Parenting With NETs @ParentWithNETs
A resource for parents who have Neuroendocrine cancer. Help for raising children while coping with cancer and chronic illness. parentingwithnets.com Joined September 2016-
Tweets32
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Followers87
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Following76
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Likes17
#summervacation this year means traveling with my own IV fluids. Road tripping through parts of… instagram.com/p/BWfLq16AbVQ/
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Parenting With NETs retweeted
Here are some great thoughts on what your friends with cancer want you to know: spr.ly/60168W35r.
After a week of house guests, church meetings, and a family wedding, today is laundry day. How… instagram.com/p/BVzzNvIALuJ/
Parenting With NETs retweeted
"Surviving" Dadhood: A Practical Guide: This dad makes his health a priority so he can be around for his daughter bit.ly/2rzOwF4
Parenting With NETs retweeted
Living with #NeuroendocrineCancer - 6 tips for conquering fear ronnyallan.com/2017/06/08/liv… via @RonnyAllan1
Parenting With NETs retweeted
#NETCancer expert physicians presenting at #ASCO17 include Drs. Diane Reidy-Lagunes, Emily Bergsland & Manisha Shah. am.asco.org
Parenting With NETs retweeted
Living with a chronic illness -- the true experience of not being able to work. themighty.com/2017/05/not-wo…
Parenting With NETs retweeted
A great way to manage NETs is through acupuncture, #nutrition and stress reduction: spr.ly/60138gyXb #PhillyNETs
Parenting With NETs retweeted
They were inspirational, representing different #NETCancers! Great conference all involved!! Thanks @CureNETs & @PennCancer!
They were inspirational, representing different #NETCancers! Great conference all involved!! Thanks @CureNETs & @PennCancer!
Parenting With NETs retweeted
Live stream. The 6th Annual Focus on NETs Conference at the University of Pennsylvania. Opening remarks begin at... fb.me/5NVyJpY20
Parenting With NETs retweeted
ICYMI, read the full #HIAYAchat via @Storify. We'd love to hear what you have to add to the conversation! #ayacsm storify.com/huntsmancancer…
Parenting With NETs retweeted
A2. There is no "good time" to have cancer, but the years of potential life affected by an AYA diagnosis are truly staggering #hiayachat
#parentingwithnets - support for parents facing NET cancer.
#parentingwithnets - support for parents facing NET cancer.
Parenting With NETs retweeted
The Carcinoid NETs Health Storylines app is now available in the UK, Ireland, Australia, New Zealand, and Singapore! carcinoid.org/2017/04/17/car…
Yesterday, E and I went to a playgroup with some other moms and tots. It was the first time I… instagram.com/p/BS1M4D7gVsz/
Parenting With NETs retweeted
I was published on @TheMightySite today: Why having a chronic illness makes you a better parent: themighty.com/2017/03/parent… --- #diabetes #T1D
Parenting With NETs retweeted
In the war on #NeuroendocrineCancer, let’s not forget to win the battle for better quality of life - wp.me/p4AplF-2eH #consequences
Part 3 - Books for Helping Kids cope features books with kids whose dads who have cancer: parentingwithnets.com/2016/10/10/boo…
Parenting With NETs retweeted
@tim_cook RIP #SteveJobs taken by #neuroendocrinecancer 5 Oct 11. A very underfunded disease. Great if you would RT to remember Steve today?
Raquel González @69ahc6tzQ99CBK
32 Followers 2K Following 現在、アルバイトの募集をしています。勤務時間:30~90分。日給7,000円～50,000円！ ✨ すぐお金になる副業 今直ぐ即金で稼ぐ事が出来る在宅ワークになります🌈 副業相談LINE追加:【https://t.co/00L110H1hN】
Sam Nordic @sam_nordic
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Ronny Allan @RonnyAllan1
6K Followers 4K Following @HealthUnion Certified Patient Leader, 3 x WEGO Health (now Health Union) Award Winner, Brit/Scot, Veteran, opinions mine. #NeuroendocrineCancer
ChicagoSwede💛🇸�... @ChicagoSwede27
277 Followers 3K Following #FightingNETCancer #Autoimmune #AutismAdvocate #RescueDawgs🐾 #EqualityForALL
Beth Leonard @Guruofprocess
191 Followers 338 Following Blogger, volunteer, quality expert, random jack of all trades, and living with NETCancer
casey white @caseywh02719904
116 Followers 779 Following Paramedical Tattoo Artist Specializing in Areola Tattooing and Training
Tom Parsons @TomPars66126624
413 Followers 499 Following Proud dad,pa and foster dad of 6 wonderful kiddos. Happily married, Cancer Fighter and firm believer of doing the right thing.
