Mikee @mikee52000
I am a Myalgic Encephalomeylitis diagnosed predominantly housebound/bedridden patient ♿️ Getting on with my life as best I can UK Joined November 2014-
Tweets12K
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Following847
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Likes45K
What a day! #SevereME is in itself too much to handle yet what reduced me to tears, palpitations and severe #anxiety came in the form of my local #NHS #DistrictNurse team! They showed total disregard for NICE guidelines @NICEComms for patients with Myalgic Encephalomyelitis and…
#NewProfilePic April 2024 #MindSetMatters #SevereME
My GP has just added #Amitriplyline as a daily medication along with the existing #oramorph and #Paracetamol for my constant extreme pain with #SevereME can I expect any improvements? I declined #Pregabalin due to its #Dementia risk #pwME #Gastroparesis #Diabetes…
Saint George’s Day 2024 - Yesterday Today Tomorrow #SaintGeorgesDay #England
St George’s Day falls on Tuesday 23rd April 2024 🏴 Now more than perhaps at any time in recent history the English need to show the world we are proud of who we are #StGeorgesDay #England #GreatBritain #UnitedKingdom #mecfswarrior #SevereME #KindnessMatters
This is a national disgrace! @ForcesNews
This is a national disgrace! @ForcesNews
#RishiSunak This weasel represents the lowest point in British history!
#RishiSunak This weasel represents the lowest point in British history!
A little Saturday breakfast treat to break up the monotony. Deliveroo special offer, just £10 incl delivery! #SevereME #breakfast
The #RishiSunak scandal #sicknote
An incredible source of information on #MECFS
A tragedy that should never have had to been written! Forthcoming book by @johnpringdns #DWP #Disabled @Conservatives @reformparty_uk @UKLabour @LibDems
A tragedy that should never have had to been written! Forthcoming book by @johnpringdns #DWP #Disabled @Conservatives @reformparty_uk @UKLabour @LibDems
My lucky day in the life of a #pwME District Nurse was incredibly kind and down to earth who did the home visit today. Due to past experiences of #DistrictNurse I suffer much anxiety and stress with these appointments. #NHS #SevereME #Bedridden
Certain to be distressing reading for millions and eye opening for millions more! The British government @Conservatives have lorded over some of the UK’s most vulnerable, sick and disabled citizens. Tragically the #DWP have played a devastating role in the lives of so many…
Certain to be distressing reading for millions and eye opening for millions more! The British government @Conservatives have lorded over some of the UK’s most vulnerable, sick and disabled citizens. Tragically the #DWP have played a devastating role in the lives of so many…
Each day I choose to make a fresh start #SevereME #Forgiveness #Encouragement #Kindness #PersonalGrowth
If there is a standard definition for “feeling like I am dying” then that’s exactly how I feel these days. Severe ME really is a slow extremely painful death process #SevereME
That’s enough of this world for me for the day, curtains closed and withdrawing into the usual black silence #SevereME #SeverePain
The array of contaminants, toxins and chemicals in our bodies and around us from what we consume to the furniture and furnishings in our homes and offices there is no wonder millions of us are suffering from life changing diseases such as #SevereME #MEcfs #cancer
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
It's M.E. Linda 💙 .. @HappyHoundHouse
2K Followers 3K Following 2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. Brain/fitness 'not what it used be'. Beloved Lisnakill Myles-Happy Hound himself🌈 💔
Dr Melanie @MelanieWeckert
10K Followers 10K Following ME/CFS MCAS, POTS. Microbiology (environmental) PhD. Living on Yuin land. Writer poetry, mystery thriller ‘Eagle Bluff.’
Jeff Smith @JefferySmithME
1K Followers 915 Following Obsessed by many creative & ridiculous things. Fighting severe M.E. Very Liberal and happily woke. ❤️🇨🇦 #pwME 🏳️🌈
Phil @KilcommonPhil
840 Followers 1K Following A single man in Cornwall living with Fibromyalgia, CFS and three beautiful cats. I live and I breathe for them. Silent echoes of a lonely sensitive misfit.
