Singing at the Top of My Lungs @SATMLfoundation
Singing at the Top of My Lungs (SATML) • 501 (c)(3) nonprofit organization • Dedicated to empowering hospitalized children through music, art, and play. singingatthetopofmylungs.com Joined October 2012-
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What song are you singing today? 🎵 🎶 #cysticfibrosis #cfawareness #curecf #musictherapy #childlifespecialist #cmnhospitals #childrenshospitals #unsungheroes #music #musicheals #chronicillness #creativearts #creativeartstherapy #childlife #musictherapist #musictherapystudent
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How "paw-esome" is this Child Life Specialist duo? Last week @UCDavisChildren's #ChildLife Specialist Kristen Cady welcomed Daniels to the Canine crew! SATML is proud to support Child Life programs in addition to supporting music and art therapy programs. Photo: UC Davis Health
Hello to our new followers! 😊👋 Did you know you can follow Singing at the Top of My Lungs (SATML) on other social media platforms to get your weekly dose of philanthropic positivity? We'll see you there! #musictherapy #childrenshospital #childrenshospital #musicheals #childlife
Have you heard about @AkronChildrens Piano-a-thon? Donations made during the virtual marathon fundraiser benefit #MusicTherapy/Palliative Care programs of Akron Children’s Hospital. Bravo to all the piano students performing and all the donors giving to such an important cause!
Singing at the Top of My Lungs retweeted
The @US_FDA has approved the use of Trikafta for children with CF ages 6 - 11 who have at least one copy of the F508del mutation or one copy of certain mutations. With this approval, about 1,500 children are eligible for a modulator for the first time. on.cff.org/2RD5gOV
Week 4 of Cystic Fibrosis Awareness Month • How to get involved in #CFAwareness? 1) #Advocate. Spread the word and inspire others to help make change 2) #Fundraise. Bake sales, entertainment events, and more to benefit CF research 3) Volunteer with a #CF related non-profit org!
Week 3 of Cystic Fibrosis Awareness Month • Finding a cure for cystic fibrosis (CF) Currently, there is no cure for #CF but with continuing support, advocacy, and intense scientific research and development, perhaps a cure is on the horizon. #CFAwarenessMonth #CureCF #CureFound
Week 2 of Cystic Fibrosis Awareness Month • Treating cystic fibrosis (CF) A variety of treatments are used to help combat the symptoms of #CF! @VertexPharma gene modulators, inhalers and HFCWO vests to open and clear airways, and enzymes with meals to help with digestion.
Week 1 of #CFAwarenessMonth • What is cystic fibrosis (CF)? Cystic fibrosis is a progressive, genetic disease that can lead to lung infections and respiratory failure. Founder @itsjuliarae speaking on part of her experience growing up with #CF. Video created by @GetWellNetwork.
Singing at the Top of My Lungs retweeted
On #NationalNursesDay we want to give a big round of applause to all nurses who go above and beyond to provide the best possible care to their patients, but especially to members of the CF community. RT to show your appreciation!
May is Cystic Fibrosis Awareness Month. Stay tuned as Singing at the Top of my Lungs does our part to bring awareness to the reality of this rare genetic disease. @CF_Foundation #CFAwarenessMonth #cysticfibrosis #curecf #fightcf #cfwarriors #chronicillness #raredisease
We share the healing powers of music, art & play in part by supporting #ChildLife, but what does that mean? Child Life Specialists are educated and clinically trained to provide patients evidence-based interventions including therapeutic play & education to reduce fear & anxiety.
Singing at the Top of My Lungs retweeted
Behold! Our MRI room has had a kid-friendly makeover. It now features calming beach scenes, underwater adventures and animals, funded by a @CMNatUCDavis grant ucdavis.health/2PQ4VXO
Happy #MotivationMonday! What will you accomplish this week? 🎤🎶 “Wake up, live your life and sing the melody of your soul” -Amit Ray, @sriamitray
Singing at the Top of My Lungs retweeted
“#Cysticfibrosis takes my breath away with what they’ve done” - @ManganielloHCM @HCMStrat 🙌🏻We’ve come a long way & we’re here to get even closer to crossing that finish line. @VertexPharma @RareAdvocates #RareDisease #curecf #fightcf
Singing at the Top of My Lungs retweeted
Great story on Fordham alumna @itsjuliarae ---> Singing At The Top Of Her Lungs folks.pillpack.com/singing-at-the… via @PillPack @dlblumberg #cysticfibrosis
Singing at the Top of My Lungs retweeted
My latest for @PillPack magazine Folks about how @itsjuliarae hasn't let her cystic fibrosis stop her from from becoming a rising star in singing, acting, and pageantry. folks.pillpack.com/singing-at-the… #amwriting #freelancer #cysticfibrosis #diseases
Why Freddie Mercury's Voice Was So Great, As Explained By Science : NPR npr.org/2016/04/25/475…
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4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
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2K Followers 2K Following Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.
Sharon Rbeiz @sharonrbeiz
104 Followers 372 Following Biotech Commercial Exec / opinions are my own. “The physician should not treat the disease but the patient who is suffering from it” Maimonides
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Miss Philadelphia Org... @MissPhillyOrg
465 Followers 435 Following 104 Years Strong | Jaylen Baron, Miss Philadelphia | Lynzi Allen, Philadelphia’s Teen | Appearances: [email protected] #MissPhiladelphia
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321 Shine @321shinestudio
261 Followers 858 Following 321 Shine brings industry professionals together with the goal of discovering future talent. We provide you with experienced agents to further your career!
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282 Followers 639 Following Everyday we’re engaged in a miracle, we don’t even recognize
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406 Followers 289 Following Christina Davidson Foundation, We're here to help Cystic Fibrosis patients in any way and also raise world wide awareness. Donate today.
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662 Followers 1K Following GSPP Rehabilitation, official therapy provider for Penn Medicine, delivers a variety of services across 30 locations in the city and suburbs of Philadelphia.
Tomorrow's Leaders NY @CFFYoungProsNY
2K Followers 2K Following Tomorrow's Leaders offers young professionals leadership & networking opportunities while they make a difference in the lives of those with CF.
CFF Delaware Valley @CFF_DelValley
551 Followers 937 Following Cystic Fibrosis Foundation - Delaware Valley Chapter. RT or Favoriting does not imply endorsement.
Jamie Piazza @JamieGinn
253 Followers 142 Following Miss Delaware 2006/Chemical Engineer/choreographer/tv personality/entrepeneur
Music and Sound Thera... @musicandsoundt1
383 Followers 1K Following Team of experienced music therapists dedicated to providing a high-quality service accessible to all (https://t.co/LxS0ltH87v)
Sound Health Network @SoundHealthNet
801 Followers 469 Following The Sound Health Network is an initiative of the @neaarts, in partnership with the @ucsf, in collaboration with @nih, @kencen, and @reneefleming.
Blythe LaGasse PhD @ablythel
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U.S. FDA @US_FDA
579K Followers 101 Following Our posts are FDA Approved! Privacy Policy - https://t.co/LbTJXYRXVP FDA Authentic Accounts - https://t.co/w2LNbzG7M0
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378 Followers 474 Following The @CF_Foundation Western New York Chapter supports the search for a cure for CF by fundraising, promoting awareness & providing community support.
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