Sarcoidosis Support @SarcSupport
Cape Town, South Africa Joined November 2015-
Tweets955
-
Followers517
-
Following341
-
Likes755
So is there anyone out here currently who was tested for covid but they say it isn't a covid test and proceeds to be swabbed in nose, inside of cheek, groin and backside area? Did your #covid test results come back? Negative or Positive?
0
1
0
143
1
Sarcoidosis Support retweeted
Cardiac sarcoidosis and giant cell myocarditis after COVID-19 infection dlvr.it/SX5t9b
Sarcoidosis Support retweeted
aTyr is proud to partner with the @StopSarcoidosis on their upcoming Global Virtual Patient Summit taking place on July 30-31, 2022. Join this insightful plenary session, Steroids & Sarcoidosis: Balancing the Burden. More: bit.ly/3o2okCG #Sarcoidosis
Sarcoidosis Support retweeted
This isn't just about rare disease patients. It's about ALL South Africans using healthcare. Sign the petition here change.org/p/provide-coun… #DearMinisterofHealth @kellyrare @HealthZA
Sarcoidosis Support retweeted
Yet another medical aid member struggling for approval for medication and care. Make your voice heard and sign the petition change.org/p/provide-coun… #DearMinisterofHealth enough is enough! @kellyrare @rarediseasessa @HealthZA
Sarcoidosis Support retweeted
#DearMinisterofHealth how long MUST we wait? Click the link to find our what the dispute process really looks like. [#SpoilerAlert it's NOT PRETTY] dearministerofhealth.org/post/how-long-… @kellyrare @rarediseasessa @HealthZA
Sarcoidosis Support retweeted
Listen as aTyr’s President and CEO, Dr. Sanjay S. Shukla, speaks with John Carlin, @StopSarcoidosis advocate and host of the Sarc Fighter podcast, in Episode 65 about the upcoming Phase 3 study of efzofitimod in patients with pulmonary sarcoidosis. bit.ly/2PXOitM
Just posted a photo @ South Africa Cape Town instagram.com/p/Cf0z1fXKVMA/…
Sarcoidosis Support retweeted
Our fight to get our PMBs approved for our rare conditions have spanned for over a decade. Numerous @CMSCares4u rulings later, and we still have to go through the same, tedious, lengthily and often expensive process.Thank U #CarteBlanche 4 giving us a voice #DearMinisterOfHealth
Our fight to get our PMBs approved for our rare conditions have spanned for over a decade. Numerous @CMSCares4u rulings later, and we still have to go through the same, tedious, lengthily and often expensive process.Thank U #CarteBlanche 4 giving us a voice #DearMinisterOfHealth
Just posted a photo @ South Africa Cape Town instagram.com/p/CfyaQN2KisZ/…
Just posted a photo @ South Africa Cape Town instagram.com/p/CfGYobFKsou/…
Just posted a photo @ South Africa Cape Town instagram.com/p/Ce9Ll70qMuV/…
Just posted a photo @ Victoria Hospital Capetown instagram.com/p/Ce6e0cEKOwI/…
Just posted a photo @ Victoria Hospital Capetown instagram.com/p/Ce4a-uHKh_U/…
Just posted a photo @ South Africa Cape Town instagram.com/p/Ce0vfWOqBre/…
Just posted a photo @ South Africa Cape Town instagram.com/p/CeqFxJeqYIj/…
Sarcoidosis Support retweeted
Almighty. I trust You through my pain, my suffering, my heartache, my sadness, my confusion, my heedlessness. I know Your Mercy overpowers Your Wrath. That’s why I never lose hope, despite my sins & transgressions, I trust You. I thank You for always being there for me. Aameen.
Sarcoidosis Support retweeted
In any hardship, don't feel depressed. Ask the Almighty for strength to endure; for at the end of the dark tunnel of despair is HIs reward waiting for you.
