Paty M @PatriciaMghms
Joined April 2013-
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We just had a nice share of thoughts and experience on #PPI (Public and Patient Involvement) @PPI_Ignite_Net in MS here in the #AIMSRN2024 symposium in @tcddublin, lead by Alison Cotter from @MSIRELAND🤔💭
The countdown begins…⏰World MS Day is one month away! This year marks the launch of the new campaign - My MS Diagnosis. Together, we are advocating for early and accurate diagnosis for everyone living with MS.🧡 Are you ready for action? #WorldMSDay #MyMSDiagnosis
📽 We're thrilled to launch an inspiring video "Amplifying the voices of tomorrow! " - A Call to policy decision-makers, healthcare professionals, social care providers, & individuals alike to unite for a brighter future. 👉Watch here: rb.gy/tlyha9
🗣️We Need You - Nominate MS Ireland for a £5,000 award. Benefact Group’s Movement for Good awards is closing for nominations soon. Please follow the link below, search The Multiple Sclerosis Society of Ireland and vote for us. health.movementforgood.com/#nominateAChar… #movementforgood
My story about football and Ms was yesterday in the local newspaper! Once again, we showed how with motivation and faith, you can achieve your goals! The best thing, I am not done, I have more goals! 💪🏻⚽️ #BVB #MultipleSclerosis #advocacy
“United, we empower. Together, our one million minds can ignite change, shape futures, and conquer any challenge. Join me in supporting the #OneMillionMinds campaign - because every mind matters in building a brighter tomorrow.” -@HerbertTemmes ➡️ bit.ly/49ITNj1
🔬 Delving into the intriguing link between #MS & #EBV! Prof. Delecluse discussed crucial insights at @EMSP annual conference ➡️Understanding EBV's impact and its potential connection with MS offers hope for better treatments. 👉More here: emsp.org/projects/behin… #HorizonEU
Blood test predicts MS in some ppl years before first symptoms, @UCSF scientists say. In 1/10 cases of MS, researchers found the body produces a 'distinctive' set of antibodies against its own proteins long before symptoms emerge. Study in Nature Medicine ucsf.edu/news/2024/04/4…
Exciting panel on the involvement of patient in research, making sure their views are present and help the results through the whole process of #clinicaltrials, from the very #designphase. Views of patients, patient organisations and drug developers discussed at #EMSP2024
And that's the end of the #EMSP2024 Annual Conference! Thank you to all our onsite and online participants, speakers, and panelists for making these two days a great success! 🥳 Thank you to all our sponsors as well for their support. See you next year 🤩
An intensive educational experience with brilliant communicator @CarmenTur1 🤩 from @cemcat_em 👏🏾 about PIRA- Progression Independent of Relapse Activity & having a holistic approach. So helpful to understand changes with your connection not obviously with relapses 🧠 #EMSP2024
Professor Laureys just provided a comprehensive overview of stem cell therapy's potential for #MS patients! 🧬Topics covered included its integration into MS management to exploring efficacy, safety, and future advancements #StemCellTherapy #MSResearch #EMSP2024
Unpacking Progression Independent of Relapse Activity (#PIRA) in #MS with @CarmenTur1 : ✔️Challenges traditional management 🩺Emphasizes holistic care 🙋More involvement between doctors and patients 👩🔬Need for more research #EMSP2024 #MultipleSclerosis #PatientCare 🧠
📊 Exciting insights from our MS symptom management session with @peterfeys_ 💬 Preliminary IMSS results and the power of Patient Reported Outcomes were discussed, empowering individuals with MS in their care. #EMSP2024 #MSResearch #PROMs #MultipleSclerosis #IMSS 🧠
Discussion with @AnneHelme from MSIF, Samantha Raby, Martin Traber, Janneke Van Wingerden, and @aoifemkirwan on communicating research ➡️ Patient involvement is key. How? 👉 bit.ly/3W834Od ➡️ Inclusivity, diversity, and accessibility to treatment is crucial #EMSP2024
Let’s go for the second day of the #EMSP2024 Annual Conference! 💪 Starting with a discussion on diversity and inclusion in MS with @Lili_Bxl, @emmadragon and Tania Pilz ➡️ It is important to create a safe space for different communities and represent their needs in MS societies