Cat @Jekaterina_12
15 Followers 206 Following "Just don't give up trying to do what you really want to do. Where there is love and inspiration, I don't think you can go wrong." 🇪🇺/🇩🇪 #Music #Coffee
Darcie-mae Laster @MaeLaster9035
97 Followers 5K Following
A Darkened Room @adarkenedroom
137 Followers 239 Following One of the #millionsmissing | Raising awareness of the most severe form of #MyalgicEncephalomyelitis
Camie Varga @cami_varg
65 Followers 5K Following
Kirst @kirstler31
2K Followers 938 Following Severe #MECFS 🛌 #LongCovid - March 2020 #PostVac #POTS Part of the #Renegade50 💫 @RemissionBiome
Jessica mary @Jessicamar28632
12 Followers 400 Following
G R A C E 🌸 @withgrace___
88 Followers 292 Following 🥀 severe ME/CFS mama to baby son ❤️ heart full, body broken 🌻 INFJ
Marnie Westwater @MarnieWest84553
80 Followers 5K Following
Dedra Stiltner @StiltDed
80 Followers 5K Following
NickyProctor @NickyProctor
1K Followers 4K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Lujain Illuzzi @IlluzziLuj90572
93 Followers 5K Following
Charlie Radclyffe @CharlieRadUK
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Autumn Suddoth @autu_suddo
28 Followers 5K Following
On The News 🇬🇧 .. @On_The_News_Ltd
14K Followers 14K Following We need to FOLLOW each other if we want to win this war in our own COUNTRY I follow every back ❤️ 🏴🏴🏴 🇮🇪🇺🇸🇮🇱✡️✝️
Lonna Dell @LonnaDell28486
29 Followers 5K Following
Melodie Halick @hali_melod
35 Followers 5K Following
Red Carpet Medical @RedCarpetSolut1
251 Followers 1K Following Specializing in helping people improve + gain healthier lifestyles through the use of patented wearable wellness products AND improving their #IAQ, I am #EBV+
Lavette Madrueno @LavetteMad68676
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Baylee Wierschem @b_wiersc
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Sebrina Ewton @EwtSebri
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Renate-new account�.. @Renate834601
80 Followers 407 Following Myalgic Encephalomyelitis since -87,severeME,Bedbound, diagnosecriteria /name matters!separate ME from ME/cfs; use ICC -G93.3 for ME❤️#Enterovirus
babs @halfateaspn
202 Followers 551 Following 20s. she/her. disabled, queer and poc. ME/CFS and comorbidities. mostly bedbound. no bigots. be kind. 🇵🇸🏳️🌈🏳️⚧️
Anastazja Hanning @HanniAnasta
35 Followers 5K Following
Mari Carmen Motos @mcmotos7
2K Followers 2K Following CIE-10 G93.3 y CIE-11 8E49 ⬇️ #EncefalomielitisMiálgica #pwME #PacienteExperto
healthconscious @healthyappy
26 Followers 2K Following
ME Advocates Ireland @MEAdvocatesIre
988 Followers 978 Following Advocating for People with Myalgic Encephalomyelitis (M.E.) in Ireland [email protected]
Gladys Frie @FrieGladys93911
26 Followers 5K Following
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Kaley Walding @kaley_wald
71 Followers 5K Following
Teddy Pexton @PextonTedd40117
72 Followers 5K Following
Lisha Frizell @FrizellLis79951
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Paola Lambie @PaolLambie
58 Followers 5K Following
Albertine Mccloskey @AlbertineM4806
77 Followers 5K Following
Anna Wood @Annakwood
3K Followers 2K Following STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy
Rita Kartye @KartyeKart
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Verona Alejandrez @VeronaAlej86651
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Alexander's Journey @alexs_journey
43K Followers 40K Following Lad in cancer rehab. Christian, Protecting Nature, History & Heritage. Ricardian, Police Family, Archer, Whovian, Owl Whisperer, Chess, Aviation💪🏻🦿🦉🏹👑✝️
JULIAN ADAMS @JULIANADAM94107
56 Followers 2K Following
Angelique Handzel @AngeliqueH21809
82 Followers 5K Following
Harris Robert @harris30304
4K Followers 5K Following Entrepreneur Christ follower, father of 5,3 children and 2 dog husband to an amazing woman, Welcome Dm , stock.