jewels @JewelsMajestic
246 Followers 1K Following Matchmaker,🍕Enthusiast, ❤️🐾&Music! Much appreciation and ❤️Fam,Friends,🌎! support #CureNETs #Netcancer #CarcinoidSyndrome #CarcinoidNets
Earl Smith @Infowarpcom
415 Followers 1K Following I saw that one of the heads of the beast seemed wounded beyond recovery — but the fatal wound was healed! The whole world marveled at this miracle
Oncidium foundation @OncidiumFoundat
1K Followers 3K Following Support, promote and accelerate the development of radiotheranostics for cancer therapy, worldwide
Mick Button @DrMickButton
474 Followers 358 Following Dad, doctor (Consultant Oncologist @VelindreCC); AMD VUNHST; @TheGEAcademy PB 2020; @BevanCommission fellow: PhD student @SoMSwansea. Paddleboarder/SUP surfer
Erin Leibowitz @ErinLeibowitz
1K Followers 3K Following Cancer lifer, Jewish, feminist. Raising awareness for #pnet #NETCancer #ayacancer. Fighting for #genderequity in medicine. She/her/hers
J Hernando @JHernando3
1K Followers 1K Following Medical Oncologist. Vall d'Hebron University Hospital. VHIO
Cancer Awareness @Cancer_Free_IND
2K Followers 3K Following Spreading awareness about Cancer and latest research in India. Advocating affordable and accessible cancer care in the country. Early detection saves lives!
Tina Ratcliff @TinaRatcliff
84 Followers 362 Following I love science, technology, healthy lifestyle, and lifelong intellectual pursuits!
Dones en Actiu @DActiu
251 Followers 581 Following Mujeres empoderadas con ganas de cambiar las cosas en la lucha contra el cáncer.
Fernando Moreira de S... @FASMS21
27 Followers 879 Following
Help Leila @HelpLeila
675 Followers 2K Following I'm @CorruptNSW 29yr Leila neuroendocrine thymic cancer died17/2/2017 https://t.co/YDVe5szROe
Marty fannin @marty_fannin
17 Followers 216 Following
UKINETS @UKINETS
1K Followers 615 Following Official account of the UK & Ireland Neuroendocrine Tumour Society - for professionals involved in NETs https://t.co/F3RJMlWCB8
Meesh @squeeshymeeshy
813 Followers 574 Following Domestic Engineer. Love to drive. Love Plants. Love music. Love to Laugh. Diagnosed with an Insulinoma (Neuroendocrine Tumor of the Pancreas)
Y. Tamar Hirsch @TamarHirsch
34 Followers 231 Following Mother of 2 living with Neuroendocrine cancer of pancreas and liver with carcinoid syndrome, as well as a deep zest for life for my kids and my beloved husband
Glendra’s Love @glendraslove
85 Followers 596 Following Donating Chemo Care Bags to individuals fighting cancer. In memory of Glendra Raymond 7/31/49 to 12/14/2016 - NET cancer with an ovarian primary
Kat 🇬🇧💙 @zebrakat2013
430 Followers 2K Following Construction Professional/Neuroendocrine Cancer Fighter/Wordpress Blogger:Zebrakat/Etsy Shop: @pstampartistry, link below/#cancer #neuroendocrine #nets
膵内分泌腫瘍と... @N_E_T_P
87 Followers 265 Following 膵神経内分泌腫瘍 I'm patient of P-NET(G1)w/liver,bone meta from 2005.PRRT(study) treated 2019,Sunitinib&Denosumab 2020.JPN
Healing NET @HealingNET1
7K Followers 3K Following The Healing NET Foundation mission is to optimize the care of those with neuroendocrine cancer.
