Long Covid SOS @LongCovidSOS
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected] longcovidsos.org Charity reg no 1199120 Joined July 2020-
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Please please tell everyone you know that symptoms are by definition self-reported. There is no other way to assess them. As the dictionary says, they are feelings. You can’t feel on behalf of other people through ‘objective assessments’. They must tell you how they feel.
🔔We are seeking a Social Media Volunteer to help us post content at Long Covid SOS! 🔔 🛟You’ll join our dedicated team of volunteers committed to raising awareness & campaigning for people affected by #longcovid. 🛟 Applications close 01/06/2024. forms.gle/Nf52hefNjvVdMZ…
Great to see recovery stories, but always with the proviso that not everyone recovers and what works for one person will not work for others with different #LongCovid symptoms. Having said that, we’re delighted Conan is better & wish him good health + many goals in his future 😊
Great to see recovery stories, but always with the proviso that not everyone recovers and what works for one person will not work for others with different #LongCovid symptoms. Having said that, we’re delighted Conan is better & wish him good health + many goals in his future 😊
The reason many disabled people lose PIP or DLA when they start work is because DWP and their assessors automatically assume a person who can work can't be disabled enough for disability benefits. Getting rid of this prejudice would be transformative.
The reason many disabled people lose PIP or DLA when they start work is because DWP and their assessors automatically assume a person who can work can't be disabled enough for disability benefits. Getting rid of this prejudice would be transformative.
So people can have LC (however that’s reported) but no one ‘has self-reported LC’ as if it’s a subcategory or different entity to ‘real’ LC. You can say ‘prevalence of self-reported LC’ as that’s describing the method upfront but don’t say …% of people have self-reported LC. Ta.
Can I just say that there’s no such thing as ‘having self-reported Long Covid’‼️ #LongCovid can be assessed using self-report in surveys. But if you think about it, even LC diagnosis from medical records is essentially a product of people reporting their symptoms to their doc.
For people with #MECFS & #LongCovid, what for you defines a 'crash'? It's a term we use too at Visible (and I use myself) But given it's a term that's 'emerged', would be great to understand how people think about it 🙏
📢 SPREAD THE WORD - WE HAVE STARTED👍 So excited 😊 🌟 #PHOSP_I Tozilizumab for inflammatory #LongCovid non-hosp & hosp @NikkiS_MCSFS @JennyBunker @long_covid @PHOSP_COVID 🌟 1st participant randomised 🙏 doi.org/10.1186/ISRCTN… 🌟 15 UK sites phosp.org 👇
📢 SPREAD THE WORD - WE HAVE STARTED👍 So excited 😊 🌟 #PHOSP_I Tozilizumab for inflammatory #LongCovid non-hosp & hosp @NikkiS_MCSFS @JennyBunker @long_covid @PHOSP_COVID 🌟 1st participant randomised 🙏 doi.org/10.1186/ISRCTN… 🌟 15 UK sites phosp.org 👇
📣🚨 The #PHOSP_I study has started recruiting! 👏🎉 It is trialling Tozilizumab treatment for inflammation in #LongCovid. Thanks to our members @NikkiS_MCSFS @RogersNat70 @ClaireHastie1 for helping ensure p/w #LongCovid who were NOT hospitalised are included! #TreatLongCovid
📣🚨 The #PHOSP_I study has started recruiting! 👏🎉 It is trialling Tozilizumab treatment for inflammation in #LongCovid. Thanks to our members @NikkiS_MCSFS @RogersNat70 @ClaireHastie1 for helping ensure p/w #LongCovid who were NOT hospitalised are included! #TreatLongCovid
I am extremely honored to be part of this patient-led initiative for a worldwide congress on Long COVID, #UniteToFight2024/@U2Fight_World. Registration is free. My presentation on post-exertional malaise will be aimed at patients, clinicians, and scientists. @VU_FGB @VUamsterdam
I am extremely honored to be part of this patient-led initiative for a worldwide congress on Long COVID, #UniteToFight2024/@U2Fight_World. Registration is free. My presentation on post-exertional malaise will be aimed at patients, clinicians, and scientists. @VU_FGB @VUamsterdam
Literally how it feels talking to medical professionals #mecfs #medtwitter
Dr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Gez Medinger @gezmedinger
20K Followers 719 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Long Covid Kids - #Lo.. @LongCovidKids
30K Followers 4K Following UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI
Long Covid Support �.. @long_covid
32K Followers 2K Following UK Charity • Support • Advocacy • Research Involvement • Awareness • Education • Keeping people with #LongCovid at the centre. #CureLongCovid
GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Long COVID Physio @LongCOVIDPhysio
27K Followers 1K Following #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Patient-Led Research .. @patientled
27K Followers 615 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Felicia De Vizio @septemberfairy
