Make ME Visible @makemevisible24
An initiative in India to spread awareness about ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome). india Joined December 2024-
Tweets4K
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Followers599
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Following271
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Likes5K
Make ME Visible retweeted
Most people still think GLP-1s are just fat loss tools. But peptides like retatrutide are showing huge promise for brain health, too. Weāre talking real neuroprotection, better cognition, and even reduced Alzheimerās risk. Letās break it down š§µš
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Make ME Visible retweeted
1/ ME ripped my life apart. It stole my body, my voice, my hope - left me broken and screaming inside... a silence no one hears. This is what severe ME looks like when no oneās watching.š§µš #MECFS #InvisibleIllness #ChronicPain #severeME
They're trialing ldn and mestinon? Can't they trial newer and other drugs?
Make ME Visible retweeted
HOPE from Ronald W. Davis, PhDās Working Group Meeting The ME/CFS community may not realize what a big deal the working group meeting is that is happening Tuesday - Friday right now led by Ronald W. Davis PhD. Ā ME/CFS researchers from around the world are meeting and agreeing toā¦
HOPE from Ronald W. Davis, PhDās Working Group Meeting The ME/CFS community may not realize what a big deal the working group meeting is that is happening Tuesday - Friday right now led by Ronald W. Davis PhD. Ā ME/CFS researchers from around the world are meeting and agreeing toā¦
Whatever you do, do NOT let your cognitive energy decline (if it's in your control i.e). Having no brain function and getting overwhelmed by basic light and sound I'd a nightmare.
Make ME Visible retweeted
Additionally, the benefits from the protocol were long-lasting, with almost all patients reporting sustained improvement up to 720 days after the protocol! #LongCovid researchsquare.com/article/rs-750ā¦ 2/
Make ME Visible retweeted
New from @PutrinoLab & Dr. Pridgen: A combo of 120 days of celecoxib & valacyclovir with 15 days of Paxlovid is significantly more effective than celecoxib & valacyclovir alone! The combo had vastly greater response rates for brain fog, dysautonomia, & fatigue. #LongCovid 1/
Very curious. Where has #MECFS research taken us so far? Has it resulted in creating any drugs that will help us? None at all right?
Make ME Visible retweeted
Pls donāt forget Iām struggling too And Iāll keep having issues long term thanks to underfunding my disability needs. I also desperately need a food dehumidifier to prevent mould problems ($500 ish) and costs to help cover meds supplements, my $400 board and everything
Pls donāt forget Iām struggling too And Iāll keep having issues long term thanks to underfunding my disability needs. I also desperately need a food dehumidifier to prevent mould problems ($500 ish) and costs to help cover meds supplements, my $400 board and everything
Rachel @robertson3rache
344 Followers 3K Following
Express Scripts & Rap... @K2spiceN8745
410 Followers 5K Following Skip the trip to the pharmacy. We'll send medication right to your door when you need it.
LA2LAGURL @La2Arceri
929 Followers 2K Following Questioning everything : ššššššššš šš š ššš š šš: spiritual & į“ŗį“¬į“æį¶į“µĖ¢Ė¢į“µĖ¢įµį“µį¶ abuse survivor #CPTSD: EDS, #ME/CFS: POTS, CCI, Chiari, MCAS 28 years
Taylor of Samsara (Re... @taylorpartdeux
729 Followers 1K Following 29 | Chemist | Disabled | ME/LC/PsA/CPP | AuDHD | #FreePalestine ššµšø| Chess player āļø| #FreeLuigi | Acolyteā¢ | banner by @SurvivingCFS | āļøāļøāļø
Sammy James @SuperSalmon1992
190 Followers 3K Following
PF (Patricia/Pat) And... @pfatech
608 Followers 2K Following This was the livetweeting account for @pfanderson. Have been locked out & am unable to access help from @TwitterSupport Librarian, LongCOVID March 2020
Ryan Extraterrestrial... @RyanE_T_
313 Followers 2K Following Environmental conservation. Anti #celebritygossip Less material, more thought #millionsmissing Living with #disability, #No2ableism #severeME #BIPOC
Paula Kamen @PaulaKamen
853 Followers 3K Following author of womenās health books like All in My Head on chronic pain & plays like Jane, re Chicago feminist abortion service. 2022 OāNeill finalist
Mary Frampton @mary_frampton
1 Followers 211 Following
Melissa Mazur @PhillyPhile215
2K Followers 4K Following Just a Philly girl, livin' in a lonely worldā¦and a Luddite learning to Twitter. #LongCovid since March 2020 || Lawyer on Pause
Martha-JD, MBA, PCC-ļæ½... @mryoung151
9K Followers 6K Following Sars2 is airborne & CAUSES Covid /Long COVID. Science saves lives. Covid/LC prevention/research/treatments. Healing, Politics/Bus/Psychopathic Leaders.
