Lili Bell @LiliBell84
Christian, ME 17ish yrs, Autistic. I’ll always give a hug to anyone who needs one 🫂. United Kingdom Joined October 2017-
Tweets5K
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Followers775
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Following2K
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Likes58K
I never knew the Great White Egret had a green area on his face!
I never knew the Great White Egret had a green area on his face!
@norrlands_gull @staaland01 @elonmusk You can donate to my birthday fundraiser here: spot.fund/FindACureForME… Or you can donate directly to Ron’s lab by following the directions on my website here: whitneydafoe.com/donate
PEM is NOT just malaise/exhaustion/symptoms after exertion. PEM IS A DETERIORATION IN THE VERY DISEASE PROCESS THAT DRIVES #MECFS !!! This is why it is so dangerous and can make you PERMANENTLY more disabled!!! Cancer doesn’t spread/PwMS don’t loose more myelin from exertion!
Berkeley’s Crowdfunding Spring 2024 in support of Dr. David Tuller’s project “Trial by Error” is now open for donations. Dr. Tuller’s work on #MECFS, the #PACEtrial, and related subjects has been invaluable. If you can afford to donate, please do so! crowdfund.berkeley.edu/project/42302
AstraZeneca is #Trending News this week in UK. Many people have asked what VITT is - Info here england.nhs.uk/coronavirus/do… Friend Alex Mitchell @ake2306 had VITT & is with @Nohj_85 on @PatrickChristys show TONIGHT 10.15pm @GBNEWS - @VIBUK1
TONIGHT 10.15PM @GBNEWS @BringTheNoise_X & myself will join @PatrickChristys to discuss AstraZenecas "rare" side effects & the devastation these injections caused And 11wks on from swearing on Live TV to help we're hoping @RishiSunak watches - We're not going away Rishi!
I’d been wondering if there was a way to support @TheChronicColab this will be a great way to do it 💪🏻 #MEAwarenessHour
I’d been wondering if there was a way to support @TheChronicColab this will be a great way to do it 💪🏻 #MEAwarenessHour
TONIGHT 8PM: We're pleased to say we're launching our website during #MEAwarenessHour TONIGHT at 8pm. This is a project that everyone can be involved in - so we hope you'll be online later today for the launch #MEcfs #EDSAwarenessMonth #SaveCarlasLife thechroniccollaboration.com
Last day to vote for Jessica's book! Only takes a min to do but helps a lot. #PwME #MedTwitter peoplesbookprize.com/summer-2023/a-…
If you have 30 seconds to spare today, please sign this open letter to Sajid Javid for people living with #ME...👇✊️ openletter.earth/sajid-javid-pl…
This is a VERY important letter we need signing on behalf of #BringMillieHome #SaveCarlasLife & #Karen Please sign & share NOW Debate is 1st May TY openletter.earth/sajid-javid-pl…
We only have a few days to sign before the #MEdebate so please share so we can gather as much support for #severeME as possible. Don‘t forget to confirm the open letter and check it isn’t in your junk mail. #getmilliehome #savecarlaslife #ExposeMEnow #MyalgicEncephalomyelitis
We only have a few days to sign before the #MEdebate so please share so we can gather as much support for #severeME as possible. Don‘t forget to confirm the open letter and check it isn’t in your junk mail. #getmilliehome #savecarlaslife #ExposeMEnow #MyalgicEncephalomyelitis
WESTMINSTER HALL DEBATE ON #MEcfs As promised please find below an open letter everyone can sign asking @sajidjavid to raise #BringMillieHome #SaveCarlasLife & more during 1 May's debate We will send it on 30 April. So get involved and get signing. LINK with a CW - suicide:…
#FridayFeeling Fancy a discount code? Code: LOVEIT10 craftymissbcrafts.etsy.com Quality handmade gifts, wall art, jewellery & homewares.
