Pam Laird @Pam
Fighting for women's health equity, #MEAction board, #MillionsMissing, #pwme San Francisco & Occidental, CA Joined November 2006-
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If you think I talk about it a lot (IRL), it’s often out of necessity. I don’t bring it up to be annoying or make excuses. This is my reality.
They also are so severe since getting “the big sick” that they affect EVERY SINGLE ASPECT of my life.
me being negative. This is my reality. Likely for the rest of my life unless a HUGE miracle occurs or a cure for a GENETIC illness is found.
Y’all. My mind just exploded.
All in favor of a test for aortic aneurysms, raise your hand @YaleMed news.yale.edu/2021/05/25/all…
Congrats to @jenbrea I concur, @unrestfilm is very special.
Congrats to @jenbrea I concur, @unrestfilm is very special.
The SMC rounds up the usual suspects to whine about new NICE draft that rejects GET and CBT: virology.ws/2020/11/20/tri…
My read is that Trump is losing every woman in America. We have all dealt with this guy.
My god. He disrespected a father’s dead son. In front of all of us. Make this matter. #debate
To quote a friend “as if Covid wasn’t enough”
To quote a friend “as if Covid wasn’t enough”
In our 30s, Mark and I both contracted a bad virus. We both recovered, but not completely. He was left with Type 1 Diabetes, I with ME. Please bear in mind that while you might not die of COVID-19, it might damage your health for the rest of your life. meaction.net/2020/05/10/res…
“COVID-19: WHY WE SHOULD ALL WEAR MASKS — THERE IS NEW SCIENTIFIC RATIONALE” by Sui Huang link.medium.com/4BtijyhDJ5
“This is our chance to define a new version of normal, a rare and truly sacred (yes, sacred) opportunity to get rid of the bullshit...” from Prepare for the Ultimate Gaslighting* by Julio Vincent Gambuto link.medium.com/dDrDw866C5.
this! i’m getting torn between 2 conflicting states 1) everything’s more accessible! i can do courses/chat/work & I’ve had more remote social contact this week than in years! Yay! 2) everyone’s spent less than a week living my daily life & is losing their minds. oh, that hurts
this! i’m getting torn between 2 conflicting states 1) everything’s more accessible! i can do courses/chat/work & I’ve had more remote social contact this week than in years! Yay! 2) everyone’s spent less than a week living my daily life & is losing their minds. oh, that hurts
Jennifer Brea is the 2019 recipient of the Invisible Disabilities Association’s first ever Media Impact Award. She brought visibility to people with #MECFS with the international award-winning documentary film Unrest. Congratulations! invisibledisabilities.org/seminarsandeve…
@DrMaureenHanson Wow “In more than two dozen interviews, scientists whose ideas fell outside the dogma recounted how, for decades, believers in the dominant hypothesis suppressed research on alternative ideas:They influenced what studies got published in top journals, which scientists got funded”
This article is a cautionary tale for any disease whose etiology is unknown, including ME/CFS. When I review a grant proposal with a novel hypothesis, I remind myself that I do not own a crystal ball. statnews.com/2019/06/25/alz…
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Richard Vallée @richardvallee
3K Followers 5K Following I play language. Mostly irreverent. Debugger. AI, global warming, integrity, healthcare & science. Chronically ill. #MillionsMissing #pwME #MEcfs
Jennifer Brea🦒 @jenbrea
41K Followers 2K Following Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID
#MEAction Network UK @MEActNetUK
7K Followers 610 Following UK branch of global grassroots movement @MEActNet. Empowering patients to fight for the #MillionsMissing with ME. Health equality & biomedical research now!
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
PwME 4 bioMEdical res.. @ValeBodi
4K Followers 2K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Oviya Thirumalai @OviyaThirumalai
788 Followers 5K Following Writer. Photographer. Poet. 🖤 Inuyasha, Hamilton, Tick Tick Boom, Newsies, Death Note Musical obsessed ❤ Theatre Reviewer
𝙎𝙢𝙞𝙡𝙚�.. @NotSmilezOnX
802 Followers 3K Following Youtube : https://t.co/gYNGl5V0KR I post this : ) every 24 Hours
Enzo Machado @EnzoMachad64312
0 Followers 25 Following
Kabarole Ngona @KabaroleN14697
23 Followers 204 Following
Martin Dennis @MartinDenn1
13 Followers 33 Following well i live in Washington DC but am originally from Florence Italy .
Eriwa collection ✂�.. @michael_ew53975
70 Followers 359 Following
Cash App Fundrasier @JenniferSm7989
29 Followers 323 Following Pull Out Your Phone, and Lap Top Computer Open Up Your Cash App & Cash App Your Donation. Each Fundraiser Tweet need your Cash App Donation.