Sarcoidosis Support retweeted
#Pulmonarysarcoidosis is a form of #ILD that causes progressive fibrosis of the lung interstitium. #Efzofitimod (ATYR1923) is a potential first-in-class, disease-modifying therapy in clinical development for patients with pulmonary sarcoidosis. More: zcu.io/KK2N $LIFE
FSR @StopSarcoidosis
3K Followers 597 Following The Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care.
LadySarcoidosis Eire @LadySarcoidosis
525 Followers 1K Following A/C Closed. Diagnosed with Sarcoidosis in number of organs in 2016 Just want to help others by showing what I went & am going through. (Based in Ireland☘)
Sarcoid Awareness Fil... @sarcoidfilm
2K Followers 2K Following We are producing what will be the first full-length film to focus solely on sarcoidosis awareness!💜 Project Purple 🎥 #sarcoidosis #documentary #filmmaker
aTyr Pharma @aTyrNews
1K Followers 332 Following aTyr is a biotherapeutics company engaged in the discovery and development of innovative medicines based on novel biological pathways.
Rare Diseases South A... @rarediseasessa
5K Followers 5K Following We're bridging the gap to improved quality of life, for a better tomorrow, for the #1in15 South Africans affected by rare diseases.
Divya C. Patel @DivyaCPatelDO
1K Followers 770 Following Physician @UFmedicine passionate about taking care of and advocating for patients with #sarcoidosis and #ILD. Opinions presented are my own
XSpence @HoloSpence
177 Followers 806 Following I hate hypocrites & pedophiles. I love common sense & strong coffee! Expect no reply if you message. I only interact with close friends, not bots.
Saim malak @Malak1Saleem
22 Followers 528 Following
Debra W @debra_weathe
0 Followers 13 Following
Dianas Bedlington @DBedlingto81662
1 Followers 27 Following
Sally @sally_winslow18
168 Followers 3K Following
Silenced Nolonger �... @SNolonger
39 Followers 241 Following Just one of many billions, wanting a better life for all.
Donald Jacobson @forlottelse2
6K Followers 7K Following MAGA🇺🇸🇸🇪 🇩🇪✝️🦬🚫DMs. 🚫Crypto, money or investments. No fake Elons . 🚫weed 🚫salesmen🚫
Ronald MacDonald @Indelible21
259 Followers 3K Following
About-Sarcoidosis@Hom... @sarcoidosisblog
134 Followers 798 Following #VisitVisit... SAR●KOI●DOSIS #Informational When You're@Home🏠 #Blog #Sarcoidosis Insights xoxoLisa
Aric johnson @johnsonaric7
356 Followers 5K Following Anime fan, Alabama Crimson Tide, and Niner Gang 🔥🔥🔥💪🏾 💜💜💜 Living with sarcoidosis and ❤️ heart disease.
saysarcoidosis @saysarcoidosis
152 Followers 483 Following #SaySarcoidosis is a campaign to raise awareness about sarcoidosis. *****Will you join us and #SaySarcoidosis?*****
Chris Southgate @chris_ipcds2020
1 Followers 128 Following
Shawn @LeewardShawn
19 Followers 93 Following
Nick Brodie @njbrodie
6 Followers 44 Following
Breal88 @bsherman88
36 Followers 755 Following
Javier Buenrostro @jaui69
1 Followers 554 Following
Michele Leary @MicheleMeier3
0 Followers 61 Following
andrew gray @andrewg73718928
3 Followers 69 Following
Dawn Farrar @DawnFarrar1
89 Followers 1K Following Board member @SarcoidosisUK. Scientist with research strategy and funding expertise. #research #healthpolicy #patientadvocacy. All views my own.