As it's Friday, I'm asking all my followers to please retweet this post if you see it, to help my bird account be seen!🙏 To make it worth sharing, here's 'The Watcher'... a Barn Owl on the Somerset Levels. 😍🦉 Thank you very much! 😊🐦
Please look into this @Starbucks @StarbucksCare #Starbucks
Please look into this @Starbucks @StarbucksCare #Starbucks
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Jo @cfs_jo
3K Followers 1K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Also on Insta as JustJoHere and BlueSky as JustJo
Alisontomyradio @arisonsned
3K Followers 5K Following ME MCAS Lyme.Still with humour.Satire Music.Dream of life without illness. Wanna ride my bike. Cat & Dog Botherer.YP Counsellor retired. Retweet not endorsement
Paula Knight @Paula_JKnight
6K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
Sibylle Dahrendorf �.. @sibylle_berlin
6K Followers 3K Following Once a filmmaker now stuck in horizontal hell | #SmallFiber #BigPain #POTS #MCAS #CCI #Lyme #FQToxicity #ME I Stop denial of #ComplexChronicIllnesses I
Ben H @benh_mecfs
6K Followers 3K Following ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former: biochemist in training, Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Bridget O'Shea @Bridget_OShea
2K Followers 2K Following Certified medical #writer, enthusiastic #journalist, cat mom, @UChicagoProEd, ME/CFS patient. Freelance journalist. Available for medical writing and editing.
Hillary Johnson: jour.. @oslersweb
4K Followers 953 Following The Why "Delicious" "Devastating" "Indispensable" Reimagining Ruth "..has a raw power" Osler's Web "A relentless, meticulous, highly persuasive expose."
ME Foggy Dog 💙 @MEFoggyDog
7K Followers 4K Following Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - https://t.co/TNEwofcNnm
All of them snollygos.. @OnlyEnnui
3K Followers 2K Following @onlyennui.bsky.social Ex philosopher. #MEcfs activist #hEDS. spinal injury, prescribed benzo withdrawal = hell Expect swearing & sarcasm
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
Crafty Miss @CraftyMissB
5K Followers 3K Following I'm Beth, embroidery & craft are my buzz. #socialist #pwme #disabled insta: thecraftymissb https://t.co/H4UqOa9igd
Daniel McMorrow @DanielMcmorrow
361 Followers 857 Following Haringey Council have pushed me passed breaking. They are incompetent.
Barbara @vorsebarbara87
192 Followers 3K Following
Leanne S @Le8nne_s
792 Followers 1K Following Postgrad student 18 years deep into ME/CFS. Retired football and futsal player. Queer. Music lover and cat mother. She/Her.
PZ @pzneedsrest
991 Followers 817 Following Music🎶 Film🎞️ Investigative Journalism🧐 and Hot Chips🍟 Happiest by the sea 🌊 Living small as a #pwME #MillionsMissing 👻
citizens2022committee @c22cuk
3K Followers 4K Following citizens2022committee was formed by UK Citizens to enable greater control over Government by its Citizens. our email is - [email protected]
Dee @po_move
2K Followers 2K Following Mental health, inequality & disability. Long covid research & treatment. #LongCovid #MCAS #POTS #MECFS #vaccineinjuries #FBLC
Beth Brown @BrownBeth92423
0 Followers 5 Following
Hannah Sharland @h_sharland
530 Followers 2K Following Staff writer for the Canary. Covering climate and ecological crisis. Climate activist. Here to learn about climate justice. She/her. #ME #CFS
reann @redpepper1011
6K Followers 5K Following #disability awareness is everything..❤️ truth matters .. fighting for the truth - https://t.co/l9bPFjpUMU
Alex @A_Wattsername
142 Followers 375 Following 🎶Use your voice every single time you open up your mouth🎶
zorgvoorme @Zorgvoorme
347 Followers 699 Following https://t.co/gv6R7aK2EF Here for 1 reason: me awareness! Hier voor 1 reden: aandacht vragen voor me/cvs. Meer biomedisch onderzoek en meer zorg wereldwijd!