Mark Jones @giveawaycla
75 Followers 1K Following I’m $402 million lottery winner in California I’m so blessed so I’ll be giving away $5000 to my first 1k followers, 💯Grateful & blessed 🙏🎁🎁🎁
@JAYSONCARSON @CARSON19677049
141 Followers 439 Following To exact revenge for yourself is not only right, it's an absolute duty.
Stanley Birigit @joebeacham10
232 Followers 543 Following
Iker Tenorio @TenorioIke65900
0 Followers 22 Following
Anand D @DAnand55637
12 Followers 220 Following
Suzan Jackson @livewithmecfs
4K Followers 4K Following Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
Elonmusk 𝕏 @ellonmusk98
134 Followers 4K Following
Frank @Vilipl1
97 Followers 323 Following
CleanTheAir @CleanTheAir2024
312 Followers 5K Following
Joe @bernard29344
877 Followers 2K Following I Identify as a pissed off American #ULTRAMAGA #PROGUN #PROTRUMP #CONSERVATIVE #TRUMPWON Backup account.
IES Fray Diego Tadeo @iesfraydiegot
50 Followers 44 Following Cuenta oficial 📍Ciudad Rodrigo (Salamanca) 📖 ESO, BACH y FP Informática (GB, GM y GS) #️⃣Etiquétanos! #iesfraydiego @iesfraydiegot
DR. James Anderson @ander59547
0 Followers 460 Following
🆄🅽🅺🅽🅾�.. @KJo80083107
187 Followers 2K Following
2007 @karutaaa2170
2 Followers 1 Following
Carlos @carloseducacyl
232 Followers 624 Following Profesor de Tecnología en el @iesfraydiegot #CompDigEdu
Daijun Pondexter @DaijunPondexter
427 Followers 5K Following
Rimaz 🩷 @RimazSalmanYazi
203 Followers 1K Following 🕉☯️♓️ • بحب شوف تفاصيل ما حدا بيلاحظها • Half angel 😇 Half evil 😈
Ceaghash @ceaghash77379
71 Followers 560 Following
Jean fago @FagoJean60721
0 Followers 4 Following
Treylong909 @treylong909
2 Followers 3K Following
Nastaez @nastaez14021
14 Followers 1K Following
Ali Ali @AliAli20234ever
101 Followers 2K Following
Jackson Hewitt @hew57250
3 Followers 45 Following
Choisie-Hogla Galag @ChoisieG
258 Followers 2K Following
Queen Crypto @QueenCrypto17
207 Followers 641 Following a strategic influencer, crypto enthusiast,🤑🤑🤑🤑
Keanu Charles Reeves @JAYDENG78188042
147 Followers 474 Following
ElleKnoxxxAu @au_knoxxx59181
209 Followers 1K Following 21 Pretty💜 Nude model with sweet BOOBS Vi always respond on my spicy site🥰 Text me WhatsApp I'm available 🇺🇲 +18388782581
Min Yoongi Suga BTS O.. @yoongi81075
6 Followers 73 Following
ยยสทมาห @YThmah94698
0 Followers 2 Following
อานนท์ �.. @xnnthkwwng10216
71 Followers 92 Following
Marshake @Marshake2432
12 Followers 671 Following
Vgjo @Vgjo453132
29 Followers 106 Following
Kendra F @SurvivingCFS
4K Followers 5K Following Disabled for a decade due to MECFS| Escaped homelessness | I’m advocating for those who can’t | See highlights tab for my free masking and disability art.
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Richard Vallée @richardvallee
3K Followers 5K Following I play language. Mostly irreverent. Debugger. AI, global warming, integrity, healthcare & science. Chronically ill. #MillionsMissing #pwME #MEcfs
Jennifer Brea🦒 @jenbrea
41K Followers 2K Following Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
#MEAction Network UK @MEActNetUK
7K Followers 610 Following UK branch of global grassroots movement @MEActNet. Empowering patients to fight for the #MillionsMissing with ME. Health equality & biomedical research now!