Pau Puig @puigpauadvocate
47 Followers 162 Following #EDS #PoTS #Dysautonomia #ME and co. | Secretary of @AEPOD_es | Volunteer at @ANSEDH | Views are on my own š³ļøāšā暦
Wendie @Wendie62716620
8 Followers 1K Following
š»š Katie šļæ½... @kappatau314
321 Followers 1K Following Geek, bibliophile, cat fosterer (#FosterCat), gamer (#ESOFam), mental health and recovery something-er, #pwME, Trekkie. I love posting gifs. (She/her)
Marianne Elizabeth ļæ½... @FindingHolm
4K Followers 3K Following Pro-Humanity Anti-Imperialist š We must RESIST the Corporate Political Oligarchy & help birth The New Multipolar World of Peace š #ProtectPainPatients
jleigh @jleighs7478
0 Followers 2K Following
Sara @CSWink06
79 Followers 1K Following
Photon Turtle @PhotonTurtle
152 Followers 813 Following ā/acc ā Contributing to the singularity. Severe (LC19/MECFS). Recording fragments of my consciousness while I still can.
Carey Dorazio @careydorazio
18 Followers 167 Following
šPhoebe @fgtheodora
396 Followers 2K Following I like stories about successful medical appointements.
Larry Weis @LarryWeis7
760 Followers 2K Following #ME/CFS,#SFN,#Dysautonomia Owner-Commercial Insurance Agency
Ball of Suck (=š) ... @BayouMystere
2K Followers 2K Following Undead undead undead š¦she/her šāā¬Ex-burlesquer š deep down inside I got a rock 'n' roll heart š¤š©¶š¤š gradual onset ME/CFS
Nwiss šøšŖšŖļæ½... @Gronnet
4K Followers 2K Following Health & Medical Science (views my own) News and Research on #LongCovid #FBLC #MEspine #EDS Longhauler since March 2020, (3x Covid inf) #MECFS since 2011
Loria Walseth @LoriaWalse52994
1 Followers 20 Following
QuietStorm :3 (she/th... @_Quiet___Storm
351 Followers 866 Following 33 š§ āāæ Long covid š M.E. š Scholar history/social sci š©š½āš¬/media š¼ ā¢ Projects š¤ Weird š¤ Future SW š Dm for my email āļø #altUBI š©·
ChronicMum @ChronicMum
5K Followers 2K Following Alleinerziehend, twittert u.a. Ć¼ber Inklusion, Behinderung, #Autismus und den Alltag damit. Post Covid, CFS, šØš»āš¦¼āā” #NoABA, ā Sie/ihr šš #TeamHabeck
Wolf Girl @W01fGirl
219 Followers 525 Following Throw me to the wolves and I'll return leading the pack.
Lajara š· šµšø @LajaraSedai
798 Followers 2K Following 34. spoils Wheel of Time books. ASOIAF, ROTE, Malazan, Cosmere white ajah. spoonie with a delicate constitution. cat lady and dog mom.
Mack @mack99763
9 Followers 164 Following
Faithless @FaithOxenbridge
3K Followers 3K Following Tired of defending my reality. Vax induced ME (still pro Vax) Bedbound. Not tired; sick. Used to write & teach. Here for the research and outrage.