Ikrak Namitrik @RenegadeIkrak
14 Followers 187 Following
E.Pace @EPace1956
39 Followers 178 Following I'm a twin,widow ,mom of 2 wonderful children,grandma,mother-in-law,friend,have a 6 pound Chihuahua & loves God
Maxine Habersham @maxineavonrep
29 Followers 45 Following AVON Rep and Ebay seller http://t.co/IzuhXUWlFL
Suzette Heathcote @SuzetteHeathco2
45 Followers 352 Following
@Sarkoidose💜Schles... @SarkoidoseH
210 Followers 449 Following Sarkoidose Selbsthilfe, Schleswig-Holstein, selten, orphan disease, sarcoidosis [email protected] https://t.co/O6G36jHhsP
LOST MANN @LOSTMANN5
14 Followers 310 Following
Renee Lindsey @renee196811
42 Followers 875 Following
Kimberly Reese @candlesgirl2005
260 Followers 811 Following I make candles check out https://t.co/uHyrW6RtCi
Gabriela Pasaragua @gpasaragua44
0 Followers 61 Following
Teresa T @reeselivinglife
102 Followers 663 Following Down to earth striving to make a difference in this thing we call life.
Yolanda @Yolanda77601673
2 Followers 13 Following
Vanina Alejandra Mart... @VaninaAM
16 Followers 342 Following
kim Javorek🇺🇦�... @KJavorek
72 Followers 444 Following Wisconsin Dairy Farmer, Sarcoidosis warrior, grandma, great grandma. Redneck, hunter.
Rosemary @TheCrafter91
7 Followers 145 Following
Rick @neurosarcoid
11 Followers 87 Following
Heidi Nicole @MommaBirdie69
175 Followers 1K Following God, Dogs, Cats, iced coffee, Music 🎶 420 friendly, old school..Be kind Always 🫶
The Spazman 🇺🇸 @TheSpazman
1K Followers 1K Following
JCs Lady ©™ @mz_jcslady
824 Followers 1K Following I AM the 🍎 of HIS 👀, who Is Fearfully & Wonderfully made by JC HIMSELF. 👑JCsLady©™ that I Am✍️🏾 #SarcoidosisConqueror💪🏾💜❄️ #ISHALL.Live&NOTdie🙏🏾🙌🏾✨
Michelle Abercrombie @maajda02
9 Followers 111 Following Life is short....live every day to the fullest!
Maggie Cravens @magipollard
12 Followers 142 Following
Dysautonomia Support ... @DysautonomiaZA
320 Followers 516 Following Support for our community and advocacy to ensure effective treatment in South Africa for people with POTS and other forms of Dysautonomia
Vi XV @DizzyMink
34 Followers 237 Following Just a solid ass chick, tryna make it in this weird world
Mhairi MDonald @Cheeckee
33 Followers 89 Following
(970) 599-6625 @6625_
2 Followers 33 Following
KcCochia @KCKnighter
144 Followers 900 Following
Angelcreme @angelcreme719
81 Followers 502 Following I'm a strong BIG beautiful black mother of two wonderful boys. I speak from my ❤️ and I try to shine bright like a 🌟.
Anabela Costa @AnabelaCosta3
1 Followers 96 Following
FSR @StopSarcoidosis
3K Followers 597 Following The Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care.
LadySarcoidosis Eire @LadySarcoidosis
525 Followers 1K Following A/C Closed. Diagnosed with Sarcoidosis in number of organs in 2016 Just want to help others by showing what I went & am going through. (Based in Ireland☘)
Sarcoid Awareness Fil... @sarcoidfilm
2K Followers 2K Following We are producing what will be the first full-length film to focus solely on sarcoidosis awareness!💜 Project Purple 🎥 #sarcoidosis #documentary #filmmaker
SarcoidosisUK @SarcoidosisUK
3K Followers 267 Following SarcoidosisUK is the national sarcoidosis charity. We provide support and information to anyone affected. We also raise awareness and fund research into a cure.
aTyr Pharma @aTyrNews
1K Followers 332 Following aTyr is a biotherapeutics company engaged in the discovery and development of innovative medicines based on novel biological pathways.
Rare Diseases South A... @rarediseasessa
5K Followers 5K Following We're bridging the gap to improved quality of life, for a better tomorrow, for the #1in15 South Africans affected by rare diseases.
