Marky Mark @MrkStdngr

#ME #CFS #CCI #POTS #MCAS YYC, Moh-Kíns-Tsis, Treaty 7 Joined June 2018

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Marky Mark @MrkStdngr

a week ago

My ME/CFS, LC situation has been so nightmarish I’d never be same again. I’d live in a tent or trailer in middle of nowhere North America the rest of my life. It’s just destroyed my opinion of people. To help a disease this tragic get overlooked has destroyed my faith in humanity

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In the abyss. v severe #mecfs fighter (+11 years) @AbyssPearl

2 weeks ago

@iFindEcoRetards Oh I may have found it: reddit.com/r/covidlonghau…

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A 😎 @AaronCa11

2 months ago

Heartbroken to hear about @Bridget_OShea. I spoke to her on Spaces many times and she was a truly lovely woman. (This was her flyer we handed out on LC Awareness Day) #LongCovid and #MECFS kill!!!

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Marky Mark @MrkStdngr

2 months ago

I couldn’t get ahold of my GP for a few months. Just got an email that she died… her Mother died of COVID in 2021 and she didn’t believe in wearing a Mask. We are entering the fuck around and find out part of the pandemic. Wear a mask please, save the world.

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Whitney Dafoe @DafoeWhitney

2 months ago

Dear America, My name is Whitney Dafoe. I have a chronic illness and depend on Medicaid to stay alive. The "Big Beautiful Bill" that Trump signed into law on the 4th of July will take away insurance from an estimated 17 million people (1), mostly from people on Medicaid. I…

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Thomas F. Varley @ThosVarley

2 months ago

New blog post! HIV/AIDS and ME/CFS are post-acute infectious syndromes that became public health crises in the 80s - but today HIV is a manageable illness with billions in funding, while ME/CFS remains neglected. Why did the paths of these two illness diverge so much? Link below

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Marky Mark @MrkStdngr

2 months ago

It blows my mind Rheumatologists know so little about ME/CFS, Long COVID, MCAS, EDS, etc. It’s litterally supposed to be their speciality, but not taught it. Allergists (just MCAS) know more than Rheumatologists and that’s not saying a lot, besides a few Global Leaders…Shocking.

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Simmaron Research @RedefiningMECFS

3 months ago

#MECFS patients with a history of EBV responded better to #rapamycin when compared to patients with non-viral onset, an important finding in our Phase 1 preprint. #ME #LongCovid #POTS

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Marky Mark @MrkStdngr

3 months ago

I’m seeing a lot of “I’m sick, but it’s not COVID”. My Father gave me COVID the last time and we each tested 7 Times before I finally got a Positive Test. We literally had False Negative 13 Times combined. Please don’t just do one Test and rule out COVID, ER Drs will overlook it.

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Marky Mark @MrkStdngr

4 months ago

Medicine has always known about ME/CFS. They know our Mitochondria is poisoned and our blood could kill people, but they don’t want the world finding out. So they Psychologize ME/CFS.

Yr buskined mistress & yr warrior love @rhymeswithvery

4 months ago

Medicine has always known about ME/CFS. They know our Mitochondria is poisoned and our blood could kill people, but they don’t want the world finding out. So they Psychologize ME/CFS.

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Katy B @KatyBruce108

4 months ago

"Ignorance about post-exertional malaise and continued conflation of #ME/CFS with chronic fatigue harms patients and stymies research progress" - @domsalisbury's brilliant rapid response to the Miller, Garner + opinion piece in @bmj_latest #pwME bmj.com/content/389/bm…

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Marky Mark @MrkStdngr

4 months ago

This Graph is absolute proof wastewater is starting to be manipulated. Alberta (3.1) is a far right Government, BC (19) is a left wing Government. Many people in BC work in Alberta. There is no way Alberta is 3.1 when BC its next door neighbourhood was 19 in April.

Tara Moriarty @MoriartyLab

2 years ago

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Laura Miers @LauraMiers

4 months ago

This is not helpful.

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Erin M @ErinAPN1

4 months ago

She’s just not trying hard enough @bmj_latest @PaulGarnerWoof

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Marky Mark @MrkStdngr

4 months ago

If the Devil came to me and said he would cure me for one year and then that was it, I would drop dead, I’d seriously think about it. This is life with Very Severe ME/CFS, Long COVID. I’d travel the world with my Mum/Dad, I’d likely do more than I would for 30+ years with ME/CFS.

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Tessa Munt MP 🔸 @tessamunt

4 months ago

I’m so delighted that all 72 LibDem MPs signed this letter to @wesstreeting @AshleyDalton_MP asking the govt to back the ME/CFS Delivery Plan with the resources it deserves. May this be a huge encouragement to the ME community and the start of meaningful change. #WorldMEDay

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Marky Mark @MrkStdngr

4 months ago

My Great Uncle was a Doctor and if he had a Patient who was sick he’d go after work and check up on them. Now you’re lucky if your Doctor will give you the medication that’s helping you or a referral to the specialist you found by yourself, because they wouldn’t look into it.