Assoc... @DSAInfo
22K Followers 3K Following Supporting people who have Down's syndrome to live full and rewarding lives.
Jacqueline Jenkins @jenkinsjacqui
2K Followers 2K Following *views are my own, retweets do not imply endorsements. Lives East London.
Unique Venue Finders @UniqueVenueFind
1K Followers 838 Following Unique Venue Finders: A professional & experienced Venue finding & Event Management service for businesses. https://t.co/kgl6d7LwCq
Frank McKillop @FMcKillop
912 Followers 2K Following Director of Governance & Policy at @Enable_Tweets; Board Secretary of @Glasgow_CU. All tweets in a personal capacity.
Holly Walton @HollyWalton15
955 Followers 1K Following Senior Research fellow | Implementation, process evaluation, care organisation, health/social care evaluations | Views my ownTrends for United States
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