CNETSIndia @CNETSIndia
527 Followers 311 Following Patient advocacy, support group for Neuroendocrine cancers. Supporting NET Cancer patients and connecting specialists across the Indian subcontinent since 2014
Juday @juday39
102 Followers 319 Following
NetScotlandAECT @netscotlandaect
278 Followers 463 Following The Ann Edgar Charitable Trust, Scottish charity. Help & support to those affected with neuroendocrine cancer & tumours & carcinoid syndrome.
Jeanne YeeMcLaughlin @JeanneYee
202 Followers 273 Following When You Hear Hoof Beats Think Zebra - Nets Cancer and Carcinoid Syndrome Awareness
Unicorn FoundationNZ @UnicornFoundNZ
172 Followers 119 Following Advocating for patients with Neuroendocrine Cancers, (NET Cancers).
TheLibertarianWay @WayLibertarian
65 Followers 205 Following YHWH! Organic Homestead, Libertarian, Prosecute Monsanto, Harley Davidson, PTSD, Cancer survival & support. ADULT CONTENT & RECREATIONAL POT WILL BE BLOCKED
Theragnostics @Theragnostics
231 Followers 591 Following Theragnostics is a radiopharmaceutical company whose mission is to improve the lives of cancer patients with novel agents for molecular imaging and therapy.
Michelle Scully @Chellesfight
51 Followers 49 Following I am a mother of 5 beautiful children. Im fighting terminal Neuroendocrine Cancer (NETS) and Diabetes type 1, head on with positivity and a strong spirit.
Roger @REstafanosNJ
90 Followers 1K Following Views expressed are solely my own. RTs ≠ endorsements. Please fact-check information before sharing.
Susan Meckler Sylvan @sophierosemom
2 Followers 68 Following
Pamela Kunz, MD, FASC... @PamelaKunzMD
8K Followers 5K Following Div Chief GI Onc @YaleCancer | #NETs Editor-in-Chief, JCO OA @JCO_ASCO | ASCO FCOI: https://t.co/UuqIAQ54sX Public Voices Fellow of @TheOpEdProject
Danny Baldauf @danny_baldauf
8 Followers 71 Following
Progenics @Progenics
286 Followers 97 Following The official site for Progenics Pharmaceuticals, Inc. develops innovative medicines and other technologies to target and treat cancer. Nasdaq: PGNX
Laura Robinson-Marsh @LauraTKD1981
327 Followers 407 Following
Neuroendocrine Cancer... @ncukcharity
5K Followers 6K Following Supporting the #Neuroendocrine Cancer community, incl diagnosis, access to best treatment & care - and stimulating research. Helpline 0800 434 6476
Mark Lewis, MD, FASCO @marklewismd
93K Followers 35K Following Director, GI Oncology, @Intermountain. Interests: neuroendocrine tumors, cancer syndromes, empathy (even had a Whipple myself). Tweets my own.
Isabella Oronova @isabellaoronova
143 Followers 442 Following Project officer at International Neuroendocrine Cancer Alliance @netcancerday, https://t.co/dCeD3QELyO. Communications expert, psychology and art are my passion.
Hot For Hope, now Hel... @hotforhope
165 Followers 635 Following Helping children whose parents have cancer with compassion and understanding. Please visit @helpwhope
Abdelali (Ali) Majdi,... @alitimumab
2K Followers 5K Following #MedicalAffairs #Oncology🧬 #RareDiseases #Ophthalmology👁️ #CardioMed🫀#Innovation #Care #Diversity
Liau Kui Hin @kuihin
66 Followers 292 Following Hepatobiliary & Pancreatic Surgeon and Surgical Oncologist
Mark Chambers @Enigma14916
4 Followers 184 Following
Penn Medicine - Abram... @PennCancer
6K Followers 1K Following Penn Medicine - Abramson Cancer Center has proudly been an NCI-designated Comprehensive Cancer Center since 1973.
