Sicksplaining Podcast @Sicksplaining

Video #podcast focused on #chronic and #invisible #illnesses - on YouTube! Hosted by @Sabrina_Poirier Canada Joined January 2019

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Ravi Veriah Jacques @RaviHVJ

2 years ago

The NIH is the only institution with the resources to save ME/CFS patients from decades of crushing chronic illness. And yet that very same NIH has never skipped an opportunity to profoundly fail those with ME/CFS. 1/4

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Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke

2 years ago

It's striking that the term "Post-exertional malaise" (PEM) - which the more reliable diagnostic criteria consider the cardinal symptom of #MECFS - isn't mentioned once in the introduction to the NIH study. What's that about? 🧐

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Channel 4 News @Channel4News

2 years ago

M.E.: Lives devastated - and sufferers are told it's made up channel4.com/news/m-e-lives…

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@richardvallee.bsky.social @richardvallee

2 years ago

Something's deeply broken with medicine. Decades of being insulated from accountability and oversight from outside the bubble have lead to a stagnation unlike any profession ever faced. Adaptation, cognitive flexibility, is the root of intelligence. And they aren't adapting.

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Channel 4 News @Channel4News

2 years ago

Myalgic encephalomyelitis: Lives devastated - and sufferers told it's made up

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Dr Jay Watts @Shrink_at_Large

2 years ago

As #MyalgicEncephalomyelitis is trending, I want to acknowledge once more the role my profession has played in the historical and current gaslighting of ME/CFS patients. I fully support increased funding and greater respect for biomedical research in this field. Ditto Long Covid.

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Professor Karim Khan @ProfKarimKhan

2 years ago

From Dr Watts. Hear hear. Some conditions (such as ME) don't have a biomarker yet. The diagnosis should be made on clinical grounds. And the patients should receive the benefits they are entitled to. That's the purpose of benefits.

Dr Jay Watts @Shrink_at_Large

2 years ago

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Putrino Lab @PutrinoLab

2 years ago

Felt this hard today. Every clinician/researcher who has touched #LongCovid, #MECFS and chronic #lyme should see this as the unacceptable price for decades of underfunding, stigma and ignorance. Every patient who is seeing this and being affected: Please hold fast if you can ❤️‍🩹

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Imogen @inadarkroom247

2 years ago

My partner, who was convinced that I'd improve, has now accepted that I'm dying of this. We've talked about my final wishes and what to do when I'm no longer able to communicate. Nobody should have to do this at 25 #SevereMEKills

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Kendra @SurvivingCFS

2 years ago

The chronic illness community on twitter is hands down the kindest online community I have ever experienced, truly.

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Sabrina Poirier (On Hiatus) 🇨🇦 @Sabrina_Poirier

2 years ago

“It takes a village…” I need a village. My family needs a village. Genuine question: How am I to build a new village when I have no energy to connect and when I do, it’s too hard to be vulnerable and not fall apart doing so? (My previous village basically forgot I exist.)

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Sten Helmfrid 🇺🇦 @StenHelmfrid

2 years ago

#MECFS is a severe, chronic illness. The fluctuating nature of the symptoms may give a false impression that patients are not that ill—because you see them during peaks—but the fluctuations are a problem in themselves as they make planning difficult. #MEAwarenessHour

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Alice Wong 王美華 @SFdirewolf

2 years ago

I recently identified as someone w/ chronic pain even though I lived w/ it for my entire life but wasn’t sure if my pain was ‘severe’ or ‘unremitting’ enough My tolerance for it was so high it was normal for me & I didn’t take it seriously until more people talked about it

National Pain Advocacy Center @national_pain

2 years ago

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Putrino Lab @PutrinoLab

2 years ago

After seeing severe #LongCovid and #MECFS, it is exactly this sentiment that drives my urgency and fight. Thank you for sharing this. 🙏🏻

Annie 🌻 @annitht

2 years ago

After seeing severe #LongCovid and #MECFS, it is exactly this sentiment that drives my urgency and fight. Thank you for sharing this. 🙏🏻

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Hazie Thompson @haziethompson

2 years ago

The ‘we just took our masks off to have a quick drink/take a cute picture’ crowd needs to really let this sink in.

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Sabrina Poirier (On Hiatus) 🇨🇦 @Sabrina_Poirier

2 years ago

Please everyone, do NOT click on the Guardian article to read it. It is another outdated and factually inaccurate piece that continues to gaslight some of the sickest people in the world…while uplifting our grifters and oppressors. Nothing new to see here. #NoClicks 🙏

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Sabrina Poirier (On Hiatus) 🇨🇦 @Sabrina_Poirier

2 years ago

A quick ask of our ME researchers: Please do not sign on to questionable “holistic” conferences that take aim at us for their own profits. (These “free conferences” are recruitment tools.) Your reputations are lending credibility to very harmful individuals. You’re bait.

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davidtuller @davidtuller1

2 years ago

This is quite a frank condemnation of the field of psychiatry from a long-time practitioner. This definitely appears to be the case when it comes to post-viral conditions and other complicated illnesses that generate non-specific symptoms.

Paul Minot, MD @PaulMinotMD

2 years ago

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Paul Minot, MD @PaulMinotMD

2 years ago

successful in redefining what it means to be a human being. Meanwhile, 20 years of peak psychiatry has resulted in a 30% increase of suicide in the United States--and American psychiatry has absolutely nothing constructive to say about it. Please tell me what I've missed.