.@AnneHelme from @MSIntFederation leading on a discussion on the value of including people with #MultipleSclerosis in #research to 🔹️identify research priorities 🔹️design research 🔹️develop engagement plans 🔹️pilot plans 🔹️communicate importance & results #EMSP2024
Two incredible ladies, @emmadragon from @eumsplatform & Tania Pilz from @eumsyouth talking about their experience with #MultipleSclerosis, the importance of #inclusivity and representation of #minorities, #migrants & #LGBTQIA🌈! #EMSP2024
Learn more about the relationship between aging and #MS in our upcoming webinar, where experts will discuss the underlying science & considerations for clinical research & care @msociety 🗓️ 30 April, at 16:00 CEST ✅ Register here ➡️ bit.ly/3Ukr1j5
Last session of the day with @mafalda242 from the Italian organization for people with NMOSD, @BrusselsDC, from the European Brain Council, and @jouan_solene, from EURORDIS about advancing research for MS in Europe! Thank you for sharing your insights 🤩 #EMSP2024
Maren Pitts @MarenPitts58722
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Cherry 💋 @Cherry_Haley273
3 Followers 578 Following Opеn to nеw exрerienсes аnd reаdу for рassiоnatе сonnеctions
Anna Revilla @annarevillab
215 Followers 275 Following MS #Youthadvocate for @eumsyouth and @epfyouthgrou. Now in @Europarl_EN- Brussels
Carmen Tur @CarmenTur1
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674 Followers 979 Following biologist | ecologist | president of @MS_Platforma | advocating for better treatment availability for #MS patients | always need🐈🐕☕
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119 Followers 102 Following A Joint Global Initiative on Patient Reported Outcomes for #MultipleSclerosis powered by @MSIntFederation, @EuropeanCharcot and @AISM_nazionale
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247 Followers 324 Following Advocating for a better world starting now and here. Debating helps improving. Let's talk...
ESTEVE Global @ESTEVEglobal
1K Followers 592 Following We are an international speciality pharmaceutical company with a clear purpose: to improve people's lives.
eumsyouth @eumsyouth
70 Followers 67 Following Advocacy, awareness raising, and connection for the benefit of young people living with #MultipleSclerosis in Europe. A project of @eumsplatform
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Simina Peterfi @PeterfiSimina
175 Followers 298 Following Don't be mean, be green 🌱 | @UNUMERIT alumna | @ONEinEU Youth Ambassador #ONEActivist
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Joanna @Joxybrown
194 Followers 158 Following Marketeer. Love cooking. Enjoy exploring new places. TV series addict. Newly a mother.
Darine Sabbagh @sdarine
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Donner Sang Compter @DSCLebanon
19K Followers 2K Following Give Blood, Give Love, Give Life. | 🚨 For blood emergencies: 📞01/390320 03/314868 | Check the daily LIVE need for blood around you and donate! 🩸🇱🇧.com
dareen @DareenShatila
36 Followers 201 Following
Erin Grayson MS, RD @eringraysonRD
729 Followers 1K Following bariatric & weight management dietitian. educating & empowering patients. cooking, barre, and traveling are some of my faves.
Corry Curtis @corrycurtis
464 Followers 2K Following Owner of Bonnieheath Estate Lavender Farm & Winery. Evidence-based policy advocate. Focused on health, family, farm & community. She/her 🦋🌷🌱
Christele Daccache @christele_d
489 Followers 753 Following Certified nutritionist, yogi, blogger, cooking, eating and advocating real food
KS @kerriruns
23 Followers 313 Following
Ivan Brovkin @brovkiin
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Jan Laffan @Jalaffan
106 Followers 1K Following Views are almost certainly not my own. Nutrition, Cycling, Active Transport
Healing Inspirations @RisingSign
40K Followers 51K Following ❤ Promotion of health & happiness. All is connected Ⓥ Be A Part Of The Change https://t.co/qWyQfmPOa9
CalorieGuess Game @CalorieGuess
389 Followers 2K Following Free iPhone game to test your calorie judgement skills across different menus - dedicated to everyone involved in promoting better food and nutrition.