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Open Medicine Foundat.. @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Tom Kindlon @TomKindlon
14K Followers 579 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
PwME 4 bioMEdical res.. @ValeBodi
4K Followers 2K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
Sonya Chowdhury @SonyaChowdhury
3K Followers 520 Following Chief Executive, @actionforme and Board Director, @curo_group. All tweets and views expressed are personal & don'tt reflect the views of Action for M.E./Curo
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 206 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
#MEAction Scotland @meactionscot
2K Followers 711 Following MEAction Scotland is an affiliate of #MEAction, an international network of people working towards health equality for #MillionsMissing with ME.
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Suzan Jackson @livewithmecfs
4K Followers 4K Following Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
Effie Seiberg @effies
5K Followers 2K Following SFF/middle-grade fiction writer. Consultant. Dadjoke teller. Doggo fan. Sentence-fragment lover. #MECFS She/her. ( @[email protected] & @effies.bsky.social)
T Wolf 🌁 @Twolfrecovery
25K Followers 3K Following Recovery advocate. Formerly homeless. Director of West Coast Initiatives: FDPS. In recovery. Faith, Hope, Love. Half measures avail us nothing.
Alex Stamos @alexstamos
98K Followers 2K Following You can find me at: https://t.co/Enct5hx8bS https://t.co/CuE5u72rhW
Kate Starbird @katestarbird
54K Followers 3K Following Putting this account to sleep for the time being. Perhaps until the dust settles on this platform. Or not. Might go here: @[email protected]
Daphne Keller @daphnehk
30K Followers 302 Following Platform Regulation Director, Stanford Cyber Policy Center. Former Google AGC. This is roughly my zillionth rodeo.
Thomas Rid @RidT
54K Followers 1K Following
Evelyn Douek @evelyndouek
18K Followers 882 Following Assistant Professor @StanfordLaw. Aussie struggling with °F & online speech stuff. @[email protected]
Joan Donovan, PhD �.. @BostonJoan
45K Followers 5K Following Founder the Critical Internet Studies Institute & BU Asst Professor of Journalism. Whistleblower coverage from Washington Post: https://t.co/MSEz9RhVQn
Jill Tucker @jilltucker
10K Followers 847 Following Jill Tucker knows the rules of tether ball and sort of gets why one might need to solve for X and so she is the k-12 education writer at the SF Chronicle.
Renee DiResta @noUpside
76K Followers 1K Following studying pathological information systems @ Stanford Internet Observatory @[email protected], bsky https://t.co/8Ps3NuXQkS
lawrence wilkinson @lhwilkinson
376 Followers 197 Following Serial entrepreneur, turned advisor/investor, mostly to not-for-profit and social ventures
Elizabeth Gilbert @GilbertLiz
256K Followers 562 Following Author of EAT PRAY LOVE, BIG MAGIC, THE SIGNATURE OF ALL THINGS, CITY OF GIRLS, and a bunch of other books.
MEpedia @MEencyclopedia
3K Followers 776 Following The MEAction encyclopedia, crowd-sourcing the history, policy & science of the disease. Edit and improve an article today! @MEActNet
M. and S. Shaw @twoShaws
2K Followers 3K Following Person w/ severe #MyalgicEncephalomyelitis #MyalgicE (ME/cfs) & her M.E. advocate spouse/caregiver. Before: Architect, software interaction designer.
Eileen 🔊 @TurnItUp4ME
2K Followers 933 Following Advocate; Former Federal Committee Advisor, Department of Health and Human Services, Washington, DC
Lucinda Bateman @LBatemanMD
6K Followers 695 Following Physician determined to mainstream ME/CFS and FM into modern science and medicine
Maureen Hanson @DrMaureenHanson
6K Followers 145 Following I am a Professor in the Molecular Biology and Genetics Department at Cornell University in Ithaca, NY.
mary dimmock @marydimmock
2K Followers 457 Following
The Film Stage 📽 @TheFilmStage
164K Followers 2K Following Your spotlight on cinema since 2008. Get our daily newsletter: https://t.co/DLIPxZmDnW
Michelle Obama @MichelleObama
22.1M Followers 18 Following Girl from the South Side and former First Lady. Wife, mother, dog lover. Always hugger-in-chief. #TheLightWeCarry
Hillary Clinton @HillaryClinton
31.2M Followers 995 Following 2016 Democratic Nominee, SecState, Senator, hair icon. Mom, Wife, Grandma x3, lawyer, advocate, fan of walks in the woods & standing up for our democracy.