10 Followers 2K Following Animal lover, Homebody, Still trying to find my way in this world.
dawn loudenback @DawnLouden91491
5 Followers 52 Following
CONNIE SMITH @Connies3boys
266 Followers 651 Following I am a Christian who believes in keeping all of Gods laws. The Ten Commandments. I love my son and animals, especially cats!
Cheek Monk #stayathom.. @HRHCheekMonk
2K Followers 4K Following 🇪🇺🇮🇪🇬🇧🏳️🌈Just your average Irish Chimp, pro EU, pro centrist politics, Humanist (if a Chimp can be). Hate what the Tory Party have done to UK.
miles from nowhere | .. @Prosewood
717 Followers 3K Following 30s | she, they | AuDHD | ofmd, star trek, tolkien, the locked tomb, julie andrews, languages
cazzi1234 @LillyC12349
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Kate @KateHopeOliver
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Ruth M @RuthMano
182 Followers 646 Following Blue Wave Dem; Mom, Vaxxed/boosted. I stand with Ukraine. Be Kind Corgi, Cat/Dog, Bird and nature lover. Biden/Harris 2024 + LGBTQ BLM
Mark 2 🇺🇦💙 #.. @markzphoto
4K Followers 4K Following People & planet B4 profit. PR, equality, justice, peace, good governance. Designer, photographer, bass player, cyclist.
65for65 @65for65
22 Followers 55 Following Raising awareness and money for Long Covid through the 65for65 challenge ✨
alb @alb43324332
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Lindsay @Lindsay_LKH
90 Followers 1K Following
Arkady Shepard @kadyshepard60
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Tapanui 'Flu @TapanuiFlu
2K Followers 3K Following Kiwi Nana. Ex social scientist. #MyalgicEncephalomyelitis since 1983 #TapanuiFlu epidemic Hamilton #NZ outbreak. Mostly housebound. On welfare. #LongCovid ally.
Saffron @SwiftMary4
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Laura Bennett @LauraBWork
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Shirley Haley @Shirley06457098
6 Followers 84 Following
Alexandra Alvida @Aelvidra
43 Followers 156 Following very severe ME CCI EDS mcas, insta: @alekpalek Gofundme: https://t.co/op7gGeiInu ⚠️please help if you can⚠️
overlordclai @overlordclai
1K Followers 5K Following the second coming of our lewd and savior || stremmer || 27yo degen Latina || vet med junky🩺 || Elder Emo🔪 || Long COVID Struggler🦠
Long Covid Educators .. @LCEducatorsUK
80 Followers 187 Following A group of educators seeking justice for injury/ill-health as a result of catching Covid-19 in schools as a direct failure of Gov.
Abc--Z 🟢 @TejuAdolly
279 Followers 3K Following Actress I Digital Marketer I Entrepreneur I Crypto & Nft enthusiast. Women empowerment into Web 3 I She/her.