Heather Howe @HoweHolistic
279 Followers 1K Following šš Certified Nutritional Therapist/MECFS/MCAS/CRPS/POTS-Dysautonomia/EDS advocacy. Here for the š¬š§Ŗ
Alex @xelaaa1989
130 Followers 124 Following Iatrogenic harmed & polydrugged disabled PSSD | BIND | MECFS
LUCIĪN | DARKTIMES @LucienDorman
4K Followers 755 Following Co-founder, @PlayDarktimes on the @SuiNetworkš Inspired by the digital world š Views are my own āļø V Severe ME/CFS āļø
Ri @pinkchi98
2 Followers 39 Following ME/CFS ā¢ here for the chronic illness community. new account because brain fog forgot the last
Laurids Stockert @Deep_Chora
4 Followers 63 Following
tavo @TavoGLC
770 Followers 5K Following 2X Kaggle Expert, Cell biology PhD dropout, Sometimes I blog and I like to know stuff
Rebecca Stewart @RStewart__r
792 Followers 1K Following Business partner - energy & commodities space
raven thorn @HeathenThorn
203 Followers 942 Following disabled, plural, queer, leftist (anti capitalist, anti fascist, anti imperialist), ME /chronic illness
Mikee @mikee52000
770 Followers 1K Following Myalgic Encephalomeylitis diagnosed bedridden patient āæļø Getting on with my life as best I can. My time and energy are limited, so please do not waste either.
margaret lloyd @wickedsnakes27
50 Followers 97 Following
Lena @Lena____16
371 Followers 752 Following Carer for my daughter with very severe ME | ME - Myalgic Encephalomyelitis
@Riemerville @Riemerville
4K Followers 4K Following Salty | #LongCovid #ME #CAIS| Books, Music, Food, Art, #ATXRE, probably some typos
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
āļøš¶š±š®ļæ½... @MidasBull
649 Followers 7K Following īØTradingā¶Brainā¶Biohackingā¶Longevityā¶Biotechā¶Scienceā¶Techā¶AIā¶Wellnessā¶Martial Artsā¶Liberty
Bruce Danton @BruceD16659
4K Followers 7K Following
Rachel āæ š šŖļæ½... @ChasingGlimmers
20K Followers 22K Following Northumbrian. Severe M.E Sufferer. SEND Mam. Disability Rights Advocate. Opinions Own. Writer @TheCanaryUK Blogger @wearecarers
Meder O @meder_o
2K Followers 8K Following Software Engineer - Sports, Medicine, Health, IAQ | https://t.co/r4zU0hO4kW | https://t.co/Uuv2fGfTYs | https://t.co/XyeNWdoZkt | https://t.co/AS1sbsA2zo
LA2LAGURL @La2Arceri
929 Followers 2K Following Questioning everything : ššššššššš šš š ššš š šš: spiritual & į“ŗį“¬į“æį¶į“µĖ¢Ė¢į“µĖ¢įµį“µį¶ abuse survivor #CPTSD: EDS, #ME/CFS: POTS, CCI, Chiari, MCAS 28 years
Christy Collins šļæ½... @sun_in_winter12
4K Followers 1K Following Sharing what I've learned on my own journey āØ Long Covid, MCAS, HypermobilityāØTweets educational; not medical advice.
Taylor of Samsara (Re... @taylorpartdeux
729 Followers 1K Following 29 | Chemist | Disabled | ME/LC/PsA/CPP | AuDHD | #FreePalestine ššµšø| Chess player āļø| #FreeLuigi | Acolyteā¢ | banner by @SurvivingCFS | āļøāļøāļø
Danilo.Buonsenso_Surf... @surf4children
4K Followers 710 Following Pediatrician/pedsID working on #longcovidkids, #TB, #congenitalinfectionsāļøfunder of surf4children no profit. MY BOOK ON LONG COVID https://t.co/WoIpn8N9mS
Stefan Arce @stefan_arce
169 Followers 23 Following #severeME/CFS #disautonomia #bedridden #encefalomielitismialgica #POTS
Photon Turtle @PhotonTurtle
152 Followers 813 Following ā/acc ā Contributing to the singularity. Severe (LC19/MECFS). Recording fragments of my consciousness while I still can.
