Solve ME/CFS Initiative @PlzSolveCFS
Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4 SolveME.org Los Angeles, CA Joined August 2009-
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Watch now! In "Targeting #Autophagy: A Clinical Trial of Low-Dose #Rapamycin for #MECFS, #LongCOVID, and #IACCIs," panelists @ggottschalkPhD & @AvikRoy74969264 (@RedefiningMECFS) & @GrachStephanie (@MayoClinicGIM) discuss early results. ow.ly/1SnA50WRBkf
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Solve is a proud sponsor of the virtual International #ChronicFatigueSyndrome / #MyalgicEncephalomyelitis (#IACFSME) 17th Research and Clinical Conference (Oct. 22-25), and will co-present a panel with our partners @BrainInflCollab. Register: ow.ly/mxz950WRARt
Solve ME/CFS Initiative retweeted
Time to tune to Stanford's Community Symposium on the Molecular Basis of ME/CFS
Solve ME/CFS Initiative retweeted
I am one of the 60 researchers who signed this international declaration on ME/CFS & Long COVID, disease that cause suffering for millions of people. A decade ago, when I became involved in ME/CFS, many physicians & scientists didn’t even consider it a real disease, unbelievably!
I am one of the 60 researchers who signed this international declaration on ME/CFS & Long COVID, disease that cause suffering for millions of people. A decade ago, when I became involved in ME/CFS, many physicians & scientists didn’t even consider it a real disease, unbelievably!
Solve ME/CFS Initiative retweeted
You are invited to join #MEAction for our latest Pillow Writers’ Salon on Thursday, September 18th at 11am PT/2pm ET/7pm UK. Register: us06web.zoom.us/meeting/regist… More about Pillow Writers: pillowwriters.wordpress.com #pwME #MECFS #spoonie #WritingCommunity #LongCovid #MyalgicE
Solve ME/CFS Initiative retweeted
Even this video doesn't do justice to the suffering of #VerySevereME. Stefan Arce is in Mexico, living with extremely Severe ME. @stefan_arce we know we cannot help enough, but the global ME community stands by you. gofundme.com/f/stefan-arce-… #EMSFC #MECFS #SevereME
Even this video doesn't do justice to the suffering of #VerySevereME. Stefan Arce is in Mexico, living with extremely Severe ME. @stefan_arce we know we cannot help enough, but the global ME community stands by you. gofundme.com/f/stefan-arce-… #EMSFC #MECFS #SevereME
Solve ME/CFS Initiative retweeted
New from @PutrinoLab & Dr. Pridgen: A combo of 120 days of celecoxib & valacyclovir with 15 days of Paxlovid is significantly more effective than celecoxib & valacyclovir alone! The combo had vastly greater response rates for brain fog, dysautonomia, & fatigue. #LongCovid 1/
There's still time to register for today's 3 pm PT / 6 pm ET webinar on the Catalyst Award-winning study from the team at @RedefiningMECFS, "Targeting Autophagy: A Clinical Trial of Low-Dose Rapamycin for #MECFS, #LongCOVID, and #IACCIs." Sign up here: ow.ly/ReIW50WApvO
Congratulations @TomKindlon -- such a well-deserved honor. Thanks for all that you do for the #MECFS community!
Congratulations @TomKindlon -- such a well-deserved honor. Thanks for all that you do for the #MECFS community!
Solve ME/CFS Initiative retweeted
Happy to share some new #LongCOVID data that went to pre-print today. Before we begin breaking this down, one caveat: this work MUST be validated by a well-powered placebo-controlled randomized controlled trial before we can get too excited, but this is researchsquare.com/article/rs-750… 1/
Solve ME/CFS Initiative retweeted
“We must make the correct diagnoses, & stop dismissing patients with IACCs as having ‘nothing’ or Functional Neurological Disorder. This dismissal can no longer be tolerated.” –Dr. Brayden Yellman, @Medscape buff.ly/3DxvK9H #MECFS #LongCOVID
Solve ME/CFS Initiative retweeted
Unsere aktuelle Studie zeigt: Pyridostigmin/Mestinon verbessert unmittelbar die Muskelkraft bei ME/CFS. Insbesondere bei stark verminderter Kraft kann das hilfreich sein. frontiersin.org/journals/neuro…
Did SARS-CoV-2 leave kids more vulnerable to other respiratory viruses? A new NIH RECOVER study co-authored by Solve CEO Emily Taylor challenges previous assumptions. Read our summary here: ow.ly/MBtn50WNfLK
Sat. Sept. 13th: Register for the FREE #LongCOVID CME Conf. “Supporting Primary Care Providers in Management & Treatment," & virtual LC community event hosted by @KeckMedicineUSC and @UCLAHealth. Scan the QR codes below for more info.
Register for our Thursday, September 4, webinar on the Solve ME/CFS Catalyst Award-winning study from the team at @RedefiningMECFS, "Targeting Autophagy: A Clinical Trial of Low-Dose Rapamycin for #MECFS, #LongCOVID, and #IACCIs." Sign up here: ow.ly/ReIW50WApvO
New diffusion MRI research uncovers distinct white-matter patterns in #MECFS based on onset type, with implications for tailored diagnostics & treatments. Read our summary here: ow.ly/HLE050WNfIw
Solve & @BatemanHorne co-hosted a series for people with #SevereME & caregivers. In Pt 4, Removing Barriers to Research, Solve CEO Emily Taylor, @Sabrina_Poirier & @PutrinoLab discuss how patients are reshaping research. Watch: ow.ly/xcAE50WNhXP #SevereMEAwareness #MECFS
Solve ME/CFS Initiative retweeted
🧬 Farewell to the psychosomatic myth: DecodeME shows that ME/CFS is an organic disease with a genetic footprint Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a devastating illness that affects millions of people worldwide. Its hallmark symptom,…
Solve ME/CFS Initiative retweeted
CURE-ID is reopening the #LongCovid treatment survey! Please make a new report if you haven’t, or update your existing one. They particularly need: a) Treatments that *haven’t* worked b) Newer treatments (monoclonals etc) c) More data overall, to find significance in analysis 1/
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mimmoth tea party @TeaBeforeCake
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E @shiny_e
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14K Followers 687 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
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8K Followers 603 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed 🙇🏼
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S Blitshteyn MD, FAAN... @dysclinic
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Sten Helmfrid 🇺�... @StenHelmfrid
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26K Followers 351 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
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Global Virus Network @GlobalVirusNews
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BJSTR | Angela Roy @Biomedres01
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