Been34 @Been341
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Picapi @picapiruli
2K Followers 4K Following 📚🎹 🎬 🧑🏫 🐾 Failure is the 1st step to success #EscuelasSeguras #DavosSafe #DavosStandard Covid is airborne
Maddox @Zelti_moon
120 Followers 700 Following WEAR A MASK 😷| #LongCovid Since 2022 | #ME #POTS #MC #ABDL #Hirschsprungs | Autistic, Anxiety Ridden, Somehow Managing🌻 | they/them 🏳️🌈
Polly @whitewaratah80
21 Followers 81 Following Elderly artist lady sheltering from COVID. Here for the science and info.
Space Answered✨ @spacedancr
483 Followers 2K Following Astrology student & total astrological cliche. Ascendant on Algol ruled by Venus conj. Pluto in the face of Ma’at, Egyptian goddess of truth, harmony & justice.
Matt Zara @mattzara
213 Followers 326 Following
Shafted by Gammon @llanciawn
2K Followers 3K Following Identify as Welsh. Composer classical music; poet/writer; idealist. #CTFC #Remain #Homosexual #SecularGovernment #nochilli https://t.co/Do4UeUddcl :)
The Oracle of Philade.. @Zorya27
2K Followers 3K Following Emmy Award-Winning TV Producer turned Psychic Intuitive Consultant | Reiki Master | Yoga Instructor | Real-time Astrologist | Apothecary | Connecting news & ✨
Just Lara @MsMamaYoshi
255 Followers 1K Following A believer in peace and kindness. I have an assortment of misfit rescue cats. A nerd. A Hufflepuff. Battling the wrath of Long Covid. Not fun. 🇨🇦
Maisie the Tortie / M.. @maisiethetortie
2K Followers 3K Following human slave hijacks my page on a regular basis. Outrageous. Cats have rights too
Sharon Harwin @SharonHarr76757
253 Followers 388 Following starting over AGAIN!!!#JesusisLord,#MAGA,#onlyTrumpcanfixthismess,want our country back, #followourConstitution🇺🇸,#prayfortheUSA🙏🇺🇸🙏🇺🇸
Jacqueline Hazelton d.. @DrJLHazelton
4K Followers 4K Following Political scientist. IR. International security. RT=not endorsement. Bullets Not Ballots: Success in Counterinsurgency Warfare from Cornell. She/her.
Kathy Partridge @whitepineswhisp
20 Followers 150 Following Low fat/SAD diet survivor Took back my health with LCHF and now keto lifestyle | Down 115 lbs. Permaculture | Gardening | Born at 315 ppm
drsp PoGo PvP @DrspPvp
109 Followers 359 Following Competitive Pokemon Go player - Admin on /r/Pogoraids discord - Raid and PVP drafter - Rank 10 Season 1
Happy Elshohdi @Happy_elshohdi
190 Followers 477 Following
ᖇIᑕᕼ ᗩᑌᑎ�.. @PrettyDije
6K Followers 3K Following i’m extra , extra is me. Only minding businesses that pay me// Bus. account : @voyage_olfactif & @naboustore Scentaddict #selflove #Businesswoman #perfumes
sharron b davies @DaviesSharron
130 Followers 660 Following Singer, musician, driving instructor, crocheter. Student of silversmithing, photography, digital art, always learning.
Sharon Craig @Sharonascissors
95 Followers 310 Following
Andy O'Hara @aoharaphoto
153 Followers 479 Following Portrait and performance photographer based in Brighton, UK. Constant work in progress. Possibly overly fond of waistcoats.
Joe Chwachka @JChwachka47697
90 Followers 274 Following father, business owner, believer in the collective potential of people.
Matt Lazell-Fairman @mfairma
962 Followers 1K Following ME patient. Spouse with LC & ME. Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.
Caroline Brett @cebrett_health
728 Followers 1K Following Lecturer and health psychologist. Interested in determinants of and interventions to improve wellbeing, resilience, and sense of coherence
El i Es Des @EliEsDes
162 Followers 364 Following 🏴 🇺🇸 🇦🇺 🏳️⚧️ 😷🦻 Neurodivergent, disabled, queer "immigrant". Accessibility Consultant and MSc Candidate in Social Justice.