Hippymum @Baybabe75
864 Followers 1K Following ME sufferer since 1983, too many co-morbidities to list. I miss the old me. I love old VWs and animals and detest what our country has become due to the greedy
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Arpit @Arpit_XD
189 Followers 599 Following Barely existing in the ruins of my life, destroyed by #Disability, #EDS, #CPTSD, #LongCOVID, #MECFS #Grief
Tina Katsaros @tinakatsaros
1K Followers 249 Following PhD candidate researching ME/CFS at La Trobe University
Valerie Eliot Smith @ValeriEliotSmit
3K Followers 783 Following Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog https://t.co/HWItDyrb9H
Sten Helmfrid šŗļæ½... @StenHelmfrid
7K Followers 190 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Suzaku has Long Covid... @Suzaku_is_tired
1K Followers 2K Following Long Covid / MECFS patient since March 2021 ā¢ šŖš¦šØšµš¬š§ ā¢
ME/CFS Science @mecfsskeptic
4K Followers 462 Following In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
Amanda Crist @ZebraLoveCo
826 Followers 1K Following Writing about #hEDS š¦, #muscle, healthāļø, genetics, and how Iām trying to walk againš± #bedbound #homebound #calfproblems #zoology
Rachel āæ š šŖļæ½... @ChasingGlimmers
20K Followers 22K Following Northumbrian. Severe M.E Sufferer. SEND Mam. Disability Rights Advocate. Opinions Own. Writer @TheCanaryUK Blogger @wearecarers
Sam Dalrymple @SamDalrymple123
19K Followers 164 Following Historian, Author and Film Maker based in Delhi/London Columnist at @archdigestindia Shattered Lands Out Now! https://t.co/4zzZriMmal
ME Association @MEAssociation
19K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
RonaldwDavis @Ronaldw_Davis
647 Followers 22 Following
WE&ME Foundation @weandmecfs
3K Followers 53 Following WE&ME Foundation funds and supports collaborative research projects to combat #MECFS and related disorders.
Maureen Hanson @DrMaureenHanson
6K Followers 146 Following I am a Professor in the Molecular Biology and Genetics Department at Cornell University in Ithaca, NY.
Tara F, PhD MPH @TaraFotiPhD
1K Followers 1K Following Health equity, perinatal and womenās health, complex chronic conditions researcher #Neurodiversity #LongCovid #MECFS #Lyme #POTS @RenegadeRes @RemissionBiome
Carmen Scheibenbogen @C_Scheibenbogen
13K Followers 70 Following Immunologist and ME/CFS researcher MD @ChariteBerlin
Nicholas Boyd-Gibbins... @NBoydGibbins
3K Followers 647 Following UCL | Kyoto Univ. | cell engineering, synthetic biology, iPSCs, data science, long COVID, cancer, genetics and neuroscience @amaticahealth
Gabriele Strƶck @gabrielestroeck
836 Followers 652 Following CEO at Strƶck Bakery & Director @weandmecfs | Supporting our sons and everyone else fighting with #MECFS and #PAIS |
Amy Cook @AmyCookOC
2K Followers 2K Following run, bike, kayak, dive, travel, eat, drink, sleep and repeat.
Daniel Missailidis, P... @DanMissailidis
4K Followers 625 Following Researching the cell biology of PD, ME/CFS & Long COVID at La Trobe Uni in Melbourne, Aus. Papers: https://t.co/JMi5U6cBLI
Alice Frickerš @FrickerAlice
796 Followers 342 Following 21, Bedridden for 9yrs with #VerySevereME #hEDS #SFPN #MCAS #PoTS Chronic Insomnia & Chronic Bladder condition. Mother helps run account.
