Profound Autism Alliance @ProfoundAutism
Inclusive research and collaborative, targeted advocacy for those with profound autism. linktr.ee/profoundautism Joined August 2022-
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People with profound autism are routinely excluded from clinical studies. Fortunately, a new and clear research definition for profound autism was introduced at a panel at the 2025 International Society for Autism Research Annual Meeting. Learn more here: ow.ly/ssO450Wvqs6
💚 Our Sibling Action Network is run by siblings for siblings. 📆 Our next meeting is Tuesday, September 2 at 7PM Eastern. 🔗 Learn more here: ow.ly/zc3b50WP7bC
Every voice matters in the journey toward understanding profound autism. Together, we can amplify the stories of those who often go unheard. Please consider sharing your story today as part of our Dignity Project. profoundautism.org/community/the-…
"This dataset is the largest single collection of information on hospitalized children with autism, many of whom meet the criteria for profound autism." Learn more about this important new resource: 🔗ow.ly/el3p50WiwLj #profoundautism
More often than not, people with profound autism are turned away from day programs, community outings, and even disability-specific events. At Profound Autism Alliance, we are dedicated to changing that. Learn more at profoundautism.org.
Read the latest from one of our favorite authors, Susan Senator: ow.ly/AvSE50WLHCB
Most families with autistic children don’t take vacations—87% according to a 2019 IBCCES survey. But that’s slowly changing. ow.ly/jXMA50WKxOl
People with profound autism are routinely excluded from clinical studies. Fortunately, a new and clear research definition for profound autism was introduced at a panel at the 2025 International Society for Autism Research Annual Meeting. Learn more here: ow.ly/ssO450Wvqs6
People with profound autism deserve to be safe at home and in their communities. Unfortunately, this is frequently not the case. Our Safety Special Interest Group meets on August 19 at 7:30 PM to work towards solutions nationwide. Join us! Learn more here: profoundautism.org/events/communi…
Progress worth celebrating! Read about the advocacy of our Sibling Action Network and inclusion of those with profound autism in senate appropriations language here - mailchi.mp/profoundautism…
Clear is kind. Clarity around populations is critical to progress. Our medical and scientific advisory board member, Matthew Siegel explains why. Read more here: thetransmitter.org/spectrum/the-s…
Five essential words: including those with profound autism. This ongoing clarity matters! Read more here: profoundautism.org/advocacy/feder… Keep going, and THANK YOU! #cleariskind #profoundautism #inclusionmatters
Don't miss our Day Hab Special Interest Group meeting! 🗓️ Thursday, August 7 at 7:30 PM Eastern 🔗 Details here: ow.ly/YTtY50WB0XK #profoundautism #dayhab #inclusionmatters #differentnotless
People with profound autism are routinely excluded from clinical studies. Fortunately, a new and clear research definition for profound autism was introduced at a panel at the 2025 International Society for Autism Research Annual Meeting. Learn more here: ow.ly/ssO450Wvqs6
Five essential words: including those with profound autism. This ongoing clarity matters! Read more here: profoundautism.org/advocacy/feder… Keep going, and THANK YOU! #cleariskind #profoundautism #inclusionmatters
Did you know that people with profound autism are excluded from most clinical research? Inclusion is critical to help inform best practices for their supports and services. This has to change. Learn more about profound autism at ow.ly/UuLQ50VEkTw #profoundautism
"This dataset is the largest single collection of information on hospitalized children with autism, many of whom meet the criteria for profound autism." Learn more about this important new resource: 🔗ow.ly/el3p50WiwLj #profoundautism
💚 Connect with others in the profound autism community who get it. 🗓️ Visit our community calendar to sign up for events. 🔗 profoundautism.org/events/communi…
Kaiser Family Foundation's Projected Federal Medicaid Cuts in the Enacted Reconciliation Package, By State: ow.ly/tF4T50Wvqa0
Building Programs That Work. Everywhere. For Everyone With Profound Autism Read more here: - mailchi.mp/profoundautism…
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