Geri Sall @GeriSall63475
47 Followers 5K Following
Christabel Barges @Christabel53885
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Juliet Houtchens @HoutchensJ26399
14 Followers 3K Following
Carla Bercegeay @BercegeayC51638
86 Followers 5K Following
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
Anil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
It's M.E. Linda 💙 .. @HappyHoundHouse
2K Followers 3K Following 2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. Brain/fitness 'not what it used be'. Beloved Lisnakill Myles-Happy Hound himself🌈 💔
Dr Melanie @MelanieWeckert
10K Followers 10K Following ME/CFS MCAS, POTS. Microbiology (environmental) PhD. Living on Yuin land. Writer poetry, mystery thriller ‘Eagle Bluff.’
Jeff Smith @JefferySmithME
1K Followers 915 Following Obsessed by many creative & ridiculous things. Fighting severe M.E. Very Liberal and happily woke. ❤️🇨🇦 #pwME 🏳️🌈
Dr Nicola Clague-Bake.. @ClagueNjc36
4K Followers 2K Following Physio @LivUni co-founder @physiosforme | PhD | neuro rehab/ex physiology/fatigue/healthy lifestyles/mental health/ME/Longcovid/EDI/all views my own she/her
Phil @KilcommonPhil
840 Followers 1K Following A single man in Cornwall living with Fibromyalgia, CFS and three beautiful cats. I live and I breathe for them. Silent echoes of a lonely sensitive misfit.
Physios For ME @PhysiosForME
7K Followers 604 Following A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Disability Rights UK @DisRightsUK
72K Followers 2K Following We are the UK’s leading organisation run by and for Disabled people, working for justice and equality for all.
Learn Something @cooltechtipz
875K Followers 25 Following
Sensory Stories by Ni.. @sensorystories_
24K Followers 22 Following Helping parents and neurodivergent adults find answers related to their ND struggles.💡 Free resources available on my website ↙️
Bronze Giant @RjNol
21K Followers 10K Following I am no longer alone in the search for the past and true world history. Schools do not form thinkers, It format thoughts.
Sajid Javid @sajidjavid
304K Followers 1K Following Rt Hon Sir Sajid Javid MP | Member of Parliament for Bromsgrove | Former Chancellor of the Exchequer
Dr David Bull @drdavidbull
51K Followers 3K Following Talk TV Host, Deputy Leader Reform UK, Former MEP, Broadcaster. This is a personal account
Mike Graham 🇬🇧 @Iromg
180K Followers 3K Following Breakfast @TalkTV 6.30-10am every weekday. Plank Of The Week 7pm Friday - Chief cook and dog walker…
A Darkened Room @adarkenedroom
137 Followers 239 Following One of the #millionsmissing | Raising awareness of the most severe form of #MyalgicEncephalomyelitis
Fiona Wood ♿️💙.. @fionangreg
401 Followers 773 Following Wife, mum, Christian pwSME/CFS, FND, ME & FND Advocate. Observe small things, don't rush, love & forgive ❤️ #chronicillnesswarrior #loveyourself #loveothers
Katie Johnstone @SockFoam
741 Followers 718 Following She/her. Chronically ill with ME. Founder of the ME/CFS Medical Education Campaign, blogger on Substack.
Audrey Ludwig @AudreySuffolk
18K Followers 4K Following Discrimination Solicitor. My thoughts (not my employers) on Equality Act/Disability/Feminism/A2J /Art etc. https://t.co/jyntMuKJT2 RT not endorsement.
