ME/CFS San Diego @MECFSSD
ME/CFS San Diego are patients and/or caregivers sharing information, support for each other, and education about Myalgic Encephalitis/ Chronic Fatigue Syndrome mecfsSanDiego.com San Diego, CA Joined July 2020-
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Starting Sept 30, 2025, the govt will stop mailing paper checks for Social Security, SSDI & SSI. ME/CFS patients must switch to direct deposit or Direct Express to keep benefits. Call SSA: 1-800-772-1213 or visit ssa.gov. Please share widely!
Extremely happy to see more ME/CFS awareness. In the 1980s, patients with debilitating fatigue were dismissed. Now, two new studies are bringing long-overdue credibility to ME/CFS. Published by @SmithsonianMag: bit.ly/3UNqUNy
From Ron Davis: Stanford ME/CFS Collaborative Research Center Community Symposium on the Molecular Basis of ME/CFS Agenda September 5, 2025 8:00am - 2:30pm Register: stanford.zoom.us/webinar/regist…
Big wins for ME/CFS in the Senate’s 2025 appropriations bills - Thank you @Solve_CFS: * $5.4M for CDC ME/CFS program * NIH directed to implement ME/CFS Research Roadmap * Eligibility for $370M in CDMRP funding Next step: The House. Contact your Rep: solvecfs.quorum.us/campaign/13625…
The Community Symposium on the Molecular Basis of ME/CFS returns Sept 5, 8am–1pm PT on Zoom. Hosted by Ron Davis & Stanford Genome Technology Center. Virtual, free, open to the public. Register: stanford.zoom.us/webinar/regist…
Free Scripps Research Front Row Series virtual lecture on CAR-T therapies for cancer & autoimmune disease. Aug 20, 4 p.m. PT Speaker: Travis Young, PhD Not ME/CFS-specific, but relevant for those following immune research. Register: frontrow.scripps.edu/lectures/travi…
Mount Sinai’s Cohen Center has released a free clinical provider manual for diagnosing and managing conditions like Long COVID and ME/CFS. Get the IACI Provider Manual here: icahn.mssm.edu/research/cohen…
The DecodeME study found significant genetic variations linked to ME/CFS but shows genes alone don’t cause it and doesn’t provide a diagnostic test or treatments. It offers important directions for future research and a valuable database. Preprint: research.ed.ac.uk/en/publication…
NOW AVAILABLE ON YOUTUBE: Free Virtual Event: Ruby Tam Q&A on ME/CFS Care, Insights & Answers. Watch here: youtube.com/watch?v=qetuPj…
Do you or someone you know have Long COVID, ME/CFS, or POTS? The MN Dept of Health wants your input to shape the state’s response. 📣 Join focus groups, design sessions & surveys. 🔗 Sign up here: forms.office.com/Pages/Response…
🎙️ ME/CFS Expert VIRTUAL Q&A with ME/CFS expert Dr. Ruby Tam 🗓️ Tues, Aug 5 | 🕕 6PM PT / 9PM ET 💬Q&A: ME/CFS Care, Insights, and Answers 🔗 Register: us06web.zoom.us/meeting/regist… 📺 Recording: youtube.com/@MECFSSD
📅 August at @BatemanHorne (virtual & free): Aug 12, 1PM MDT – Managing Physical Symptoms Aug 19, 1PM MDT – From Shame to Pride Aug 21, 11:30AM MDT – Energy-Limited Resources Details: batemanhornecenter.org/events/
New Nature study (2025) shows sleep loss disrupts mitochondrial structure and ATP levels in energy-sensing brain neurons. Findings parallel ME/CFS biology: * Mitochondrial fragmentation * ATP depletion * Reduced neuronal excitability 🔗 nature.com/articles/s4158…
The 2025 Federal Budget Law will end enhanced ACA subsidies & tighten enrollment, risking millions losing coverage, including many with ME/CFS. Without action, premiums could rise 75%+ in 2026. Is your insurance is ACA: mecfssandiego.com/mecfs-resource… More info: kff.org/affordable-car…
Mitochondria do more than make energy, they help fight infections. New research shows they detect bacterial lactate & trigger neutrophils to release NETs that trap pathogens. More @ConversationUS : theconversation.com/mitochondria-c…
New preprint from Ian Lipkin’s team: ME/CFS patients have a heightened immune response to exercise. The study reveals shifts in complement proteins & carnitines, offering insights into how immune & metabolic dysfunction may drive post-exertional malaise. medrxiv.org/content/10.110…
New study tests IV saline in ME/CFS with dysautonomia. Saline, often a placebo in trials, showed some symptom relief but no objective improvements. Important to know saline’s effects to interpret drug trial results. Full study: frontiersin.org/journals/neuro…
Work requirements could jeopardize coverage for U.S. ME/CFS Medicaid patients: 75% can't work, 25% are homebound. Exemptions require complex paperwork. Learn more: investopedia.com/what-medicaid-… Medicaid Program Names: mecfssandiego.com/mecfs-resource…
Brukor @Brukor767907
13 Followers 1K Following
RarasNoInvisibles @NoInvisibles
55K Followers 7K Following Hablamos de salud, enfermedades raras, inclusion social y biomedicina. Escribe @Sombradoble Mas Información: [email protected]
cmmmlg @cmmmlg
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Dra. Ana María Habas... @Anita_Your_Doc
139 Followers 433 Following MÉDICO. Experta en Valoración del Daño Corporal e Incapacidades. Máster en Medicina Estética. Luchadora COVID persistente!