Jess Silver @Jess_Silver
89 Followers 490 Following
Dr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Gez Medinger @gezmedinger
20K Followers 719 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 724 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Long Covid Kids - #Lo.. @LongCovidKids
30K Followers 4K Following UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI
Long Covid Support �.. @long_covid
32K Followers 2K Following UK Charity • Support • Advocacy • Research Involvement • Awareness • Education • Keeping people with #LongCovid at the centre. #CureLongCovid
GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Long COVID Physio @LongCOVIDPhysio
27K Followers 1K Following #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
Patient-Led Research .. @patientled
27K Followers 615 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Long Covid Educators .. @LCEducatorsUK
80 Followers 187 Following A group of educators seeking justice for injury/ill-health as a result of catching Covid-19 in schools as a direct failure of Gov.
Mark 2 🇺🇦💙 #.. @markzphoto
4K Followers 4K Following People & planet B4 profit. PR, equality, justice, peace, good governance. Designer, photographer, bass player, cyclist.
Victor Adebowale @Voa1234
20K Followers 3K Following
Catherine Hale @octoberpoppy
3K Followers 3K Following Disability research, coproduction and inclusion consultant. Founder, Chronic Illness Inclusion. Thought leader on energy limiting conditions. ME/CFS since 1988.
Gina 😷 SARS2 is Ai.. @Saffiya_Khan1
18K Followers 11K Following Against the repeated mass infection of the population with SARS2. Wear a respirator. Campaign for clean air. #GreensAgainstCovid @GrnsAgnstCvd
Rehabilitation Scienc.. @UofTCOVIDRehab
2K Followers 287 Following Leading an international collaborative with the aim to enable innovation and excellence in COVID-19 rehabilitation research. #COVIDRehab
CEPR @ceprdc
51K Followers 2K Following The Center for Economic and Policy Research promotes democratic debate on the most important economic and social issues that affect people's lives.
Clean Air Club @Clean_Air_Club_
11K Followers 575 Following Ensuring accessible and cleaner air for the Chicago arts scene. We provide air purifiers for artists and touring musicians, free of charge.
Melissa Challenor @urbanmel
2K Followers 2K Following International trade & investment. #Thailand #BOI 🇹🇭 business expert. Currently no capacity. #PASC #LongCOVID #CRPS #ME
Clinical Post Covid S.. @Clinicalpcs
45 Followers 22 Following
UniteToFight2024 @U2Fight_World
3K Followers 121 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
Tatiana Prowell, MD @tmprowell
63K Followers 8K Following Oncologist serving people w/ #cancer via #MedEd/#bcsm clinic/#regulatory. #ASCO20 Ed Chair. Co-founder @HCWvsHunger. #LongCovid. Team hope/good trouble/go high.
Safe Inside - Clean T.. @SafeInside2024
750 Followers 1K Following Building a database of places with clean air protocols https://t.co/FXLlVEfc4I please read, like and repost pinned tweet to help spread the word.
Rete Long Covid Press @ReteLongCovid
148 Followers 1K Following Benvenuti nella Rete Long Covid Italia 💙 https://t.co/T6NThQfoQL
Sarah Hannett KC @SarahHannett
1K Followers 1K Following Barrister @matrixchambers practising in public law, education, human rights and equality issues. Tweeting in a personal capacity.
Pete 😷 #COVIDisAir.. @PeteUK7
24K Followers 9K Following Chemistry. ChemEng. UK DIY filter team. Use shared air mitigations. High quality FFP2/3/N95 masks, ventilation, effective air filtration. #Spaceshost
Jenny Cavalot @jennycavalot
297 Followers 1K Following Director - Operating Model Development, Health Education England. Partner, Mum, Stepmum-ish, Neurodivergent, All views my own.
