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Putting RDPF! @PuttingRDPF

We are a non-profit that provides eactionable information on clinical trials and drug development to patients with rare diseases. #rarediseases puttingrarediseasespatientsfirst.org San Diego, CA Joined November 2014
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Putting RDPF! retweeted
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Bryan Behar @bryanbehar

3 years ago

About Simone Biles: “There is nothing remotely courageous, heroic or inspiring about quitting” said Piers Morgan, who quit his TV job in the middle of a broadcast.

Putting RDPF! retweeted
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Sherri Shepherd @sherrieshepherd

3 years ago

You have sisters all over the world who support you @Simone_Biles! I hope you know that! 🖤 #SimoneBiles #Olympics

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Putting RDPF! @PuttingRDPF

3 years ago

Mackenzie Scott is giving away Billions. PRDPF! have been contacted by a father in Turkey. His daughter has an ultra rare condition that is a drain on the family's resources. We have tried to help them, but what they need is cold hard cash. A fraction of the Billions would help.

Putting RDPF! retweeted
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VICE News @VICENews

3 years ago

“I guess I don’t trust any police right now,” Hunter's grandmother said. “Won’t nobody tell us anything. The body hasn’t been released." trib.al/KethZb6

Putting RDPF! retweeted
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Memej99-SickleCellLifeOfMemej @Memej99

3 years ago

Using my Liquid I.V. to multiply & replenish water intake. I'm already weak & fatigued from the crisis, I don't need 2 be dehydrated too. I'm sure fellow #SCWarriors know this, but my GOD, #SickleCellPain from dehydration is 2x as excruciating!😖😭Painful #SickleCellLifeOfMemej

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Putting RDPF! @PuttingRDPF

3 years ago

SICKLE CELL CURES. Please share and help save lives. Register here for the FREE webinar 28 May 2021. x.com/puttingrdpf/st… @LarenzTate @TheRealTBOZ @ToneTime10 @missjourdandunn @BGarrett_5 @WBLS1075FM @V103Atlanta @NPRHealth

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Putting RDPF! @PuttingRDPF

3 years ago

SICKLE CELL CURES. Please share and help save lives. Register here for the FREE webinar 28 May 2021. x.com/puttingrdpf/st… @LarenzTate @TheRealTBOZ @ToneTime10 @missjourdandunn @BGarrett_5 @WBLS1075FM @V103Atlanta @NPRHealth

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Putting RDPF! @PuttingRDPF

3 years ago

Please join us. Please share. FREE WEBINAR on 28 May 2021 Register now at puttingrarediseasespatientsfirst.org/sicklecell Sickle Cell Disease patients and parents of children with Sickle Cell Disease have an opportunity to find out about cures. #sicklecellcures #genetherapy #Webinar11

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Putting RDPF! @PuttingRDPF

3 years ago

Knowledge is power. Parents and patients impacted by Sickle Cell Disease can find out about approaches that can address the underlying causes of this disease. Hear from the physician experts who provide these approaches. Register at puttingrarediseasespatientsfirst.org/sicklecell #SCD #curative

Putting RDPF! retweeted
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The Charlie Gard Foundation @charliesfight

3 years ago

This is Darcey. Darcey was our very first fundraiser back in 2018 and has fundraised for us ever since. We’d like to say a HUGE THANK YOU to this wonderful little lady for helping to raise awareness and funds for families affected by mitochondrial disease justgiving.com/fundraising/da…

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Putting RDPF! @PuttingRDPF

3 years ago

Patients and Parents impacted by Sickle Cell Disease - Register now for this free Webinar puttingrarediseasespatientsfirst.org/sicklecell @WBLS1075FM @V103Atlanta @NPR Please share this important message. Many children and adults suffer from this disease without realizing there are curative options.

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Putting RDPF! @PuttingRDPF

3 years ago

We are counting down to this important Webinar on Sickle Cell Disease. Register now at puttingrarediseasespatientsfirst.org/sicklecell #SCD #Webinar #cures

Putting RDPF! retweeted
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SICKLE CELL MATTERS 🇳🇬 @Sickle_Matters

3 years ago

Backing you Doc

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Ahmar U. Zaidi, MD (Dr. Z) @drzsicklecell

3 years ago

Backing you Doc

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Putting RDPF! @PuttingRDPF

3 years ago

As a patient with Sickle Cell Disease, do you suffer from pain crises more than once every two years? Do you know why these crises occur? Find out more at the free Webinar to be held on 28 May 2021. Register now at surveymonkey.com/r/RKPWTC5 #SCD #cures #treatmentsforscd

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Putting RDPF! @PuttingRDPF

3 years ago

Has your child been diagnosed with Sickle Cell Disease? It is important that you take part in this Webinar on 28 May 2021. Find out about the curative options that are available even now. puttingrarediseasespatientsfirst.org/sicklecell #SCD #cures #transplantation #genetherapy

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Putting RDPF! @PuttingRDPF

3 years ago

Sickle Cell Disease patients and parents of children with Sickle Cell Disease have an opportunity to find out about cures on the 28 May 2021. Register now at puttingrarediseasespatientsfirst.org/sicklecell #sicklecellcures #genetherapy #Webinar11

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Putting RDPF! @PuttingRDPF

3 years ago

PRDPF! has been pleased to register patients, parents and healthcare professionals from Africa, India, US, Europe, Canada, and other countries. Register now if you are impacted by Sickle Cell Disease, or if you treat it. Register now at puttingrarediseasespatientsfirst.org/sicklecell

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