Michelle Sairsel ✊�.. @MichelleSairsel
1K Followers 3K Following
Kinsley @5uhw4fmjz
0 Followers 137 Following Crypto Honey Claim $HNYAI tokens worth 1,000 SOL! Follow & submit your SOL address: https://t.co/FCU5DHhfQG Event Dates: May 1st-5th
Jen W 🇪🇺 🇬�.. @stuckatlights
1K Followers 2K Following "Democracy must be something more than 2 wolves and a sheep voting on what to have for dinner." Politics, health/ME,animals, music.. @[email protected]
Vampirical Critter �.. @dejectedvole
161 Followers 411 Following 天台-𝔄𝔫𝔤𝔩𝔬-ℭ𝔞𝔱𝔥𝔬𝔩𝔦𝔠-शैव-शाक्त spiritual accelerationist | DIY medicine enjoyer | wheel-turning anarch | meridionalist
Joan Crawford @joan_crawford1
281 Followers 1K Following
Lou @loulabelleHK
207 Followers 2K Following #pwME since 2020 | stuck in a venlafaxine tapering hell haze | lover of cats/animal/funny videos or anything else that makes me belly laugh
Maddox @Zelti_moon
118 Followers 700 Following WEAR A MASK 😷| #LongCovid Since 2022 | #ME #POTS #MC #ABDL #Hirschsprungs | Autistic, Anxiety Ridden, Somehow Managing🌻 | they/them 🏳️🌈
Fiona Wood ♿️💙.. @fionangreg
417 Followers 809 Following Wife, mum, Christian pwSME/CFS, FND, ME & FND Advocate. Observe small things, don't rush, love & forgive ❤️ #chronicillnesswarrior #loveyourself #loveothers
Alison Nolan @AlisonNolan9
2K Followers 2K Following Has a few biology degrees, did a virology PhD. Zero covid zealot™ Hard-line scientist© Covid avoider. #MECFS
Sarah Barker @SarahBarx035
27 Followers 132 Following
♥ Sarah ♥ @SaZzzby
798 Followers 3K Following Mum of two, disabled by a chronic illness and ignorance, just trying to make the most of life! Passionate about equality issues, inclusion, access.
Sherbert🍋 💙 @bath_ms
855 Followers 2K Following #pwME (she/her). Managed by my cat Rowan. also @[email protected]
HopeStarMasacre @MscreStarHope
2K Followers 3K Following its alright… im just dying is all…// writer and performer of the theatric kind // disabled as fuck with #LC #ME #POTS #MCAS & more // antizionist ✡️ 🇲🇽🏳️⚧️
#FreeAssange @fascismcantwin
280 Followers 1K Following My body is materially disabled. MECFS, EDS, & more.
Nav Shaikh @shaikh_nav
479 Followers 2K Following Confirmed Diagnosis: -M.E.(cfs) 2004 -M.C.T.D. -Lifelong Lupus(SLE) -Primary Raynaud’s -G.E.R.D. -Klinefelter Syndrome -P.E.G. feeding tube (July 2023) & more!!
fiarh @fionarh289
47 Followers 374 Following Speak 🇫🇷 & 🇩🇪, love crisps & dips, have Long Covid & PoTS
karrie s @karriepink
2K Followers 5K Following Love the Jazz Hands when I Talk! Colour is Life- Artist /Director Consultancy Co. Cared4 mum W/Alzheimer's/Sepsis.Am #LongCovidHauler sinceMarch 2020 #MECFS
Elisabeth Klaar | Oak.. @lammas_leaves
1K Followers 5K Following Marketing for SMEs and NGOs. WordPress Cambridge co-organiser. Mentoring & Tuition: WordPress, Marketing. #CambridgeLocalShops
sophia•of•the•C.. @DSEDunn
2K Followers 5K Following Psych clinician (30yrs) practices: interpersonal neurobiology; rinzai zen. Death Shaman. Bi WOMAN 💜🤍💚🏳️🌈Lupus Warrior, LC @LeopardGizmo.bsky.social
i woke up @killedbyclowns
35 Followers 779 Following
Luke ♱ @lukeappleton
13K Followers 12K Following Jesus Christ died on the cross for our sins and three days later rose again that we may enter into the Kingdom of God and dwell there forever. #Maranatha
Steve Chalmers @FStevenChalmers
1K Followers 3K Following Let's tear down silo walls in the data center. Spent a decade each in servers and storage, then networking. Consultant to Daedaelus Corp. Retired from HPE.