DFPI @IntegrityRDs
3K Followers 3K Following Dietitians for Professional Integrity. Advocating for ethical and socially responsible corporate sponsorships within the Academy of Nutrition and Dietetics.
hera - right to healt.. @heraBelgium
448 Followers 1K Following We work to improve access to affordable health care for all by building sustainable institutions, organisations, systems and human capacity.#UHC #HealthForAll
Carmen Tur @CarmenTur1
1K Followers 1K Following Neurologist, MS Centre of Catalonia (Cemcat), Vall d'Hebron Hospital; Honorary Senior Research Fellow, Queen Square MS Centre UCL
Anna Revilla @annarevillab
215 Followers 275 Following MS #Youthadvocate for @eumsyouth and @epfyouthgrou. Now in @Europarl_EN- Brussels
CMSC @mscare
3K Followers 362 Following A professional organization for multiple sclerosis healthcare providers and researchers in North America, and a valued partner in the global MS community.
Paola Zaratin @paolazaratin
263 Followers 226 Following Director of Scientific Research - Italian MS Society and its Foundation
POLITICO @politico
4.6M Followers 1K Following Politics. Policy. Power. Congress nerds 👉 @politicongress Longreads and opinions 👉 @politicomag Got a news tip? 👉 https://t.co/JBzpu58Gx6
Trishna Bharadia BA(h.. @TrishnaBharadia
5K Followers 5K Following #HealthAdvocate #patientadvocate #patientengagement #multiplesclerosis #ms #chronicillness #patientleader BBC Strictly Come Dancing;DM 4 bookings;Views my own
Aaron Boster MD @AaronBosterMD
13K Followers 122 Following MS Neurologist & Spasticity Doc. Founder of The Boster Center For Multiple Sclerosis, https://t.co/EoJjH5eoVz. He/Him. Tweets ≠ medical advice. 🏳️⚧️🏳️🌈
MS-UK - Multiple Scle.. @MSUK6
8K Followers 4K Following MS-UK is the national charity supporting anyone affected by multiple sclerosis. RTs not endorsements.
Dr. Brandon Beaber @Brandon_Beaber
16K Followers 2K Following Neurologist and MS specialist. YouTube creator. Author of "Resilience in the Face of Multiple Sclerosis". Father of 2. Tweets my own & not medical advice.
Tim Coetzee @tim_coetzee
639 Followers 230 Following Chief Advocacy, Services & Science Officer at the National MS Society | Views and opinions are my own
Ivana Bogdanović @ibogdanoviic
674 Followers 979 Following biologist | ecologist | president of @MS_Platforma | advocating for better treatment availability for #MS patients | always need🐈🐕☕
iConquerMS @iConquerMS
5K Followers 1K Following iConquerMS: Empowering the #MS community to drive #MultipleSclerosis research. Join the online platform dedicated to fighting MS. Together, we can conquer MS!
Brain Innovation Days @BrainDays
2K Followers 2K Following Bringing the brain ecosystem together to foster dialogue, exchange knowledge, accelerate investment in research & innovation and facilitate business development
Alexander De Croo �.. @alexanderdecroo
255K Followers 347 Following Eerste minister van België • Premier ministre de Belgique • Premierminister von Belgien • Prime Minister of Belgium 🇧🇪🇪🇺
S&D Group @TheProgressives
139K Followers 9K Following The Socialists and Democrats Group in the European Parliament works for social justice, sustainability & equality for all.
SANT Committee Press @EP_PublicHealth
2K Followers 959 Following European Parliament Subcommittee on Public Health. Managed by Dana Popp. RTs ≠ endorsements.