Divya C. Patel @DivyaCPatelDO
1K Followers 770 Following Physician @UFmedicine passionate about taking care of and advocating for patients with #sarcoidosis and #ILD. Opinions presented are my own
Hayley Thorndike 🟧 @HayleyAT
159 Followers 832 Following Digital Marketing Professional. Dog Mom. Aunt Yay to 4 adorable kids. Plants, books, and animals are my favorites.
dearministerofhealth @DearMinister_za
41 Followers 102 Following Civil society engagement mechanism to address the numerous challenges faced by healthcare users in South Africa
LaRawn Robinson @LarawnRobinson
79 Followers 3K Following Husband, father, son, coach, mentor, leader and friend to many.
fibromyalgia @fibromyalgiaME
9K Followers 36 Following Life doesn't have to be over when you are chronically ill, you just have to reinvent yourself and what you do... Fibromyalgia, ME, Chronic Pain... We can help
Anne R Holland @AnneRossHolland
1K Followers 2K Following 🇬🇧/🇺🇸 back in the UK. 🚫DMs #MedicareForAll #HR1 #HR4 #CancelStudentDebt #BLM #Equality #LBGQT #ClimateCrisis I care about animals, people & the planet.
Arthritis Digest @ArthritisDigest
10K Followers 5K Following The latest science explained: keeping you up to date on osteoarthritis, rheumatoid arthritis, lupus, fibromyalgia, Sjogren's and more...
Yanga Thetha @YANGATHETHA
729 Followers 2K Following 0198316270 ddɐsʇɐɥʍ ......ǝnıl lıɐɯƃ dnɐ ǝbnʇ noʎ ,nı dǝʞnıl ,ddɐsʇɐɥʍ ,ʞoobǝɔɐɟ ,ɯɐɹƃɐʇsnı ɐıʌ ǝɯ ʇǝƃ nɐɔ n ....ɐƃnɐʎ sǝsıɥʇ ıɥ
Matthew Holcomb @MattHolcomb91
4 Followers 87 Following DataON outbound marketeer. Guitarist. Fender lover. Clapton & Springsteen fan.
Deanna Thomas @d_isgolden
224 Followers 2K Following
Kelly du Plessis @kellyrare
227 Followers 461 Following A fierce #patientadvocate. Someone told me to not bite off more than I can chew. I told them I would rather choke on greatness than nibble on mediocrity.
Support Sarcoidosis @BMacFoundation
74 Followers 2 Following
Dr. Samir Nusair, MD ... @SamirNus
2K Followers 623 Following Respiratory Physician: tweets on #PulmonaryFibrosis #Sarcoidosis #COPD; focus #RespiratoryPhysiology & #Exercise #Physiology דר' סמיר נסייר
Brett Sperry, MD @BrettSperryMD
4K Followers 915 Following #HeartTransplant #LVAD #NuclearCardiology #amyloidosis #sarcoidosis | @MidAmericaHeart | Former fellow @ClevelandClinic | @Georgetown economics #HoyaSaxa
Patricia Rhett, MBA @PatriciaRhett
73 Followers 544 Following Chemist, Quality Control Analyst, Healthcare Advocate (MPH), Sarcoidosis Educator, Author, Believer, Lover of Music, Books, Fashion, Cosmetics, Men and God!
National Department o... @HealthZA
415K Followers 2K Following Official tweets from the National Department of Health South Africa. Follows and re-tweets do not imply endorsement by the department.
UCSF Sarcoidosis Rese... @UCSFsarcoidosis
16 Followers 14 Following The Sarcoidosis Research Program at UCSF Advancing Scientific Understanding of Sarcoidosis to Improve Care
bfkennedy @bfkennedy
3K Followers 5K Following Constant time traveler (forward). Blue wave in 2020 and beyond! #resist 🌊🌊🌊
Saul Venskutonis @iam_saulve
2K Followers 381 Following Cryptocurrency & DeFi • Explorer of new and time-tested ways to live better • Metacognition & Mental Models • Coder • 4 years of cold showers and meditation ⛩️
Ruby Simmons @RubySim03522705
74 Followers 396 Following Married. Mother to 3 amazing daughters. I love life to the fullest and only want the best for everyone! Positive Vibes Only❤
David Delahunty @Delahuntagram
21K Followers 15K Following a stream of daily ideas (all by me). interested in an idea? dm me.