Laura vs ME ♿ 🏳�.. @LauraCayuela7
402 Followers 311 Following Paciente de #EncefalomielitisMialgica muy severa. Luchando desde mi cama por nuestros derechos 🛌🏻📢 Investigación, formación y reconocimiento
BaziaZeb @BaziaZeb
661 Followers 2K Following Live Authentically. Cmplicted by chrnic dis-ease. 23 yrs w #MyalgicEncephalomyelitis, Covid Competent
Sarah @SarahLizzyLou
2K Followers 2K Following She/her. Physio student on hold since #longcovid #MEcfs Oct 2021. 💙 our NHS. Former neuro-rehab assistant. #CognitiveDysfunction 🧠♿️ #FBLC
廖春玮Liao🇵🇸.. @liaochunwei3333
58 Followers 180 Following ME/CFS, diagnosed after almost 20 years of illness, gets worse after COVID-19,need wheelchair to travel. (her/him/them/I don’t careヽ(。_°)ノ
EPIPOLE of Phoenix @EpipoleofPHX
1K Followers 3K Following WRITER, DISABLED, PRO-CHOICE, PRO-WOMAN, FEMINIST, ANTI-EPIDURAL,ANTI-ESI,NOZEMPIC(CSF leak, HT, migraines,EBV, spinal lipoma & BPD)LET’S GET WOMEN TALKING!
chatwithmepodcast @chatwithmepod
158 Followers 232 Following A podcast about ME/CFS brought to you by Michael Brooks - ME patient diagnosed in 2006 after Glandular Fever in 2004. Decode ME Ambassador.
Katie As @ka_ashy
1K Followers 2K Following arty activist spirit, chronically ill, lesbian, she/her. UK. #LwiththeT @pwME I still don’t feel safe with any healthcare professionals @[email protected]
Matt Lazell-Fairman @mfairma
964 Followers 1K Following ME patient. Spouse with LC & ME. Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.
Mary Quigley @maryeilmicdom
2K Followers 2K Following 'Pleasant lady lawyer' | Forced into retirement by complex chronic illness | Sport, history, language and humour. #Celtic 🍀
Larry Weis @LarryWeis7
405 Followers 1K Following #ME/CFS,#SFN,#Dysautonomia Owner-Commercial Insurance Agency
Dr LG @subversivepsych
4K Followers 5K Following 🇮🇪➡️🇪🇸Dr(MD/MRCPsych) BSc(Hons)Pharmacol. Not medical advice. Life on hold. SARSCoV2 04/20 #LC #MECFS #CH #coagulonaut p/t #sloth 🦥 #endmedicalgaslighting
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Wading through treacl.. @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Tom Kindlon @TomKindlon
14K Followers 581 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Christoph Ströck @cstroeckw
7K Followers 457 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Anil van der Zee © @AnilvanderZee
9K Followers 824 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 207 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Jo @cfs_jo
3K Followers 1K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Also on Insta as JustJoHere and BlueSky as JustJo
Alisontomyradio @arisonsned
3K Followers 5K Following ME MCAS Lyme.Still with humour.Satire Music.Dream of life without illness. Wanna ride my bike. Cat & Dog Botherer.YP Counsellor retired. Retweet not endorsement
Paula Knight @Paula_JKnight
6K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
mask on😷no cap™�.. @trulleyamazing
284 Followers 279 Following here to bring clarity🔮healing from LC, ME/CFS, audhd burnout, & a bunch of other diseases probably. regaining my power back, & welcoming in the rEVOLution🍉
Doug Paulley @Doug_Paulley
5K Followers 546 Following Disabled person and transport rights campaigner. 'He has a good track record' - @GBNEWS 'I think you’re German too' - @Christiane
Daniel McMorrow @DanielMcmorrow
361 Followers 857 Following Haringey Council have pushed me passed breaking. They are incompetent.
Mitodicure @mitodicure
589 Followers 57 Following Start-up with the mission to cure ME/CFS and Fibromyalgia. Follow us on LinkedIn: https://t.co/KrQ7qyxX0f
Eileen 🔊 @TurnItUp4ME
2K Followers 879 Following Advocate; Former Federal Committee Advisor, Department of Health and Human Services, Washington, DC
Leanne S @Le8nne_s
792 Followers 1K Following Postgrad student 18 years deep into ME/CFS. Retired football and futsal player. Queer. Music lover and cat mother. She/Her.