Felice @feliceaussi
230 Followers 59 Following Cfs/me sufferer, vegan, world citizen, traveler, environmentalist, syfy fan, good vibes only š±š
į“É“į“į“Źį“į“ ÉŖ... @MECFSisCFSnotME
569 Followers 492 Following 'EPIDEMIC M.E.' is a 'POST-INFECTIOUS ENCEPHALOMYELITIS' caused by an 'ENTEROVIRUS'. 'MYALGIC ENCEPHALOMYELITIS' causes a NEUROMUSCULAR DISEASE + MOTOR DISORDER
Derya Unutmaz, MD @DeryaTR_
320K Followers 7K Following Professor, biomedical scientist, human immunologist, aging & cancer immunotherapy. ALL IN ON AI. Interests: longevity, robotics, Scifi, space. Personal opinions
Joan Crawford @joan_crawford1
593 Followers 2K Following Counselling Psychologist Ex Chemical Engineer
8Eevert āØ @8Eevert
1K Followers 3K Following Neurodivergent citizen researcher dad fighting #LongCovid, #MECFS and systemic neglect.
Perry Nickelston @stopchasingpain
26K Followers 2K Following āTHE LYMPH DOCā Helping chronic pain by optimizing blood and lymphatic flow. BIG 6ā¢ļø Lymph Reset creator. #stopchasingpain
Marcus Pinto, MD, MS @MarcusVPinto
5K Followers 925 Following Peripheral Nerve Neurologist and Pathologist @MayoClinic. Check my Highlights for Peripheral Neuropathy Education.
Deepak Malgutte @DMalgutte
662 Followers 91 Following Autoimmune Sherlock | Rheumy | Med Educator Busting myths around joint pain, autoimmune disease & steroids.
Kerry Newnham @Squashedhedgi
1K Followers 1K Following Tube-fed, bedbound, a very severe M.E veteran, injured in this battle. Unlikely to come through intact or alive. UK harmed pwME & then neglected us. LW-green
Grieving ME Caregiver... @mecaregiver
1K Followers 992 Following Caregiver of #MyalgicEncephalomyelitis patient & lost one son to #MEkills #PostVac #VaccineCritical IMPORTANT INFO: ME IC PRIMER: https://t.co/tnfTPKyIGj
Vipin M. Vashishtha @vipintukur
19K Followers 458 Following Pediatrician, ārationalā vaccine thinker, Editor Covid Vaccines, TB on Vaccines & many others, Past-Convener IAP COI, Member-WHO-VSN https://t.co/eOvazlWmWg
Y0ur_Neighb0ur @Y0ur_Neighb0ur
584 Followers 597 Following Very severe #MyalgicEncephalomyelitis in #LongTermCare w/ #Gtube. #MGUS. Dad, š enthusiast, former hobby š and tradesman š§ Future GRAMPA!
Patient-Led Research ... @patientled
26K Followers 661 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Eliana @ElianaUku
3K Followers 515 Following #LongCovid patient (mar '20); MBA candidate @StanfordGSB | ex @37angelsny @paypal @inturnhq
š„š®š»š±š ... @RegenRandy
420 Followers 160 Following BPC-157 changed my life. Working to make these powerful peptide solutions more accessible and less intimidating. Data-driven insights from my own experience.
LymeAwareness | Be Ki... @bekindforlyme
3K Followers 3K Following #LymeDisease Awareness *Inspire #bekind #empathy #helpothers *Chronic Illness Advocacy š #HealthCare #fbr *No Dms Instagram | Facebook
P @coupdecoeur
241 Followers 700 Following
Long COVID Foundation @LongCFoundation
5K Followers 356 Following U.S. 501(c)(3) non-profit supporting those with Long COVID & others affected by the pandemic. Advocates for those with chronic illness & chronic SARS-CoV-2.
Johnny EV @HoagieHoag
535 Followers 721 Following Space, TECH, EV, outdoor lover. Excited about many technology changes coming over the decade. Patient Advocate collecting spoons #pwME #MECFS
Dysautonomia Intl. @Dysautonomia
26K Followers 351 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
ME/CFS-L @cfs_lb
521 Followers 174 Following ME/CFS for 22 years and counting - experiments with novel therapeutics for ME/CFS - Former ArtistTrends for United States
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