Greens/EFA in the EU .. @GreensEFA
83K Followers 3K Following Our Group includes Green, Pirate, independent MEPs, MEPs representing stateless nations & minorities. BlueSky ➡️ https://t.co/ZCUqqr3kgZ
Multiple Sclerosis @Coping_with_MS
8K Followers 282 Following I'm Laura. How I cope with Multiple Sclerosis - I am middle-aged, madly in love and getting through life day by day! Life is an open road...where are you going?
LebanonFiles @lebanonfile
176K Followers 425 Following Leading Lebanese portal offering Live & Real-Time News from Lebanon & Middle East, Live Streaming, 24/7 Updates, Breaking News... https://t.co/6onvnyYgXX
Global PROMS Initiati.. @PromsInitiative
119 Followers 102 Following A Joint Global Initiative on Patient Reported Outcomes for #MultipleSclerosis powered by @MSIntFederation, @EuropeanCharcot and @AISM_nazionale
STIB-MIVB @STIBMIVB
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GasteinForum @GasteinForum
7K Followers 897 Following European Health Forum Gastein. Europe’s leading health policy platform. Save the date for the #EHFG2024: 24 - 27 September
Gavin Giovannoni, aka.. @GavinGiovannoni
15K Followers 14 Following I published “Can artificial intelligence algorithms fall in love?” on @Medium https://t.co/0r8JsLayv2
EFNA @EUneurology
4K Followers 1K Following European Federation of Neurological Associations (EFNA). Empowering neurology patient groups. Visit https://t.co/sVYOaonziu to learn more.
Debianka Mukherjee @TheDeBianka
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IJMSC @IJMSCtweets
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Professor_Bart @bart_professor
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Ursula von der Leyen @vonderleyen
1.5M Followers 249 Following President of the @EU_Commission. Mother of seven. Brussels-born. European by heart. 🇪🇺
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MS Together @MS_Together_
119 Followers 37 Following UK charity providing services of advice and support to people affected by multiple sclerosis (MS), with a particular focus on those aged 18-35 living with MS.
MSJ @MSJ_Research
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BRAINTEASER @brainteaser2020
319 Followers 614 Following Bringing #AI home for better care of #AmyotrophicLateralSclerosis and #MultipleSclerosis | #Horizon2020 project
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Emma Rogan 🕊️�.. @emmadragon
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ScienceAlert @ScienceAlert
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RIMS - Rehabilitation.. @eurims
855 Followers 86 Following European network for best practice and research in MS Rehabilitation.
European Youth Event @Europarl_EYE
20K Followers 3K Following We are the Youth Outreach Unit of the European Parliament✨ Join the 2024 Local EYEs - Berlin, Vilnius, Forlì, Brežice ⬇️We just had a nice share of thoughts and experience on #PPI (Public and Patient Involvement) @PPI_Ignite_Net in MS here in the #AIMSRN2024 symposium in @tcddublin, lead by Alison Cotter from @MSIRELAND🤔💭
On #WorkersDay and ahead of the #EUElections, we call on EU leaders to create the "European Disability Employment and Skills Guarantee": ▶️Earmarked funding from #EUBudget ▶️Employment, skills, accessibility ▶️Allows work while receiving allowances Read: edf-feph.org/publications/e…
🌟 European Mental Health Week 2024 Webinar 🌟 Join us & @EU_Health for an insightful webinar during #EuropeanMentalHealthWeek. Discover how involving all community members, especially those with lived experiences, in a co-creative approach can enhance innovative policy…
It's ok not to be ok. 🧠To mark the #EuropeanMentalHealthWeek, we are hosting an #EUHPP webinar to learn about the power of collaboration & co-creation when it comes to #mentalhealth. Register here👉 europa.eu/!TCkxpV #HealthUnion #BetterTogether
🌍✨ #EuropeanMentalHealthWeek is almost here! Get ready to connect, learn, and grow with us through a series of inspiring events and activities both online and at various locations across Europe! ✨ 📅 Whether you're looking to engage in insightful discussions, participate in…
📣 Our bi-monthly newsletter is out! Every two months we share our latest EUPATI updates as well as the developments & activities from our ENPs Want to get the details next time? Sign up to our newsletter▶️ bit.ly/3NT1lbd #EUPATI #StayingConnected #April #Newsletter #ENP
The countdown begins…⏰World MS Day is one month away! This year marks the launch of the new campaign - My MS Diagnosis. Together, we are advocating for early and accurate diagnosis for everyone living with MS.🧡 Are you ready for action? #WorldMSDay #MyMSDiagnosis
In 2016, Aoife Kirwan wrote a blog about disclosing her MS. Today, she looks back on whether she still feels the same way or not. Read Aoife's blog in full here: ms-society.ie/ms-and-me/look…
📽 We're thrilled to launch an inspiring video "Amplifying the voices of tomorrow! " - A Call to policy decision-makers, healthcare professionals, social care providers, & individuals alike to unite for a brighter future. 👉Watch here: rb.gy/tlyha9
New nutrition hacks, promising diets, or must-have supplements spreading like wildfire? 🔥 Don’t get burned! Watch out for these 🔟 warning signs to help you spot nutrition #misinformation.