PZ @pzneedsrest
991 Followers 817 Following Music🎶 Film🎞️ Investigative Journalism🧐 and Hot Chips🍟 Happiest by the sea 🌊 Living small as a #pwME #MillionsMissing 👻
I AM MADELINE @IamMADELINEpod
1K Followers 3K Following Podcast: Madeline's struggle with debilitating disease so stigmatized, some Drs still don't believe it's real. By @AshDKelly & @byGawley #postviral #pwME #COVID
PenelopeJ McMillan @PenelopeJaneMcM
613 Followers 69 Following
S.Jones @seastarsal
1K Followers 2K Following Teacher, librarian, ME/CFS cartoonist. ME/CFS for 32 years.
Jess Plant @IAmJessPlant
6K Followers 7K Following (They/She). 5w4, Autistic & Neurodivergent, Carer, ✝️, ♿, Fat, INFP, 🏳️🌈, Left-liberal progressive socialist, Mentally ill.
Kitty (not a cat) @shamingjezebel
194 Followers 155 Following Full of inappropriate comments, jokes. Cat twitter resident. Serving in the #Captains Army. 🖤🩶🤍💜
Dee @po_move
2K Followers 2K Following Mental health, inequality & disability. Long covid research & treatment. #LongCovid #MCAS #POTS #MECFS #vaccineinjuries #FBLC
frequently horizontal.. @AislingReverdie
1K Followers 2K Following Masked in the streets, freak in the (spread)sheets. Former book worker. DM if you need N95s or RATs! (Pronouns: she/her)
Victor Adebowale @Voa1234
20K Followers 3K Following
“Sudden And Unexpec.. @toobaffled
60K Followers 174 Following Excess Deaths are Soaring Worldwide 🕊️.. Yet “Experts” are Baffled - 😶 We Share via News Sites and Social Media, Snippets of the Carnage Caused #diedsuddenly
Dr Ian Cookson @IanCookson72
942 Followers 2K Following Sport and exercise psychologist in training. Doctorate in social psychology. Opinions my own. He/Him
Dr Jay Watts @Shrink_at_Large
38K Followers 9K Following Consultant clinical psychologist/ activist/ neuroqueer bluestocking. Former Lived Experience Worker. Future failed poet. Will question ideology for cake ❤️ 🥄🎭
Autisdick ☭ 😷 �.. @hiimjakekthx
1K Followers 2K Following @Remissionbiome n=50 Participant🍳🧠 🏳️🌈. Disabled by SARS2, Marxist, jew-ish. @hiimjakekthanks priv alt. rts ≠ endorsement
reann @redpepper1011
6K Followers 5K Following #disability awareness is everything..❤️ truth matters .. fighting for the truth - https://t.co/l9bPFjpUMU
Hannah Bourne-Taylor @WriterHannahBT
15K Followers 3K Following Environmentalist. Author of FLEDGLING Lit Agent @AgentSophieL Creator of #TheFeatherSpeech a national campaign for swifts 🪶 #PassionIsASuperpower
Debbie ACSW @debbieACSW
1K Followers 3K Following 💙 Share Truth and Kindness. LMFT, Private Practioner and Mentor. UIC/Northwestern💜 🌊 Fight for Democracy cause your life depends on it. LC March 2020
Kelly @broadwaybabyto
12K Followers 2K Following Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 #SpacesHost
This is M.E. tweeting @ThisisMEtweety
617 Followers 975 Following Apparently I don’t like viruses. #MECFS as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility; #EDS #MCAS; #pwME; #ChronicPain.
