Long Covid Kids - #LongCovidKids @LongCovidKids
UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI longcovidkids.org UK Joined September 2020-
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How do the media portray #LongCovidKids. Charity Founder @SammieFMc collaborated with @Dr2NisreenAlwan and @ChloeConnor7 to find out.
How do the media portray #LongCovidKids. Charity Founder @SammieFMc collaborated with @Dr2NisreenAlwan and @ChloeConnor7 to find out.
#Longcovid is mentioned!
#Longcovid is mentioned!
Looking forward to this event in June & meeting new parents & patients. Am honoured to be hosting a 1.5hr workshop (in my role as Irish rep for @LongCovidKids charity). June 8th Mater Dublin Virtual & in person 25 euro (Note: patient groups are not being paid to present etc).
Looking forward to this event in June & meeting new parents & patients. Am honoured to be hosting a 1.5hr workshop (in my role as Irish rep for @LongCovidKids charity). June 8th Mater Dublin Virtual & in person 25 euro (Note: patient groups are not being paid to present etc).
Latest UK data for self-reported #LongCovid for England and Scotland A rise in cases, despite the removal of access to testing and vaccination. Long COVID is damaging public health!! We need urgent investment to continue our response to a pandemic that is not over!!!
Latest UK data for self-reported #LongCovid for England and Scotland A rise in cases, despite the removal of access to testing and vaccination. Long COVID is damaging public health!! We need urgent investment to continue our response to a pandemic that is not over!!!
Can’t wait to talk to PSI Neuropsychology later today about addressing cognitive changes in #LongCovid. I’ll be talking about recognition of cognitive changes, PEM, impact on work and school and the use of strategies and technology to support daily life. Busy week after #ICIC24!
Can’t wait to talk to PSI Neuropsychology later today about addressing cognitive changes in #LongCovid. I’ll be talking about recognition of cognitive changes, PEM, impact on work and school and the use of strategies and technology to support daily life. Busy week after #ICIC24!
#LongCovid is a chronic illness. It’s relentless and unforgiving. One day - all #LongCovidkids will realise how hard it’s been and how brave they are. Last night though - @NPTCouncil honoured this young lady for just that - overcoming adversity and not letting it define her
People with Long Covid regularly ask 'how will reinfection with Covid affect me?' We & @LongCovidKids addressed this in our 2022 reinfection survey but we need new data to understand it as SARS-CoV-2 evolves We welcome @visible_health new reinfection study, take part if you can
People with Long Covid regularly ask 'how will reinfection with Covid affect me?' We & @LongCovidKids addressed this in our 2022 reinfection survey but we need new data to understand it as SARS-CoV-2 evolves We welcome @visible_health new reinfection study, take part if you can
I just nominated @LongCovidKids it would be awesome 😎 if you did too. £5000 could help the team support more families in crisis or create new resources. One click 🤞 🙏 👏 #LongCovidKids #LongCovid health.movementforgood.com/index.php?cn=1…
What an amazing session we had today! Join us next week for more choir fun! @LongCovidKids @lornaeglasgow @fizzywaterlady #LongCovidKids Thank you @Frankie_Morland for popping by to show us how our song is coming along. It sounds amazing! @Fieldbrass
Long Covid Kids Founder @SammieFMc asks researchers where is the child’s voice in your research. #LongcovidKids
Long Covid Kids Founder @SammieFMc asks researchers where is the child’s voice in your research. #LongcovidKids
Huge congratulations to Rosie. #LongCovidKidsCan
Huge congratulations to Rosie. #LongCovidKidsCan
Report on Airborne pathogens - such as SARS-Cov-2 that causes Covid-19 that can go on to cause #LongCovid. More support for the call for #CleanAir and #LayeredMitigations
Report on Airborne pathogens - such as SARS-Cov-2 that causes Covid-19 that can go on to cause #LongCovid. More support for the call for #CleanAir and #LayeredMitigations
Listening to the brilliant @BreathewellPT at the @UofTCOVIDRehab in Toronto!! Setting out the science & the facts that #longcovid is NOT deconditioning nor is it psychomatic or kinesiophobia. Great insight & recommendations on how to recognise LC in practice! Inspirational 🙏🏼
LCAI Co-founder and Irish rep for @LongCovidKids, @SarahOC_MECFS speaking about how #LongCovid is impacting children in #Ireland and the urgent need for specialised care at yesterday’s Health Committee hearing
Published today 🚨 Barriers to healthcare access and experiences of stigma: Findings from a coproduced #LongCOVID case-finding study onlinelibrary.wiley.com/doi/10.1111/he… @Dr2NisreenAlwan @DrMark_Faghy @doctorasadkhan @drclairetaylor @ClaireHastie1 @Geraint6Jones @amibanerjee1 @LongCovidKids