Sophie @slpglondon
1K Followers 1K Following One of #MillionsMissing - #LongCovid since September 2020 - Health is Wealth - 🕊️🍉 #StopArmingIsrael
Alison Wilcox @AlisonWilcox20
2K Followers 824 Following Covid 19 Rehab Coord & OT.RCOT Council(2018-2021)Verity Trustee:Nat PCOS Charity:ECIP Alumni(2017).HCT Shadow Board 2022- Fab hubby:Stuart.All views my own.
brandon @brandondataguy
639 Followers 353 Following Big Tech Data Scientist + Author Long Covid/Me/CFS Weekly. 26k on AI Tiktok account. Other interests : AI, Big Data, Martech,Content Creation
Sky News @SkyNews
8.5M Followers 19 Following For breaking news @SkyNewsBreak. Watch live on Sky 501, Virgin Media HD 602, Freeview 233 and YouTube. Download our app: https://t.co/B2AP8GvitH
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Tina Rodwell #TeamPat.. @TinaRodwell1
3K Followers 3K Following They called us activists 🤦♀️ I wear that slanderous name calling with pride for all the #MEheroes out there Fighting for my #MEhero son #TeamPatient💚
ExplosiveEnema @ExplosiveEnema2
2K Followers 833 Following Lord Defecation Associate | Advanced Flow Practitioner #OneHoleTeam #BeHind | https://t.co/hiAjMhE91X | Archive: @ExplosiveEnema
Tired @EndemicPrepared
3K Followers 4K Following healthcare educator, Population Health, RN/RM/ MBA. Ex-runner, cyclist, Perpetual Eye Roll since Jan 2020. You might know me on other platforms @TiredT.bsky
Jordan Crane @JordanCrane2
2K Followers 4K Following https://t.co/TUHOWkANkU https://t.co/9AWu1BzUnp https://t.co/kNugF1ewBu https://t.co/XS6z8TduwO
Julia Marie @julia_doubleday
10K Followers 3K Following International and domestic politics; Deputy Director, Committee LLC; co-host @committeepro; Julie Oliver for Congress 2020, Beto for Senate 2018, Bernie 2016
Danielle Beckman @DaniBeckman
24K Followers 6K Following Neuroscientist working with primates. Pharmacist with an MS in Biophysics and a PhD in Biological Chemistry. Microscopy lover 🧠🔬 . #NeuroCovid is real.
David Steadson #NAFO .. @DavidSteadson
16K Followers 3K Following Digital Health Entrepreneur. Public health epidemiologist and former Uni researcher. #plantpowered 🌱 #kyokushin 🥋 #longcovid (mostly recovered)
HHS.gov @HHSGov
1.5M Followers 354 Following News and information from the U.S. Department of Health & Human Services (HHS). Privacy policy: https://t.co/2fvEGkrCJN.
Doctors in Unite @DoctorsInUnite
5K Followers 4K Following The UK’s oldest medical trade union. Standing up for doctors, fighting for the NHS. A proud member of Unite and the TUC ✊
GreensAgainstCovid @GrnsAgnstCvd
669 Followers 803 Following Unofficial group for Greens campaigning for policy on covid, long covid and public health.
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Steve B @75ThunderRoad
5K Followers 2K Following Educator; Dad of 4; Headteacher 2011-2023; Navigating chronic illness; Writer; Speaker; Square Peg Associate; Social Justice; Hope, always
Ben King 🌏 @benking01
7K Followers 439 Following Long Covid & PE recovery. Geography Teacher. Sustainability & Climate Change. BSc Env Science & Physics (Stirling). Soil Erosion PhD & Geog PGCE (Exeter). Tuba.
PenScribbler @ScribblerPen
511 Followers 598 Following A pen that scribbles. #FBLC Long Covid Support Employment Group advocate @long_covid, #LongCovidWork team member
Dr Rebecca Healey @beccyjanehealey
2K Followers 1K Following NHS Doctor on pause #LongCovid | Registered Nutritionist (Public Health) | #CovidIsAirborne | We need #cleanair yesterday.