HG @wordsbyHG
6K Followers 1K Following Journalist at @TheCanaryUK covering the environment and climate crisis | Also a poet | She/her | AKA Penguin Lady🐧 [email protected]
Alex @A_Wattsername
142 Followers 375 Following 🎶Use your voice every single time you open up your mouth🎶
Rosie Alice @rosie_alice_
26 Followers 58 Following
zorgvoorme @Zorgvoorme
347 Followers 699 Following https://t.co/gv6R7aK2EF Here for 1 reason: me awareness! Hier voor 1 reden: aandacht vragen voor me/cvs. Meer biomedisch onderzoek en meer zorg wereldwijd!
Michelle Sairsel ✊�.. @MichelleSairsel
1K Followers 3K Following
selena🧚🏻♀�.. @Lady_Barrington
694 Followers 921 Following ME, Fibromyalgia, join a union, anti Tory, anti mass media propaganda, views my own.
katiana mekka ❤️�.. @katiamek
1K Followers 577 Following 26. Former Architecture student dealing with severe LongCovid and ME/CFS , since 2021. . inst: k_aotic
Dan Walker @mrdanwalker
799K Followers 2K Following That tall fella off the telly, President of #EggClub and, new for 2024, the bloke off @ClassicFM breakfast
Nic Corr 🇬🇧🏴.. @Nic_Corr
464 Followers 393 Following Life in a darkened room is my reality due to Myalgic Encephalomyelitis (ME). I will never stop fighting for equal access to funding & research!
A Journey Through the.. @JourneyFog
4K Followers 3K Following Jo Moss. #MECFS, #Fibromyalgia and #MentalHealth campaigner. Loves #music & playing #guitar. https://t.co/EYGdMlzvSM. Blog; A Journey Through the Fog.
Mik. @UmmQahtanFatima
285 Followers 663 Following Disabled & not ashamed. Mama. Union Member. Revert. 🇬🇧🇴🇲🇧🇭 🇦🇪
Nikolaus Baker @nikolausbaker
1K Followers 2K Following Born in the rural Scottish village of Mauchline. Nikolaus writes a dark fantasy called GOD'S CHAIN.
Dana Parish @danaparish
37K Followers 4K Following Bestselling Author: “CHRONIC" / SONY songwriter/ Podcaster/ NYC/ @BayAreaLyme board/ N95s/ TREAT EARLY/ END GoF / anti-virus/ think 4 yourself/ @BiosafetyNow
Jennie Jacques @JennieJacques1
19K Followers 416 Following avid reader 📚 lover of science 🧪 🧬 actress 🎭 & writer ✍️ #disabilityswareness 🌻 #mecfs 💙 @bake4mecfs
Seema Malhotra MP💙 @SeemaMalhotra1
28K Followers 4K Following Labour & Co-op MP for Feltham & Heston. Shadow Minister for Skills. Co-Founder & President of the Fabian Women’s Network.
Pierre Naoum @PCCC90
109 Followers 186 Following
js castellanos @joecast50967150
784 Followers 723 Following TRUTH UNSHACKLED Ye Must Be Born Again Pro Bible. Pro Life. Pro USA. Pro Second Amendment. Anti OSAS. Anti Free Grace. Anti Calvinism. Anti Pre-Trib Rapture.
Ariane~I NEED A GI DO.. @arianek
4K Followers 2K Following Co-founder @Textillia! ✂️💕• SFU Geog • Public health/urban planning/web nerd • Sick AF #Sjogrens #Dysautonomia #IatrogenicIllness #IVIG / ♿️🌈🇦🇲🦆🐶🖖📚💌🌿
Beans 🇺🇦🙏�.. @FionaNaylor2
2K Followers 3K Following Bipolar. Lived Exp Researcher in self harm, also pharmacology. Lived Exp Volunteer @WeAreLSCFT Quality & Improvement Team. Failing Priest.