The Mighty @TheMightySite
50K Followers 2K Following Making health about people: When we ask how you’re doing, we actually want to know! Download our free app to join a community that gets it ✨
Janet Lansbury @janetlansbury
12K Followers 709 Following Passion for parent ed. Respect for babies as people. Author of No Bad Kids & Elevating Child Care. Host of "Unruffled"
Lisa Belfield @oz_iceprincess
1K Followers 2K Following Ex Teacher; IT; writing; creative thinking; fibre arts & photography. Wish I was kicking NET'S butt. Conduit of information. I ATE'NT DEAD
Stacie Chevrier @StacieChevrier
704 Followers 712 Following @RIServiceDogs Puppy Wrangler🐕 Yogi 🤸♂️ Writer 👩🏼💻 Wanderer 🌍 Cancer student 👩🏼🏫 Madame 🇫🇷 Camino Pilgrim 🐚 @FirstDescents Alum 🏄🏼♀️ Vipassana Sitter 🧘🏻♀️
Alaias4Carcinoid @WOWCarcinoid
326 Followers 433 Following Waves of Awareness for Carcinoid Cancer. Traditional wooden finless Alaia surfboards used to fight carcinoid cancer. Over 625 sessions surfed since 2013!
Danica Corey @Mmin_svart_ros
2 Followers 16 Following
ckaa @ckaaarchive
236 Followers 152 Following
Camp Kesem at CSUN @CampKesemCSUN
60 Followers 65 Following Providing free summer camps for children through and beyond a parent’s cancer in the Los Angeles area.
Camp Kesem UofA @CampKesem_UArk
46 Followers 34 Following Providing free summer camps for children through and beyond a parent's cancer in Arkansas.
Camp Kesem Marquette @campkesemMU
64 Followers 51 Following Providing free summer camp to support children through and beyond a parent's cancer in the greater Milwaukee area.
Dads4Kesem @Dads4Kesem
158 Followers 156 Following In July we will walk the length of Hadrian's Wall to raise money for a new Camp Kesem Chapter at the Univ. of MD in honor of the late Oren Miller.
Camp Kesem at UF @CampKesemUF
265 Followers 336 Following Providing free summer camps for children through and beyond a parent's cancer in the North and Central Florida areas.
Camp Kesem at UofM @CampKesemMich
284 Followers 255 Following Providing free summer camps for children through and beyond a parent's cancer in the Southeastern Michigan area.
Camp Kesem at UVa @CampKesematUVA
161 Followers 148 Following Providing free summer camps for children through and beyond a parent’s cancer in the Virginia area. // http://t.co/1F3WIDBvk6
Camp Kesem Minnesota @CampKesemUMN
281 Followers 139 Following Providing free summer camps for children through and beyond a parent’s cancer in Minnesota http://t.co/YLEO7i8oYp
Camp Kesem USC @CampKesem_USC
173 Followers 107 Following Providing free summer camps for children through and beyond parent’s cancer in the Southern California area http://t.co/fQ9xQbqcjO
Camp Kesem at UCSD @CampKesemUCSD
289 Followers 155 Following Providing free summer camps for children through and beyond a parent's cancer in San Diego, CA https://t.co/a8YeVGqatY
Camp Kesem at UCLA @CampKesemUCLA
333 Followers 243 Following Providing free summer camps for children through and beyond a parent’s cancer in the Los Angeles area!
Camp Kesem at UW @CampKesemUW
295 Followers 201 Following Providing free summer camps for children through and beyond a parent’s cancer in Washington state. // http://t.co/9qIuUKdP5C
Camp Kesem NC @CampKesemNC
384 Followers 194 Following Providing free summer camps for children through and beyond a parent’s cancer in North Carolina // http://t.co/A86PHrpDuV
Camp Kesem W&M @campkesem_wm
117 Followers 42 Following Providing free summer camps for children through and beyond a parent’s cancer in Virginia. Donate here: http://t.co/4f1OLd0UDP
CampKesem StonyBrook @CampKesemSBU
366 Followers 326 Following Providing free summer camps for children through and beyond a parent’s cancer in the Long Island, NY area. // https://t.co/sFvMnMwKDW
CampKesem@SUU @CampKesemAtSUU
170 Followers 43 Following This is Camp Kesm at Southern Utah University! Camp Kesem is a college student run camp for children with parents who either have or had cancer.