Paula London 🇬🇧 @misspaulalondon
24K Followers 21K Following Broadcaster. Insta miss_paulalondon_ Seen @gbnews @gmb @jeremyvineon5 @mailonline etc Agent:[email protected] [email protected]
Kirst @kirstler31
2K Followers 938 Following Severe #MECFS 🛌 #LongCovid - March 2020 #PostVac #POTS Part of the #Renegade50 💫 @RemissionBiome
G R A C E 🌸 @withgrace___
88 Followers 292 Following 🥀 severe ME/CFS mama to baby son ❤️ heart full, body broken 🌻 INFJ
Sonic Death Monkey @Parkesy1701
1K Followers 3K Following Myalgic Encephalomyelitis (ME) sufferer. Ill since Nov-19. On long term sick trying to keep it together for my family. Just about managing. #ME #POTS #MCAS
WE&ME Foundation @weandmecfs
3K Followers 50 Following WE&ME Foundation funds and supports collaborative research projects to combat #MECFS and related disorders.
DK🇺🇸🦅🇺�.. @1Nicdar
209K Followers 149K Following 🦅Proud American🦅🇺🇸MAGA🇺🇸Sarcastic Bastard 🇺🇸Pureblood🩸🇺🇸BackTheBlue🇺🇸Cancer survivor🇺🇸Pro-life💯🙏🇺🇸I like to make jokes 👍No lists🚫
NickyProctor @NickyProctor
1K Followers 4K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Ben Mcbean @benmcbean
13K Followers 232 Following Public speaker ! Not here to impress. Here to make an impact.
Charlie Radclyffe @CharlieRadUK
1K Followers 1K Following Advocates for those injured in UK military + disabled people | Trustee Living Options Devon | Founder https://t.co/xLypoKUMSO
On The News 🇬🇧 .. @On_The_News_Ltd
14K Followers 14K Following We need to FOLLOW each other if we want to win this war in our own COUNTRY I follow every back ❤️ 🏴🏴🏴 🇮🇪🇺🇸🇮🇱✡️✝️
TRUMP ARMY @TRUMP_ARMY_
92K Followers 69K Following The Best is yet to come! President Trump Supporter!
babs @halfateaspn
202 Followers 551 Following 20s. she/her. disabled, queer and poc. ME/CFS and comorbidities. mostly bedbound. no bigots. be kind. 🇵🇸🏳️🌈🏳️⚧️
Soccer Aid @socceraid
190K Followers 319 Following The official X account of Soccer Aid for UNICEF 🙌 | Sunday 9 June at Stamford Bridge 📆 | Tickets ➡️ https://t.co/kbUVHsa77q
Household Cavalry @HCav1660
21K Followers 616 Following The official page for the Household Cavalry. Follow for news and updates on the Regiment's Ceremonial and Operational commitments.
Steve Topple @MrTopple
33K Followers 5K Following Journalist @TheCanaryUK | Journalist @BywireNews | Vibes @Reggaeville @PauzeRadio | Contrib @RadArtReview | Project lead @ #CanaryAmplify | Views my own etc.
ME Advocates Ireland @MEAdvocatesIre
988 Followers 978 Following Advocating for People with Myalgic Encephalomyelitis (M.E.) in Ireland [email protected]
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Anna Wood @Annakwood
3K Followers 2K Following STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy
Matt From Cultivate E.. @CultivateElevat
8K Followers 4 Following The highest quality superfoods on the market. ➡Lab tested ➡Usda Organic ➡Sourced from small farmers Shop our superfoods today ↙
Alexander's Journey @alexs_journey
43K Followers 40K Following Lad in cancer rehab. Christian, Protecting Nature, History & Heritage. Ricardian, Police Family, Archer, Whovian, Owl Whisperer, Chess, Aviation💪🏻🦿🦉🏹👑✝️
Ian Williams @ianwill
2K Followers 276 Following Author of 'Fire of the Dragon - China's New Cold War'. Longtime foreign correspondent in Moscow, the Indo-Pacific and China @NBCNews @Channel4News
Wix @Wix
417K Followers 4K Following Create, manage and grow your business online with Wix. It’s more than just a website builder, it’s how your vision comes to life. For support: @WixHelp.