Published today 🚨 Barriers to healthcare access and experiences of stigma: Findings from a coproduced #LongCOVID case-finding study onlinelibrary.wiley.com/doi/10.1111/he… @Dr2NisreenAlwan @DrMark_Faghy @doctorasadkhan @drclairetaylor @ClaireHastie1 @Geraint6Jones @amibanerjee1 @LongCovidKids https://t.co/a2Ht6C5mR6
Thank you so much for speaking and raising awareness #longcovidkids
Thank you so much for speaking and raising awareness #longcovidkids
A NEW & important study aiming to determine how UK #media articles characterise #LongCovid in CYP. #LongCovidKids #MindYourLanguage
A NEW & important study aiming to determine how UK #media articles characterise #LongCovid in CYP. #LongCovidKids #MindYourLanguage
The @covidinquiryuk has the job of identifying, listening & relying the experiences of children & young people. Children living with #LongCovid come under all categories identified. #LongCovid is a pandemic injury. I hope enough CYP with LC are heard @Jane_Ryan_ #LongCovidKids
The @covidinquiryuk has the job of identifying, listening & relying the experiences of children & young people. Children living with #LongCovid come under all categories identified. #LongCovid is a pandemic injury. I hope enough CYP with LC are heard @Jane_Ryan_ #LongCovidKids https://t.co/licGiwam9S
/1 The Inquiry will begin to hear from hundreds of children and young people about how the pandemic affected them as our Children and Young People Voices project gets underway. Find out more 👇 👇 covid19.public-inquiry.uk/news/hundreds-…
Save the date! Live Wednesday 17 April 6pm BST Fireside chat Dr Binita Kane & Helen Oakleigh present "The Long Covid Clinic - What You CAN Do". In partnership with Long Covid Support. Micro-pacing for recovery, @BinitaKane talks to Robin McNelis @robinthephysio #LongCovid
Dr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views ownLisa (she/her) 🏳�.. @Sandyboots2020
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120 Followers 951 FollowingDr Elisa Perego @elisaperego78
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8 Followers 26 FollowingF░R░E░E░ P░.. @joaquinlife
20K Followers 11K Following Ran for Congress Southeast LA #CA42 🤖 Engineer 🤝 Organizer Now: @theacecoalition @speakupamerica_ @greenzoneactnow @laist Alum: Biden ‘20, CORO, Obama ‘08Fatima Patel @EditorASNews
4K Followers 1K Following When all think alike, then no one is thinking. Publisher | Editor | Columnist | Entrepreneur @AsianSundayNews #AsianStandardNews @WeAre_IWFshabnam mahmood @shabnammahmood
6K Followers 1K Following BBC News Reporter - TV, Radio, Online. Tweets mine. Retweets mine too. Instagram: shabnambmahmoodMarium Zumeer @Marium_Zumeer0
164 Followers 163 Following Service to others is the rent you pay for your room here on earth ✨- Mohammed AliMitch Lafon @mitchlafon
53K Followers 2K Following Keeping rock Alive! One post at a time. BON JOVI - Forever (coming soon)Gillian Smith @GillianSmith16
890 Followers 930 Following Former head of social research and evaluation DfT, & other senior social research roles in Whitehall. Love wild gardens, cats and tennis. CEV family memberJournal of Infectious.. @JIDJournal
8K Followers 10 Following In publication since 1904, JID is the premier global journal for original research on infectious diseases. JID is an official journal of @IDSAinfoTom Parker Bowles @tomparkerbowles
39K Followers 4K Following Cooking and the Crown-Royal recipes from Queen Victoria to King Charles III. Released 26th September 2024. Instagram tompbowlesTinaC @TinaCoope
1K Followers 2K Following Education Lead for PANS PANDAS UK, former SEND teacher, Nurture, trauma informed, compassionate, adaptive approaches.Svein Tveitdal @tveitdal
378K Followers 287K Following Most Relevant Daily News: Climate Change, Renewable Energy & Nature. Director Klima 2020, former Assistant Executive Director UNEP. Contact: [email protected]Rebecca Joy Bingham �.. @GoBrilliantly
2K Followers 5K Following #PublicHealth dot connector and humanizer who writes. #Cellist #Neurocurious 👀 #Tip? DM☎️Sarah Ma @SarahMa75863863
31 Followers 113 Following Former academic, social scientist, and mom/caretaker to two kids, including one housebound with long COVID since 2022Jim Blair Think diffe.. @jimgblair
7K Followers 5K Following ConsultantRNI(L)D @westlondonnhs Patron @DanceSyndromeUK Ass/Prof @NursingKingston Chair @RCNLondon F2PPanelMember @nmcnews Director/Trustee @LDNCharityFound him! @Voa1234 👏👏👏👏 THANK YOU for highlighting what the govt and media are trying SO hard to hide. #LongCovid #LongCovidKids 💚
“The language that we use… even in the question ‘Do we have a sick note culture?’ It’s cruel” Chair of the NHS Confederation Victor Adebowale says the use of “performative” language needs to stop, and the government should show more "compassion" #bbcqt bbc.in/4b8DVY2
@LongCovidKids Victor was amazing on many issues and it was so good to hear someone say actually Long Covid out loud.