Veranderland @Veranderlant
523 Followers 2K Following If I ask you to name all the things you love. How long would it take, before you name yourself? Always busy curing myself of ME/CFS, cause nobody else will.
Geekonomicon @Geekonomicon
4K Followers 6K Following #MentalHealth advocate & #SelfCare expert. Also #freelance #writer, #blogger, #geek, #gamer, wit and scholar. Retweets ≠ endorsements.
Consider This @atimeweneedit
6 Followers 22 Following A realistic perspective on issues that to me are either overlooked or not given enough attention by the media. The possibilities exposed are worth considering!
Marilyn @MarilynAyellera
9 Followers 321 Following Dedicated to personal growth, self-improvement, and becoming the best version of myself. The journey continues.
amit ranjan @onlyamitranjan
22 Followers 59 Following
Evan @EvanH176
526 Followers 4K Following Medical student begging you to wear a mask. Climate breakdown is the solution to the Fermi paradox (he/him)
Rene Sugar @renesugar
4K Followers 4K Following
Rachel @rachioella
72 Followers 203 Following Severe LC/ME/CFS since 2023 . interested in research and awareness to help improve QOL. surviving each day 🇮🇪
LowCovid 🇪🇺 Kan... @falsel_net
2K Followers 943 Following Retired Drs. Med, MBA, 40+ years biomedical research-, development-, regulatory-, marketing-, business development-, strategy- and alliance management.
Freckled Ginger @raging__redhead
1K Followers 5K Following Fighter of chronic illness. Survivor. Working for a better life for all. My story is not yet finished ;
Michelle Stout @ms_stout
166 Followers 371 Following Organiseren | Marketing | Communicatie | Social Media | | Reizen | Skiën & Snowboarden | Creatief
Liz Kennerley #LongCO... @LifeAccrdingLiz
2K Followers 2K Following #chronicillness #patient & Federal Health Policy #Advocate @SimmonsAlumni, @remember_girls Board member @RareDiseaseDiv1 Patient RISE award recipient. My views.
Lotti Chen @LottichenChen
153 Followers 2K Following
Anita White. 😷 @RealAnitaWhite
6K Followers 7K Following Retired GP. Left behind without #NovavaxForAustralia #KeepN95InHealthcare #CleanAir for schools #ME RT/Like not endorse Personal opinion only
Cnd @Cnd92932465708
0 Followers 198 Following
Julie Sullivan @CureLongCovid
5K Followers 3K Following Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) 💕
IwillfixitASAP🇪�... @IwillfixitASAP
47 Followers 1K Following
Heidi Fidler @HidFid
498 Followers 5K Following RN, PhD drop-out (for now at least) 💓 Peds & NICU. POTS (likely LC triggered), MCAS, ME/CFS, HSD & endometriosis. https://t.co/DLWQcItnjY
Szyzygy3 @Szygy3
35 Followers 203 Following
Candice Tal @CandiceTal
3K Followers 5K Following CEO Infortal Worldwide. Global Risk Management & Security. Protecting your business #FCPA #DueDiligence #BoardAdvisory. Carer #ME/cfs.
Warren Togami @wtogami
13K Followers 2K Following VP Solutions at @Blockstream. Founder @fedora Linux. ex-Red Hat.
Kopis Pelekis @HopLongCovid
6K Followers 1K Following Former student/amateur lifter. Then #LongCovid #MECFS since 2020, can't walk anymore.