🗣️We Need You - Nominate MS Ireland for a £5,000 award. Benefact Group’s Movement for Good awards is closing for nominations soon. Please follow the link below, search The Multiple Sclerosis Society of Ireland and vote for us. health.movementforgood.com/#nominateAChar… #movementforgood
My story about football and Ms was yesterday in the local newspaper! Once again, we showed how with motivation and faith, you can achieve your goals! The best thing, I am not done, I have more goals! 💪🏻⚽️ #BVB #MultipleSclerosis #advocacy
Join us on the last day of the #EMSP2024 Annual Conference, for sessions on PIRA in MS with @CarmenTur1, stem cell therapy, and the connection between MS and Epstein-Barr virus. Followed by a farewell lunch and a social program 🥳 Register here ➡️ bit.ly/47nOe8B
La @FundacionLilly ha lliurat el Premi de Recerca Clínica al Dr. @XMontalban, cap del Servei de Neurologia #VallHebron, director @cemcat_em i cap del grup de Neuroimmunologia Clínica @VHIR_. Enhorabona pel reconeixement als estudis en #EsclerosiMúltiple 👏 vallhebron.com/actualitat/not…
“United, we empower. Together, our one million minds can ignite change, shape futures, and conquer any challenge. Join me in supporting the #OneMillionMinds campaign - because every mind matters in building a brighter tomorrow.” -@HerbertTemmes ➡️ bit.ly/49ITNj1
🔬 Delving into the intriguing link between #MS & #EBV! Prof. Delecluse discussed crucial insights at @EMSP annual conference ➡️Understanding EBV's impact and its potential connection with MS offers hope for better treatments. 👉More here: emsp.org/projects/behin… #HorizonEU
Blood test predicts MS in some ppl years before first symptoms, @UCSF scientists say. In 1/10 cases of MS, researchers found the body produces a 'distinctive' set of antibodies against its own proteins long before symptoms emerge. Study in Nature Medicine ucsf.edu/news/2024/04/4…
📰 Beware of headlines shouting, "New study reveals..."! 💡 Remember: a single #ScientificStudy doesn't prove anything conclusively. What truly counts is the big picture painted by systematic reviews & meta-analyses, which gather and summarise all relevant studies on a topic.
#Shakespeare or #Swift? What a glorious display of our favourite tortured poets 🫶🏾❤️🤩 Thank you @ALibraryscience #TTPD
I need to do a whole new display #TTPD
Exciting panel on the involvement of patient in research, making sure their views are present and help the results through the whole process of #clinicaltrials, from the very #designphase. Views of patients, patient organisations and drug developers discussed at #EMSP2024
And that's the end of the #EMSP2024 Annual Conference! Thank you to all our onsite and online participants, speakers, and panelists for making these two days a great success! 🥳 Thank you to all our sponsors as well for their support. See you next year 🤩
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