@LongCovidKids Thank you Victor Adebowale!!🙏🏻 This needs to be said clear and loud @bbcquestiontime No #SickNoteSunak culture @RishiSunak It's #LongCovid #LongCovidKids
EVENT.. June 8th, #LongCovid conference hosted by Dr Lambert in Mater Dublin. Can attend in person/virtually. 25 euro per ticket Covers LC in children & adults @LongCovidKids will be hosting a workshop at it (LCAI co founder Sarah O'Connell w Kirsty Stanley LCK Health Lead & OT)
@bbcquestiontime Victor Adebowale was one of the best guests you have had on Question Time #bbcqt . He spoke with knowledge, intelligence, insight and compassion. #BeMoreVictor
“The language that we use… even in the question ‘Do we have a sick note culture?’ It’s cruel” Chair of the NHS Confederation Victor Adebowale says the use of “performative” language needs to stop, and the government should show more "compassion" #bbcqt bbc.in/4b8DVY2
The link to the recording from last week's (April 17th) Dail hearing on #LongCovid is now available on the Oireachtas website for those who might be interested and have missed it. Myself & 3 colleague's spoke to the Joint committee on health. #LongCovidKids
Recording of last week's Dail hearing on long covid is now available on the Oireachtas website at the below link.. #LongCovid #Ireland oireachtas.ie/en/oireachtas-…
Can’t wait to talk to PSI Neuropsychology later today about addressing cognitive changes in #LongCovid. I’ll be talking about recognition of cognitive changes, PEM, impact on work and school and the use of strategies and technology to support daily life. Busy week after #ICIC24!
Ciara Breen, an occupational therapist, describes the importance of thinking about cognition in #LongCovid. #LongCovidPhysio #LongCovidAwarenessDay #LongCovidAwarenessDay2024 #COVIDPersistente
The day after the awful Rwanda bill passed, I get the perfect antidote. The 1st refugee we ever hosted 7 yrs ago just texted to invite me to his citizenship ceremony. At least he is here, and safe, having found community & steady work. Thanks to @RefugeesAtHome for all they do
Vote for @LongCovidKids Thinking about chn experiencing the pain of #LongCovid genuinely makes me cry. As does thinking about their parents and families who have to stand by helplessly and watch their child suffer. Support if you can 💚🙏
I just nominated @LongCovidKids it would be awesome 😎 if you did too. £5000 could help the team support more families in crisis or create new resources. One click 🤞 🙏 👏 #LongCovidKids #LongCovid health.movementforgood.com/index.php?cn=1…
But some very positive news. Rosie has been offered a place at @BelfastSchArt starting in September! 4/n
FYI - two of our members were unable to wear masks whilst speaking due to health conditions. This was noted at the start of the meeting & respirators were worn by all when not speaking. Members also confirmed indoor air quality ahead of the day (10 ACH with fresh outdoor air!)
Very grateful for the opportunity to support these ladies (and @wastelessme) in the Health Committee hearing on #LongCovid this morning. So proud of all of the @LCAIreland team, including those working behind the scenes that helped make today a success ♥️
Looking forward to connecting with people from all over the world - tonight at 7pm BST with @ClaireHastie1 @long_covid #LongCovid #LongCovidChoir #Connect
We are meeting tonight at 7pm BST! Join us for a 45 minutes of breathing, connecting, vocalising, singalong fun&an optional chat at the end of the session. Our repertoire will be very varied...as always 😄 There'll be a sprinkle of sunshine for sure☀️longcovidchoir.org/join-us
All Too Well (Ryan and Emily’s Version) !!! Watch me accidentally catch myself singing this version on tour. This monologue is EVERYTHING 🫶🫶👏👏
Ryan Gosling's monologue!
The struggles I'm facing. The chances I'm taking Sometimes might knock me down, but No, I'm not breaking. Join our lovely choir this Sunday@5pm GMT @LongCovidKids @KinderenLC #LongCovidKids #LongCovid #singing #choir #connection longcovidkids.org/service-page/l… youtube.com/watch?v=o6Os-J…
@LongCovidKids Sending healing vibes your way @SammieFMc and @HelenMMGoss 💫🫂