Daniel @danielhae5
115 Followers 760 Following MSc in Business Innovation @HSGStGallen | Blockchain Enthusiast $ETH | Life on pause due to severe #LongCOVID #MECFS since 08/2022 🪫
ZitaF💚💚💚 @rzfichtl
563 Followers 2K Following
Chermain Lin-Tay @lintaoadrena
20 Followers 603 Following
CyFi @CyFi10
35K Followers 25K Following Pandemic updates || insight | breaking news || macroeconomics | geopolitics | markets | disasters | conflicts | science | climate | technology | OSINT
silvergirlsails @silvergirlsail3
171 Followers 354 Following
Anaïs Arianwen @anais_aotearoa
316 Followers 750 Following She/her. Neurospicy, living with M.E. Please 😷 I want to be part of building a kinder more equitable world than this. Also just a woman howling into the void.
POTS DOC @JusticeInMed
6K Followers 5K Following
Chillfrog - are you k... @DPhilvon
746 Followers 2K Following CFS/ME hero since 2004. Motto: "When people who are honestly mistaken learn the truth, they will either cease being mistaken, or cease being honest."
Delphine Houlton 💙 @Dodlink
2K Followers 4K Following Passionate about people and PR. Raising awareness of CSM with https://t.co/lpZGQJzuLr. Freelance PR. Seeking truth at all times. Wannabe poet.
J @jennyblue333
517 Followers 5K Following
Sinéad Peace Piece @BerzinsPetsits
4K Followers 6K Following 'Whatever is currently happening to humanity is happening to all of us.'
Cathy @bargerstockca
1 Followers 199 Following
Dee @po_move
2K Followers 3K Following Mental health, inequality & disability. Long covid research & treatment. #LongCovid #MCAS #POTS #MECFS #vaccineinjuries #FBLC
Carey @29Carey29
2K Followers 5K Following Here to learn and connect with others doing the same. #KeepMasksInHealthCare #LongCovid #POTS
Gregory C Wolfe II @gwolfeprime
649 Followers 7K Following
Danny @romanod194
10 Followers 215 Following
Mark Hammond @iammarkhammond
2K Followers 4K Following Co-founder of @deepsciventures, ex-neuropharmacology & AI. Building https://t.co/AudYnguwRA , a co-pilot to scientific creativity and impact.
Jack | amatica health @JackHadfield14
5K Followers 1K Following ex Aerospace Engineer, now ME/CFS & LC patient researcher and cofounder @amaticahealth https://t.co/BvmsOvch0p - email [email protected] questions
Mary Mihalik @m4mihalik
28 Followers 9 Following Mihalik's Marvels, welcome to E-33! We are going to create and innovate our way through the fabulous fourth grade curriculum.
Royal Hansen @royalhansen
8K Followers 1K Following Vice President, Engineering, Google - Privacy, Safety, Security: Posts on InfoSec, Privacy, Data, AI, Counter Abuse and random stuff from life in CA; Tweets=own
Ray Dalio @RayDalio
1.7M Followers 91 Following Official account of Ray Dalio, founder of Bridgewater Associates, author of #1 New York Times bestseller 'Principles,' professional mistake maker
Tess Falor, Ph.D. | R... @tessfalor
9K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Cambridge ME group @CBMEgroup
2K Followers 2K Following CBME is a support group based in #Cambridge UK for people with #MECFS, #MyalgicE , #CFS, #PostViralFatigue, #Fibromyalgia, including #pwME caused by #LongCovid
Long Covid Advocacy �... @LongCovidAdvoc
14K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #pedanticzebra book club. 🛍️ https://t.co/8JlRWqxASF
Massachusetts ME/CFS ... @MassMECFS
2K Followers 727 Following To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.
PwME 4 bioMEdical res... @ValeBodi
4K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
LongCOVID Patients Ca... @pwlcCalifornia
167 Followers 374 Following Patient-Centric community platform for Long Covid patients in California #longcovidawareness #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc
Amrit Shahzad @AmritShahzad
46 Followers 276 Following Biotech Exec, For the Greater Good, Fascinated by Human Physiology. "Be sure to taste your words before you spit them out".
Dr Hng + Friends @DoctorwithME
2K Followers 1K Following Author of "Doctor with M.E." Founder of Doctors with M.E. (DwME), international professional association. Views our own (me + friends) not DwME.
Martin @pausedME
8K Followers 494 Following #MECFS-activist⎮#Lawyer by profession: Legal consulting for digital creators and influencers | #Musician by passion
Rachel Riggs @therachelriggs
1K Followers 379 Following #MECFS #EDS Community Liaison // The Naviaux Lab, UCSD Author of IN GOOD HEALTH cookbook, available for pre-order! https://t.co/BBQZ4ptWJg
Emily Chatelet Brossa... @EmilyCBrossard
311 Followers 161 Following Research Analyst, Patient Advocacy for ME/CFS and related Cluster Illnesses, Biochemistry Research, ME/CFS Protocols Project
Dr Ben Marsh 💙 @bendymarsh
5K Followers 333 Following Neurodisability Paediatrician educating re Post viral syndromes #MECFS pwME #LongCovid @PSPforMECFS @DoctorsWithME ExeterChiefs & LFC fan. Ravenclaw. Views mine
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Chronius Health @chroniushealth
317 Followers 2K Following One place for your health data. One personalized plan to navigate your care journey. One advocate ensuring you get care you deserve.