Camp Kesem at UPenn @CampKesemUPenn
151 Followers 91 Following Providing free summer camps for children through and beyond a parent’s cancer in Philadelphia and the surrounding suburbs
Kesem @CampKesem
3K Followers 905 Following Supporting children through and beyond a parent’s cancer nationwide. #KesemMagic
NET Patient Network @NETPatient
534 Followers 5 Following We are a patient support group for Neuroendocrine Tumour patients in Ireland
Bob & Maryann @CCANCONFERENCES
155 Followers 194 Following CCAN INC is a non–profit charity whose mission is to intensify awareness of Neuroendocrine Tumors & Carcinoid Cancer. Contact us for a free information packet.
Novartis Cancer @NovartisCancer
28K Followers 348 Following Join the conversation as we work to improve the lives of those with cancer. See our community guidelines: https://t.co/KWTwKv5451
Walking With Jane @HarryProudfoot
514 Followers 649 Following Walking with Jane is a foundation dedicated to eradicating Neuroendocrine Tumor Cancer.
Tara Whyand-Dietitian @LadyNourish
907 Followers 640 Following U.K Dietitian MSc BSc #NeuroendocrineCancer #NeuroendocrineTumour #Research #Oncology #BetterNutritionalCare #LetsTalkAboutNETs
annie Laing @grandma_hockey
1K Followers 72 Following I am the grandma of 3 granddaughters from one son. my passed away on Jan 1st 2020. I have lost my fiend and my hero I. happily married for 25 years
CNETSIndia @CNETSIndia
527 Followers 311 Following Patient advocacy, support group for Neuroendocrine cancers. Supporting NET Cancer patients and connecting specialists across the Indian subcontinent since 2014
Northwoods NETS - MN ... @NorthwoodsNETS
738 Followers 647 Following Dawn Marie | 17 year #PNET #RN #MSN #PHN #neuroendocrinecancer #Basel #BadBerka #pancancer #thriver #livertransplant #NETCancer #PRRT #lu177 #y90 #ac225
Steve B @broudsters
105 Followers 464 Following Be bold; keep moving, living, and enjoying everything life has to offer; it’s a big world #wagehope #endcancer #FightOn 💔✌️
Healing NET @HealingNET1
7K Followers 3K Following The Healing NET Foundation mission is to optimize the care of those with neuroendocrine cancer.
Mel Mann, MBA, M.Ed, ... @MelDMann
485K Followers 250K Following WORLD’S LONGEST #Gleevec & #TKI Survivor, 30+ Year Terminal Leukemia Survivor, Army Retired, The OG of Clinical Trials with the Street Creds! ΩΨΦ
Tore Aasbu @ToreAasbu
223 Followers 245 Following Styreleder for pasientforeningen CarciNor, NET Cancer survivor - who is still living :) Lets talk about #cancer, #netcancer, #carcinoid
The LMF @TheLMF
226 Followers 237 Following The Lois Merrill Foundation (“The LMF”) is a non-profit organization raising money to help rare cancer patients pay the cost of the medical care.
CarciNor @CarciNor
556 Followers 662 Following CarciNor for alle som er engasjert i nevroendokrin kreft (NET-kreft). The Norwegian patient advocacy group for #NETcancer, #carcinoid.
Jane Levinston @jolevinston
96 Followers 516 Following CANCER SURVIVOR ,Mother, Poet, Writter, Editor , Fighting cancer. loving life. dont waste a minute. enjoy your life. #poet #cancersurvivor #battlecancer
Madeleine @mdlnh
147 Followers 459 Following Spinlock, mildly obsessed with the Isle of Wight and Britney.
BeatingCancerInHeels @cancerinheels
2K Followers 26 Following Beating Cancer In Heels is a not for profit dedicated to the empowerment of young women with Cancer.
Neuroendocrine Cancer... @ncukcharity
5K Followers 6K Following Supporting the #Neuroendocrine Cancer community, incl diagnosis, access to best treatment & care - and stimulating research. Helpline 0800 434 6476
NET Research Foundati... @CureNETs
5K Followers 2K Following Largest private global funder of Neuroendocrine Cancer research & expert resources for patient education. Research. Education. Advocacy.
CNETS @CNETSCanada
1K Followers 211 Following Building towards a cure for Neuroendocrine Tumours and Cancers through Research, Education, Awareness and Support.
Pheo Para Project @PheoParaProj
987 Followers 1K FollowingTrends for United States
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