Screen4Rare @Screen4Rare
A multi-stakeholder platform launched by IPOPI, ISNS and ESID aiming to exchange knowledge and best practices on newborn screening for rare diseases. screen4rare.org Joined February 2022-
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🌐 We’re happy to announce the next @Screen4Rare event in the European Parliament: As the EU advances its Life Science Strategy, prepares the new Biotech Act, and reviews the legislation on Orphan Medicinal Products, Newborn Screening for Rare Diseases (NBS) must be part of the…
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In 2021, only 27% of babies born around the world were screened at birth Despite its potential to diagnose many treatable diseases, there are still many inequities when it comes to access to neonatal screening 👉 That's why we celebrate International Neonatal Screening Day…
🎥 “Newborn screening is a critical gateway to early diagnosis and timely treatment, offering every child the best possible start in life.” — Dr @ABanerjeeWHO, WHO Watch Dr Banerjee’s message for International Neonatal Screening Day and learn how WHO is working to improve access…
🗨️ On International Neonatal Screening Day, MEP @TomislavSokol (EPP, Croatia) voices his support for expanding newborn screening across Europe. #INSD2025 #NewbornScreening #RareDiseases #EUHealth #PatientAdvocacy
📢 Press Release – International Neonatal Screening Day (INSD) Today, on June 28, we mark International Neonatal Screening Day, a global reminder of the vital role early detection plays in saving newborn lives and ensuring healthier futures. 📄 Read our full press release:…
🗣️“Every year, 45M babies are screened. 30,000 lives changed." Patricia Guthrie honors her father Dr. Robert Guthrie’s legacy and celebrates the global impact of newborn screening at the Intl Neonatal Screening Conference. #NewbornScreening #PublicHealth
Screen4Rare retweeted
INSD Celebrations at CHU Liège – 26 June 2025 🎉 IPOPI's Executive Director, @JohanPrevot, visited CHU Liège ahead of International Neonatal Screening Day (INSD) celebrations. Johan wishes to congratulate the team at CHU Liège for their commitment to raising awareness about…
⏳ Just 1 day to go until #InternationalNeonatalScreeningDay! 👉 Learn more: neonatalscreeningday.org #INSD2025
Screen4Rare retweeted
Ramping up to #InternationalNeonatalScreeningDay (28 June) in Spain #NeonatalScreeningMatters #INSD
Ramping up to #InternationalNeonatalScreeningDay (28 June) in Spain #NeonatalScreeningMatters #INSD
🩺 International Neonatal Screening Day is coming up on June 28! We are sharing the story of how early screening for Severe Combined Immunodeficiency (SCID) became a global public health breakthrough. 📅 Follow along as we count down to #INSD. #INSD #NewbornScreening…
🧬 Prof Milos Brkusanin from the Faculty of Biology in Belgrade shares his perspective on the value of genetic testing and the growing potential of early diagnostics in saving lives. 📅 Don’t miss his message as we mark the importance of Neonatal Screening Day. #INSD2025…
📅 In anticipation of Neonatal Screening Day, we share a message from Soporan Andreea, highlighting the importance of continued progress, collaboration, and commitment to expanding access to life-saving early diagnostics. #INSD2025 #NewbornScreeningSavesLives #INSD…
💡 Did you know? Behind every life-changing breakthrough in PKU lies the story of a pioneering register and the dedicated experts who made it possible. As #INSD approaches on June 28, join us in celebrating this inspiring story! #INSD2025 #HiddenFigures
📢 On June 28, we unite to raise awareness on the critical importance of newborn screening in giving all children a healthy start in life. Dr Tabatadze joins the global call for early diagnosis and equal access to screening for all newborns, everywhere. Watch and share her…
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