Dr Sarah Myhill @MyhillNews
6K Followers 5K Following Pls do not use to report health concerns.Detailed questions about Dr Myhill's protocols not answered.Staffed by Craig Robinson on a voluntary basis
Mady Hornig, MA, MD @mhornig
3K Followers 3K Following Translational MD-scientist, mom, 🎶 | microbes + the 🧠 | gut-immune-brain axis | #autism #ADHD #PANS #TRD #LongCOVID #MECFS | views mine
(Roughly) Daily @RoughlyDaily
678 Followers 790 Following Lawrence Wilkinson: https://t.co/JaSGT6woni https://t.co/rr5w1AostF https://t.co/OoeNYDCbrh
Dave Toussaint @engineco16
14K Followers 449 Following #BePrepared Retired from Cal Fire, Fire Reporting, Wild Critter Lover, Photographer and Metal String Bender.
County of Sonoma @CountyofSonoma
28K Followers 417 Following Official County of Sonoma CA Emergency info: https://t.co/nEoVUOFNAn Accessibility info: https://t.co/itmSpvonke… Social Media Policy: https://t.co/2ZN3IJo8mu
CAL FIRE LNU @CALFIRELNU
30K Followers 566 Following Official incident & safety message site for the @CAL_FIRE Sonoma-Lake-Napa Unit (LNU) covering Colusa, Lake, Napa, Sonoma, Solano & Yolo counties.
Bob Wachter @Bob_Wachter
269K Followers 298 Following Chair, UCSF Dept of Medicine. Career: What happens when a poli sci major becomes an academic physician. Author: "The Digital Doctor". Hubby/Dad/Grandpa/Golfer.
The Atlantic @TheAtlantic
2.1M Followers 1K Following Exploring the American idea through ambitious, essential reporting and storytelling. Of no party or clique since 1857. https://t.co/uHeZCz8ahz
Jacinda Ardern @jacindaardern
773K Followers 4K Following Former Prime Minister of New Zealand. MP for Mt Albert. Authorised by Rob Salmond 160 Willis St, Wellington
Ira Deutchman @nyindieguy
11K Followers 1K Following Film Producer, Marketer, Distributor, Professor and Cubs Fan, not necessarily in that order. Views expressed are my own & not my employers or the Cubs.
KatlaT.CarersForCovid.. @KatlaToans
262 Followers 783 Following Leftie ex-academic with a hearty lust for life & enquiring mind.Typical Brit, does anything for animals & a cuppa tea. Carer. Living with #MECFS since 2010 💙
Sonya @sonya_lala_
2K Followers 495 Following Former US Foreign Svc Officer disabled by post-viral #MEcfs, now fighting for her life & for equal rights for those w this debilitating disease. #LongCOVID ally
Carol L. Binks @carolbinks
3K Followers 2K Following Healing myself. Supporting others with neuroendocrine/immune system illness commonly known as #ME. Sharing research. Denouncing unscientific claptrap. #MCAS
Shelby Rallis @MEflattened
1K Followers 400 Following Sidelined by ME 2016. Homebound, typically horizontal. Dreaming of return to beloved Ireland to volunteer at James Joyce Tower Museum, Sandycove.
NBC Bay Area @nbcbayarea
420K Followers 2K Following Thank you for stopping by @NBCBayArea - the place to go for exclusive local stories, breaking news, weather and sports. Facebook: https://t.co/EID86FEI8f
Hillary Johnson: jour.. @oslersweb
4K Followers 952 Following The Why "Delicious" "Devastating" "Indispensable" Reimagining Ruth "..has a raw power" Osler's Web "A relentless, meticulous, highly persuasive expose."