REMMY @remmy_308
4K Followers 3K Following A cop who has a habit of eating crayons. 20 years and counting in firearms, love the job and the teamwork, but getting tired of the bullshit. Views are my own.
Long Covid Support Ao.. @lcsaotearoa
189 Followers 183 Following We aim to bring forward the lived experience of patients to help others and the wider community connect with information that is relatable and useful.
Rachel Schraer @rachelschraer
12K Followers 3K Following Senior reporter for @BBCNews covering health, misinformation & internet culture. Making radio for @BBCTrending. ✍[email protected]. uk
Rachel Burden @rachelburden
105K Followers 2K Following 6 - 9am @bbc5live Mon-Fri 'Another ass about face confused & haphazard 5 live breakfast show then' @bbcsounds email: [email protected].
Neurologist Mom @NeurologistMom
5K Followers 264 Following A neurologist, M.D. a mother of a 15-year-old girl with severe neuroCOVID/ME/CFS who has been managing her daughter's treatment at home since October2022
Lola P. Germs @LolaGerms
3K Followers 136 Following pandemic communicator 🦠 check my link tree and insta for more resources
Georgia Lambert (she/.. @GLJourno
844 Followers 947 Following Reporter at @thetimes & @thesundaytimes and researcher on The Times Health Commission Co-founder of @DisJournoForum [email protected]
Conor Browne @brownecfm
36K Followers 3K Following Biorisk consultant specialising in COVID-19 business continuity, forecasting / analysis.
World Health Network @TheWHN
16K Followers 442 Following Bringing people, science, and compassion together to solve world problems and protect health. Let's #EndThisPandemic together.
Pedagogía de Eli @PedagogiaEli
682 Followers 405 Following Creadora del método Deconstructivo. Repescando mi cuenta perdida. I'm back.
Dormouse @DormouseDoodles
307 Followers 208 Following Nocturnal species known for long hibernation. Drinks tea and draws things. Learning to live with #LongCovid since 2020
David Joffe PhD, FRAC.. @DavidJoffe64
15K Followers 2K Following Respiratory Physician with expertise in NIV Sleep and Respiratory Failure. Visiting Medical Officer. Intelligence Group Respiratory ACI. Advisor to WHN for LC
🚨Join #MyMaskMyVote Last year, masked Clinically Vulnerable voters were disenfranchised. Tomorrow, only one area is trialling simple changes. Request: ✅️ ID check outside ✅️ Masked official (bring a spare) ✅️ Improved ventilation inside Photo & share your experiences
Jesus Christ. How can to get it that wrong and then call it a “Fact Check”?!
The article suggests that #LongCovid cases for at least 12 weeks have dropped from 2.7% of the population to 1.9% in a year - WRONG! Please issue a clarification @theipaper inews.co.uk/news/science/h…
Prof @MichaelRosenYes couldn't bring himself to read the patient diary from his 48 days in ICU after contracting COVID-19 until he sat down to record the audio of his book. In this clip, he describes to @doctor_oxford the humanity he discovered when he finally came to read it.
Which evidence-based treatments exist for ME/CFS, Paul? How much are you being paid to harm millions of people? Boy, I sure wish I could go on island holidays, too!
NICE ME/CFS Guidance is a failure of patient involvement. They remove hope and the possibility of recovery, and as such is harmful to public health. Patients are denied access to evidence-based treatments. youtube.com/watch?v=4qMpaA…
@annesmithmcc @Saffiya_Khan1 @LongCovidSOS Having Covid once in January 2021 was bad enough for me and I would imagine that any rational person would wish that they never get it.