Gwynn Dujardin @gadujardin
2K Followers 3K Following Overburdened with mitochondrial challenges. Resting on the Chesapeake.
Omar Wasow | @owasow@... @owasow
30K Followers 13K Following Asst Prof, Berkeley, Pol. Science. Study protests, stats & race: 1/ Agenda Seeding https://t.co/HQAGSf9JK9 2/ Race as Bundle of Sticks https://t.co/PuFZmnG4qP
Michael VanElzakker @MBVanElzakker
10K Followers 268 Following Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)
Amy Proal, PhD @microbeminded2
29K Followers 5K Following Microbiologist at @polybioRF: studying how persistent pathogens drive inflammaging, mitochondrial dysfunction & cognitive decline #longcovid #lyme #alzheimers
Sten Helmfrid 🇺�... @StenHelmfrid
7K Followers 190 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
John L Whiting @John_CFS
2K Followers 311 Following Physician, expertise in Myalgic Encephalomyelitis
postersandme @postersandme
2K Followers 273 Following Advocacy, Art, Inspiration, reflection #MyalgicEncephalomyelitis #pwme
Eileen 🔊 @TurnItUp4ME
2K Followers 1K Following Advocate: political & government reform, human rights, social services Federal committee advisor, Department of Health & Human Services, Washington, DC (former)
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Kristina Osobka @ChronicallyTina
1K Followers 2K Following Founder of the ROCK ME Project. Wife, Cat mom, Author, Advocate, and medical DUMPSTER FIRE. Living life one SPOON at a time. ME is a DISEASE not a LIFESTYLE!
Robert S Farmer MD @RobertFarmerMD
286 Followers 2K Following Curing "incurable" diseases such as Parkinson's, chronic pain, diabetes, autism, osteoporosis, gluten allergy, et al, neuro dis., "autoimmune", MS, IBS/IBD etc.
Nadine Fischer @NadineF42267420
16 Followers 40 Following
Anitra Cajander @AnitraCajander
492 Followers 3K Following I am a 55 years old woman from Helsinki. I've been disabled after a car accident since -99 and suffer from #chronicpain #hypersomnia #braininjury severe #MECFS
U.S. Surgeon General @Surgeon_General
1.2M Followers 166 Following Official X account for the U.S. Surgeon General. Tweets before 01/20/25 are from prior federal officials. Privacy: https://t.co/SrVlrTVtqD
Vivek Murthy @vivek_murthy
108K Followers 67 Following Dad, husband, doctor, author, 19th & 21st Surgeon General of the United States. This is my personal account. For official updates, follow @Surgeon_General.
Rochelle Walensky, MD... @RWalensky
68K Followers 377 Following Nominee for CDC Director, Chief of Infectious Diseases @MGHMedicine, Decision science researcher, Mother of boys
⭕️MECFS/LC⭕️E... @Arizona10238417
2K Followers 4K Following Wer möchte kann von Amazon kleine Gutscheine an [email protected] für Kuscheldecken, Wärmekissen, usw. geben. Vielen ❤️ Dank
Wilhelmina Jenkins @minadjenkins
2K Followers 1K Following
wigglethemouse @wigglethemouse
898 Followers 141 Following 49ers and Swindon Town supporter. Engineer. #mecfs has got in the way of having a life
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
#MillionsMissingDenma... @MillionsMissin2
2K Followers 4K Following
Bea is Chronically Pe... @Be_Kinderr
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Rivka @Rivkatweets
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Winston Blick @winstoncb
3K Followers 822 Following
Eric Topol @EricTopol
678K Followers 604 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA
Workwell Foundation @4Workwell
3K Followers 1K Following #Nonprofit #research laboratory providing #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses.
Ashley Haugen @AshleyHaugen88
889 Followers 60 Following Sister to #MECFS hero, @DafoeWhitney, Daughter to Ron Davis and @JanetDafoe. Fighting to #endMECFS
DecodeME the ME/CFS S... @DecodeMEstudy
8K Followers 674 Following The world's largest study ever into #MEcfs. #pwME #DecodeMEStudy #pwME #MillionsMissing
Jennie Spotila @jspotila
2K Followers 388 Following Writer/ME Activist. We are more than our disease.Trends for United States
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