@invest_in_me (Invest.. @Invest_in_ME
8K Followers 734 Following An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
dov @DovZeller
2K Followers 4K Following He/him. Founder of Tiny Golem Press, author of The Right Thing to Do at the Time & Book of Hats. #queerwriters #disabledwriters #pwME #homeboundphotography
ME/CFS Skeptic @mecfsskeptic
2K Followers 395 Following Exploring the history of psychosomatic medicine
Jessica Taylor-Bearma.. @jayletay
5K Followers 2K Following Author of A Girl Behind Dark Glasses and A Girl in One Room. and A Girl Beyond Closed Doors Winner of Best Non-Fiction at The People’s Book Prize She/her
Robyn James 💙 #FBP.. @Invisible_ME_FR
413 Followers 181 Following British Mum living in France with #MECFS & #POTS - #PwME #EMSFC #Spoonie #MillionsMissing 💙
@DiaryofaSickGrl Someone pls explain this to my mom…who is a doctor… Bc every time I bring up making financial & other future safety net plans accounting for baseline not improving, she acts like I’ve said something sacrilegious It’s exhausting & completely unhelpful
A note left on the hospital staff whiteboard by Dr. Kenneth Krell, director of eastern Idaho’s largest intensive care unit. #idahoCovid19
Y’all. My mind just exploded.
I wonder how many people have an hour long strategy session before talking to their GP...
I'm always flabbergasted by the schoolyard taunts in politics, but also by the use of weird & outdated terms. Really going for that 80+ demographic I guess
Covid-concerned parents: We’re treating Halloween like an egg hunt this year. Bought candy and LED lights to put in little plastic jack o’lanterns and apples, and a couple black-cat baskets. The kids are into it! Links to some stuff I found below.
@rndNumGen x.com/theradr/status…
May this be a year of health. Of safety. Of caring. Of connection. Of justice. Of democracy. Of righteous action. Of inspiration. Of creativity. Of truth. Of solidarity. Of generosity. Of hope. Of joy. Of love. Of honoring the light in one another. ❤️ Shana tova.
Exercise Therapy was my life before Covid-19; now it is my nemesis. Don’t try and exercise your way out of #LongCovid. Pace, Accommodate, Convalesce. When able, enjoy a gentle walk. Don’t push it. @MEAssociation @DrRobCopeland @PhysiosForME
With empirical evidence that post-exertional malaise with the chronic fatigue syndrome is a metabolic impairment, will people with #longhaul Covid-19 recover? Or is this a permanent disability? And any advice on treatment?
To get through hard times, some people start drinking. I, apparently, have taken-up ice cream.
WE HAVE A DICTATOR BECAUSE YOU DIDN’T VOTE FOR THE WOMAN
Today my dog “Duke” barked his last.14 years and 4 months old. He was a good un. Give him a cheer #dogsoftwitter
OK, so I FINALLY watched @jenbrea 's movie, #Unrest , and it is so good! If you haven't seen it yet, it's currently on Netflix - go check it out before it's gone. (Or rent it on Amazon Prime.) #ChronicIllness #Disability #NEISvoid
Twitter - it’s my 27th birthday today🎈 What does one do in this lockdown situation? Get dolled up of course! 💃🏼
this! i’m getting torn between 2 conflicting states 1) everything’s more accessible! i can do courses/chat/work & I’ve had more remote social contact this week than in years! Yay! 2) everyone’s spent less than a week living my daily life & is losing their minds. oh, that hurts
Such an odd time to be chronically ill: you’re more restricted than ever but also life has never been more accessible. Remote working is the norm. Friends groupchat. Musicians stream concerts. Media give tips on isolation. Suddenly everyone‘s housebound and the world has adapted.
I've never been able to attend one of my husband's undergrad statistics lectures, although I've always wanted to sneak in and sit in the back. Overhearing him record his first week of virtual classes is super cute. Be still my nerd heart. ♥️
Bay Area scientists, we are in need of Bio-Rad CFX384 RT-PCR machines. The more we have, the more tests we can run at UCSF for COVID19. Also more Bravo liquid handlers. We need these specific pieces of equipment, not others as all need to be replicated stations. Please retweet.
Silver lining in this for us is that we have our two adult children home (universities closed) and we’re savoring time as a complete family unit under one roof. The baby (9yo) got emotional when she connected those dots. The rest of quickly followed.
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