@annesmithmcc @Saffiya_Khan1 @LongCovidSOS At my office I still get the odd look because I still wear a facemask and open all the windows at the start of my shift and turn on the HEPA filter. Thanks to Covid I have lactose intolerance and the wives of two coworkers have neural and hearth damage.
Irish Mirror: 'Shamrock Rovers star breaks silence on 'horrible year' battling Long Covid' 'His heart would race whenever he attempted to push himself...' irishmirror.ie/sport/soccer/s…
Please please tell everyone you know that symptoms are by definition self-reported. There is no other way to assess them. As the dictionary says, they are feelings. You can’t feel on behalf of other people through ‘objective assessments’. They must tell you how they feel.
@LongCovidSOS What about the next infection? And the next and the next…? That’s what I never understand about the celebratory recovery stories 🤷🏻♀️ It is still here, infecting ppl over and over.
@RorPreston @LongCovidSOS When all of a sudden I just get hit with a wave of sweat 😓 and my body feels like jello and l am forced to be absolutely still sit down or get into my bed 🛌 where I am unable to do anything but pray and cry 😢 😭 it is too intense and you feel helpless
Congratulations @EmmaTouizer on her Dean's Research Prize @ucl 👇
Huge congratulations to our PHD student @EmmaTouizer, a People's Choice winner at the Dean's Research Prize event for her Postgraduate Research Presentation on The Impact of B Cell Phenotypes in HIV Infection on Antibody Responses👑ucl.ac.uk/medical-scienc…
The reason many disabled people lose PIP or DLA when they start work is because DWP and their assessors automatically assume a person who can work can't be disabled enough for disability benefits. Getting rid of this prejudice would be transformative.
'We know the benefits bill is staggeringly high' Labour's Ellie Reeves spoke to #BBCBreakfast as the Government unveils reforms to personal independence payments (PIP) as part of plans to overhaul the disability benefits system bbc.co.uk/news/articles/…
what the fuck are the handcuffs for? For the 100th time it is NOT illegal to claim asylum (and I don't care about any new international law breaking laws parliament may have passed saying otherwise)
The (astonishing) images accompanying this press release are telling a very particular story - very tough indeed on immigration
So people can have LC (however that’s reported) but no one ‘has self-reported LC’ as if it’s a subcategory or different entity to ‘real’ LC. You can say ‘prevalence of self-reported LC’ as that’s describing the method upfront but don’t say …% of people have self-reported LC. Ta.
Can I just say that there’s no such thing as ‘having self-reported Long Covid’‼️ #LongCovid can be assessed using self-report in surveys. But if you think about it, even LC diagnosis from medical records is essentially a product of people reporting their symptoms to their doc.
Just got my order of @SFdirewolf Disability Intimacy 🤓 — the longer I live with #LongCovid & disability, the more the mission of @DisVisibility feels so critical to everything we’re fighting for. Asserting our experience into our culture is so key to changing minds.
How do all the people suggesting Long Covid “iS tHe JaB” explain all the people who became chronically sick after SARS in 2002 - 2004? There was no vaccine. I can’t wait for the responses. pubmed.ncbi.nlm.nih.gov/36873427/
For people with #MECFS & #LongCovid, what for you defines a 'crash'? It's a term we use too at Visible (and I use myself) But given it's a term that's 'emerged', would be great to understand how people think about it 🙏
📢 SPREAD THE WORD - WE HAVE STARTED👍 So excited 😊 🌟 #PHOSP_I Tozilizumab for inflammatory #LongCovid non-hosp & hosp @NikkiS_MCSFS @JennyBunker @long_covid @PHOSP_COVID 🌟 1st participant randomised 🙏 doi.org/10.1186/ISRCTN… 🌟 15 UK sites phosp.org 👇
Great to welcome @bbcemt to cover research carried out by the @PHOSP_COVID team here at the #NIHRLeicesterBRC, including a new study seeking to find the first medication to ease symptoms of inflammatory #longcovid. 📺 You can watch it here: bbc.co.uk/iplayer/episod…
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