Mild LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪 Amsterdam, The NetherlandsJoined January 2015
✍️ Today I've joined Action for ME in writing to @wesstreeting on the chronic underfunding of ME/CFS research. Despite the prevalence of these conditions, they are still poorly understood and lack effective treatment.
We are currently at a Long Covid Hackathon with Dutch NL scientists to get new ideas for collaborative projects. 🤓🙃
We are wondering if bone marrow transplantations have been performed in a patient that also has long covid? What were the outcomes related to LC?
An interview with the head of the NMCB consortium in which it's emphasised that:
✅ PEM is the core symptom
✅ CFS is a misnomer
✅ ME is a physiological illness
An interview with the head of the NMCB consortium in which it's emphasised that:
✅ PEM is the core symptom
✅ CFS is a misnomer
✅ ME is a physiological illness
17K Followers 6K FollowingI tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
16K Followers 4K FollowingZoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
14K Followers 5K FollowingL'enfer, c'est les autres.🦆 I am a long hauler and a sitting duck for more pain. Dislike egos and people who glean without hat tip.
27K Followers 3K FollowingLung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
19K Followers 703 FollowingAuthor of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
14K Followers 13K FollowingA non-profit social enterprise dedicated to
people with #LongCovid + #ME.
💙📚 Home to the #pedanticzebra book club.
🛍️ https://t.co/8JlRWqxASF
27K Followers 1K FollowingUK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rehabilitation
https://t.co/C4SrS4K6SW
https://t.co/v7y3yvrEpf
14K Followers 10K FollowingI tweet in a personal capacity. ENTJ. CBE. Against brexit/Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice
4K Followers 3K Followingexposed late january 2020, fucked up since march 2020. here to learn and make sense of what's happening inside us. longtime lurker. alt @cancellongcovid
2K Followers 3K FollowingJournalism vigilante. Dealmaker in remission. Too much at stake for media to use passive voices, “both sides” or info from known unreliable sources .
897 Followers 5K FollowingSurviving in the belly of the beast #N95 #LandBack #MoreThanUnionism #WorkersOfTheWorldUnite #WeHaveAWorldToWin Perspectives own, info shared. They/We/Ours
751 Followers 3K FollowingI literally wrote a dissertation on reality TV.
Professor: Ethical Pedagogy
PhD: Media/Culture
MFA: Film
Former life: Reality TV post-production
😷
4K Followers 4K FollowingDx: #MECFS #Narcolepsy #hEDS #PTSD #ANA+ #PinealCyst #LC #AorticRootDilation Here for Q&A #MAHA
How I escaped murder by dentist (so far) in CT, in link:
468 Followers 539 FollowingI love getting lost in the forest, gardening, roses, reading, and British TV. Owned by a German Shorthair and Jack. Covid conscious.
7K Followers 2K FollowingWorking on how to stop spread of viruses since 2014. Founder https://t.co/HWrQJSBTiV: N95 + air purifier how-to. MS (EECS). Like, share, or retweet ≠ endorse.
293 Followers 6K FollowingI reached #FinacialFreedom at 33. my mission is to help you reach financial freedom by sharing $ tips & making #stock #investing & #trading simple.
621 Followers 866 FollowingIn Him was life, and the life was the light of man. The light shines in the darkness and the darkness has not overcome it -John 1:4-5
326 Followers 4K FollowingOn for God, family, country, info, knowledge, education, fun, current events, political discourse. No DMs. If lewd pics, $ ads, no descr or postings will block.
114 Followers 441 FollowingPeriodista de investigación, Consultora en Comunicación y Analista Política - Journalist - Norteñita - Potsie vs. violencia médica y digital. @DisautonomiaSqd💙
1K Followers 3K FollowingProud conservative and Trump supporter. Make America great again. NYR FAN SINCE THE 70S. illegals, need be deported. America first.