Oli London @OliLondonTV
405K Followers 3K Following 📖Author | 📺 News Contributor | 🗣️Public Speaker |📚Get Gender Madness⬇️
MaryB @MaryBro_2BOptim
5 Followers 41 Following
Joan Crawford @joan_crawford1
281 Followers 1K Following
Maddox @Zelti_moon
118 Followers 700 Following WEAR A MASK 😷| #LongCovid Since 2022 | #ME #POTS #MC #ABDL #Hirschsprungs | Autistic, Anxiety Ridden, Somehow Managing🌻 | they/them 🏳️🌈
Lou @loulabelleHK
207 Followers 2K Following #pwME since 2020 | stuck in a venlafaxine tapering hell haze | lover of cats/animal/funny videos or anything else that makes me belly laugh
@sunsopeningband Yes, but this Mitodicure company claims the central mechanism of their drug is targeting skeletal muscle, which is what they tested in their pilot study. Wonder if they've collected any evidence of how the drug affects mitochondria in other cell types in pwME? 🤔
@sunsopeningband Seems #PwME are mitochondrially & therefore cellularly impaired. It's not an organ centred infirmity, but malfunction in every cell in the body. Small wonder we feel energy-less.
Mitochondria aren’t just in skeletal muscle. Mitochondria are everywhere. ✨✨✨ (Including the cells composing the tissues within the body systems you think might be most responsible for #MECFS or #LongCovid pathophysiology. 😉) #mitochondriaNOThypochondria #TeachMETreatME
Late to the party but I've just registered. TBH, I don't 'attend' many conferences as I use most of my energy doing my own M.E work and don't have much 'spare'. But this looks very good and is not to be missed! 😊 unitetofight2024.world #pwME
Finally got around to organising my #DearMinister postcards for the #MEAwarenessDay campaign. Thanks very much to @RorPreston for organising and to @MEFoggyDog for the artwork. #MEAwarenessMonth #TeachMETreatME #SevereME #MillionsMissing #MedicalEducation #MECFS #VerySevereME
I don’t think many people understand how hard it is for someone with POTS to remain upright and function at the same time. When a POTS patient stands up the trouble begins. Tachycardia and dizziness and brain are usually the first symptoms to appear. As we stand, gravity…
West Cork, Ireland. 🇮🇪 And the sun is shining. ☀️
Great White Egret portrait. 😍 Taken last weekend at RSPB Ham Wall in Somerset. 😊🐦
@Naomi_D_Harvey Husband is looking into mobile IV. I had to lower my bed the past week in prep for aldosterone and vasopressin tests which I was too sick to go to this morning.had to restrict fluid last night for the test. now I am too crashed and cant think straight(likely low NA)
@candlelovers12 😔😢 Could adult nappies or some form of bed pan help to keep you hydrated for a bit? I’m really worried for you x
@Naomi_D_Harvey There is no help but thanks.
@candlelovers12 Oh this sounds bad, is there anything any of us can do to get you help?
I give up. I used to be able to leave the house once every few months for medical appointments. I no longer can. There is no home health care available. I can't even get my blood drawn. I am not sleeping or eating and have stopped drinking as I am too weak to use the bathroom.
Hello, new followers & old friends in #NEISvoid! 👋 Over #MillionsMissing I'll be posting & organizing themed threads based on previous discussions so we can get to know each other better & to better organize & present important ideas. (1/4)
Update Karen Gordon. "An ME specialist has written to the consultant at St Marks Intestinal Rehabilitation Unit in support of Karen receiving remote setting up of home TPN while she is in the hospital she is in now (Conquest Hospital)." #VerySevereME change.org/p/save-karen-g…
All those years. When I thought it must be me. When all the while, it wasn’t me, It was ME. #pwME You won’t get it until you get it. #MEAwarenessMonth
Responding to anything Prof Garner says about the fraudulent PACE trial is a waste of time. The PACE team lowered outcome thresholds so participants could be "recovered" at baseline for physical recovery--and then hid those results. That's research misconduct.
Do @actionforme want to comment on this? It is an interpretation of events but an incorrect one. @MEAssociation @MEActNetUK @MEActNet @meactionscot @SonyaChowdhury #pwME @wilshica @davidtuller1 @Huisarts_Vink
A major recent focus of mine has been running & analysing our Visible Plus effectiveness survey The results are looking really encouraging, and we're working to get the results published ASAP 🤝 Onwards! 2/2
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