saukorg @saukorg
14 Followers 12 Following The Sarcoidosis Association is a non profit organisation helping raise awareness to the Medical Profession and Government about Sarcoidosis
Sarcoidosisafla @Sarcoidosisafla
63 Followers 48 Following The Sarcoidosis Awareness of Louisiana, Inc. is a 501(c)(3) charitable organization established in June 2012
m @sarcoiduhdb
32 Followers 64 Following
GiveFucks @GiveFucks1
13 Followers 17 Following Have we offended you? Are you offended by the lack of support & awareness for rare conditions in South Africa? Turn your #FucksIntoBucks 🤬today
MoebiusMiracle @MiracleMoebius
83 Followers 98 Following intern @COMACH_IUAES Patient Voice Ambassador @rarediseasessa other : https://t.co/Ro13BAJ5tU
Megan Toni @by_megantoni
441 Followers 811 Following 🌱 Lifestyle Blogger ❄️ Rare Warrior 💙Kindness Ambassador 🌈 Self-Love Journey 🐾 Fur Mum
Danielle @twinkydinks82
86 Followers 983 Following Mother, lover of cats, books, mountains and cooking. Just here to have a nose about. #raredisease 🌈 🇪🇺💙
Leigh Smith 🏴�... @LSX1405
414 Followers 2K Following Don’t take life so seriously, it’s not as I’d you’re getting out alive! #SarcoidosisFighter 💜 #Neurosarcoidosis #Stroke surviver
Ryan Raffensperger @MountFanBlog
2K Followers 2K Following Sports fan that especially loves college sports. Proud Fan of Mt. St. Mary's & my alma mater Syracuse University. CPA; #GirlDad always
mohammad barzegar @mbarzegar2020
348 Followers 2K Following #Therapist/ / #Clinical_Psychologist /#lndependent_Researcher
Kristen Fenton @kidneyforkris10
922 Followers 134 Following Thanks to my angel donor and their family, I was given a chance at a 2nd life 8.7.24
DBL @DorotheaBlevi11
3K Followers 946 Following Riding on "Truth Avenue" is a painful experience."Fake Boulevard" is so much more appealing. We travel, we bloom, we love. Life is the most precious gift......
Leon Fleming @LeonVFleming
69 Followers 764 Following
Ki @NudieRuby
59 Followers 309 Following
Laird Law PLLC @DanLairdMD
14K Followers 5K Following Dan Laird, JD, MD, Wrongful Death & Medical Malpractice Lawyer. Riley Bldg., 4175 S. Riley St., Suite 102. 89147. Phone (702) 800-0300. Antisemites blocked.
Michael Norris @mln09221979
15 Followers 350 Following A good solution applied with vigor now is better than a perfect solution applied ten minutes later.
Girish Urwar @iamurwar
341 Followers 565 Following Ubermensch, Tech Writer, Instructional Designer, Screenwriter, Content Strategist
DoctorEyeHealth @doctoreyehealth
2K Followers 99 Following I help people with exceptional eye care, ocular education and finding the best vision products. 😎
ReinhartPainMD @ReinhartPainMD
720 Followers 572 Following Roland Reinhart, M.D., is double board certified in Anesthesiology and Pain Management.
Tasha J @TashaJ123
43 Followers 535 FollowingTrends for United States
11,2 B posts
31,5 B posts
32,8 B posts
243 B posts
25,4 B posts
4.608 posts
6.323 posts
1.662 posts
5.017 posts
5.369 posts
4.366 posts
26 B posts
1.498 posts
7.254 posts
14,4 B posts
You might like
FSR
@StopSarcoidosis
3K Followers
SarcoidosisUK
@SarcoidosisUK
3K Followers
Sarcoidosis News
@SarcoidosisNews
315 Followers
Stewart Armstrong ⛄...
@StewArmstrong
482 Followers
Carolyn Whitacre
@Carolin06029951
85 Followers
@Sarkoidose💜Schles...
@SarkoidoseH
210 Followers