3 Followers 32 FollowingVery Severe Myalgic Encephalomyelitis Sufferer 💙 | 🇿🇦 🏴 | Wife, daughter, sister, friend | Missing out on my life here on Earth | Christian ✝️
6 Followers 8K FollowingI advocate for Respectful dialogue, especially with those with whom one disagrees. The most important thing is free speech. I Love Sports,Go Yankees!
5K Followers 7K FollowingI rejoined…hoping for fairness of speech, change and peace. Married; 3 sons. Sarcasm is my language. Love #cooking #patriot NO DMs please. Miss my Dad.
962 Followers 4K FollowingChild of God, wife, mother, grandmother, Texas patriot, Republican Harris County Precinct Chair, #MAGA, #MAHA, proud member of the C&C Army, & War Room Posse
17K Followers 6K FollowingI tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
16K Followers 4K FollowingZoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
27K Followers 3K FollowingLung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
19K Followers 703 FollowingAuthor of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
15K Followers 66 FollowingA passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
14K Followers 13K FollowingA non-profit social enterprise dedicated to
people with #LongCovid + #ME.
💙📚 Home to the #pedanticzebra book club.
🛍️ https://t.co/8JlRWqxASF
6K Followers 245 FollowingWe share the stories of people who have #NotRecovered #LongCovid | #MECFS | #PostVac We fight internationally for research, treatment and recognition.
27K Followers 1K FollowingUK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rehabilitation
https://t.co/C4SrS4K6SW
https://t.co/v7y3yvrEpf
2K Followers 828 FollowingDiscover the #ImmuneSystem with #StructuralBiology. We 💗 powerful #Tcells and #viruses. From one of my student “the GRAS is greener in our lab”. #scienceIsFun
463 Followers 1K FollowingHaematology ST7 | CRUK fellow | Nintendo fan I 🏝📚🔬🏺🎭🌈 | 🇪🇺 | Swiftie 🩵 Folklore/Evermore era 🍂🧶 I Likes =/= endorsement | Pro-physician led care |
3K Followers 169 FollowingHet leven is een langzame, pijnlijke dood. (Uitgebreidere meningen in @desnijtafel.) Volg me op Bluesky: https://t.co/61knus72Op
96 Followers 375 FollowingBear from Holland on the look out for twinks chasers, otters, cubs and puppies on Twitter. 🇳🇱🐻 #bear4chaser #bear4puppy Well ok you can call me daddy. 😏
706 Followers 327 FollowingGod be my bloody witness, I am going to recover from this. // Severe neuro #LongCovid moderate #MECFS since 2023 // Previously fit & healthy // Mid 20s //
5K Followers 150 FollowingStichting Sanquin zorgt voor de bloedvoorziening in Nederland. Zij kan dat dankzij de honderdduizenden donors die vrijwillig bloed geven.
2K Followers 2K FollowingPrecisionLife is the clinical-stage precision medicine company for complex chronic diseases. Creating better, more personalized treatment options for patients.
2K Followers 3K FollowingFighting for social justice and fairness for all. My interests are; #disability, and have been fighting #LongCovid since Dec '22.
18K Followers 47 FollowingData Visualisation and Data Integration specialist - Melbourne, Australia
https://t.co/U523OiVeXr
Support my projects by sponsoring me on Github
320K Followers 7K FollowingProfessor, biomedical scientist, human immunologist, aging & cancer immunotherapy. ALL IN ON AI. Interests: longevity, robotics, Scifi, space. Personal opinions
3K Followers 5K FollowingLa promotion intégrée de l' #ActivitéPhysique favorable à la #Santé : de la santé des individus à la #SantéPublique. #Sédentarité; #Education; #Evidencebased
418 Followers 372 FollowingClassical Pianist, Piano teacher and lover of the sea and the mountains (a little less).
Thrown out of life as I knew it by Covid and ME/CFS since Feb 2023.
10K Followers 3K FollowingCentral American and Imperial Lit | Higher Ed Section Editor @PublicBooks | University lecturer & onetime union staffer | Go easy, step lightly, stay free. |