Mel Stride @MelJStride
12K Followers 847 Following Secretary of State for Work and Pensions. MP for Central Devon. Proud father of three girls. Promoted by Mel Stride of 2 St Lawrence Lane, Ashburton TQ13 7DD
Diane Jackson🇺🇸.. @Diane_Jackson7
44K Followers 40K Following 🇺🇸Trump 2024🇺🇸🇮🇱Proud military wife & mom of🛩️ AF fighter pilots,FJB! support our police,MAGA🚫crypto, This is my main account,my backup is: @Diane_Lee7
羊秘术 @taylorbunnyokr
8K Followers 127 Following
Miles | Expired Film .. @expiredfilmclub
15K Followers 134 Following Miles. Looking at the 🌍 through a vintage lens 🎞️ #expiredfilmclub 👇 Sign up for my NYC film photography camp below👇
The Royal Family @RoyalFamily
5.7M Followers 463 Following The latest news and updates on the work of The King, The Queen and The Royal Family.
Helen Sims @Nelsims411
4K Followers 4K Following #CerebralPalsy -At age 14 had surgery.- Learnt to walk again. #DisabilityRights activist since age 8-(33 yrs ago). Author of 'Taking Steps'. #helenswriting
Naval Children's Char.. @NavalChildren
527 Followers 375 Following The Naval Children's Charity supporting children with a parent who serves/has served in the Naval Service.
Manchester Metropolit.. @ManMetUni
59K Followers 1K Following Official account of Manchester Metropolitan University.
BKPP OFFICIAL @bkpp_official
22K Followers 246 Following This account is created to support #bbillkin & #ppkritt Hashtag : #bkpp (SLOW)
fhronesis @fhronesis
338 Followers 2K Following #MECFS #EM😶🌫️ Sujet manquant EM = Encéphalomyélite Myalgique PEM/MPE= Malaise Post-effort
What’s For Dinner? @WHATSFORDlNNER
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PoTS UK @UKPoTS
7K Followers 4K Following A charity passionate about supporting those with Postural Tachycardia Syndrome; raising funds to provide information, education, research, awareness & advocacy.
Hippymum @Baybabe75
827 Followers 1K Following ME sufferer since 1983, too many co-morbidities to list. I miss the old me. I love old VWs and animals and detest what our country has become due to the greedy
Simon Calder @SimonCalder
206K Followers 723 Following Travel news/advice shared here, on TikTok @caldertravel and answering your questions at weekends with my 5.30pm BST Instagram Live: https://t.co/qE5vXA5qw0
You are only an accident or an illness away from becoming disabled. Lets keep talking about the reality of payments that are used to buy in goods and services that reduce the impact of disability. #PIP Personal Independence Payment
사랑하는 종인시 1:14 💛 D-286 #종인시 #컴온앤해시태그카이
im still here 😭😭😭
the likes? like everyone knows how they’re both dumb and obsessed with him 😭
ㅠㅠㅠ넘무 기여워
@mikee52000 @NICEComms I’m so very sorry Mikee. I actually don’t think they really know what ME is tbh let alone adhere to guidelines. They’ve heard of it, but don’t comprehend the severity of the illness. Do you have anyone living with you who can advocate on your behalf Visits are so overwhelming
kai with his shoulders as wide as the pacific ocean
Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in Chronic Fatigue Syndrome with Orthostatic Intolerance #MECFS journals.physiology.org/doi/abs/10.115…
Sandra Miller, daughter of a Holocaust survivor, says it is “a tragedy” that a Holocaust memorial had to be covered up to protect it during pro-Palestine protests. “It doesn’t feel like my Britain anymore and that’s sad.” @iancollinsuk | #Talk
Anyone who thinks otherwise is not thinking….. !
이러구서 울어버린 예쁜 삥삥이ㅠㅠ
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